vision question? aura or not
 

Hi just wondering does anyone here , see like an eclips of the sun when closing eyes or blinking in the darkthis happens to me in every night i think mostly in my right eye, its bright white circle, and happens upon waking blinking or coughing with eyes close. only in the dark, its worrying me and i dont know if this is a sign of epilepsy or not.

Hi Jen,
Right before I have a cp sz. I always see different colors flashing back and for from one eye to the other and then I get a nervous feeling in my stomach this is all part of a simple partial sz. (aura sz.) which leads into a cp sz. It happens to me only when I'm awake. The colors you are seeing are coming from the back of your head where your eyesight is. opptical lobe. Here's wishing you well and May God Bless You!

Sue

Sharon And Sue, let me get this strait tho,
i only get this in the dark, and yes it is for only a second,i'll be sound asleep, then will wake in kind of a shocked manner, like when you have a nightmare, and see this eclips just before or after opening my eye lids, also notice when i turn over fast in be from one side to the other, i flop my head and BANG! its there for only a second, in fact i can cough in the dark (sometimes and it a Happens) , is this what you mean, cause if so , i should tell my neuro about it when i see her. also, i get purple rods, where ever i look, if i change the angle of where i look the rods follow. sitting in the sun, i felt like realy strange, ive never had this before , every thing white became to white, and all the colours seemed dull, almost yellow. then i felt myself sinking into my self, i knew i was in controll, as i was taking to my husband at the time, but my enviroment felt very strange as if in a cartoon or very insular. i so hope some one can make sense of what i'm saying as this is all getting tooo frietning for me , as my body was working like normal, but i didnt feel i was in control of what it was doing. sounds very weird i know. nearly made me want to thro up!
my legs nearly went to jelly, like i couldnt walk, but its wasnt like fainting you see. my hand whent tingly and felt numb for days. REALY!
the past month its all been getting worse and i feel like i'm going to lose the plot.
thanks so much .

Sorry Sharon , what is a CP

Hi Jen,
What you are discribing sounds exactly like an aura sz. and I would report it to your neuro. The brain is the most active when we are asleep and there have been times when I have come out of a cp sz. (complex partial) when I've been sound asleep and then it wakes me up.
Some people are photosensitive which means certain colors can cause sz. for some people. You might want to ask your epi to do a special e.e.g. on you the next time you have one done where they will flash different color strobe lights one at a time to see what colors if any bother you and can trigger a sz. I had this done and I found out bright white like when the sun is shining on the snow, florescent green and amber were the 3 main colors that triggered sz. for me. If you're interested check out this web page for more info. http://www.neuropat.dote.hu/neurology.htm when the main page comes up click on epilepsy and you will find a lot of info. about different forms of sz. AEDs, and medical treatments for E. Here's wishing you well and May God Bless You!

Sue

Sue:

I've had many photo & strobe EEG's done, but never a
colorized one. I just tried to do a research for a name for
one.

But I know this one thing - Fluorescent Lights are a nightmare
to me, especially if the ballasts are going bad or the lights are
going bad and they really begin to flicker. That's why I wear
sunglasses on my head all the time, even at nights.

Those things will either provoke a Migraine or Seizure or even
worse, a Migralepsy.
:(

I've learned to look away or shut my eyes or look downwards
if those things begins to fire off.

Strobe Lights on the other hand ... is really weird with me,
sometimes it won't do anything, and sometimes it causes me
to tremble up where I beg them to turn it off, to a point where
I'm almost in tears. And within an hour or so, I get this huge
massive headache ... like what happened when I had my EEG
last Friday ...

But I never had any colorized light EEG :confused:

Hi Sharon,
I'm no Dr. but it sounds like you may be photosensitive like I am. The name of the e.e.g. is a photosensitive e.e.g. my epi ordered one done a few yrs. ago when I told him how strobe lights were causing sz. for me and florescent green was the worst color to trigger sz.
Before I started having any sz. I started having migraine headaches then the sz. started about one yr. later. If you use a cell phone take note if it bothers you and causes migraines or sz. because the frequency your in using cell phones can bother some people like lights can.
One thing I noticed is since I had my brain surgery the colors don't bother me as much as they used to. Here's wishing you well and May God Bless You!

Sue

Ummmmmm --- I'm profoundly deaf. However, I've been light
sensitive all my life though. Maybe that's why I don't get that
many photo/strobe EEG tests which are often skipped on me.

However they (Doctors) are fully aware of my light sensitivity,
and I've been classified as "Acute Classic Migraine" - so I know
the difference between seizures and migraines - but I hate them
when it's both together.

Thanks for the explanation! Would have never known!

:hug:

Sharon and Porkete, this is very interesting to me as my computer has been triggering most of this arua and ugly feeling of being removed form my body, every time i reseach. you see ive had a problem on and off with balance for years so this is my way of finding out whats wrong so i can help myself get well my reseach is all done on the computer , looks as if i have to buy one of the lcd moniter or flicker free screen.
as soon as i get on the comp, with in 1 minute my arms and legs are finching and arua happens. i havent heard of this Migralepsy. some one along the way had mentioned atypical migraine as possibly being the reason behind my balance issue and now they are saying possible seizure so i could have both, Maybe? i'm so confused.
thanks so much guys,
hugs jen

Hi Jen,
I found that the brightness of a computer monitor would often trigger sz. for me. In regards to balance I have very poor balance also. I found out that often this is do to the AED a person is taking or it can happen because the cerebellum of the brain which controls a persons balance is being affected do to the epilepsy, that's why a neuro or epi will have a person try and walk a straight line walking heel to toe without looking down at the floor. I always pull to the right when I do this and it's the RTL of my brain that's causing the sz. Here's wishing you well and May God Bless You!

Sue

thanks so much every one will do

Sorry for the delay, my mother has been in town. I had something similar but it has a variety of types. I went to have the Optomap test done and she suggested it's actually these small fat ball things in my eyes (gross!!). I do have some visual disturbances after my seizures (blurred, halos, etc.) but the light spots or those floating things (not to be sick but I call them air sperm, lol) my optometrist said were fat spots.

Anytime you have any visual changes, you should have some extensive eye testing done. Look for an optometrist who specializes in working with people with head trauma; they have the good machines! If you're anywhere near Orange County, let me know. I know the best one around and she has amazing history working with people who have Epilepsy and other various neurological problems.

Also, my man got a new big screen tv which triggered my seizures. I eventually got used to it. He got me a HUGE monitor for my B-day so that took some getting used to. Both are LCD/Plasma.

Gotta run my mom to airport!

Ellie - the Specialist is called "Neuro-ophthalmology"

:hug:

Not mine :) I mean an actual Optometrist (FCOVD) not Ophthalmologist. I have both.

Oops! I have a Regular Optometrist too. I only saw a
Neuro-ophthalmologist one time years ago (early 80s' I think),
when he confirmed my vision was 20/20, and I had night blindness
and that the vision problem was neuro-related. The State Voc.
Rehab. Dept. sent me to him as they thought I needed glasses
after obtaining a report from the Optometrist stating my vision
was fine and it was a neuro-issue. They never did anything
after that.

Please accept my apologies!
:sorry:

No need to apologize, silly! Yeah, same thing for me - kinda. They did testing over several days and my vision changes which ended up with a neuro-related diagnosis. Basically, one day my vision is crap and there's nothing I can do about it. Sometimes I can't focus, so my eyes keep trying with no luck. She also said I had a severe midline shift to my right, however, I've grown used to that and just learn to walk an extra step to the opposite side. She also had suspected some vestibular problems, but that came back OK for the most part (sometimes I tip over, but I think it's kind of funny :D).

It's rough, but my Optometrist was the only 'eye doctor' I've seen who did 3 days of straight testing (3-4 hours per day AND only charged for one visit) to confirm her diagnosis.

I remember one thing though, it's kind of funny. They were doing the thing where you put your eyes up to that small machine that reminds me of one of those viewer things I had when I was a kid (round disc with pictures, and you click the handle to change pictures). She told me to say what number the line was on, it was 1-12. I was chucking out numbers, "Two!, Four!, Eleven!". I was so thrilled that I could call them all so fast, up until I realized that it should have stopped on one number :(. It was my eyes trying to focus and failing. I think eye tests are the only tests I have that I really enjoy. :D Even if I fail, they sure are fun!!

Anyway, more towards the topic.

I highly recommend (all of you) getting the Optomap test done. It is just like your dental x-rays. It stays on file forever! It's like $40.00 without insurance, and if you do that once a year or so it will let them better look for changes, too. I think this website has pictures and maybe videos: http://www.optos.com/us/

Hi Ellie, this one looks like the ring, just like out of that horror movie the grudge, dont know if you've seen those movies and i wish i hadnt now. hee hee, but it looks very much the same and it's like looking at a photo of an eclips of the sun. but realy white, just as i blink in the dark or when i wake and open my eye's, sorry guys it's just this is all new to me as i didnt know what i'd been experiancing was even aura's, i've seen blobs and stuff for years, my balance issues have been my priority till now the balance is in remission, and the other stuff has just started to get bad. at first i thought this could be some sort of mental illness due to stress of the balance prob, but now i realise it sounds way to much like i have E.
i realy do apriciat all your imput and hope i'm not pushing too hard for info, its just after 13 years of illness i need some answers. thanks again. jen

Jen

You need to discuss with your Doctor or Neuro about
this, and if all possible to have an EEG performed and
have your vision checked as well.

Take care!

:hug:

Vision
 

Hi Guys,

I've had a problem for several years now. It seems that everytime I stare at the computer screen, my eyes start going haywire and moving around (people have described this as like a seizure). The funny thing is that I dont seem to notice this.

I've checked for everything, including epilepsy, but nothing definitive has come out. But my vision has surely changed a lot. Some days I see great, others, not so great. It feels like my contact lenses are adequate one moment, and then not adequate the next. I even see double with one eye closed!

I know there's something wrong, but no doctor seems to have been able to figure it out. Any tips on what I could do next?

It really is bothersome and now I think that it may be happening in normal day to day situations since many times people I'm talking to just suddenly burst out in laughter.

Thanks

Vern