Crps
 

I I have been fighting this for over 2 years now. It took away my walking. Now I'm slowly learning how to walk. It is very slow and very, very painful. It is in my left foot and up my left leg.

Very glad that you are walking again....keep up the good work.

Walk On - U2

Congratulations. That first step is the hardest - glad you're building momentum:)

Hello Survivor,

It is a LOT of work learning to walk again. So strange that the body can even forget. If PT is not helping you please be careful that your gait is not jacked up. It is easy to compensate and cause imbalance and problems. I know from experience. After my first injury and surgery (crutches 5 months) I had to re-learn in the pool. That was immensely helpful for allowing natural foot and joint motion without strain. I found I had to stretch regularly and still do to keep the myriad tendons and ligaments in the foot working. Eccentric exercises were also good once I had enough strength and could safely do them. The achilles/calf complex had really shortened. Listen to your body. Learning to walk again can cause various aches and pains that aren't even CRPS related. A good PT or trainer can help you figure out what causes over use and stress.

Keep up the fight!:D
Littlepaw

Thanks everyone. Littlepaw, I am starting to work on my gait. It's been a very long and slow process. I am on the treadmill. I still can't put full weight down on my left leg. I am using a walker. Next Monday I will be getting the permanent SCS put in. The trial was great. I am hoping I'll be able to be full weight bearing. Some days I just want to scream about how long this is taking. I'm just feeling overwhelmed with all this right now...

It DOES feel like forever, doesn't it? I shed a lot of tears in the last couple of years. It takes as long as it takes. Don't give into the desire to push to full weightbearing too quickly, especially if the SCS makes you feel great. So tempting - but you can really mess up your foot/ankle. Better to have good heel to toe motion with the support of the walker first. As you know it is easy to tear something that is not accustomed to being under full load. I hope you have a nearby pool! I transitioned to a cane for a while, using it on the good side to stabilize the weak - it helped a lot till I could ditch it. My PT also had me do core exercises because my abs and back were not keeping me stable enough (allowing me to "cheat" with a really messed up leg/hip motion) the "bird-dog" was especially helpful with the arm and opposite leg up.

Best of luck next week on the SCS! Hang in there and go scream in your closet if you have to - God knows I did.

Sending Healing Love :hug: - Littlepaw

Thanks. Unfortunately I do not have a pool near me. I know I can't jump into full weight bearing. I just got a knee brace for my left knee, so that will help some with the stabilizing. I go for pre-op tomorrow. I'm feeling torn. My mom just had neck surgery and she was having chest pains. So now I'm sitting in her room waiting for a doctor. She was supposed to come home today, but now we are unsure. Now I wish my surgery was later, because I don't want to leave her side. When it rains, it flipping pours...

I am glad you are being careful - difficult when the mind is ready but the body is not able. Sorry to hear about your Mom. I hope she is on the mend soon. It sounds like you have a lot of stress right now.

I am sending more healing love....:hug:
Littlepaw

CRPSsurvivor,

Thanks for checking in on your journey. We're all on one of those in one way or another.

You are doing all the right things in my opinion. But slow and steady and keep managed expectations.

Getting back to your baseline will likely take some time. It sure did for me. I have CRPS in my right foot. I'd have to say that my physical therapist was instrumental in me knocking this thing back, albeit a somewhat altered gait.

Best of wishes to both you and your mother. My 91 year old mother is in a nursing home and just had a stroke last week (4th one). But she is coming back once again. The power of the human spirit is just unreal. I take my motivation from her.

Thanks littlepaw and birch lake. My mom went home last night. She hurting but doing ok. Monday she will see her new heart doctor. Monday is my surgery. I am now on my way up for pre-op. I hate this 2 1/2 hour trip. We are spend the night before up there to save time. Ikeep everyone updated...

It's Monday! I hope all goes well and you have a not too bumpy ride home. I am sending speedy recovery thoughts. :hug:
Littlepaw

I had my surgery. It went really good. We just stopped to eat. I'm almost half way home. I'm getting great coverage. I'm dealing with the post-op pain. I go back up in 9 days. I'll try to keep everyone updated. Thank you so much for the hugs littlepaw...

The surgery went really well. I am dealing with to post-op pain. I have great coverage. I go back up n the 11th. It has cut my CRPS pain in half. I expect it to help more as the post-op pain lessens.

I had my first post-op. They said it looked really good. Looking at it seems to trigger my PTSD, so I can't look. I'm having issues with the recharging right now. Does anyone have any tips?? I can't lay on it, the belt isn't helping and holding it ( it is in my upper butt area on my right side), has the problem with dislocating my wrist. I feel at a loss...

Hi Survivor,

Glad your first post op went well! I do not have anything personal to add on how to deal with your SCS. Just wanted to say that I am sure it is an adjustment and probably brings up all kinds of things. It's certainly understandable that you'd be feeling at a loss. Like anything it will take time to learn best how to deal with it. Ah, technology and its logistical challenges...

Maybe the SCS sub forum has some practical advice? Guess you're gonna be a side sleeper now.... Hang in there and take care. I hope your Mom is doing better too.

Sending more Healing Love, Littlepaw. :hug:

posts
 

How do I start a new thread?

I am very depressed I think about letting myself die all the time. How do I make a new post. I have to really think . I lose weight unless I take a lot of medicines and I think perhaps I will just stop taking medicines to maintain weight. I would waste away so maybe that is the answer.
I feel guilt though because I have kids in their 20s so I keep going on. But I want to go to the other side.

I read other people's posts and they are much more brave than me and I feel guilty for writing about thinking of dying. But we all have to die sometime.

Hi when2be
sorry to hear of how despondent you are feeling

I have added a trigger icon to your post as it can be rather upsetting for others to read posts about suicidal thoughts

We do have a special forum where you can post if you are feeling suicidal http://neurotalk.psychcentral.com/forum29.html
The members there are very understanding

To start a NEW THREAD..... enter the Forum you wish to post to and look near the top and bottom left of the page where you will see the NEW THREAD button, click, type and submit

To post a reply to an existing thread in a forum, enter the thread and you will see the NEW REPLY button in the same areas (top and bottom left) Depending on the theme/skin you are using, it may say POST REPLY etc but they are always in that same location.

To reply to an existing thread by quoting the post you wish to reply to...use the QUOTE button at the bottom right of the post you are responding to.

Hello When2be,

I am sorry that you are going through such a dark time but welcome to the forum. You will find support and understanding and some helpful suggestions here. There is hope and there are ways to hold on, but it can be hard to see in the dark! Go on and start that new thread and introduce yourself, we all have to lean on each other. :grouphug:
Sending Healing Love, Littlepaw