Allodynia
 

Hello,
I have small fiber neuropathy and trying to navigate this.
Now I have allodynia-pain when I lie down or sit down regardless of time of day It is static mechanical. I have searched a lot with no results.
Anyone tried any tactile therapies for this?

TIA:hug:

Hi Baba222
 

I suffer with TN and severe Neurological Hypersensitivity, amongst others. Allodynia strikes in my face and limbs - especially legs - and my back. The touch of my clothes causes pain, as does sitting or laying down. Hot showers are a burning Hell. My family know not to touch me, no hugs, no handshakes. The only touch I can abide is that of my daughter's dog as the endorphins take over for a short while.
Tactile therapy sounds like the worst thing I could put myself through, but this is me and I don't like being negative. My advice to you would be to be certain this is what you want to try - positive mind, positive outcome. Start slowly, know your limitations and don't get discouraged early on.
Wishing you luck.

Dave.

allodynia
 

Hello baba,

Just wanted to let you know I had allodynia. Had it for five years until I went to a new upper cervical chiropractor. He did all kinds of tests and really listened to me as I told him of my symptoms.

He took a few x-ray, had an mri, and we had another talk.

Turns out with a few adjustments to my neck and spine, my allodynia started to go away. But it came back when I didn't see him for two months. Turns out it was my cervical spine and a nerve being pinched. I'm able to keep it at bay but it comes back every so often. He told me that the facial nerve that is being affected but it is something that will not totally go away.

But I just wanted to let you know that maybe a chiropractor might be able to help you. But maybe not, but it's worth a try.

My prayers go out to you and others as it is a bothersome thing when you can't let others touch you. My husband at least was understanding and helps when he can with stretching.

Where was yours and how does it manifest?

I also have small fiber neuropathy, so trying not to take all the medicines that I am now on: lyrica, amytriptilline, tramadol.

TIA

I know that Switzerland has a practitioner that does therapy for mechanical static:

https://www.linkedin.com/pub/claude-...her/11/a3a/59b

http://www.neuropain.ch/method-presentation

There probably is someone nearer, as Europe is where most of the certified folks are.

Just a suggestion:winky:

Now it is all over.

Any ideas?

Anyone?

Ok Baba, we are now in the same boat. My whole Nervous System is Hypersensitive, and I get the Allodynia and other problems as above and in my Bio. I know it's not an immediately practical solution to your current pain, but look into Lidocaine infusions. I also take oral Ketamine which is an anaesthetic that increases the effectiveness of Opiates..
You clearly need something prescribed by your Neuro or PM Team to resolve this. Until then you must avoid slipping into Depression caused by the pain. Have you tried meditation to increase positive thought?
If you can think of any way I can help, let me know.

Dave.

BABA,

My allodynia was in the C6 region and it came across the right side of my face , over to my upper lip under the nose. It was a constant tingling or buzzing like feeling. It now comes and goes. It manifests with sleeping with a non supportive pillow at night. As I said before, my chiropractor pushes on a certain vertebrae in my neck C6 and within a day it is gone. He does it with a light touch and there is NO twisting of the neck!

Str+

I am in a backward place. It took a lot just to get low dose hydrocodone. The allodynia is everywhere now.
I am on an antidepressant. I am look at hyperbaric oxygen now.

Take care sir.

Thank you. Mine is not a specific place and is all over with the small fiber neuropathy.
Take care.

Baba222,
I am sorry to hear that you have problems with pain management, but am pleased you are addressing your Depression in some way. Is there anyone you can talk to about it as well as the meds?.
As for HBOT, I have never heard of it being used for pain related conditions, only sportspersons using it to try to speed up recovery from soft tissue damage, or the obvious decompression sickness. I did a quick search and found nothing, but came across a site, hbot.com, which has a FAQ page which lists all the uses covered by US Insurance Companies.
I hope you find something more soon,

Dave.

allodynia and central sensitisation
 

Hi baba,

I've tried sensory desensitisation with an OT no luck but way down the track (17 yrs) when the pain had certainly become centralised in my brain. The links you've provided look interesting.

"The International Association for the Study of Pain" has a fact sheet which explains processess of Allodynia/hyperalgesia and medical tmts. under Neuropathic Pain. I've provided a link below:

http://iasp.files.cms-plus.com/AM/Im...peralgesia.pdf

Also re. your other post re.central sensitisation- it's not related to anxiety. As I understand it, it has to do with pathophysiological changes in the way the central and peripheral nervous system functions, following disease or trauma. Once sensitised, the nervous system responds to stimuli which were previously innocuous as painful (allodynia) eg touch, wind, noise and increases it's response to painful stimuli (hyperalgesia).

Hope some of this makes sense. :confused: So much jargon...

Booklover

So helpful booklover! :hug: I do not have any normal sensation, so cant try the desensitization now, as I am told from an OT in Canada.