Vns
 

Do any of you have the VNS?

What is your thoughts on this?
Is it helping with sz control?

why are you asking?

I think it's a wonderous device and has helped many people.

I am curious how this device is helping people.
I have heard from many people the horror stories and wondered if there was any good side to this.

from our experience...it's usually people who dont educate themselves BEFORE being implanted, who have the most problems. the ones who chose to try one drug before opting for the surgery.

You say in your experience?
Can I ask what that is?

Do you have the VNS or a loved one?
Is this an adult or a child?

Is it helping sz control?
How many meds did this person try before getting implant?

my two children have it. My son would tell you in a heartbeat, he'd do it again...My DD doesnt verbalise too well. My son tried 8 different meds, my DD 13...

In your opinion is it helping your daugter? Has sz control gotton better?

Are you by chance a member on the vnsmessageboard? I bet you could get great support from others

I hate seeing kids have to deal with this



Birdbomb
Thanks for sharing.
I think I have read every post on your site and got tons of great info and advice from what others experience. Great site you have. Keep up the good work

Yes Rocking4Epilepsy I To Have the VNS
 

My VNS DID not work out as well has I had Planed I am sorry to say.I have had my VNS now for three years and no luck My voice still goes in and out every time it goes off and I still have sz.I am now looking at Brain Surgery for my sz control if my new pill dose not do the trick for me .But I wish well to all the others that chose the VNS

My VNS isn't perfect but it has helped some. It has made my sz's less severe & happening less often.

lor

Vagus Nerve Stimulator -VNS and Epilepsy
 

Yes, In case he doesn't show up in BrainTalk today, Howdydave's experience and very thorough explantion with and of the Vagus Nerve Stimulator is right here on his site's link.
http://www.howdydave.com/vns.html

Howdy Linnie!

Gee... I was just gonna' say that too!

BTW: The site title is:
The VNS From A Patient's Point Of View

It can be directly accessed from a button on my site.

At this time I have better control than I ever had before.
In all honesty I must say that I'm not sure whether it's due
to the VNS, diagnosis & treatment for sleep apnea or a combination
of the two.

Hi, My son is Derrick and he is 15 and has had the VNS for 2 years and
3 months now. Honestly the VNS has helped the seizures in some ways
and not in others. It has shortened the postictal time, made the quality of
his life a lot better. And he can know have times that he does go without
having any seizrues. But there are times that he has many too.

But I would say in a heartbeat that he would definately do it again. He
is one that can and does use his own magnet. He teaches others how
to use his magnet, and he is very happy to tell all about when and why
he needs it.

HE is very pleased they came up with this as a helper for medicines.

He is still on 3 medicines, but not the same 3 he was on when he started
this, and not the same dosages.

Donna