deep brain stimulation
 

being done over the bridge in Manhattan by a lot of places. should I look into it for the waking internal tremors and the pain, as well as the ocd? I don't know much about deep brain stimulation but reading more.

Wish I could help but I know nothing about deep brain stimulation... what does it entail?

good question :) I spoke with NYU on the phone and they will get back to me. I think it involves putting a chip in the brain to control pain, tremors and OCD, of which I have all three. but a negative brain mri may disqualify me.

interesting... like a tens machine?

could be. except implanted on the brain though a tiny hole In skull. stlll need to do more reading.

I only know about DBS as it relates to treatment in OCD and Tourette's Syndrome.
It's usually only used in treatment resistant patients. The results are sketchy to say the least. I would be very wary and thorough in any research you do if you are entertaining going down this route.


http://www.ocfoundation.org/EO_DBS.aspx
Deep Brain Stimulation for Highly Treatment-Resistant OCD
By Darin Dougherty, MD, and Benjamin Greenberg, MD, Ph.D.

http://www.ocfoundation.org/dbs.aspx
Deep Brain Stimulation (DBS)

What I'm posting below from TSA-USA is obviously not related to your conditions, but there is helpful info. there particularly in the section "What is deep brain stimulation".

http://tsa-usa.org/dbs/DBSfall09x.html
TSA-USA - Questions about TS and DBS

Have you looked at the Ceflay device? it is $400

Thanks Lara. They're experimenting with using it for pain, tinnitus, and a few other things. I just don't think I have anything to lose after 9 years. I'll hear them out and see if they accept me. At worst, I can use it for my OCD. After thirty years I'd say it's not responding to other treatments :)

We have a tDCS thread on RSD forum
That might be helpful for chronic pain.

Also transcranial stimulation for chronic
Depression may be an option.

You'll need to search these yourself.

Also look up the term "parasomnia"
People with parasomnias need to avoid
All alcohol to reduce symptoms.
Further sleep studies may be helpful too.
For your sleep disturbance, Markneil.

Deep Brain Stimulation
 

Hi
I recently went had DBS in July and with much success. Prior to DBS I was in a wheel chair half of the day. My on and off was constant sometimes 5 minutes on and thanw off. I was on high dosage of carbo/levo which was causing Paranoid and delusions. I was depressed all the time and not able to function at times except with help. DBS was done in 3 steps. The first step was the two holes in the head where the wires were attached. A week later a stimulator was implanted in my chest under the collar bone. The procedures were not painful and I continued my regimen of medications. About 10 days after the stimulator was implanted the doctor turned on the power. I was amazed and able to walk again. I was also able to turn over in bed which had become a huge problem. My second visit the neuro turned it up further and , as in the first session, reduced my medications again. I am returning next week for my third session. :(The only side affect has been weight gain. The reps from Medtronic were there through the entire process when I had questions. My quality of life has improved . The procedure does not stop progression but monthly visits to the neuro can keep my PD manageable. I was scared at first but looking back I would recommend the procedure to anyone who has on/of constantly and where meds are not working as well as they had. For now I have hope for the future
Damon4309

Hello damon,
I'm pleased to hear that the DBS is helping you manage your Parkinson's symptoms.
It's always so good to hear such a positive outcome.