Hi all I'm newly diagnosed
 

Hi everyone, Had EMG yesterday with my Neurologist. His comment when finished was that I have Neuropathy. He said to make an appointment with my GP for next week to go over things??
Same as most, started with pain in the ball of my left foot which turned to numbness, pins and needles. Over 4 months this moved to burning in both feet and now legs with ongoing throbbing, pins and needles in my hands and fingers. I have also started having random intermittent sharp pains in my calves and shins. I also have aches in my head and tenderness around the temples.
I also mentioned to the Neurologist my most worrying concern, periods of memory loss and confusion. I have had trouble with multi tasking and some times even adding up basic numbers in my head. Sometimes I have trouble finding the right word and just spitting it out.
The Neurologist didn't think these problems were linked to my Neuropathy, but I'm not so sure. As my body symptom's have increased so have my cognitive problems. I am scheduled for a PET scan to check for early Alzheimer's
I have had 2 melanomas removed (early stage) and have a 10yr history of working with MDF (Formaldehyde) in our workshop at school.
I'm concerned of making mistakes with my students and also duty of care.
Can this all be linked together.
Dearly appreciate any help and advice.

G'day Phil,
Welcome to the NeuroTalk Support Groups.

I'm sorry for the complex issues that bring you here but I'm sure you'll find support and information.

You could repost over on the
Peripheral Neuropathy Forum
to start with.

There's also a handy forum search feature. Link below. You can just type in specific keywords and search all forums here or just one if you wish.

http://neurotalk.psychcentral.com/search.php

Actually I just ran a search for Formaldehyde in the Peripheral Neuropathy forum and there are quite a number of posts. Worth a look I would think.

mush thanks
 

Thank you Lara, sorry trying to find my way around the navigation of the site. I'm a bit slow ha ha.
Will check out the information,
Thanks again.

Hi Phil

Welcome to NeuroTalk :). I hope that you find the community as knowledgeable and supportive as I have.

It might help if you checked out the Neuropathy forum (http://neurotalk.psychcentral.com/forum20.html) - many good people contribute to it.

As far as your possible early Alzheimer's is concerned, this is something (day job stuff) that I know a bit about.

Please feel free to get in touch if you would like me to comment on this.

All the best.

[periods of memory loss and confusion. I have had trouble with multi tasking and some times even adding up basic numbers in my head. Sometimes I have trouble finding the right word and just spitting it out. ]

Phil, are you taking any statins perhaps Lipitor?

I had major issues as above when I was on Lipitor..:(

Great to meet you!!
 

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

[QUOTE=kiwi33;1156725]Hi Phil

Welcome to NeuroTalk :). I hope that you find the community as knowledgeable and supportive as I have.



Hi Kiwi33 thank you for your help. Yes I'm concerned with the possible thought of Alzeimer's or any other serious reason for my deteriorating thought process. I would appreciate any help or advice you can offer.
Phil

Thanks Jo *Mar no not on anything yet, have follow up appointment with GP next week to go over Neurologist report.
Phil

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:[/QUOTE]

Thank you Darlene, you are all very kind and helpful.
Phil

Hi Kiwi, I'm bubbling around the site and maybe doubling up.lol.sorry.
I would really appreciate any help I am concerned with where my thought process, concentration, multi tasking, memory is heading. I have a Pet scan in two months to look for Alzeimer's, it worries me it could be anything serious.
Thanks,
Phil

Hi Phil

No worries about "bubbling around the site" - I did the same when I first joined the community.

PET scans for AD and other possible neurological issues come in various forms - I don't know which of them your care team have suggested.

When the results of your scan come through, please let me know if you would like me to comment on/try to interpret them for you.

That will come from my background - I am not a health professional but am a biomedical scientist whose research interests include the basis of AD.

Kiwi

My GP has asked for a PET scan but who knows what the Neurologist will say when I see him. Oh well. Will let you know in a few months after the appointment.
Thanks again
Phil

Mortons Epsom Salt Lotion
 

I am sorry that you have found yourself looking into the universe of Neurapathy. I have had relief from burning and tender skin on the tops of my feet using this lotion. Good Luck, Ken in Texas.

Just to add to Ken's recommendation - I don't think Morton's Epsom Salt lotion is available in Australia (correct me if I'm wrong) but it can be purchased online from amazon.

Much appreciated Ken,
Phil

bluesfan is correct. Can't buy Morton's Epsom lotion here. I've double checked just this past week for myself.

Hi Phil,
Welcome to Neurotalk! :)

I am sorry you are experiencing difficulties.
Congrats on reaching out!

The PN forum here is great!
There's so much information and lots of interaction as well.

I, too, deal with PN.
The PN forum here is the best I have found anywhere.

I understand your deep concern (and anxiety) about the scan for AD.
Perhaps it's not AD at all. Here's hoping! ;)

This site, in general, is tops!

Hope to see you around the forum, Phil!

To Our Healing,
DejaVu

Welcome to the NeuroTalk family!
Make yourself at home!

Thanks Heaps, everyone has been great and very helpful. Getting an idea of what may be ahead helps a lot.

Hi Phil. I am new to this group but can relate to this issue. On days that my body symptom's are bad my cognitive problems increase as well. This occurs especially after a bad night. For me lack of sleep plays a big part and so do the drugs I have been prescribed. I do not know which ones you are on but for me many of them have side effects that effect my mental clarity.