June roll call /check in/updates thread
 

Hey everybody...I'm going to do this the first of every month- so I hope all our readers will log in to say a quick "Howdy" and a little update if you'd like to do so.

It seems food and sweets are a good topic too LOL.:D

:grouphug:
Attachment 1418

couldn't leave jo here all alone. :D

Hi everyone...
Hope everyone that has had and or is having any procedures...Get Well Soon !
Anyway.. I am seeing a Thoracic Surgeon in Boston on the 11th .. wish me luck everyone.. oh and all this talk of sweets.. I've gained 5 lbs. just reading all of it !! Bye for now !! Have a painfree day !!

Dolfinz:hug:

walking the edge most days
 

I'm still hanging on. Going to start cymbalta soon to see if it helps with depression. Get flares about every 10-15 days. Have to stop bringing up the empty recycle bin. :( Feldenkrais is helping but sure could use a Pain Mgmt Clinic. Have a senator offer to have my SSD case go "On The Record", meaning it gets in a judges hands for review at home or on his off hours. If case is found unfavorable, I still keep my place in line for a hearing before an ALJ. Waiting on my attorney to decide if it's an option for me now.


So to keep my spirits up, I dream of fruity drinks on a S.FL beach... and pie. :D

http://www.cathicole.com/amk/pies3.jpg

Peace and pain free days are wished for you all,
Anne

I'm still hanging around in the wings. Started with a pain management clinic that's wanting to do the surgically inserted version of the tens unit. Still kinda leary of surgeries, haven't had the best luck with them so far. taking things slow and steady and just being or trying to be me again. Food talk is making me hungry, im just glad its done and ready to eat, so i got to go. have a good pain free or as much pain free day as you all can get.

chris.

Yum...munch munch munch (thanks Curious and Astern) (picture Shelley stuffing her face)

Oh yeah its June and I am Here! (saluting Jo)

Hope everyone is having a low pain day

:grouphug: for the room

Can someone pass the milk? :p

Here are some Sprinkles Cupcakes for everyone. My fave is the red velvet.

Anne - that sounds like a good offer- I hope it works out. ohh! the pies are showing now -mmmmm
Chris - good to hear from you - is that unit a SCS? like beth got? she says hers is nice and helps a lot. her newest post about is on a Poll thread on the RSD forum.
Dolfinz - best of luck in Boston!
Shelley - I think I'm somewhat lactose intolerant- but how about pink lemonade - will that be OK?
Curious - choccy!!!

I've tried to find some nice pics of a fruit bowl or a green veggie salad , but no luck!- so as soon as my garden grows a bit more I'll take a pic of it.

did somebody say milk? :p

http://i79.photobucket.com/albums/j1...317038milk.gif

Hi all
I am presently having big probs again, despite my meds..pins and needles are recurring more so, problems with dead arming self, position doesn't make a difference. Tried getting up bed a little few nights ago, slipped in fold of mattress, and had excruciating pain over collar bone in arm and hand - won't be doing that again. Hands hurt a lot. Still awaiting other referral....like everything takes time....I will have to find out what is going on.
Basically fed up plus warm weather making breathing harder.
Oh well must not moan.
Sorry...usually don' go on but just hvaing horrid time.

Take care one and all and hope things are improving for surgery ones and DDMAy MArk hope pump is doing ok.

Best regards
Hx

It's very nice to hear from Chris and see that he's still hanging around, even if he doesn't post as often as he used to. Also great to hear from Horizontal One- I'm so sorry to hear what you're having to go through though.

Hx or anyone- feel free to vent here if you need to.
I think the process of venting about feelings and problems is cathartic - you vent & get it out of your system for a time anyway - and some of the anxiety and tension is released.

phoebe here,
 

I was on the old forum. I'm doing well. Still plugging along without too much difficulty. I've been reading here so I feel I know most of you.

I'm sorry to here Helen (horizontal one) is having problems, as well as any others. :) phoebe

HI
 

g'day everyone, i was sent for a medical by the insurance company, my description of the causes and methods of alleviating the symptoms was well received, i guess i will have to wait until the report comes out to see if it was all a con. our work injury insurance system is calling for submissions for a review. my particular case was /is a perfect example of how to make someone worse rather than better. i will be showing them the problems with the system. hope you are all improving towelhorse

My Co-Dependent Arse Just Can't Resist!
 

hey you guys, it's me

got the most amazing email from mary the other day and i know many of you have been keeping her in your thoughts and prayers since she underwent scary TOS surgery with the great dr. julie freischlag over at johns hopkins in baltimore, MD not too long ago...

we all know and love this person as "Eastern Shore Lady"; ring any bells? mary in maryland, no? well, anyway, she hasn't been able to be active on the forum not just because it hurts to type (although that is part of it), but also because due to some pretty heavy deadlines, she is hard back at work with her animals and doing some of the most amazing stuff you will ever see, i swear!

well, i think so, anyway...but then, i'm a dog person aren't i. and i love art. and anyone who advocates for the diabled automatically has my heart. (or, are we supposed to refer to ourselves as "differently abled"; i'm never quite sure!:D ...)

i hope eastern shore lady won't mind me doing this, but i am going to give you all her website so you can check it out, explore, give her your support and the love she so deserves; kudos, too! now, whether that support is emotional, financial, spiritual, mental, psychological, verbal, psychic, of course that is up to each of you as an individual. a lot of us are struggling and don't have much to give, unfortunately, in terms of dollars to a cause like this even though we'd like to. but that's not what mary's about, kidz! i''m sure she'd be tickled PINK just to know there were fellow TOS'ers cruisin' her site and my instincts tell me she would value your feedback in the form of a PM via this site as much as anything else:

www.shoreservicedogs.com

woof

alison

:hug: :hug: :hug: :hug:
hi all, feeling stronger each day...same amount of meds but able to increase my activities a bit. Still looking for landmark numner one to be that i feel at least as well as i did pre surgery. not there yet..but it is coming closer each day.

think of all of you each day.

mom leaves on tuesday, so saving my strength to handle the house without her help.

happiness to all fo you, and strength too since we ALL need some of that!


:hug: :hug: :hug: :hug:

Yes JO that is the SCS type unit that they are wanting to install. Install, sounds like something you would go to a stereo shop or walmart for don't it. Lol. So as i dont forget either Nice to hear from you too Redjp. I will admit I haven't been around alot, but I do come in and read up on ppl and occasionally throw my update in there.

LOL, Chris- install!:D Kinda like the Meineke commercial, where they say they can install a new muffler! I think "insert" sounds a little better:D Anyway, hope it helps you.

Chris - you made me laugh w/ the "install" comment. I think I read a Best Buy ad where you either got free installation or a $50 Gift card.
As for me- SOS. the last 2 blocks have helped for 6-8 weeks at a time, but it goes downhill QUICK when they wear off. My mood has been all over the map the last 4-5 weeks, i'm not getting near the amount of sleep I need - some nights as little as 2-3hrs before its off to work again. I think i'm going to try Feildenkrais classes here in the next couple of weeks- hopefully that will loosen me up. On the bright side of things, my daughter is cute as could be :D .... crawling up the stairs and ALL over the house. She is just adorable. anyways.... sorry to ramble. hope everyone is doing well!!!

My June Check In..
 

I'm here...
Going thru my Stellate Ganglion Blocks for RSD now... The last block will be this friday.. I can't say that they have really helped me too much. I have had relief from the hand and elbow but not the dreaded sensativity that is on my arm.. That is the "Worst" part of the problem along with extreme tenderness with any pressure to my upper arm... Ugh.. I really do like the PM docs and they are going to look for another route if this doesn't work.
Left sided TOS is not behaving and in my oppinion, No more surgery... Not unless it's Absolutely Necessary... So, how to deal with that for now...
Sorry to not be posting too much.. I've just been exhausted and taking naps, ALOT of naps... Lot's of stress too.. AME is coming up on the 13th (My Wedding Anniversary of all days) and then my ALJ hearing for SSD is on the 14th of this months... So keep me in your thoughts... Please....
Hugs to you all :hug:
Dawn

Since my surgery in October 2006, I have seen great improvement. I no longer take any pain medications, except for Tylenol every now and then. I do have some pain, but it is about a 1-2 on the pain scale. Now I am working on losing all the weight that has piled on over the last two years of pain, medication and inactivity. I am more and more active, and starting to hope that soon I will actually be able to go back to work. Hope everyone else is doing well.
Tracy

Tracy that is wonderful - I hope so too!:)
Keep on top of any little things {pains} before they become a problem.

Dawn - is the sensitivity from the RSD or TOS ? - what part of the arm is it? I had a lot of hypersensitivity on the top side of my forearms for quite a while. It was a more a constant tightness feeling and just slight skin sensitivity- not burning or swelling at all.
I think i decided it was from a small nerve that goes to that area and the chiro must have done something to release that one about a yr ago I guess.

Oh these show it - http://www.innerbody.com/image/nervov.html
http://mywebpages.comcast.net/wnor/l...nt&postarm.htm

Dabbo enjoy that little sweetheart as much as you can- they grow up so fast.

Hi Jo,

My sensativity (Hyprsensativity) and sever pain with any pressure to my upper arm. It is located on my inner right arm between my arm pit and elbow. The sensativity was also on my elbow but that has disipated with the blocks as well as the burning on the palm of the hand.
It also burns and at times feels like a hundred bees are stinging my inner arm...
Lidoderm patches are the only thing that help the sensativity and Norco helps the pain in the arm when it becomes unbearable....
I'm pretty sure the RSD was on the hand and elbow but I think the inner arm is a damaged nerve from the second surgery..:(

Hugs :hug:
Dawn

Dawn- O am having that upper inner arm sensitivity now, too...as (hopefully) the nerves are working there way back to working condition. I didn't realize that in the underarm incision all the nerves to that area basically get cut. that was my big unhappy surprise!!! Also didn't know till after that it isn't guaranteed they will grow back :(


Was very dissapointed to have all the same back spasms over the last two days on the surgical side...you know, those ones i was hoping were going to go away. *sigh* well, hopefully when everyhitng calms down they'll get better.


On a bright note, got a nice massage today....she worked all teh psoas muscles and opened up my chest a lot. I haven't been able to get my cshoulders back since the surgery but I can now, yay!!! Will be interesting to see if it lasts with so much less nerve irritation.

i am rambling.

must go,

love you all, really i do, and thinks so much for all the daily support. means so much to me to know you are all out there.

Johanna

still here too
 

Mostly reading don't type much anymore,
seems like I get too much backlash from too much typing but at least I know what it is from.
Keeping everyone in my prayers and hope you all are keeping pain levels down.

God bless,
g-mom2

This is for Dawn and Johanna
 

i remember dr. steve annest telling me this was the number one risk of the transaxillary approach, or perhaps just the TOS surgery itself (frankly, i was so gung ho @ that moment i probably wasn't listening to him all that closely, more like "yeah, yeah, sure, sure...and could your eyes BE any more blue, d'yuh think dr.?" - but alot of patients end up "numb" in that area, or can have the type of hypersensitivity you are both describing, i think.

obviously, dawn is a little further out in the healing process than is johanna. but we TOS'ers want what we want when we want it, don't we? we simply don't rock with the snail's pace at which these nerve injuries insist upon healing themselves...

i am far from expert in the area. but i am a shivering wreck, as the brits would say, so i suppose i qualify from within, if you will, on that basis alone. nerves grow back v e r y slowly. di used to post about this, frequently (help me out here, friend di - is it only the ulnar nerve that grows at a rate of 1/8" a month, or something along those lines?) rate could be even slower, for those teeny tiny ones, and i would think the worse the injury or compression, the longer the healing time, too; the ulnar is one of the "big 3" we're all familiar with (and for the WRONG reasons, i might add!).

there is a very kind radiologist originally from new zealand practicing in beverly hills by the name of dr. david campion. (i call him my champion, for it was he who raised the reg flag in my own case and queried in a set of electrodiagnostic tests ordered by a certain pain doc at cedars who will remain nameless "has anyone ever tested this woman for neurogenic TOS?" and thus began my journey to ahn to annest and to you good people... but i digress). dr. campion very gently said this to me when looking at my wasted hand:

"don't EVER give up on your nerves."

and that's what i wanted to pass on to you guys today.

that is precisely why i don't listen to doctors like weaver when they say negative things that try to take away my hope, things like "your nerves aren't coming back, you know, ms. ayers...". because of my champion and because of the simple fact that the human body is amazing, he is absolutely right; your body WANTS to heal.

it is your job to give it the right environment, the proper hydration, nutrients, rest, massage, nerve glides (gently, now!), desensitization techiques (soft flannel to terrycloth to lufa to different grades of brush; lots to read up on), whatever you can do to encourage the natural healing process along.

oh, god i smell another thread coming from hojanna now.:eek:

people, we've created a monster...

:rolleyes: alison

i'm not judging! i'm just saying!....

Thanks Alison...
 

Alison,

You sure hit the nail on the head with that comment!!!! :wink:
Thank you for all that information... I know they said that the nerves regenerate and grow very, very slowly sometimes over years...
I guess as the old saying goes "Patience is a virtue" Ugh..Sometimes I hate that saying... :Doh:


Many Hugs and Thanks again...:hug:

Dawn

Oh, Ya.. I start Bio Feedback tomorrow... Yea... :Dancing-Chilli: :Dancing-Chilli:

Hello
 

I'm new to this sight but have found it so helpful to know there are others like me who actually understand. I see my surgeon on Thursday and he will want to schedule rib resection soon. I'm very nervous but in so much pain I want to die. I am about out of my mind in pain. I have been in pain for years and have had 4 surgeries in the last 2.5 years. I had a 3 level fusion in my cervical spine and after the surgery still in pain new MRI doctors noted bilateral extra rib now I have diagnosis of True TOS all my pain is left sided but pulse is dead bilaterally. I'm so confused I have seen a neuro surgeon who just did a ulnar nerve decompression wit transposition 3 week ago and he had confirmed the diagnosis and recommends the surgery and says that the Cardio Vascular surgeon I am seeing is a great surgeon My ortho pedic surgeon who did the three level fusion in cervical also confirms the diagnosis and he gave the same opinion about the Cardio surgeon. I felt very comfortable with the Cardio vascular surgeon who told me he wanted me to have the ulnar nerve decompression and that he would schedule the surgery this week. I just don't know what to do all doctors have a concern that it is positive on both sides and are in hopes that after surgery with therapy I may be able to prevent right side surgery. The disc above my fusion has also ruptured and I will have to have disc replacement within 24 months. I have been in so much pain I had to finally quit work 2 years ago and I await a hearing for my SS disability unfortunately I don't hold out much hope since I was turned down at reconsideration I have 3 doctors stating I am totally disabled so I just pray it will happen one day. Mean while I have lost everything house car etc depleted all savings. I will have bankruptcy hearing next week. Anyway in some ways I just feel a glimps of hope that I could get some relief from the surgery I know I'm rambling but I am in so much pain I just don't know what to do. Any information or input would be greatly appreciated I only found this sight last week and I feel so happy to talk to people who know the valley.

Thank you
Beverley

I haven't had the TOS surgery and hope I never have to but I can add something here as far as nerves coming back after surgery- this isn't to discourage anybody! This is just what I've found to be true for me. I had a surgical procedure back in 1991- I still have completely numb spots in that area....On the same foot that I had surgery on in Apr. of this year, I had my second surgery on it back in Apr. of 2005, and the area around one of the incisions is still completely numb. I can sympathize with all of you having this nerve pain after surgery because I had a very tough to go through abdominal surgery in Feb. of last year and not only were nerves cut but the areas where I was held "OPEN" with those clamps were excruciatingly painful for several months- in fact, more painful than the surgical incision itself and part of that area is still numb.

Welcome Beverly...
 

Beverly,

Welcome to the TOS board... You have come to the best place for support and information... I've been here for a long time and I have made some of the greatest friends or I should say family... I have also been thru 3 surgeries in the last 2 years and also have bilateral TOS. I had a cervical fusion that had failed and had been repaired Sept last year. My TOS surgery on the right has been done twice now and I am now being treated for RSD in the right arm...
I have also applied for SSD I was turned down twice. After my first denial I had obtained an attorney I was turned down again and now I have my ALJ hearing coming up on the 14th of this month. My attorney said that I have very strong medical evidence and I have a very good chance of winning my case. SO if you don't have an attorney... Go obtain one now... It cost nothing unless you win and Boy is it worth it... I am so glad I didn't have to deal with paperwork etc with surgeries and pain...
Keep us posted on your up and coming surgeries and procedures and Best of luck in your other hearings...
I am sorry to hear of your financial hardships... TOS sure hits hard if not one way it does in another...

Many Hugs to you :hug:
Dawn

Hi all
 

Like G-Mom, can't spend much time on the computer anymore, so will try to keep this brief. (Isn't it funny how TOS affects us all differently, and some can use the computer and some can't?)

Am still trying to control my pain with exercise, yoga, hot baths--and most importantly staying away from the computer.

Dawn and Johanna--So sorry to hear you aren't feeling better than you are....I think about you (and the others here) and look for your posts as often as I can to see how you're doing. Dawn, it's so disappointing to hear that the blocks haven't helped. Are you giving up on them now? Johanna, did your mom leave today? Hope you're holding up okay. And DiMarie, Horizontal, Beverly....thinking of you all.

Trix, it's wonderful to hear about a surgery that has been so clearly successful! And to think that you can even consider going back to work--truly amazing. I'm so happy for you.

Allison, thanks for the reminder about nerve regeneration....And you're the second person I've heard say wonderful things about Dr. Campion.

Jo, thanks for the link....you're just incredible.

And to everyone else....hope you're doing well.

So much for keeping it brief.

Oh No!
 

This is sure a fattening thread, but I will stop and say Hi and then go out for a walk!

Peggy

Alison- thanks for your encouraging post. It is certainly true that the body works to heal itself, and the best we can do is put it in the right environment for it to do so. I have all my fingers crossed for me (and you and dawn and everyone else, too!!!)

stardust- yes, my mom left today. :( You have a good memory.

Such a strange feeling to be here in my home, where I am usually the supreme caretaker, and be so helpless, My mommy was here baking cinnamon buns and chocolate cakes for me :D in between carting my kids to school, doing all the laundry, the cooking, and the cleaning..and above all making sure we were stocked up on mint chocolate chip ice cream.

she was ready to go and i was ready for her to leave, but I really felt lonely today once everyone went off to work and school...as all the days were very full while she was here. It was the best visit we've had in a long time. I forced myself not to do too much...cooked a frozen dinner and slept on the couch a bit.

as usual, rambling with no real purpose.

got to go

johanna

To Beverley
 

please, please, please re-read my PM to you. i am so glad you've found us. but i want you to take very seriously everything i said to you in that message. i stand by that and i will say more here publicly on this forum, as i am VERY concerned about you now. i am also angry - not at you, bev, not at you, but angry nevertheless - just so you know.

i don't wonder you're confused. but i need you to hear me now. the decision to have TOS surgery is never one you want to make when your pain levels are this high. no way. it's supposed to be ELECTIVE surgery and carries major, major risks which you need to educate yourself about so that you can make an informed decision (including but not limited to, the best surgeon to do the operation on you). these jokers are feeding you a line of pure bull, in my eyes.

you need to get yourself to a top PM doc ASAP (that is, a pain management specialist). what part of the country are you in? this is a very important question and i do not ask it lightly. please answer, so that we can get you some proper care. are you near a major teaching hospital of some kind? perhaps there is a big pain clinic attached and that might be a place to start or a good jumping off point. if you've ever been in physical therapy and have a trusted therapist that person may be golden - they usually know who the good PM docs are.

surgeons are not only knife-happy but they stick together. bigtime. if these guys are so damned good, i'd like to know how come they're only just now figuring out that you have a set of cervical ribs big enough to cause neurovascular compression serious enough to make you this symptomatic. wasn't a simple cervical X-ray taken, for god's sake, before the fusion? TOS can be a controversial dx, granted, but if your all-of-a-sudden, brand-spanking-new medical dx is "true neurogenic TOS,"...well, my new friend, then you do NOT have the disputed form of TOS and ALL of these so-called "great" surgeons are doing nothing but dancing as fast as they can.

WHAT makes anyone think your poor body is healed enough from any of the major surgeries it's been subjected to for the MISDIAGNOSED problems over the past two and a half years to undertake something as major and as risky as a cervical and possibly a first rib resection and a partial scalenectomy, pray tell? what is the name of this "great" cardiovascular dickhead surgeon? spill it, beverly, c'mon now! (we're going to get you to the best, most experienced, most wonderful top TOS doc possible, so don't even worry for a moment, i am just venting here... you don't know me very well yet - i'm just mad for you, not at you my dear!)

ask yourself this question: why was this not seen before a 3-level cervical fusion was done, beverley? (and out of curiosity, when was that surgery performed, in the 2.5 year nightmare you are describing?) now, i don't want you to feel bad, there are lots and lots of us who have had unnecessary carpal tunnel and cubital tunnel releases as well as cervical fusions before FINALLY getting dx'd with the actual culprit, dread TOS. unfortunately, those prior surgeries do nothing to increase the odds of success of tx for the TOS, whether that be a surgical or less invasive intervention by the time the accurate dx is ultimately made and competent tx able to be undertaken with knowledgeable practitioners on board. let's be honest, they mess with success.

you've just had an ulnar nerve decompression with transposition 3 weeks ago (!), and i hear you saying the neurosurgeon who did you that great disservice thinks a rib resection sounds like a wonderful idea. bet he plays golf with your CV surgeon. this is madness, i say, pure madness. the ortho guy is in on it, too, believe you me...they're all running scared and gonna back each other up hoping you don't wake up at the switch. this just gets my back up, something fierce! i hope i'm wrong, but i don't think so.

it's counterintuitive for you to commit to more surgery right now. it's way too soon and you haven't healed from the last one. i know you're in a great deal of pain, beverley, i totally believe you, really i do. but something stinks here. but first things first. let's get the pain under control, then we'll see where you're at. does that make sense?

your statement that you "want to die" is very telling to me and extremely troubling. i want you to know, i hear you. i think many of us on this forum hear you LOUD and CLEAR on that one. we are here to help you through this. we are RIGHT HERE. you also state "i am out of my mind in pain." i, for one, know exactly what you mean when you say that; i've felt the same way myself many, many times. my TOS went undx'd for almost 3 decades. i've been to hell and back with this thing.

please don't rush into surgery. it's not a guarantee of anything, and certainly not of pain relief. if anything, the opposite is true. they're no doubt promising you the moon right now, beverley, either that...or that's what you're hearing, because you are desperate.

don't do it. let's find you a PM doc. cancel that surgical consult. you're not strong enough yet emotionally or physically to withstand TOS surgery.

and i for one am not buying what they're trying to sell you.

you deserve a lot better than this.

and better is out there, beverly. please trust me on that.

i am not trying to take away that glimpse of hope you spoke about. actually, quite the opposite! this is a really good place for you to be right now. i want you to call the number i gave you; i have so much to tell you.

and stay close to the board. it's going to be a bumpy ride.

alison

:hug: Beverly- I have to agree, that it does not sound like you are prepared to handle rib resection surgery at this time...

Having just done it myself and going in with "excellent" prospects and absolutely no other complications...I still feel like a train ran over me.

If you can share any more details about your experience, maybe it will make more sense, but something does sound odd.... surgery decisions like this require sound thought and thorough understanding of your personal situation (maybe you have this and I am mistaken). I Second the advice that pain control is an excellent first step. there are many here who have made hasty surgical decisions while in severe pain, and lived to regret them....


:hug:

Beverly -I pretty much agree about not having another surgery so soon.
You need some decent pain control for starters - so you can think over your options and the pros and cons of another surgery.

SeaPines makes some good points about those doctors possibly taking the long route to finding the real problem for you. Are they all in the same area, office, hospital or friends?
Perhaps a second opinion from an outside doctor?

The risks of more surgeries are possible scar tissue problems and a possibility of RSD.

Some thoughts-
do you think you had TOS before all of those surgeries?
OR could any of those other surgeries caused TOS or aggravated your TOS?

Pain management-
yes - your pain is not being controlled at all - that is the # 1 thing they need to do for you right now - so you can step back and really think about the surgery options- pros and cons.

Bevely,
 

Alison has given you some very good advice. I have known her for some time now personally and thru the forum and she has helped me thru some very difficult times. It is so hard to make a decision when you are in such pain. I know I went forward with my surgery at a blink of an eye and with a very reputable surgeon and if I could go back I would have tried a few other options first like finding a good TOS physical therapist, pain management doc etc. Now I have two TOS surgeries done and I once again per my PT have large amounts of scar tissue building up under my axilla and her comment is no wonder your ulnar nerve is so irritated. It looks like I am very prone to scar tissue and my surgery was the end of January. I am also being treated for RSD and many TOS pt's that have surgery run the risk of RSD so please be cautious RSD is not something you want to develop. If you think TOS is bad RSD is its arch enemy.
Please head the advice of my forum friends and seek some further consults...
Johanna went to many doctors prior to her surgery and she did a great thread on them: http://neurotalk.psychcentral.com/sh...p?t=135&page=2
In the end you will be glad you did...
Best of luck to you...
Dawn :hug:

For Beverly-

our useful links thread - http://neurotalk.psychcentral.com/showthread.php?t=84

drs list thread- http://neurotalk.psychcentral.com/showthread.php?t=135

Hi, I'm Donna and I'm just trying to learn about this disorder and more things.

I've got all kinds of issues with my health and I believe it was Shelley that lead me here to this forum. So Forgive me if I seem to be stupid at times, with some of my questions. Because I'm kind of lost.

But I am finding this a very informative group and I am learning a lot from you all.

Thanks

Donna