Had my eeg today
 

So that was interesting. Not sure if I had a seizure or not. I figured the technician or someone wouldve of told me if I did though.

Anyways I think I was doing good, then they made me shut my eyes and started the flashing lights. Wow. I sort of remember my whole body feeling like all of a sudden I was freezing, and the right side of my body just started shivering quivering convulsing kind of thing. Weird. Not sure if thats a seizure or what not, but dang my head really really hurts right now. Especially after the hyperventilating. Said I probably wont get results till Wednesday or Thursday though, darn.

Sounds like a seizure to me... hopefully they will call you sooner

Yah im not really sure. It was almost like I was outside in the freezing cold all of a sudden. Thats how I would describe the shakes. I do know my mouth was quivering like crazy because I was trying to control it but couldnt. Before and after the light show they gave me I was feeling like I was back to normal temperature. Was really really weird, never felt like that before. I hit my head on the left back side of my head (Im pretty sure) but it was the right side doing all the weird stuff today.

Like I said, im not sure if it was a seizure or not. I know I was being recorded but the room was dark so im not sure how they could see anything. I just figured if I did have a seizure, someone wouldve told me for safety reasons, but maybe im wrong.

Glad it was recorded... sounds like something that needs to be evaluated!

It is possible that like x-rays or CT's or MRI's even when something is really bad the tech can not say anything...

Probably. Im hoping I hear sooner rather than later, but he did say being Friday and a bunch of people were off today. So, who knows!

You can't read anything into the tech's silence. They are supposed to leave results to the doctors.

Wow! Sounds rough. I hope you can rest, now.

So I read the report. Nothinh abnormal was recorded evidently. Only odd sounding thing in it was the light test causing a driving but no abnormal results.

I just find it very hard to believe. I know what happened on that table. I mean trust me im glad, but what the heck else couldve caused that. Its listed as a preliminary report so not sure what that means.

Thing thats really bugging me though its whats causing me to do all this zoning out and weird **** that i dont remember much of.

Was your test interpreted by the WC doctor? If so, you need an unbiased opinion.

No. Done by a dr at the hospital it was done at.

Like I said im happy but confused. Im just concerned the dr and work will think im lying about it when im not you know? I was maybe just hoping this was the cause/answer for the headaches and foggyness and all of that fun stuff that ive been dealing with for 6 months since hitting my head.

Did that doctor know you were a WC case?

Im assuming so? I mean I registered and they asked for insurance card and I told them it was a WC case. I mean, I think ive only actually seen one WC dr and that was the first two months. The neurologist I see isnt just a WC dr and this guy wasnt just a WC dr either as far as I know. I mean I could be wrong.

Yeah, these docs don't just see WC patients. However, they make good money off WC and IMAs for auto insurance companies. Be warned: they don't bite the hand that feeds them.

Understood. But in this case, I cannot picture them saying everything is ok when it isnt. Plain and simple I guess I didnt have one. Still no clue what caused me to act like that on the table, but hey I dont know. Ill bring it up my neurologist when he calls me with the results. My wife works for this hospital and she just pulled up my file and looked. I signed a paper a few years ago that lets her do that without getting in trouble.

I hope you're right. When I had my MVA I learned that you can't trust doctors.

I have very little sensation in my hands. I was sent for a test to measure if nerve signals were getting through. After a few minutes, the neuro stopped the test and told me that the disruption was minimal. When he left the room, the tech came over and whispered in my ear, "That's BS. Your test was awful. He screws all the MVA patients." :mad:

Also it says that during hyperventilation there was slowing in the symetric activity. Oh well, wait for the dr to tell me I guess. Im just really confused why that happened to me, but clearly if it was something crazy the eeg wouldve showed it im assuming. There is no way that quivering and shaking only on the right side of my body is a normal response to the flashing lights. No way do I believe that in the least bit.

Good for you. Believe in yourself, fight for yourself.

Well that was scary. For the past week ive been doing pretty decent as far as having what we think these "seizures" are. Just basically a few zone outs nothing major that I can remember.

On to last night, most of which I dont remember, but some I do. Mother in law came over, and wife wanted to run errands. So we went to Walmart. Guess we went there and my wife basically had to guide me around by the arm because I kept shivering/quivering and spazzing out a little. Ok. We get to the parking lot and I remember my lips just went completely numb, like I had novacane. Now heres the part I really remember, well parts of it. On our way home she said my left arm and hand kept shaking, like real bad. I remember it tightening up big time and trying to grab it with my right arm to stop it. Then I just remember my whole body tightening up and shaking uncontrollably. I remember all of it, I remember in my head telling myself to stop and get control of myself, but I couldnt. Thats where I dont remember much more. I guess it went on for about a minute and I ended up in the passenger seat in the fetal position out of breathe and really tired. I guess after that I did a few more small shaking things, but that was it.

SCARY! Wtf is going on. I know I had the eeg, but it said no seizures. Im afraid to call the Dr and tell them because I dont want them thinking im flipping nuts, especially since I had the eeg already and it was normal.

So beyong sick of all of this. Im also assuming I bumped my head in the process of this all on the seat because its throbbing today.

I am so sorry!!!

Are you allowed to go to the ER? Next time this happens I would think that may be a good place to go... you need to call the doctor and tell him...

EEG's are not the best testing machine. Sometimes it takes 3 or more EEG tests to determine wether someone is having a seizure or has epilepsy. You may just need another test.

You need to be open and honest with your Dr. If you don't trust your Dr. to give you the proper care that you deserve you should look for another one.

I assume you have an attorney? What does your attorney say about it?

http://www.epilepsymatters.com/engli...iagnosing.html

"How accurate is the EEG test?

The EEG is not foolproof. It can only measure abnormal electrical activity that occurs during the test period. Sometimes, the brain of the person with epilepsy functions perfectly normally during the test. Or the electric patterns that the device is looking for happen too deep in the brain to be picked up by the scalp electrodes of the EEG. When the EEG doesn't find anything unusual, it is common for the patient to get a continuous, 24-hour EEG monitoring in hospital. About 20% of people with epilepsy have normal EEGs, and a small percentage who don't have epilepsy have abnormal ones!"


Other related info:

http://www.webmd.com/epilepsy/electr...g-21508?page=4

Do either of you have a cell phone with video recording capabilities ? It would be good to document this to show the doctor. Also, have your wife explain what she saw to the doctor.

The fact that you were aware of what was happening means these were not true seizures.

Have you been exposed to any chemicals like herbicides or insecticides ?

Negative on being exposed.

Also i remember some but not all of it it makes a difference.

What could this be??

Hi Kevbo887,

I know how frustrating it can be to have experienced seizure-like activity and still get negative results on an EEG (3 in fact for me). My last Neurologist told me I had absolutely no seizures, and I should stop using the term altogether. This was after a 72-hr. continuous monitoring, where my rehab team actually got video of my events to conincide with the EEG.

All I know is that the Neuro. refused to make any diagnosis of what these are, and even intimated that I was suffering from stress and possibly PTSD brought on by my father's wartime experiences(?!!!). My father died when I was 9 years old, and NEVER shared his wartime experiences with me!!! Talk about REACHING!!!

Thank God I have such a good Neuropsychologist, who just isn't satisfied with no diagnosis. And she sent me back to my primary care physician to do a whole work up on all other organs / systems in my body that can possbly be responsible for seizures, other than the brain. All tests came back negative for abnormal function which could be responsble for them.

So, off to an Epilepsy Center I go. I will be grateful to get some answers and help to make these finally stop. I still expereince them 2-4 or more times a week. I hope you get to go right to an Epilepsy center so you don't have to go through what I have to get answers.(4 Neurologists and 3 EEGS).

I know that this sounds like I'm looking for someone to give me answers I want, and in part that's true. But I will accept the RIGHT answer ( true seizures vs. psychogenic seizures ) as long as I can get them to finally stop. It has been a long time ( over a year ) since these things started, and they can be severe enough to go to the ER by ambulance.

Good luck to you. Please try to get some rest from worrying about these too much. Also, I am concerned about your multiple head bumps since you began here on this site. You should go back to your physician right away and report them. Take care,
M-i-m

Well finally after two weeks of me calling and trying to talk to the Dr, im finally going back. My wife had enough after last nights incident and called them this morning, and now low and behold ill be seen early next week. She is going to be there as well to inform them whats going on from her perspective, as shes been there for around 90% of all of these things.

I was on another health board that I frequent for hypopituitarism and someone mentioned that they recently were diagnosed because they were having "non-epileptic seizures" (or psycho-somatic seizures) in the ER and it was determined by a savvy endocrinologist just before being discharged that she was experiencing the seizures due to low cortisol.

I wasn't able to find too much about it other than these two some-what relative articles:

A PHD explaining some causes of seizures in her "practice" (I'm not exactly sure what her practice entails, she is not a medical Dr.) but it might be worth further investigation for you...

http://www.wnho.net/seizures-convulsions.pdf

And this:

"When the sodium level drops too low patients may get quite sick and have seizures."

from page 13 of this:
http://www.pituitarysociety.org/publ...ismEnglish.pdf

It might be valuable for you to see an endocrinologist to get a hormone panel ordered to see if you have any deficiencies.

If cortisol gets low enough, it can be life-threatening.

Hormone deficiencies can be caused by concussions, or a concussion, which I've posted a LOT about in other threads and in some of the stickies at the top of the forum.

Hi there,

Sorry this is happening to you.

After my MVA I started with seizure like activity, ER Dr thought absence seizures but am seeing a neurologist soon. I suddenly get a shift in my brain, feel sick, everything slows down, things that should be very familiar look unfamiliar, hard to explain, and my arms/fingers shake for around a minute or two, then feel extremely tired.

I've been told there are many different kinds of seizures, some you won't remember anything and some you are aware of everything that's happening, you know it's you but can't stop it. I've experienced both.

I hope you get answers soon, you know something's wrong! it's so frustrating.

Yah its beyond frustrating. Its weird how some are so minor and some are seemingly more complex. How some I can remember and know whats going on, and others I dont remember much if any.

They happen so randomly too, there seems to be no rhyme nor reason. I just hope the doctor doesnt think im completely crazy.

Also, about the hormones.I used to see an endocronologist because of a small set of nodules on my thyroid. Last time I went (last septmember I believe) everything was in check, no growth on the nodules for over a 3 year period and never any hormone issues, but who knows, just saying.


The thing is, the first 3 months, I honestly dont know if I was experiencing this as much. I know once in a while I would remember the shakes, and randomly wake up in a weird place in my house, but I just attested it to being concussed and thought I was crazy. Then its when I went back to work that this seem to either A.) reach full steam or B.) much more noticeable because others saw it too, and it wasnt just me questioning if anything happened. Now my wife has documented all of this stuff happening, and so did my coworkers when I went back to work for that short time. Now at least I know im not crazy.

Well off to the dr in a bit. Im really nervous. Not sure why. I just feel as though people think im nuts when I have these seizure esque episodes. I hope he can comprehend that they are random and dont happen all the time. Sometimes I go days without them. Itll be nice to have my wife there with me, as shes been around and seen a majority of them. Im also slightly nervous that shes going to grill the dr, which I guess is a good thing, but last thing I want is a po'd dr trying to fix my brain.

How did it go? any answers?

None whatsoever. Literally was a waste of time. Only useful thing was being told it definitely sounds like seizures and that they are scheduling an mri.

I am so sorry!

I pray that the MRI shows something for your sake and that you find answers soon~!

So tonight I had two pretty bad "seizures" on the couch according to my wife and family that was over.

Im feeling ok now, but my wife questioned me on something. Shes noticed ive been taking Aleve for the past few months. Now, call me crazy, and maybe its nothing, but my taking of aleve seems, timeline wise, to correlate with the noticing of these seizures. Could she be onto something? Im going to stop taking the aleve immediately and see if it helps.

Just one kicker, aleve seems to be the ONLY over the counter medicine that helps the headaches.

Anyone ever heard of this before?!

It can be a blood thinner.. I wonder if that has any issues.... I wonder if it would change if you took with food?

Hmmm. I always take it with food. Like I said though, not sure if this is purely coincidence though.

I dont know, maybe im grasping at straws for the cause of this. Im still awaiting orders for an MRI. But I just want these to stop, as they seem to progressively get worse as time goes on. Before they were just small tremor like things, now my wife, and others who have witnessed them, say it starts off as one arm or leg shaking, then my whole body tightens up, veins start bulging, and I convulse pretty bad for about a minute. After words I get extremely tired, out of breathe, and my headache and head pressure double, but im usually fine in a few minutes.

Im going to stop taking aleve and see if that helps. Im almost wondering if what you say about the Aleve acting like a blood thinner, could there be a small bleed that happened after the day 1 ct scan? Maybe that could explain the pressure, the leakage I had in my ears and nose, and that pounding/pulsating feeling in the back of my head anytime my blood pressure (which I already have hypertension) rises.

Probably grasping at straws, but since my Dr is no help, I sort of need to figure this out on my own I think.

a few links I found... I googled aleve and seizures

http://braintalkcommunities.org/show...-Stop-Seizures

http://www.webmd.com/drugs/mono-1289...l&pagenumber=6

Well like I said I dont know if its Aleve or not. Yesterday I took it by accident (thought I was geabbing tylenol) and took two. Then about 3 hours later I had another "seizure." Coincidence? Maybe. I dont know, but my wife hid the aleve just to be safe.

The thing that scares me now though is before I used to get a warning sign one was coming, these past few times im not. They are so strange too. Its almost like I can feel my brain telling my body to do it, but I cannot stop it. Sounds weird I guess, but just something ive noticed in some of them. Some I remember and im aware of, others I have no clue about. The people that have witnessed them have said they seem to be getting worse each time though.

Very interesting... good that the wife hid it... hopefully it resolves... maybe you should mention to your doc

Well I guess we can count the Aleve being the cause of it out. Bah humbug.