How many people have RSD & Celiac Disease
 

Hi all
Happy Friday, hope everyone is hanging in there. SOFT HUGS. Just curious.

1. How many people on this site/forum have RSD and Celiac Disease?

2. If you have both, which came first, chicken or the egg..lol?

3. When in your life span, was your Celiac diagnosed?

I feel like there is definitely a connection between the two. I have both.

Thanks

I have both. Based on my symptoms, I've had celiac since I started solid foods. It only took a meager 34 years to get a diagnosis, which came 1 1/2 years ago now. My CRPS started a bit over 5 years ago and my diagnosis was in March. I have done a bit of reading in which some researchers seem to think that there is an autoimmune/CRPS link. It wouldn't surprise me in the least since celiac is linked to so many things already.

Thanks Adalaide

Appreciate your response. I think there is a connection for sure. And I do think RSD has an autoimmune component.

I too was diagnosed very late (which I think could be the connection) possibly. It took them about 38 years to diagnose me. I have had RSD for about 25 years. Interesting.

Have a good day
:cool:

the Rsd doesnt let up
 

[SIZE="4"][/SIZE

I have had RSD for about 5 years and over the years its gotten worse full body, ears bad, passing out, seizures, grand mals, confusion, can't remember pass events hard time communicating. Severe depression, anxiety. And ptss. I see great doc in Atlanta, ga. And is doing all he can, is just the docs in Fl. Were not educated enough onRSD. Any words of wisdom

I unfortunately can provide any information additional of what you already might had but I recently read that a diet free of gluten helps a lots so you can try it and see if you can get some relief ,after all meats are hard to digest by our system and also add pain in your joints ,I'm sure affect is some way so try gluten free and avoid red meat just in case , good luck and wish you well.from Jesika also gentle hugs as well.:grouphug:

Please, with those symptoms don't try a gluten free diet without seeing your doctor and having a blood test for celiac disease. Some of those symptoms can be associated, but then they could mean a lot of things. It is a simple blood test, and you can't be tested if you're gluten free already.

Obviously when I'm saying try to,eat gluten free is because you already know you have celiac diagnosed by a dr and is just in case , everyone is free to decide what's best ,we all try to help.
For all suffering with rsd and celiac ,I'm truly sorry we are dealing if not with only one problem with multiples at the same time ,but we have to keep frighting, never give up,with love Jesika . :grouphug:

Ps.
By the way, I did remember well that quote your closing with Adelaide , is nice Renee and I didn't patent so everyone can use it as they want to,nice ,you are also spreading the words against rsd ignorance !!

I have a very twisted sense of humor. I decided I like it enough to steal it. :p I've had to say similar things to people when I've had them comment on me using the handicapped restroom or other similarly ignorant comments.

I was just kidding but I'm so happy you are a great advocate for rsd and Celiac, always welcome and needed any advise and help,from some one who had long time experience with both conditions ,like I mentioned is so unfortunate to be dealing with more than one condition at the time , rsd alone is a hustle ,hope some relief and medical treatment can be work soon for you and anyone else with both conditions ,wish you the best and also a relief soon,with love Jesika .
I wanted to say rsd is a pain in the butt literally,well between us if you don't know , I had my scs generator in my buttocks but was so painful was removed and repositioned in my abdomen this year but the pain in my butt is still there and stronger so I don't mind any joke about pain in the butt,all applies to me,literally.

Hope we all can get relief in some way soon.:grouphug: Jesika .

Hi :)

It's a subject that's very interesting and relevant given the autoimmune direction in CRPS research at the moment. Both seem to be due to the autoimmune system not working as it should...although quite how and why is still up for serious debate!

I was diagnosed with coeliac disease about 7 years ago, at the age of 35. I'd been ill for a few years with gastro issues, but my GP refused to treat my problems seriously, did the blood tests at the wrong time, etc. Finally got there. I'm mostly used to it now, although my kids still laugh at how I smell the stuff I can't have, like a lovely fatty doughnut...mmm :p

I got CRPS 4 years ago after a minor knee operation. Since then the fun times have just been never ending. As you all know. Lol.

Good luck all.

Bram.

Bram


Thanks, I find it interesting, similarities. I had celiac symptoms for 20 + years but no one discovered it. Till finally by mistake, sort of, it was caught.

I am sorry for your RSD and Celiac. Yeah I am very used to it by now, but I do drool over some things still. It minor compared to so many other things we deal with.

I TOO got RSD from a very minor surgery to my left knee. I can barely even call it that, they did a scope and found nothing but inflamation. No surgery/repairs just a LOOK SEE and, now 25 plus years later, still dealing with RSD there and other sites/limbs.

I do believe there is autoimmune condition underlying /crossover with RSD/Celiac. Maybe one day they will figure it all out. :winky:
I had a good GF cookie the other day!!! I try to eat as healthy as possible but now and then a girl needs a treat.

thanks for your reply....

have a great day.

I guess now that I've regained such a significant portion of my health, having celiac isn't that big a deal to me. Of course, when I was diagnosed I thought it was the end of the world. :ROTFLMAO: It's actually been 2 1/2 years, not 1 1/2 years since I was diagnosed. I guess time just slipped away from me.

Cookies sound good. Baking was always one of my favorite hobbies and I'm glad I've learned to do it again. At the farmer's market I'm a vendor at, 4 booths down is a bakery that makes macarons which are naturally gluten free. I always indulge in one a week. It's heavenly. Today was salted caramel. I always close my eyes to better enjoy it, I probably look like some kind of freak. Which is really high on my list of couldn't care less. :p

Adelaide

A fellow foodie too, I do the same thing. Close my eyes if eating something wonderful to taste it better. Anything coconut is good to me. Add chocolate and BLISS! Salted caramel...be still my heart. I had to close my eyes thinking about it. :p

I like your "couldn't care less" made me lol.

I have several disorders what came first was herpes in 1987,then vitiligo 1993, then RSD 1998,then together 2003 interstitial cystitis and gluten intolerance.I have been tested for celiac but test comes back negative.
Renee

I found last year i am allergic to alot of foods, pork, rice, apples, peaches, whole milk, eggs(sensitive) , gluten sensitivite. Potatoes give me headaches. The list is amazing. So gluten is just touching it because most gluten foods are made with rice.

I have celiac and RSD.

celiac first ten years ago. rsd nearly two years ago. age 61. tons of other autoimmune diseases.

Count me in !! I was recently diagnose with celiac ,I had some gluten intolerance but few months changed to a bad allergy reacting and was hard on me but having rsd means anything else isn't as bad ,rsd keep being the worse ever ,education will be always the key and hope to learn quick,. I still made mistakes and are trying to be real careful about what and how I eat ,is hard but I'm keeping my best attitude ,do are my family,they follow my diet as well and helps when temptations are not too close to you, lol.
Hope soon be able to control and know my triggers ,that's the key ,know your triggers !!!!
Best wishes to all ,Jesika .:grouphug:

CRPS and Autoimmune
 

My daughter was diagnosed with CRPS/RSD 3 years ago. The flare ups come and go. I have never tested her for celiac but I know my daughter has autoimmune deficiencies. I am starting her on a gluten free diet to see if the reduction in gluten reduces the flare up. I am using Derma Mag lotion to treat her pain and it has helped.

That's interesting - my daughter was diagnosed with RSD about 3 years ago, and we're now looking into gluten-types of problems because of her constant diarrhea. She had C-diff last September, but that resolved (and the diarrhea is of a different type). She's in the middle of a bunch of tests now.

Hope we all find a way to deal and control our flares ,rsd and other autoimmune diseases are not good at all.
Blessings and best wishes to all, give me any tips if you have any ideas of how control environmental allergies ,please I know someone will ,thanks ,Jesika . :grouphug: