Does anyone have increased symptoms after traveling?
 

Sorry in advance for the multi-part question...

I just got back from a trip and every time I get off of a plane, my nerves go crazy (I can't travel with CBD for legal reasons, a downside of CBD).

I am thinking about asking for some type of narcotic for these times. I live at a high altitude and I think that might have something to do with it. I have read that some people benefit from the Fentanyl patch, so maybe a low dose? Does anyone have experience with any of this?

These flair-ups can be categorized as unbearable.

Fentanyl is not recommended for patients who are opiate naive.

A person who does not regularly take an opiate, and a high dose one at that, should not start fentanyl...as severe respiratory depression can (and does ) occur, even at the lowest dose.

Thank you Mrs D!
 

I would be opiate naive since I have never taken one, so what would be a good one to start with? I think some would say none at all but unfortunately, I think it is necessary.

Percocet (oxycodone with or without acetaminophen) is a basic starting point for pain medication on an as needed rather than 24/7 basis. Not all nerve pain responds to opiates, but for those of us who do get relief it is a blessing.

Thanks very much Susanne.

Are you able to function on it, drive, work, etc.?

I am actually on 30 mg. time release morphine (MS Contin) three times a day with Percocet for breakthrough pain. My driving is not impaired by the medication, but increasingly by my weakness. I am a stay at home mom, but play strategy games, cook, and have taught high school English on the meds. It does take some adjustment and I worked up to this dosage over three years. A few Percocet to tide you over traveling should not impair you, but it is always wise to see how you react before operating a car.

Is this the same CBD that's being marketed as "legal in all 50 states"? :rolleyes: :D

Don't necessarily believe the marketing hype, folks—Caveat Emptor!

Beatle, IMO, you're doing the smart thing in not risking it. IANAL, but from what I've read/seen it's still a "gray area" legally, and not worth risking anyone's freedom for/over. I will be delighted/ecstatic if/when this is no longer true.

I think that (kind of) decision is best left to your doctor, who is familiar with your medical history, symptoms, other medications (potential interactions); who will be monitoring you, refilling the prescription, etc.

Regardless, it's often a trial & error process to find out what—and at what dosage— works best for any particular individual.

Things like driving may always be an issue, especially if we're talking about occasional use. Chronic pain patients who require round the clock medication usually normalize somewhat over time (another gray legal area), but for occasional use patients, it's similar to other substances that impair judgment, reflexes, skill, etc.

Doc

I should have clarified, I frequently travel internationally. I picture myself in a foreign country explaining "It's just a patch officer, so it's OK!" as I am being hauled away.

The CBD that I use is a transdermal patch and on bad days, I use CBD:THC patches.


I have and will continue to have conversations with my doctor but I am glad I brought it up here. My doctor has suggested the Fentanyl patch as a last resort but I am reluctant (he is too) so we have held back on that. Susanne mentioned Percocet and I know many others have it on hand as well but my doctor has not mentioned this. When I have asked him if there was anything that I could take occasionally for the roughest days when I am in absolute agony, he said there isn't anything other than Fentanyl (does anyone blame me for turning to CBD??)

I would much rather take occasional Percocet than to be on a 24-hour opiate that I don't need around the clock.

Good point.

I can't imagine why he would say something like that unless... :Ponder: (thinking as I'm typing here...) he was under the impression that you wanted to limit administration to transdermal patches. I'm thinking there may have been a miscommunication. An e-mail/phone call should be able to clear that up.

Doc

Beatle,

If you don't mind me asking what is the CBD to THC ratio you use?

I am in New York, so unfortunately it is not a legal option, but I am extremely interested in how the CBD works for people vs CBD/THC combinations that are measured. Is it just 'enhanced' with both or very different kind of relief?

I have had more rough stretches physically lately, though my mind set is as unencumbered as I think I can get. It gets tested and I am sure there is attrition taking place. I am taking 75 mg of Lyrica twice a day and tramadol as needed. Lately the need has been frequent. Long term I want something that can help on frequent discomfort that is less intrusive.

I hope you find a travel option that provides comfort.

Jon

I came to update this thread and now see that I did not reply to your question. Sorry Jon! I use both CBD and CBD/THC in a ratio of 1:1. I need to update the CBD thread as well.

Since I cannot travel with either product and have not experienced positive results with Lyrica or Gabapentin, I suffer when I travel. At one time, my doctor and I discussed the Fentanyl patch but I do not need 24/7 narcotics and Mrs D advised against it which was all I needed to want to avoid it. Since then, my doctor gave me a low dose of Percocet for travel. I do know about the risks of addition and tolerance but it works.

I never had nerve pain, until two years ago after some dental work left me a mess. Afterwards, I was dx'd with Atypical Trigeminal Neuralgia.

Driving on road trips...anything over about thirty minutes is very hard for me.

I can be absolutely fine and then I'm just NOT.

I have Percocet for breakthrough pain. A trip usually means that I'll have to take the Percocet for at least a day, usually two.

I was hoping flying in a plane would be easier. I haven't flown since the satanic dental work. It's been about two years. Now, I'm wondering....Geez.

But, I'm fortunate that my regular meds usually put me in a decent place, so the added Percocet often works. I have had flairs where it hasn't though. Sigh. (I try to concentrate on the fact that I usually can get out of a flare with the Percocet and that is a huge blessing. I hesitate to use it, but I'm fortunate that I have some available to me for emergencies and that it usually works).

I also have some neuropathy in my feet. My right foot is easily treated with OTC Capsaicin cream. It is so weird, I just have to use this stuff once in a while. So, that's a blessing.

My left foot, I've gotten three different dx's...including one neuropathy dx. My left foot is stubborn...whatever is wrong with it. It feels little tingling that hurts. Does this sound like neuropathy?

One doctor made me a compounded cream with something like five different things in it. Well, I hesitated to get the cream, but relented. It has Verapamil, Lidocaine, a muscle relaxer, capsaicin and an anti-inflammatory. Dont' remember all the names. I guess everything is covered. Voila! It works. This foot is now much better as well.

I don't know exactly what's wrong with me...but this nerve stuff is horrid business!!

I have problems from flying too. I suspect it has something to do with the flux in altitudes and oxygen that my body can't respond to, causing a domino effect. There are devices that can attach to phones that measure oxygen levels in flight. After learning about magnesium lotion, I wonder if it would help by opening vessels during the flight. Maybe breathing exercises may help as well. Just theories so far. I will be trying them out on my next long flight. I have done (mild and short in duration) aerobics after the flights in the past which seemed to help.

I have been on Fentanyl and I would not recommend them. I always felt like I was "BLITZED" As for increased pain when getting off a plane, not sure on that specifically but I know any length of time sitting aggravates my pain.

Does the CBD help? With tiny amount THC (all legally dispensed)
 

[
I'm new here. The pain started, right side, almost ten months ago. Now started on left side. Have tried various meds, no good. I lost 50% of my long, thick brown hair on Neurontin. The botox shots works the first time but not the next time. Right side face numb but usually burning around right side mouth, cheek, jaw, right side tongue burns sometimes. My taste buds are shot as I need both to taste. My capability to write (and I'm a food columnist!) is interrupted. I'm
Trying so hard and adopting very evolved attitudes. But now with the pain on both sides I can't see living. Does the CBD with tiny amount of THC help? I'm relocating to be eligible. Connecticut.



QUOTE=beatle;1079351]Sorry in advance for the multi-part question...

I just got back from a trip and every time I get off of a plane, my nerves go crazy (I can't travel with CBD for legal reasons, a downside of CBD).

I am thinking about asking for some type of narcotic for these times. I live at a high altitude and I think that might have something to do with it. I have read that some people benefit from the Fentanyl patch, so maybe a low dose? Does anyone have experience with any of this?

These flair-ups can be categorized as unbearable.[/QUOTE]

Welcome Leeleejoy. :Wave-Hello:

As with other meds, it helps some/a good many, but not all/everyone.

Medicinal Marijuana

A case for cannabis

Cannabis. A fork in the road.

Also search the archives for cannabis and/or marijuana (CBD is too short).

Doc

If you haven't tried any of the other narcotics I'm not sure you want to start with the Fentanyl patch. I haven't used that but I'm sister did and it was really strong.

Speak to your doctor there may be low doses of it.