Dr. Perlmutter on PN
 

I love this man and all he's trying to do to help the population who will read and listen to him and his works. I took my speakers off my desk, so I can't listen, but maybe others will. There is a blog to this link too:

http://www.drperlmutter.com/fluoroqu...al-neuropathy/
What's causing peripheral neuropathy? ... It seems that supplementing with a particular molecule, inosine, has been shown to aid in nerve regeneration.

He may mention Inosine in the video, don't know. can't hear it.

No mention of it in the video, but someone in the comment section posted a link to an article about inosine on another website:

http://www.wellnessresources.com/stu...air_of_nerves/

This is what Dr. Perulmutter has to say about lipoic acid:

http://www.drperlmutter.com/lipoic-a...ic-neuropathy/

________________________

I just read more comments on Perlmutter's blog and omg, the damage done to so many from these FQ and cholesterol drugs too....just awful and all FDA approved.. How do they continue to get away with these damaging drugs? So so powerful, what will it take?

I first knew about all the FQ drug damage from an FM/CFS group I was a member of since 2006...so much damage from these reported by some members.

I've seen enough just with me and one drug back in the mid 80's, but so much from a close family member.

Just finished hearing the hour with the Prolotherapy MD here in L.A. and all the call in people in various types of pain. One woman called in with PN and he went thru the was it from diabetes, alcoholism, she said NO. Then she went on to say something about she thinks it was from an anesthesia, I think that's what I heard. She's been thru all the conventional MD's and tests and gabapenten and he went on to say for her to get a SpectraCell vitamin/mineral etc test....and to make sure she is taking antioxidants. OPC's are powerful antioxidants. With my OPC's I take, I still take about 1500mg Vit C daily. This person was hardly familiar with alternative medicine. The Prolo MD is very much in that mode.

Did she go into much detail about the anesthesia. I have FQ antibiotics but also had multiple investigations and developed SFN shortly after a surgery.

Any ideas?

The conversation ended and no further talk on the PN issue, this MD's work is Primarily PRP and Stem Cell Injections to the joints to keep as many as he can reach to not do the joint surgeries. One person did call in with a mess from arthroscopic surgery and some years later knee replacement and she is so bad off from the work she's done...he cannot work with joints that have plastic or metal in them. I have a lot of nerve damage from hip replacement, which made my knee and foot/ankle all worse with shorter leg outcome. The shorter leg caused my body to be so off alignment. I want to do PRP injections so much, but keep putting it off due to finances...insurance does not take care of these alternative treatments.

Into my 2nd month on Inosine and Sphingolin that I'm taking for Nerve Damage from hip replacement. My right thigh is totally numb and had been burning and tingling for years and since on the above two I can say hardly anymore of the burn/tingle. So have to think these are helping with this damage.

That's pretty cool. I've just started both of those.

I would like to comment on that Sphingolin again....

Here is why I don't like the thought of this supplement:

http://neurotalk.psychcentral.com/post1144611-3.html

The Sphingolin seems iffy to me and too risky. The bovine sources are often not identifiable as having Mad Cow. I believe a young cow was recently found with the disease. The Prions are difficult to find, and impossible to kill (instruments used on patients for open head surgeries, are thrown away... because they cannot be sterilized). I myself would never take any bovine or other animal organ derived supplement.

I am not aware of any testing of bovine nervous tissue, for prions. I don't believe they exist. They elude sterilization techniques that are used on surgical instruments, and so those used by neurosurgery are discarded and charged to the patients.
Every once in a while you can see news articles of nvCJD passed to patients by wrongful reuse of instruments. nvCJD is the human name for prion disease.

I'll volunteer to be a guinea pig. If it doesn't do anything I'll let you all know. I have no fear of mad cows.

Good luck to you.

Thank you very much. At this point my life is a crap shoot anyway. I might as well go out as a benefit to scientific enquiry.

Icelander,

Find footage and first-hand medical reports of vCJD sufferers, then you would not be so flippant. I lived through the UK Outbreak when contaminated beef products entered our food supply. Deterioration and death is like UltraAlzheimer's, and can strike any age. There still may be cases from this first Outbreak yet to present.

Would you really risk this for minimal reward?

Dave.

Here is another news worthy item about BSE and bovine supplements:

http://www.prnewswire.com/news-relea...-71779387.html

Do you by any chance know statistics for how many people in the US contract mad cow disease each year? I haven't heard much about people actually getting it. It seems extremely rare. I remember the big scare a few years back but nothing seemed to come of it.

http://www.ninds.nih.gov/disorders/cjd/detail_cjd.htm

This is the best site I found giving figures for all forms of CJD.

Dave.

I do see this from time to time in my job. I just worked on a trial this week where someone passed away from that condition. Very sad. There is nothing you can really do to stop it and generally they die within a few months or even weeks after diagnosis.

The problem with nvCJD is that it may lie low and wait to manifest. So that a connection to anything the person did or ate, could be years in the past.

Also diagnosis is often spotty...and can be confused with Alzheimer's. Typically, nvCJD is faster moving once it manifests, but if the person is older, it could still be thought to be Alzheimer's.

Dave is right, why risk this at all for a little known supplement with no real research behind it?

I just worry about supplements in general. I've "seen how the sausage is made" and these supplement companies run the spectrum for great to terrible.

When I did supplement testing, sometimes there would be no compound contained within the sample!!! These companies will buy cheap, adulterated compounds from China and try to make a supplement out of it....then they are shocked and angry that there is nothing in their newly formulated product. And some of these companies are so fantastic, if they offered me a job that I'd jump at the chance to work there.

It's really hard to vet some of this stuff out to find the quality products without tearing a large hole in your wallet.

I worry more about all the drugs and deaths from them, one report from 2010, mentioned 100,000 from drug/interactions.. I'm not worried about mad cow, it never enters my mind. I'm going to take these 2 for three months and maybe go off and see if the burning returns....

I've been taking supps for over 25 yrs and doing fine on my supps. To each his own, it's true... Thanks all.

One of the newer websites that independently examines supplements is labdoor. The company is growing and keeps adding to the items that they review. Labdoor ranks various supplements for quality and value. I appreciate that they test the product to see if it matches its label claim and also test for heavy metals.

https://labdoor.com/

Caroline, I'm having difficulty understanding why "totally numb" is a good thing. :confused:

Is this area numb since your hip surgery? Have you looked into Meralgia Paresthetica?

Lara, I've never said totally numb is a good thing. This area is numb since hip replacement in 2010 and nerve damage....the two supps I'm taking now are reducing/eliminating the tingle/burn but certainly not the numbness. Nerves could be just plain dead. And I'm not willing to see more doctors etc. or even consider a surgery, etc....I'm living with it, and it's certainly not a good thing. A side effect from this surgery.

Would you say that a person taking Armour Thyroid should not be taking it? Understanding it is a FDA approved drug and not a supplement it is derived from pigs. Not being combative, just asking your thoughts. I know a lot of people with SFN would be willing to be lab rats at this point if there's even a small chance it will reverse the disease. People who have to take Armour Thyroid in many cases need it to simply survive because synthetic does not work for them.

Why exactly should they not take both? I take both with no issue as far as I can tell.

If you do well on pig gland extracts, that is your choice.
In medicine not all things are totally "known". It is only after something happens that new ideas are considered. The future may hold new discoveries. In the world of insulin supplementation, both Beef and Pork insulin are history. That is just one example.

Here is one article about it:
http://www.endocrineweb.com/conditio...hypothyroidism

Thus, there is no 100% answer to your question at this time.

mrsD,
Thanks for the article.
:hug:
DejaVu

I could write my own book on thyroid issues that I tried to get supported for about 10 yrs and because of the lab numbers, doctors told me I was fine. Not so, after 10 yrs of anti depressant drugs that the doctors gave me instead of thyroid I was able to throw those drugs away once my then D.O. called in for Armour in 2002 and the depression lifted in a few days....That was in 2002.

I tried so many different types of support and desiccated worked best for me.

In recent months the Armour product company was sold and prices for Armour went out of sight for me. So I was able to find NP Thyroid from the Stop The Thyroid Madness group and love this product, it's the generic for armour.

I have no issues with pig thyroid, only positive results. Synthetics made me so fatigued thinking back when endos wanted me to take syn product.

I've done well with Sphingolin for nerve damage from hip replacement surgery.

So glad you were able to get the product from that group. A good friend of mine who passed a few years was well known in that community for his research.

I just read the article from pr newswire that was referenced which said, "Pharmaca may re-stock dietary supplements with bovine source material once we are assured the source is from a non-BSE infected country such as New Zealand," said Don Summerfield, VP of integrative medicine."

Sphingolin by Ecological Formulas uses cows from New Zealand according to my research.

When I was pregnant I was very anemic and the iron that was available was not working. I switched to a product by Standard Process Labs and I was no longer anemic(or constipated) as my body was able to absorb the iron. It contained bovine everything. Of course i did not know the risks then and I don't think I would have taken the chance with my son, but now it's just me.

The risks of Mad Cow have always been minimal in my research. I've never worried about that. Especially when we all take meds what have side effect warnings as long as our arms. That certainly doesn't stop most of us from using several. And going to the hospital is wayyyyyyy more dangerous and we are all willing to do that. Let's put this in perspective. I also use this product and I rarely get mad these days.

Caroline, hope you're well. Looks as though it's been another two months since your last post. How are the 2 supps working?

Balanchine, I'm still taking Inosine, into 3 months now, took Sphingolin for 2 months and the burn/tingle is just about gone with this Femoral Nerve Damage. I'm so glad these 2 came to my attention from a naturopath. I'm pretty much up to trying anything holistic that could help me. I've never had fear of mad cow either as I've said I have more fear of the drugs with the long list of possible side effects.

Standard Process was mentioned above and I took many SP products over years for adrenals. And still take an SP product for ligament repair which also contains bovine.

I'm reading thru some Sphingolin posts and thinking about all the fear from maybe taking this supplement from bovine. I'm on this earth 77 years and have been eating ALL meats and a lot of beef all my life since probably 4-5 yrs old...I've eaten meats in the US, UK, Canada and Mexico and no mad cow disease for this ole gal. The company that produces this product is a fine long established company since 1981 and I don't think they would chance using inferior ingredients in any of their products. Isn't this something to think about.

I have no burning issues and feel that "maybe" some may not try it due to the fear comments.

I know some talk about being "iffy" on Sphingolin but FOR ME this and Inosine taken daily for 3 months got rid of my Burn/Tingling on my nerve damaged thigh.

Even though I don't have the burning anymore thanks to the 2 supps I've taken for 3 months, I think I'll get some more Inosine and see if I can't get some nerve restoration. My whole thigh is still 80% numb but not burning.

BTW: I now have ear buds and listened to the video and no mention of Inosine.

I never knowingly took the abx drugs that cause all the damage, but I don't know what kind of abx drip I was given during hip surgery.

Anyone else have any reports on Inosine and Sphingolin?