NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)
-   -   Sugar flares (https://www.neurotalk.org/peripheral-neuropathy/207656-sugar-flares.html)

Aussie99 08-03-2014 04:53 AM

Sugar flares
 
G'day everyone. I have been absent from forum for a while. I have been busy planning my wedding the last year. I was worried about having a flare up do to all the stress I was under around that time but the big day finally came and everything went smoothly.

I have been ok for most part but I have noticed that most antibiotics flare my SFPN and very recently very sweet desserts do too. Not normal foods or pasta and bread. Nor dark chocolate or biscuits. But sticky date pudding and caramel slices which are like nothing but pure evil sugar have caused a flare on at least 5 or 6 occasions. I have no known allergies and I have non diabetic SFPN. I am 5'6 and 63 kilos in pretty good shape exercising almost daily.

My PN was either caused by thyroid/metabolic derangement's or gastritis/h. Pylori infection 9 years ago. I am currently in remission from Graves hyperthyroid.

It's only been since last Xmas or so where heavy sugary sweets have caused flares. It started with Christmas pudding, and I thought it may have been the rum in the pudding?? Then I was advised that most alcohol gets burned off through cooking. I was always able to eat what I wanted to but now I am wondering if this sugar thing is an ominous sign that needs to be reported to neuro? Does it mean I may be becoming diabetic?

Any advice would be appreciated.

Hugs,
Aussie

Jon_sparky 08-04-2014 01:33 AM

Quote:

Originally Posted by Aussie99 (Post 1086860)
G'day everyone. I have been absent from forum for a while. I have been busy planning my wedding the last year. I was worried about having a flare up do to all the stress I was under around that time but the big day finally came and everything went smoothly.

I have been ok for most part but I have noticed that most antibiotics flare my SFPN and very recently very sweet desserts do too. Not normal foods or pasta and bread. Nor dark chocolate or biscuits. But sticky date pudding and caramel slices which are like nothing but pure evil sugar have caused a flare on at least 5 or 6 occasions. I have no known allergies and I have non diabetic SFPN. I am 5'6 and 63 kilos in pretty good shape exercising almost daily.

My PN was either caused by thyroid/metabolic derangement's or gastritis/h. Pylori infection 9 years ago. I am currently in remission from Graves hyperthyroid.

It's only been since last Xmas or so where heavy sugary sweets have caused flares. It started with Christmas pudding, and I thought it may have been the rum in the pudding?? Then I was advised that most alcohol gets burned off through cooking. I was always able to eat what I wanted to but now I am wondering if this sugar thing is an ominous sign that needs to be reported to neuro? Does it mean I may be becoming diabetic?

Any advice would be appreciated.

Hugs,
Aussie

Could be that the SFN is brought on by insulin resistance or a pre-diabetic condition? They are finding out that you do not have to be a full diabetic to get SFN. You could always try eliminating sugar and starchy foods from your diet.

glenntaj 08-04-2014 06:40 AM

From my expereince with neuropathy group participants--
 
--even those who do not have neuropathy caused by diabetes have reported sometimes experiencing exacerbations of symptoms after having consumed sugar, alcohol, or other foods high in simple carbohydrates.

Not quite sure why this is, although sugar and alcohol are known for being nerve irritants. It may just be that those with already compromised nerves are somewhat more vulnerable.

During my most severe acute neuropathy experience, I distinctly remember one major flare after a potluck pasta dinner. The experience was on reason I eventually went gluten free, though I have never tested positive for celiac on blood tests or endoscopy. I'm probably better off without all those flour products in me anyway.

mrsD 08-04-2014 07:13 AM

Congratulations on your wedding!:hug:

Sugar is inflammatory in general and
Skews cytokines to the PGE2 inflammatory
Side of the fatty acid chemistry.

And as Glenn points out, leads to high insulin
Levels which lead to low dips after the sugar
Is moved around.. Sugar 'crashes' and this
Disturbs the nerves too.

Sugar is part fructose and many people
cannot metabolize this well, either.

My feeling is that if something does not
agree with you, you should avoid it.

Dr. Smith 08-04-2014 08:31 AM

Quote:

Originally Posted by glenntaj (Post 1087054)
--even those who do not have neuropathy caused by diabetes have reported sometimes experiencing exacerbations of symptoms after having consumed sugar, alcohol, or other foods high in simple carbohydrates.

:Wave-Hello: As I've mentioned before, I'm one of those folks. :Doh:

I've been tested for diabetes & related multiple times—always with negative results, yet my PN flares with sugar, sugar alcohols (found in diabetic candies & other foods), and white starches. It began with only sugar, and progressed to the others within a couple years.

Whatever it is, if it aggravates/exacerbates my symptoms, I avoid it.

Doc

Electron 08-04-2014 03:20 PM

One thing that antibiotics and sugar have in common are that they both play havoc on the healthy bacterial in the gut. At least that is my understanding. The gut is quite important for the immune system, and many believe that it is quite important in general for health. Most doctors do not have this understanding. There are a large number of nerves supplying the gut, leading some to call it the 2nd brain. Why the sugar causes a flair-up, I don't know, but something to think about. Sounds like you should avoid sugar, which would be great for all of us, but I am certainly not willing to do so at this point, so I understand. Good luck.
Ron

Aussie99 08-04-2014 04:46 PM

Quote:

Originally Posted by Dr. Smith (Post 1087078)
:Wave-Hello: As I've mentioned before, I'm one of those folks. :Doh:

I've been tested for diabetes & related multiple times—always with negative results, yet my PN flares with sugar, sugar alcohols (found in diabetic candies & other foods), and white starches. It began with only sugar, and progressed to the others within a couple years.

Whatever it is, if it aggravates/exacerbates my symptoms, I avoid it.

Doc

Hi Doc,
So can I ask you what you have as a treat or sweet now?
Thank you!!

Aussie99 08-04-2014 04:49 PM

Quote:

Originally Posted by mrsD (Post 1087058)
Congratulations on your wedding!:hug:

Sugar is inflammatory in general and
Skews cytokines to the PGE2 inflammatory
Side of the fatty acid chemistry.

And as Glenn points out, leads to high insulin
Levels which lead to low dips after the sugar
Is moved around.. Sugar 'crashes' and this
Disturbs the nerves too.

Sugar is part fructose and many people
cannot metabolize this well, either.

My feeling is that if something does not
agree with you, you should avoid it.

Thank you Mrs D,
The wedding was fantastic! Afterwards we went to New York and it was absolutely the most magnificent city I have ever seen! I wish I could have stayed longer. I loved it!

Thank you for the info on sugar too!!:)

Aussie99 08-04-2014 04:55 PM

Quote:

Originally Posted by glenntaj (Post 1087054)
--even those who do not have neuropathy caused by diabetes have reported sometimes experiencing exacerbations of symptoms after having consumed sugar, alcohol, or other foods high in simple carbohydrates.

Not quite sure why this is, although sugar and alcohol are known for being nerve irritants. It may just be that those with already compromised nerves are somewhat more vulnerable.

During my most severe acute neuropathy experience, I distinctly remember one major flare after a potluck pasta dinner. The experience was on reason I eventually went gluten free, though I have never tested positive for celiac on blood tests or endoscopy. I'm probably better off without all those flour products in me anyway.

Hi Glenntaj,
I do remember you mentioning the flare after the heavy glutening. This is what's happening to me if the dessert is very very sweet. But I'm planning on changing my diet to avoid the flares anyways. As I mentioned I believe I had a 2nd assault of PN 2 years ago with a completely different pattern which put me in a worse off state for a while and I had to leave my job finally. But I started to cutout sugar yesterday and so far so good. Thank you!!

Aussie99 08-04-2014 04:58 PM

Quote:

Originally Posted by Electron (Post 1087143)
One thing that antibiotics and sugar have in common are that they both play havoc on the healthy bacterial in the gut. At least that is my understanding. The gut is quite important for the immune system, and many believe that it is quite important in general for health. Most doctors do not have this understanding. There are a large number of nerves supplying the gut, leading some to call it the 2nd brain. Why the sugar causes a flair-up, I don't know, but something to think about. Sounds like you should avoid sugar, which would be great for all of us, but I am certainly not willing to do so at this point, so I understand. Good luck.
Ron

Thanks Ron,
I am also sad to give up sugar but I think in the long run I'll be glad I did. I wish you well on your journey too.:)

Aussie99 08-04-2014 05:02 PM

Quote:

Originally Posted by Jon_sparky (Post 1087026)
Could be that the SFN is brought on by insulin resistance or a pre-diabetic condition? They are finding out that you do not have to be a full diabetic to get SFN. You could always try eliminating sugar and starchy foods from your diet.

Thank you for reply Jon. My plan is to cutout sugar and then see if I am any better. My blood sugar has always been low normal due to my hyperthyroid. But this at least I think needs monitoring to say the least.

Electron 08-04-2014 09:14 PM

Quote:

Originally Posted by Aussie99 (Post 1087171)
Thanks Ron,
I am also sad to give up sugar but I think in the long run I'll be glad I did. I wish you well on your journey too.:)

You're welcome. If you are willing to change your lifestyle, I would not be surprised at all if you improved on a whole foods plant based diet. If sugar is a problem for you then you probably also want to avoid foods with a high glycemic load. Since most vegetables contain a substantial amount of starch, I would not recommend giving up starch. You might want to look into the following doctors' publications: Dean Ornish, Joel Fuhrman, T. Colin Campbell, Caldwell Esselstyn, Neal Barnard, John McDougall.

Also, for anyone who is being failed by the mainstream disease care system, I recently discovered a podcast called Extreme Health Radio that is very interesting. Their website: extremehealthradio.com
Justin and Kate record a show 4 days a week and bring in all sorts of guests in 'alternative' medicine. There is a lot of healing going on out there, about which you won't hear from your MD.

Ron

Dr. Smith 08-04-2014 11:52 PM

Quote:

Originally Posted by Aussie99 (Post 1087167)
Hi Doc,
So can I ask you what you have as a treat or sweet now?
Thank you!!

I asked a very similar question in the Diabetes / Insulin Resistance / Metabolic Syndrome forum:

Chocolate, Ice Cream, etc.?

Aside from the occasional little bag of chemicals known as "fat-free, sugar-free instant pudding" (Eat it quick before the chemicals die!), various diet sodas (they stopped selling my favorite root beer in 2 liter bottles in my area), and fresh fruit, not a whole lot.

Every sugar-free "ice cream"/frozen dessert I've tried so far has been pretty vile. :vomit: The sugar-free chocolate made with sugar alcohols that's sold in our area is actually pretty good, but since my PN still thinks it's sugar, I don't do that anymore. There's also an issue with the stuff being a cramp-inducing laxative.

I've been experimenting with various sweeteners—aspertame, sucralose, saccharin, and DW just picked up some stevia, which we haven't had a chance to try yet. I'm also curious about neotame, but I haven't actually seen or tried any yet.

If I can figure out a way to make a palatable fudge or decent chocolate candy, I'll be all set. :Ponder:

Doc

Aussie99 08-05-2014 01:56 AM

Quote:

Originally Posted by Dr. Smith (Post 1087250)
I asked a very similar question in the Diabetes / Insulin Resistance / Metabolic Syndrome forum:

Chocolate, Ice Cream, etc.?

Aside from the occasional little bag of chemicals known as "fat-free, sugar-free instant pudding" (Eat it quick before the chemicals die!), various diet sodas (they stopped selling my favorite root beer in 2 liter bottles in my area), and fresh fruit, not a whole lot.

Every sugar-free "ice cream"/frozen dessert I've tried so far has been pretty vile. :vomit: The sugar-free chocolate made with sugar alcohols that's sold in our area is actually pretty good, but since my PN still thinks it's sugar, I don't do that anymore. There's also an issue with the stuff being a cramp-inducing laxative.

I've been experimenting with various sweeteners—aspertame, sucralose, saccharin, and DW just picked up some stevia, which we haven't had a chance to try yet. I'm also curious about neotame, but I haven't actually seen or tried any yet.

If I can figure out a way to make a palatable fudge or decent chocolate candy, I'll be all set. :Ponder:

Doc

Hi Doc,

I bake a lot of breakfast cakes/loafs using wholemeal flour instead of white and Stevia instead of sugar. They turn out pretty good usually.

But today I downloaded a Paleo recepie for blueberry muffins that called for Almond flour and Stevia. I am going to try to make over weekend. So far I'm ok with carbs but this was the kick I needed to clean up my diet anyways so I am going to look at this in a positive light right now to get healthier and hopefully loose those 2 last kilos I haven't been able to loose.

glenntaj 08-05-2014 07:39 AM

The sugar substitute conundrum--
 
--has a very close echo in the gluten-free community.

A lot of the gluten-free stuff is made with "white flour" substitutes--corn starch, potato starch, etc. Besides the problem with taste and texture being, uh, disappointing, in terms of being overall healthy there really hasn't been much of an advance. Potato and corn and many other "flours" will spike blood sugar just as wheat flour will.

The one somewhat healthy "flour" I use regularly is buckwheat, which is, of course, not wheat and not a grass like many grains but a seed-producer more closely related to stalky herbs like rhubarb and celery. Unfortunately, the flour produced is very dry and inelastic and doesn't have much of a taste.

http://glutenfreecooking.about.com/o...kwheatisgf.htm

mrsD 08-05-2014 09:12 AM

Oh, I like the buckwheat spiral pasta!

I have some with me here!;)

v5118lKftfk 08-05-2014 09:55 AM

concentrate on adding foods rather than taking away
 
Quote:

Originally Posted by Aussie99 (Post 1087167)
Hi Doc,
So can I ask you what you have as a treat or sweet now?

Something that has worked for me ....

Put all your focus and energy into adding things to your diet rather than taking away.

I have an incredible sweet tooth (I would happily eat pure sugar cubes).

I concentrated on adding to my diet loads of things that are healthy and ruthlessly hunt for healthy things that I like. My food intake would be so completely full of the good stuff that it would push out the sugary stuff. I would do all I can to get my environment supporting me and get all sugar out of my arms reach.

After not too long, my tastes changed and I no longer wanted the stuff that wasn't good for me anymore (which was a colossal change).

Trying to re-work conventional foods (i.e. baking with different ingredients) didn't work for me ... it was easier to just get completely away and build a whole new way of eating that I really liked.

Everyone around me laughs and thinks I am a freak (while they chomp on their potato chips).

It feels really good to be laughed at and be a freak because the current "normal" is headed for a very unpretty path.

Dr. Smith 08-05-2014 03:10 PM

Quote:

Originally Posted by Aussie99 (Post 1087273)
But today I downloaded a Paleo recepie for blueberry muffins that called for Almond flour and Stevia.

A few years back I got a bad case of IBS—so bad it was mis-diagnosed as Crohn's Disease, and I almost lost ½ my bowel to an arrogant & overeager (to cut) gastroenterologist. I healed myself on the Specific Carbohydrate Diet, which relies heavily on almond flour (we bought 25 lbs./11.34 kg. by mail) and I practically lived on that stuff for a year.

Anyhoo, the stuff is a challenge to cook and/or bake with, but websites devoted to that diet have lots of recipes using it—some good—some not so much. :Dunno:

Doc

Aussie99 08-06-2014 05:11 PM

Quote:

Originally Posted by v5118lKftfk (Post 1087324)
Something that has worked for me ....

Put all your focus and energy into adding things to your diet rather than taking away.

I have an incredible sweet tooth (I would happily eat pure sugar cubes).

I concentrated on adding to my diet loads of things that are healthy and ruthlessly hunt for healthy things that I like. My food intake would be so completely full of the good stuff that it would push out the sugary stuff. I would do all I can to get my environment supporting me and get all sugar out of my arms reach.

After not too long, my tastes changed and I no longer wanted the stuff that wasn't good for me anymore (which was a colossal change).

Trying to re-work conventional foods (i.e. baking with different ingredients) didn't work for me ... it was easier to just get completely away and build a whole new way of eating that I really liked.

Everyone around me laughs and thinks I am a freak (while they chomp on their potato chips).

It feels really good to be laughed at and be a freak because the current "normal" is headed for a very unpretty path.

We are having an obesity and diabetes epidemic amongst primary school age children. It's really sad. So yes I do agree what's normal isn't good.

Aussie99 08-06-2014 05:14 PM

Quote:

Originally Posted by Dr. Smith (Post 1087378)
A few years back I got a bad case of IBS—so bad it was mis-diagnosed as Crohn's Disease, and I almost lost ½ my bowel to an arrogant & overeager (to cut) gastroenterologist. I healed myself on the Specific Carbohydrate Diet, which relies heavily on almond flour (we bought 25 lbs./11.34 kg. by mail) and I practically lived on that stuff for a year.

Anyhoo, the stuff is a challenge to cook and/or bake with, but websites devoted to that diet have lots of recipes using it—some good—some not so much. :Dunno:

Doc

Hi Doc,
A lot of Paleo recipes also rely on almond flour. I went to supermarket yesterday and they did not have it. So I made my muffins with gluten free white flour instead. But as Glen mentioned that's not much healthier!!

Aussie99 08-06-2014 05:17 PM

[QUOTE=glenntaj;1087298]--has a very close echo in the gluten-free community.

A lot of the gluten-free stuff is made with "white flour" substitutes--corn starch, potato starch, etc. Besides the problem with taste and texture being, uh, disappointing, in terms of being overall healthy there really hasn't been much of an advance. Potato and corn and many other "flours" will spike blood sugar just as wheat flour will.

The one somewhat healthy "flour" I use regularly is buckwheat, which is, of course, not wheat and not a grass like many grains but a seed-producer more closely related to stalky herbs like rhubarb and celery. Unfortunately, the flour produced is very dry and inelastic and doesn't have much of a taste.

http://glutenfreecooking.about.com/o...kwheatisgf.htm[/QUOTE.

I cooked with gluten free flour last night when I made my muffins. Working with that flour is also a challenge. Muffins were great last night but they seem so dense today! Lol

Lara 08-06-2014 08:11 PM

Quote:

Originally Posted by Aussie99 (Post 1087636)
Hi Doc,
A lot of Paleo recipes also rely on almond flour. I went to supermarket yesterday and they did not have it. So I made my muffins with gluten free white flour instead. But as Glen mentioned that's not much healthier!!

Aussie,
I don't have PN, but the title 'sugar flares' caught my eye.

I totally agree with glenntag's post regarding the gluten free foods. My daughter and I were so disappointed with the gluten free foods we were searching through some time ago.

Some of the products had so much added sugar and tasted so gross it wasn't worth buying them. One loaf of bread I made was like a brick. We've noticed that the US has a way better selection of gluten-free foods than we do too.

Anyway, the reason I posted was regarding the almond flour - look for almond meal here in Au..

All the bigger supermarkets here will have almond meal but it's not kept with the flour.
You can find it in the baking section near things like coconut and nuts etc..
It's quite expensive.

It does make really yummy raspberry or blueberry friands. :)

Aussie99 08-07-2014 05:41 AM

Quote:

Originally Posted by Lara (Post 1087673)
Aussie,
I don't have PN, but the title 'sugar flares' caught my eye.

I totally agree with glenntag's post regarding the gluten free foods. My daughter and I were so disappointed with the gluten free foods we were searching through some time ago.

Some of the products had so much added sugar and tasted so gross it wasn't worth buying them. One loaf of bread I made was like a brick. We've noticed that the US has a way better selection of gluten-free foods than we do too.

Anyway, the reason I posted was regarding the almond flour - look for almond meal here in Au..

All the bigger supermarkets here will have almond meal but it's not kept with the flour.
You can find it in the baking section near things like coconut and nuts etc..
It's quite expensive.

It does make really yummy raspberry or blueberry friands. :)


Oh! I didn't realize that almond meal =almond flour! Thank you!!
Yes the gluten free food can be dreadful and sugary I agree. I went to Woolies and IGA and couldn't find Buckwheat or almond flour. Now I know to look for almond meal. Thank you!!

Dr. Smith 08-07-2014 09:08 AM

Quote:

Originally Posted by Aussie99 (Post 1087748)
Oh! I didn't realize that almond meal =almond flour!

"They're the same, but different..." :Doh: —unknown, but oft quoted

Quote:

Almond meal and almond flour are both finely ground almonds and there is no official difference between the two products. The terms can be used interchangeably. In practice, however, almond flour is often much more finely ground than almond meal is and has a more uniform consistency. Almond meal can be blanched (skins removed) or unblanched, while most products labeled almond flour are blanched. For most recipes, you can use almond meal or almond flour, regardless of which is specifically called for in a recipe and get good results. There are a few recipes out there, however, where you should take into account the consistency of the product you’re working with.

http://bakingbites.com/2012/03/almon...#ixzz39iMq2rCY
Quote:

Some people use 2 classifications: calling it meal if it’s more coarsely ground (or if it's made from unblanched almonds), and almond flour if it’s blanched and finely ground. This could be helpful. But most cooks and cookbooks don’t differentiate. Commercial brands don’t make a clear distinction either: the terms almond meal and almond flour are used interchangeably, even though brands differ greatly in particle size. So the name doesn’t really matter since there are no reliable standards for naming, or for particle size distribution.

http://www.gluten-free-around-the-wo....EB13pIFh.dpuf
Doc

Lara 08-07-2014 03:21 PM

I'm sorry, I just meant the labelling here in Australia.

I'm yet to find anything here in the major supermarkets labelled as almond flour.
Health food stores may label it that way, but in the large chain stores I've only ever been able to find almond meal and yes, it comes in different textures. Some does come without skins though and is reasonably fine.

It's quite rich so I would imagine it wouldn't be for all tummies.
Adding a small amount of another type of flour to the mix would make it less dense.

I have seen it labelled almond flour on an Australian GAPS diet website that sells products from here.

Certified organic, skins removed without chemicals. 3 kilo for Au$75 :eek:

uglogirl 08-13-2014 11:17 PM

Quote:

Originally Posted by Aussie99 (Post 1086860)
G'day everyone. I have been absent from forum for a while. I have been busy planning my wedding the last year. I was worried about having a flare up do to all the stress I was under around that time but the big day finally came and everything went smoothly.

I have been ok for most part but I have noticed that most antibiotics flare my SFPN and very recently very sweet desserts do too. Not normal foods or pasta and bread. Nor dark chocolate or biscuits. But sticky date pudding and caramel slices which are like nothing but pure evil sugar have caused a flare on at least 5 or 6 occasions. I have no known allergies and I have non diabetic SFPN. I am 5'6 and 63 kilos in pretty good shape exercising almost daily.

My PN was either caused by thyroid/metabolic derangement's or gastritis/h. Pylori infection 9 years ago. I am currently in remission from Graves hyperthyroid.


It's only been since last Xmas or so where heavy sugary sweets have caused flares. It started with Christmas pudding, and I thought it may have been the rum in the pudding?? Then I was advised that most alcohol gets burned off through cooking. I was always able to eat what I wanted to but now I am wondering if this sugar thing is an ominous sign that needs to be reported to neuro? Does it mean I may be becoming diabetic?

Any advice would be appreciated.

Hugs,
Aussie


I have the same reaction with sweets. I have not studies which ones bother it more.

I would definitely have and A1C test for your sugar.

Right now I am going through a flair cuz I wanted an Apple maple muffin oh the numbness and burn.


All times are GMT -5. The time now is 12:24 PM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.