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-   -   Nerve problems and pain (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/216849-nerve-pain.html)

Legin 03-03-2015 09:44 AM

Nerve problems and pain
 
Legin

Junior Member

*

Join Date: Feb 2015

Location: Scotland

Posts: 8

*Nerve problems and pain

Hello last Sept I had a full hip replacement whilst the actual surgery was a success unfortumately I suffered nerve damage. This has resulted in numbness to calf area and foot. Whilst some areas of foot have some feeling large areas are still numb. I have some movement but not great. I am unable to go on tiptoes on that foot. Also some areas have become massively over sensative. In that if I bang or stand on the smallest lump it is excrutiating. My worry is that this seems to be increasing to point of affecting mobility. Oh leg is red/purple and still swells up as the day goes on. Sorry its a moan

St George 2013 03-03-2015 10:15 AM

Good Morning :)
 
Moan away ! We're here to listen and sometimes moan and vent ourselves :)

I have SFN and totally understand heightened sensitivity of the feet (and hands). Sometimes I bang a toe or step on something....they either have to pull me out of the ceiling because of the pain or I feel nothing at all. Weird.

Debi from Georgia

Legin 03-03-2015 10:46 AM

Sorry had to chortle and look at the ceiling. It certainlyis. Problem is im not allowed to return to work as I am employee liabilaty thing. I have had a long sporting lifestyle and ruptured broke and just about done everything but always beat it. This I cant, i adapt things like my walk but its seriously frustrating

St George 2013 03-03-2015 10:59 AM

[QUOTE=Legin;1127129]Sorry had to chortle and look at the ceiling.


Glad I could give you a 'chortle'....lol....that was my intention ! Sometimes that is really all we can do....laugh at ourselves.

I wish you luck in this journey and so sorry you are going through this. I'm sure you will receive a lot of information from the people on this site.

Please keep us posted :)

Debi from Georgia

Littlepaw 03-03-2015 02:37 PM

Hi Legin,

Sorry to hear about your trouble. I too suffered nerve damage during a surgery which caused a neuroma that was later removed in a revision. Fun times! I have CRPS from something else. You said you have nerve damage...did they do nerve conduction study to find it? You might want to look at my post on local steroid injections just for the heck of it. I am always hoping someone who lands here has an undiagnosed/untreated nerve entrapment or irritation. Not being able to weight bear like you want is terribly frustrating, especially for go, go, go types who are used to being superheroes. I have found swimming to be invaluable to my recovery after all three foot/ankle surgeries. I also spend a fair amount of time on the bike and on machines I can tolerate at the gym. Keeping my strength has gone a long way towards wellness physically and psychologically. Hang in there and never stop asking questions or looking for solutions. Stubbornness is a great personality trait to get you through.
Sending Healing Love,
Littlepaw :hug:

Russell 03-03-2015 04:17 PM

Hi Legin,
I'm too sorry to hear about it all. Moan away though as I know from experience that moaning and venting does actually help. It helps because we know that we are all willing to listen. Lending an ear with understanding. Nobody asked for this monster but now we're stuck dealing with it all.
Be well...

scubaforsythe 03-04-2015 01:22 AM

Hi Legin,
Sorry to hear things are so rough for you, you have come to the right place!!! :hug: These are a great group of people!! :grouphug:

I see you are from Scotland! A place I will get to see someday! :wink:


:hug:

Legin 03-04-2015 07:49 AM

Ty all. I was on gaberpetin (sp) but recently stopped it as it really was getting me down which is opposite from my normal oafish character. I had a full neurophysiological assessment which confirmed the nerve damage. You know they say dont look down well dont I saw a needle 3 inches in calf muscle didnt kmow a thing, did say to chap it works same way if you stick it in my head. Have a vascular clinic next week as dr didnt like leg colour or size. Sheeeeeesh finally get a calf muscle and its not right.
Oh I do about 15k on static bike and got to 10k walks before foot started shouting. Yup in Scotland with loch on doorstep. Beautifull place I have a hill nearby 1000 ft straight up its my goal as my thinking rock is there. Ty for listening - listens to snores

Russell 03-04-2015 08:52 AM

Quote:

Originally Posted by Legin (Post 1127302)
Beautifull place I have a hill nearby 1000 ft straight up its my goal as my thinking rock is there. Ty for listening - listens to snores

I have a thinking rock too! A place to go and think and sit and sit and think....
:D

Legin 03-04-2015 09:19 AM

Tyne Russ, alas my thinking rock is unattainable well I could get there v slowly but its getting back down 1000 ft is a big step if I do an ooooopsie:(

Littlepaw 03-04-2015 12:51 PM

Legin,

There may be other meds that might help. I couldn't tolerate neurontin either, made me depressed. I have done well on TCAs, low dose nortriptyline just at bed. Takes the stinging down and doesn't kill my mood. There are options out there. I had to play with the dose a bit due to dizziness but got that managed. Also worth a look at vitamin levels. My neuro was adamant about checking D levels and they were low, very common, a problem for both nerves and chronic pain. I supplement now, figure I need every advantage I can get.

take care, Littlepaw

scubaforsythe 03-04-2015 10:52 PM

Legin,
I take Gabapentin 100ml 3 times a day, well I switched it to night, and it works better for me. Sorry to hear it brought you down, I have only been taking it for a couple months, and haven't noticed that happening yet. I find I was more down before I knew what was going on.

Don't give up on climbing that wee hill :eek: and enjoying your special spot!!! Hopefully you'll get back up there soon! Are there trails? 1000', wow just wow!! I cannot imagine living near a loch and being surrounded by such beauty! It has been a long time dream to walk the highlands, and am glad you have the opportunity to see it, and I look forward to reading about it when you get to walking it again!!

Take care, :hug:
Dawn

Oh and I unfortunately live in flat NW Ohio, where you have corn fields as far as the eye can see... We get excited when you are driving your car and theres a slight hill that just might tickle your belly... pretty sad actually.... lol

Legin 03-05-2015 03:52 AM

Littlepaw thanks for that I have vascular clinic next week and planned on talking to gp after that. Just couldn't do the very down thing. Most my life I have supported and counseled people always been the together one it was scarey,
Scubs yes I am lucky, from top of hill I can see Edinburgh, Stirling, the Trossachs and northern gateway, I miss the climb but also just peace and beauty when up there. See just a simple chap.ooooooo hugs im a hugaholic. Toodles

Legin 03-05-2015 06:40 AM

Oh btw I saw the meds amount my gp had me taking 1200 Gaberpentin at night as in 4 x 300. I started on one tablet and worked up to 3 for sleep well easing the nerve pain and went upto 4 about 6 weeks ago. I became aware i was getting down and cranky but it came to a point where I had to look at why. There are also other issues around.

Legin 03-06-2015 10:10 AM

A frustrating day not even able to keep shoes on first three toes incredibly sore others as ever numb. Must go to the library for the levitation for dumies

Littlepaw 03-06-2015 10:18 AM

Quote:

Originally Posted by Legin (Post 1127818)
A frustrating day not even able to keep shoes on first three toes incredibly sore others as ever numb. Must go to the library for the levitation for dumies

Ah the quest for tolerable shoes. Don't know how many pairs I've had to try, some that seem to work but only for 30 minutes, others impossible to keep on 5 seconds, then blissfully about 3 pair that seem okay....

Littlepaw :hug:

Legin 03-07-2015 05:15 AM

Warmer weather soon then barefoot. Right now cold is sucked into foot like a black hole

Always_Believe 03-07-2015 07:58 AM

Quote:

Originally Posted by Littlepaw (Post 1127821)
Ah the quest for tolerable shoes. Don't know how many pairs I've had to try, some that seem to work but only for 30 minutes, others impossible to keep on 5 seconds, then blissfully about 3 pair that seem okay....

Littlepaw :hug:

I took quite quickly to hard-soled slippers. They seem to have the most give. The hardest part is finding some that don't really look like slippers, which is becoming easier, actually. Being a nurse in an assisted living facility (LOTS of walking), I've been wearing slippers for shoes years before my RSD diagnosis. My supervisor would call them my "almost shoes". :o

Legin 03-13-2015 06:31 AM

Wee update. Yesterday attended vascular clinic had all tests re swelling and colour all nae problem but I was sure would be the case. Foot v v sore with every step and when lady put probe to measeure pulse in ankle I almost kicked her, involuntarily honest.
After much ear bashing from the wifffffff went to gp today have been perscribed pregabalin and tramadol upped. Oh happy days.
On the plus side its a beautiful day and whilst what was a 7 min walk took 40 I basked in the sun, so life aint that bad. Looking forward to resumption of boat bus to island cant reach my thinking rock but the island is bonny and peaceful.


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