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Can't catch a break...
Sometimes I just feel like I can't catch a break. My biggest fear with my pregnancy last year was that I would need a c section and then have spread of my rsd internally to my abdomen...and that's exactly what happened. But I've been doing pretty well dealing with the extra pain...all I have to do is look at my beautiful smiley happy baby and it's all worth it.
Monday night at work I started to get really bad pain in my abdomen...much more severe than the RSD pain usually is and different pain...stabbing instead of burning. I almost went straight to the ER on my way home from work but talked myself out of it thinking it was probably just a flare up. Next day I start bleeding but it stops quickly so I hold off on going to the dr. Wednesday morning I have more bleeding so I go to the dr for walk in hours. Basically...they give me antibiotics and tell me if any more bleeding or worse pain to go to the ER because they will be able to do the imaging and get results right away. So yesterday I start bleeding again at work so at the end of my shift I go to the ER (its 11pm at this point). Yeah...they find a 4.5 cm ovarian cyst that is causing this pain. Good news is that the cyst is probably nothing to worry about and will go away on its own (still have to follow up on it though). Bad news is...its incredibly painful. They gave me two doses of morphine at the hospital. I have to say...I don't take anything for my RSD pain because nothing helps so I usually don't take pain meds even at the hospital when they offer...but the nurse and dr sort of insisted I take something (this was before they even did any tests) so I gave in. Holy cow...I did not realize how bad the pain had gotten from this cyst until the pain went away. My RSD pain was still there...but just having the stabbing pain go away was such a huge relief. They gave me a script for Norco anD I'm taking it...I just can't deal with the extra pain anymore on top of the RSD. But seriously...an ovarian cyst? WHY am I such a wreck? I have the next few days off of work and I'm just going to rest. I follow up with the OB dr Monday...hopefully things just improve on their own and this really is just nothing except a painful little blip in my life. But...ugh!! Just needed a little vent... |
Hi Catra,
Ouch! Ovarian cysts can be really painful, especially when they are large. They DO usually resolve but can take a couple of months sometimes. Even in cases when they don't happen to resolve the old days of surgery for these are long gone. Worst case scenario, they can drain it. Not pleasant but achievable via needle on ultrasound. Most likely you won't need this and it will just go away on its own. You are not a wreck. Cysts are common and your body has a whole lotta change to sort through after baby! It IS hard dealing with one more thing and you've got work and Mom duty. That is plenty going on. It's good you can rest a few days. Have you tried any topicals for your c-section incision? I just started a ketoprofen/ketamine/gabapentin for my ankle scar. The pharmacist felt really positive about this combo. Glad to hear Baby is bubbly and happy! Sending Healing Love, Littlepaw :hug: |
Catra,
You've been incredibly strong and you have a healthy baby! The first time I had a Ketamine Infusion I started bawling (and laughing) because it was the first time I had been truly pain free in over 10 years. I think we tend to forget and minimize what we deal with every day, all day. You've been coping with fewer pain reducing options than most of us, while undergoing both a pregnancy and the recovery from a C section, you now have the care of an infant, AND you've returned back to work. Hopefully this is a temporary setback. You need to prepare yourself that life with a child inherently means there will be more things that come up, that are beyond your control. You might find that you will need to be open to trying new meds or finding new coping strategies at some point. Whatever makes you the most functional for your family has to be your first priority. Above all else, you're blessed to have her and she's blessed to have you! |
Vent Away!!
Sorry Catra! I think we all feel that at some point or another. mine was having the worst flare of my life be cause from q minute piece of glass in my foot, that I honestly didn't know was there !!!
I als or know exactly how painful cysts ( mine is a fibroid) and that stabbing can be however mine was BEFORE my Crps. Actually I was in the hospital for that when the 2 nurses injured my nerves causing my Crps lol! I couldn't begin to imagine trying to deal with that kind of massive pain, your cyst is WAY bigger than mine was, on top of Crps.... Just know that you are NEVER ALONE! We will always be here to listen, support, and help each other! Vent away! Whenever, however, why ever you need to!!! Emma Quote:
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Oh ya...
CONGRATULATIONS!! Love that baby!! He's a blessing, and you are an AMAZINGLY strong woman!
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Congratulations and vent away....yes, I find any additional pain other than crps pushes me over the edge, when that pain goes away, I'm like OMG CRPS hurts! It is always there and we get use to it, but something different takes my mind away and think, what fresh hell is this....finally that goes and the nerves are like, still here, still hurt...so kudos to you for what you are able to do and continue...:hug::hug:
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Sorry Catra and all of you with pain,
I have so many bad days and times gets worse ,I been here but wasn't posting anything anything ,I'm tired as well. Hope you all better Days and know ,I'm here praying for those who believes in prayers ,holding hands and always wishing the best , love Jesika . :grouphug: |
:hug:..am so sorry for all you're going thru...I'm 68 and occasionally have back pain but when I start to complain, I stop and think what my daughter and all of you wonderful people go thru on a minute to minute basis with this life changing disease!! Don't give up..I just am sure that within a few years a cure will be found...Germany and Korea seem to be more dedicated to researching a cure...makes me upset with our USA...I just keep writing those letters and hoping to see progress ~ please be strong and know you are thought of!!
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Blessings and thoughts of great strength to get through your days ahead! :hug: |
Thanks everyone. Still having a rough time...hoping the visit with the dr goes well on Monday. This extra pain is really taking a toll on me...
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Saw the dr today...looks like the cyst twisted and ruptured and that's why it's so painful. Dr said that it will take about 2 weeks for the pain to go away but that it should feel a lot better in about a week. she loaded me up with more pain meds and told me to rest for a week (ie...no working). I'm pretty bummed by the whole thing. This extra pain is really sucking all the energy out of me. At least I have my little princess to make me smile whenever I start to feel too low. I'm usually pretty good at staying positive and energetic even when I have bad flares...but this little episode has really just taken a toll on me.
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Well, that's a relief that it should get better very soon.
And while I know you miss work, it's a good time to be playing hookie. They grow so fast and change so much that first year, it's amazing. Enjoy every moment. BTW, have you thought about starting a Mommy and Me swimming class with her as soon as she's old enough? |
Vent away!!
Oh Catra!
You have every right to vent and NO need to apologize!!!! After having lost the pregnancy myself I believe due to complications from the medications I took for CRPS I can imagine your stress and worry. I sincerely hope and pray that everything will work out as beautifully and wonderfully as possible . I hope that with your pregnancy you're CRPS is pushed into remission if not just during but I pray forever. Regardless of what happens with your CRPS I'm sure you will be blessed with such a beautiful baby. Please make sure to love that baby extra hard for me to. I know how scary it is to find out you're pregnant when you're dealing with this condition. But I know you're strong enough to handle it and to bring a beautiful child in this world. ANYTIME you need to talk, ANYTIME you need a shoulder or a friend, ANYTIME you need to vent or someone to yel at??! I'm here! Pregnancy is hard enough to deal with on its own but so magical I couldn't imagine going through a full pregnancy and dealing with my CRPS . Just remember you are an extremely powerfully strong wonderful woman for wanting to bring this child into the world well dealing with what we deal with . My heart and prayers are with you daily stay strong and give that kid all the love you can!! You may not have caught a break yet..... But when not babies born even with all the work and tell I heard medicine pain you will get the biggest break at the mall that love that singular powerful undescribable bond of love between a mother and child. That's the biggest break of all! Endless love..... You have all my prayers, love, and blessings for a healthy, beautiful bab, with an easy, near as can be painless delivery! Emma Quote:
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I've definitely thought about the mommy and me swim classes when she's a little older. So far she seems like a little water baby...loves her baths...so I think that would be fun and also good for me. I can't wait for the warm weather so we can try one of those shaded baby pools in the yard.
Having the little one is such a blessing...but it's SO HARD when I feel like I can't hold her as much as I want or play with her as much as I want...especially with this new stuff going on. I'm sure the week will go by quickly...but it already feels like it's taking forever. |
sorry
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Hi Catra,
Glad that's over with, now you can just recover! The rupture may actually be some weirdly good news. I have had cysts that resolved on their own and I had one years ago that ruptured. There is definitely a difference in the pain! It was intensely, intensely painful with the rupture. Your pain level with a regular cyst seemed kinda high, but I thought maybe it was the CRPS or central sensitivity making it worse. The fact that CRPS was NOT making an acute pain incidence overly high seems like good news as far as your nervous system is concerned. The other good news. Rupture is rare, I never had one do that again. You will heal beautifully over your week of hooky and hopefully this will be then end of it. No needle aspiration or going on for months and months, yeah! Enjoy that baby this week! I am sending Healing Love, Littlepaw :hug: |
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The pain is still pretty bad but it is getting better. I've been able to reduce the pain meds a little (go longer between doses) and am hopeful that it will just continue to improve over the course of the week. I still have to be careful not to overdo it...movement of any kind seems to aggravate the pain and only the meds and warm baths seem to help the pain...but any excuse to take more warm baths is fine with me as that helps with the CRPS pain too. :) Will continue to rest and take it easy so that I am ready to return to work on Monday. |
I am so glad your pain is getting better. Mine took about a week to ten days. Careful lifting! You don't want it to keep bleeding during the fragile part of healing.
I'm glad too that you didn't take my post the wrong way. I was afraid you were gonna think I was just a "B" because I was happy your cyst ruptured. I't sure good to know something that hurts that bad has a cause and is going to heal though. :) Littlepaw |
Hi catra
Im sorry you were doing so well and ur back to this. Pm me. I need to ask questions. |
Ugh...just found out yesterday that on top of everything else...I also have C Diff caused by the antibiotics they put me on for a UTI when I first went to the dr when I was started getting the abdominal pain that was caused by the cyst. Another case of on the one hand being relieved that it's not just a stomach bug that I'm overreacting to...but what the heck? I am now terrified that when I go in for my ultrasound on Monday that they will find something else...my track record lately has not been good. I was feeling a little better late last week...but Monday I started getting severe abdominal pains and throwing up again...though it's pretty likely the C Diff causing it now...going on 4 weeks of that now and am just fed up with all this nonsense. I really hate being sick and am feeling pretty helpless at the moment...and it's very frustrating...
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Good God I'm sure you're frustrated! C diff is the pits and sometimes a bit resistant. After being treated for it remain vigilant in case it gains hold again. Ask your doctor about prescription strength Probiotics or get some of the good guys at your local health food store.
I hope you beat this soon! Best of luck on your ultrasound. :hug: |
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