anyone else have this??
 

I am having a hard time finding info on this. Let me begin with my symptom. I have a feeling of Iam wearing something on my
Lower legs and lower arms. I twitch and jerk randomly . The tingling all over my body at times. My left side feels more numb then the right .
Like it feels "asleep" . It doesn't feel like the rest of the tingling in my body. When I try to sleep at times. My arm
Will jerk when Iam just trying to doze of to sleep . And it wakes me up. I will get some dull pain in my lower arm and legs at times. My left foot freezes at times and my left ankle will ache or or burn. Or something it's really hard to explain.

The neurologist wrote on the paper stating he knows it is central hypersensitization. And then put where they brain is irritated. But I can't find anything on this?

I never heard of central hypersensitivity. I'm going to look it up. What you are describing sounds like neuropathy.

They said no to neuropathy . Because I have all my reflexes . But the only test I had done was nct.

Central hyper sensitization

Hi Alberta,

Here's reference to the condition your doctor had mentioned:

https://www.painscience.com/articles...sitization.php

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3268359/

http://www.ncbi.nlm.nih.gov/pubmed/19712899#


I am sorry you are dealing with this.

Many people with chronic pain have central sensitization.
Also, many have central pain sensitization, along with non-centralized pain, where there is actual tissue damage, etc.

I deal with both.

I hope these articles help?

Did your doctor propose a treatment plan for you?

To Our Healing,
DejaVu

Does my symptoms sound like central hyper sensitization ?

All the dr did for me so far was up my Effexor to see if it works.
And they said if it does not work she will take me off and put me on lyrics or gab or something?

Hi Alberta,

The first article I had listed is more reader-friendly.
Was it helpful to you?

I cannot diagnose. Even if I could, I have no reason to differ with the M.D. whom has examined you and has taken your history, etc.

Sometimes, these things take time. It's often helpful to stick with one doctor and help the doctor to further confirm/deny the diagnosis by complying with treatment and seeing what happens. Doctors will often change treatments if needed. They will sometimes also change the diagnosis once they see other signs/symptoms develop.

My neurologists have been following me for over 20 years, watching various illnesses progress. It has taken time for these illnesses to fully show themselves to the doctors.

Do you feel the doctor has listened to you and has been thorough?
Do you feel you can contact the doctor if the current treatment plan does not work for you?
Are you okay with the current treatment plan?

Do you have more questions to ask of your doctor now?

Please continue to reach out here.

To Our Healing,
DejaVu

I read that first link. That's a lot of info. But good info. Thanks for finding that for me. This is all new to me. Last sept/oct. I went from
Healthy to a disaster. And it took me 9 months to see a neurologist . They spent quiet a while with me in the room listening to my story and stuff . But when k left he said he didn't no what was wrong with me, come back when it get worse. So the neurologist and her must of talked after to try and figure it out. My primary dr said he is a great neurologist. I believe her. But I'm just trying to wrap my head around all of this. And trying to get info. Which you helped me with.
So you have been dealing with this for 20 years?
What are you symptoms?

I understand this a little bit. . But what I am wondering is. You can have this without the pain of someone touching you? Because I don't get that kinda pain. I see where it effects the sensory in the brain. And that's probably why I have that feeling in my lower legs and arms. With tingling that comes and goes
Everywhere ?

Hi Alberta,

I apologize for the delay in my responding to your post. It's been a very busy day.

Yes, I have had this part of my many medical issues for over 20 years.
Yes, I do have amplified pain. I also often have pain when someone simply touches me. My pain issues are quite progressed at this time.

I have several painful conditions. I cannot sort out, entirely, which symptoms belong to which condition. I wish I could be of more help.

It may be that you have another condition and it does not yet show up in ways conducive to diagnosis. As I had mentioned in an earlier post, sometimes symptoms progress or change and doctors change their initial diagnosis.

I hope someone else will come along and comment.
I have too many co-occurring issues to give clear answers about my own symptoms.

The first article tells us the diagnosis is tough to make and is a bit of a judgment call on the part of medical practitioners.

Which test did you have to rule out neuropathy?
I'd had many symptoms of "neuropathy" before mine showed up on testing, by the way. Read at the neuropathy forum and see if people are describing similar symptoms. Again, I cannot determine what's going on for you. Sometimes, it's just helpful to read up and compare notes with others?
Ask questions there if you are wondering about Peripheral Neuropathy. The PN forum is quite active.

I hope you are having a good day today.

To Our Healing,
DejaVu

Hey, that's alright , busy day is a good day. :-)
I am on the neuropathy forum to. And I have so many symptoms of it. But they said no, I think it was busy all my reflexes was good. And I guess with neuropathy they said you don't have reflexes.
All I have had for test were and MRI of the head to rule out ms. A bunch of blood work. And a nerve conduction test , which I do believe is an Emg. I've
Been dealing with these symptoms since October 2014,
So I'm not sure if it takes a while for neuropathy to show up?
You said it took a while for your neuropathy to show up on a test, how long after and what test?

They don't want to do anymore test because they are
To invasive . I can take a picture of the report if u want?

Hi Alberta,

It took probably 6 years before my initial symptoms of PN and the testing showed neuropathy. I had skin punch biopsies, EMGs, NCVs and other sensory testing. I have had most of my neurological testing at a Neurology Division of a teaching medical school. This has, at times, enabled testing which was not then yet available (or never available) to the public-at-large.

My neurologist has told me they don't do skin punch biopsies anymore. I was surprised. He says they can pick up more info via blood work now.

I hope your symptoms go away! :)

Some meds and other exposures can cause periodic neuropathy flares, etc. You have probably checked this all out on the PN forum.

I am not qualified to interpret any lab results and/or other testing results.
No need to take a picture of your results.

I'd suggest you learn all you can about centralized hypersensitivity. Learn about the role of excitotoxins in amplifying pain, and more. (Search here. MrsD mentions excitotoxins a lot.) Also learn about PN and be sure you have eradicated all known potential drug and/or environmental causes, etc.

I hope you find relief, and soon! :)

To our Healing,
DejaVu

What is excitotoxins? And were your reflexes normal for the 6 years
Before they diagnosed you with Pn?

Excitotoxins, etc.
 

Hi Alberta,

Please type "excitotoxins" into the search engine on this site.
(The blue bar placed near the top of the page contains various words/terms. One is "search." Click on that and enter "excitotoxins." The search should bring you info on excitoxins, as they are rather frequently discussed in various forums here.)

I had normal everything in testing 6 years prior to neuropathy showing in any way, even though I had neuropathy symptoms for those 6 years.

Again, it's key to be sure you omit any possible cause of neuropathy, if you can do so. Watch your blood sugar, too. Some people start getting neuropathy symptoms even though their blood sugar testing looks okay, and their a1c looks okay, too. Keep those values lower then the guidelines, as long as you are not getting low blood sugar from doing so.

Much of this info is on the neuropathy forum.:hug:

I wish I had this info available when I had started with symptoms so many years ago now.

I am hoping for your healing... now... before there are findings on tests.

To Our Healing,
DejaVu

I'm certainly not an expert but follow a lot of health groups and talk about a lot and magnesium is talked about so much and that so many are deficient in this critical mineral. It addresses so much in our health system...do some search on magnesium and your issues. Just throwing that out.

A friend is dealing with afib now and I'm thinking she wasn't taking enough magnesium if she took any....there is a lot of info out there on mag and heart health.

Excitotoxins include glutamate as in MSG a food additive.

The BMAA mentioned in this article occurs in algae in lake water.
Algae blooms like that in Lake Erie right now are very toxic to people and animals.

https://en.wikipedia.org/wiki/Excitotoxicity

Magnesium is an NMDA antagonist and that is why it is recommended for people with peripheral neuropathy.

What is afib?

http://knowledgeofhealth.com/control...without-drugs/

Good info here, in my opinion.

Atrial Fibrillation. Here is a site explaining it.

http://www.mayoclinic.org/diseases-c...n/con-20027014

Thanks everyone for all you help. I am learning lots. Not much info on center so senitization. I can't seems to find stuff on just an irritated brain. It states in my paper that he doesn't think it's cns or pherphrial . So I am confused

Central Sensitization Info.
 

Hi albertakewl,

I am sorry you are feeling confused about what's going on with your body.
Please ask your doctor more questions when you can do so.

I had given you a few links on Central Sensitization. One link was more reader-friendly than the others.
https://www.painscience.com/articles...sitization.php

A few more links for you:

http://www.healthcentral.com/chronic...15887/nervous/
http://www.webmd.com/pain-management...-pain-syndrome
http://www.physio-pedia.com/Central_..._Sensitization
http://www.ninds.nih.gov/disorders/c...ntral_pain.htm
http://www.practicalpainmanagement.c...form-disorders

I hope you find something in these links helpful to you.
I also hope you are finding helpful info in other forums here.
You have mentioned you participate in the PN forum.
Have you used the "search" function here to find threads/discussion/info on "central sensitization?"

I hope you find more information which helps you in your understanding of your condition. Please keep asking questions and we will try to support you.

:hug:
DejaVu

So I had my doctors appt,

She basically said all that means is the nueroligist does not no what's wrong with me. All she said is he thinks my brain is irritated?
She said it's like some people that can feel their heart beat and usually people don't feel that all the time, she said I can feel my nerves more or something. She is taking me off Effexor because it is not helping. Something is making my ankles and feet swell.
She told me the neurologist doesn't think it's in my perpherial or cns. But in my brain? If that makes since?

Sorry you have no definitive answers, Alberta. I find that can be the case with non-commital Neuros.

I am afraid I have no answer to what he means by 'irritated brain', although I do have a good link for Central Sensitization. I am stuck on my phone, let me see if I can find it.

Dave.

Here's the Link

http://www.instituteforchronicpain.o...-sensitization

Video
 

Hi Alberta,

These articles (links previously provided) discuss allodynia and "wind-up." This 8 minute video also explains these: http://neurotalk.psychcentral.com/thread224328.html

Hope this video helps.

:hug:
DejaVu

Thanks all