Does it hurt to get in the sun with RSD
 

I haven't posted in a while. I have been working full time but not sure how much long I can hold out. The pain is so much worse. I think I over worked my hand this week. We have had a camping trip planned for a while and I am not sure if it hurts worse to get in the sun. A friend is going with plans of spending time at the lazy river. Would want to let her know whether or not I will be able to.

The touch of a sunray feels as if my arm has had petrol poured over it and set on fire.

I have heard that some have trouble with the sun, I am not one of them. I'm okay with sunshine. Interesting how we are all different. :confused:

Hi Murgir,

I'm glad you've been able to keep working and hope that you are able to much longer than you think.

My honest opinion would be to go on your planned trip and don't put another thought about how you will react to the sun.. as Vrae always says so well.. "don't borrow trouble". Every day we deal with the ups/downs of the effects of CRPS and if the sun hasn't yet bothered you, I would try not to worry about it at all. Go.. enjoy life, your friends and that lazy day by the rivers edge.. so much fun. Don't miss out because of the "what if's" it may not affect you at all - each one of us are different.

I really hope you have a blast!

I can't be in the sun too long. I get blisters. I need a hat and sunscreen and sunglasses. My eyes are also sensitive to the bright sunlight. I hope you enjoy your trip, but if I were you I would bring plenty of sunscreen, shades and a brimmed hat. Take care and have fun! With love,Renee.

I have skin burning easily and after feels my skin on fire,we all react different ,I cannot tolerated but the difference with some people is I have scs ,that implant make a such of difference ,I warm my skin,back and now abdomen so hot,sometimes now I need to wear yoga pants or short and those short cami or sport bra and avoid any type of covering on those areas,if sunlight get me,it's gets worst, I regretted many times now ,scs ,help with my nerve pain,but never will help me with bone to bone pain,I did not knew that after two months of my implant .
good luck and have fun,wear ,maybe light color clothes,sun block and drink plenty of water,also take moist wipes with you,baby wipes are ok,work for me,just to cool down,have fun and enjoy your trip.jesika

Hey Muirguir, nice to see you here again. Definitely go! And like Renee said do the common protective thngs we all should do - sunscreen, hat, sunglasses for everyone.
I have cold CRPS so sunshine is wonderful to me ( and being outdoors is always good for the soul, right Zookester?! ) :wink:
Have fun!

Iam fine in the sun but Iam very more easily able to get burnt then before the rsd so need lots of sunblock my doctors has me use a #70 sun block
everyone is different. I too would go and enjoy yourself just have good sunblock and bring some light close that covers all skin just incase you find out it effects you more harshly. Have a good trip with all we go through we all deserve to have fun when we can.

Samantha

I love the sun, but hate the breeze lol!

I actually look forward to summer. the cold winters rip me a new one, and the warm summer sun feels soooo good after a loooong cold winter. :)

From what I understand there are subgroups of warm & cold RSD/CRPS.
That may explain some of us opposites.
For me warm & sun are great, cold hurts!

I'm going to chime in with my experience.
Whenever my CRPS gives me that chilled to the bone type of feeling sitting in the sun feels great. But my neurologist and the med label says that the Amitriptyline I take makes it where I should stay out of the sun..
So now I'm in a quandary....

I say go you never know unless you try you could even bring an umbrella to block the sun :) I agree we should never let the what ifs get in our way of having fun bring music and have a good time

I am weird when it comes to sun.... I love it and then my legs hate it. At first for awhile it feels amazing but then it feels as if my flesh is burning so I have to put a blanket or towel over them. I don't know how long it takes. I think it just depends on how hot it is or the day I'm having. But the beginning is so worth it! Its like it melts my pain away. I think it is going to have to be a trial and error thing for you. Good luck.
Angelina

Muirgur - did you go camping? Let us know how you did. -Lottie

Thank you all so much. I leave tomorrow. It has been a very stressfully 2 days at work and my upper body has been burning a lot more than usual. Gonna ride around on the golf cart before paying for the water park at the camp ground. Usually ride around the lazy river. Afraid if the stress at work continues I may have to quit. No chance of remission with all the stress. I carry the health insurance for the family, always have. I have been the 32 years and love it most of the time. I will keep in touch.

I hope you had fun or are having fun. I noticed in my legs that I have about 10 minutes in the sun after that it starts to hurt like that intense sandpaper feeling. So I in and out with the dogs all day. Yes the wind can be a bit to much at times especially if it is cool out.

Ok camping was great. Wore jeans and a tee shirt the whole time. Not sure if I'm ready to face the reality about being in the sun yet. That may have been a real bummer. Didn't try the water park and was fine with that. Rode around on a golf cart with a top and it was great. No burning until Sunday after getting home, I think from just dreading trying to make it another week at work. Well the story isn't over. Got sick on Monday and was off 2 days with stomach virus v/s rocky mnt. Spotted fever! Taking just in case meds now. Found a attached tick the first day. Have all the symptoms but also the same as stomach virus. I do feel some better today so I think just a virus. At least tomorrow is Friday and I'm ready for a weekend at home. Thank you all for all the advice. I meet a friend of Less the pawn shop guy. Got a picture of her and him with his son. Meeting up her and her husband in Tunica Miss. In Sept. Y'all have a great weekend

Allen, I am so interested in ghost hunting. It is really neat what you do. I watch all the shows. I would probably be a big chicken if I were to go tho. May give it a try someday. So does being possessed mean getting someone's else's body? Haha. Just thinking ahead