New pain management Doctor...
 

Hi all! Well, good news ! ok I went to my new pain Doc. He is "WONDERFUL", compassionate, loving, sympathetic, etc. ok, Dr. said he has seen 100's of patients with this most awful and most chronic pain anyone can ever go through.(said this RSD he also calls it CRIBS, is rare.. I didn't know this!) My stage is stage 2. Ok, THANK GOD no paralyzing my entire arm.. He said since three ganglion blocks didn't work, why even get more of these blocks done, being it my right hand, wrist, arm and shoulder. He was however mad that I was only given Vico- prophen (Vicodin with Motrin,xtra strenth.) He put me on Kadian(Time released morphine) It is a small capsule that I have to take once a day.(Their real small, but work all day and night) I have not taken 1 yet. ok.. he said he can put this RSD in remission by it just burning itself out!)<HOPE! So, he is sending me to extended (long lasting physcial therapy for as long as it takes, along with the medication>(He upped my Neurotin also at night to 600mg.) he said the dose I'm on is too small. I can drive when "He" says so. so this is what went on today. Yea!!! I finally found a good pain management Dr.who understands!!! Love, and God Bless you all! Love, Desi :Excited: Oh, he gave me a web site to google it is Web MD.com

Desi,
I'm so happy for you.. I can hear it in your voice. To finally find someone who cares. It sounds like you are it great hands. I take neurontin 600 at nite and I have been feeling much better. (also 300 mg in the morning). when do you see him again. :Excited: good luck
Mary

Hi Desi,

I'm so pleased for you that it all went well, I hope the Kadian does a good job for you.

Long-term physio may be exactly what you need - just make sure you don't (I mean really, do not) do too much at once, take lots of breaks. Make sure the PT instructor knows about RSD. We've had some good threads here before on this, with links to articles to take with you to give the PT people so they understand what they are dealing with. So do a search back through the forum. And don't go beyond what *you* know is too much.

No pain no gain does not apply to RSD, too much PT for too long can be very harmful, specially for anyone over about 25.

BTW, CRIBS=CRIPS=CRPS=RSD (sometimes called CRAPS too :D)

Yes, I agree, it's so good to hear the "smile in your voice", well done, another hurdle over.
Take care, all the best :)

YEAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

I have been told by a couple of RSDers that the time release morphine (kadian) helps a lot. I will be talking to my doc about it, as I have vicodin and I take two every time the pain hits, and it still doesn't completely touch it in a bad flare up.

Enough about me, sorry, this is your thread. I am so happy for you. The stress taken from having to deal with a crap doc to a good doc will probably also help with your pain.

AWESOME.

Hi ya Mary! Many thanks my friend! "Yes' my voice is a singin' LOL :D I take the neurontin 300 mg. in the afternon and now, 600 in the P.M. (Before :Zzzz: I see my pain man. doc. in one month. Oh, did I tell all you friends, that he is "So pretty" LMAO HA HA!:Head-Spin: Thanks again

Mary! Love, Desi :hug:

Hi Artist! Thank you, I too hope that the Kadian does it's job. Artist, you were so very right about me using the term RSD AND the term CRPS because this pain Dr. is really on top of this and he said for me to use both too. so, thank you! (This was a while back that ya told me) Anyway, Yes, I do agree with you that long term Physio is a must. This Dr. would NOT let me go up the street(Physio place, my dad go's to) because he said that he wanted to "Keep an eye" on me! LOL :wink: From my PMD I can see the huge, and I mean, HUGE room through the glass doors where I go to have my physio. Thanks for reminding me(I would have probably forgot :confused: to tell him that too much PT for RSD is too much) Anyone over 25 LOL.. I wish I was 25.. no, I take that back.. them were my "wild days, Artist"!:D
OMG ya had me crackin' up here with BTW, CRIBS= CRPS= RSD(sometimes called CRAPS too) :p Thanks again my buddy! Love, Desi

Hi Christine! Yes, I too had to take two vikes because the pain was awful!! This medication( Kadian) is "Great" so far. It is expensive if you don't have Insurance!! I only had to pay $27.00 something?? for 30 .. Yes, please ask for it, sweetie.. and hey, my friend, thank you so much again! :hug: love, Desi

new to post--taking neurontin 300 mg at night.. doc wants to change to Lyrica
 

:eek: Have been taking 300 mg neurontin for about 4 months. was to have started with 1 cap for week, increase to 2 for two weeks then to 3 caps..
Did ok with 1 cap... started 2 and I felt dizzy, tired, exhausted, fatigued all the time. plus I was not in control of self and worse, could not think straight and my sentence structure was unfinished sentence or one started and working in incomplete dictionary. NO mind .... NO pain!
Cut back down to 1 cap and do OK.
Suffered lots from UTI but good urologist took care of that!
weight gain, some or just maintaining.
Have diabetic neuropathy as am type 1 and for most part am in control. However, with the medictions, I seem to forget when to give extra bolus!
Have Osteosporosis, mid to advanced stages, have rheumotoid Arthritis as well, and other problems.

Suggested that I go to Pain Management physician! NO, I think Not.. I am in control not the doctor. Think PM doc is over rated and I am not taking more medications. Once the neuropathy symptoms of tingling, sharp jabbing pains, spasms, dead feelings, etc stopped, I can manage with a "tylenol arthritis" as need be or if worse a half an oxycodone cap helps. I am not a pill pusher ! So, no Pain Managment for me!

Doc now suggests Lyrica.............
which is the worst of the two Neurontin or Lyrica?
which has the worst of side effects?

Any comments on all this

glorybeeric

:Wave-Hello: Hi Desi,
Sounds like you had a Great Visit with your PM doc today... That Awesome... I'm so happy for you that he gave you some decent pain meds...
My Doc placed me on Oxycontin 20mg every 12 hours and I feel so much better with the extended release med.
I also did PT desensitization and it was irritating but helpful. I find the bio feedback to be really great. The temp in my right hand was 74 degrees and the left was 87 degrees. The bio doc said that we should be able to raise the temp in my right hand with time.
Having a good PM doc makes all the differance in the world :winner_first_h4h: ...
Soon it's going to be time for a Happy, Happy Joy Dance....:Dancing-Chilli: :Dancing-Chilli: :Dancing-Chilli:
Many Hugs :hug:
:Heart: Dawn

Hi Dawn! :Writting: Thank you so much my Dear friend! I'm so happy for you as the Bio feed back Doc.said that you should be able to raise the temp. in your right hand with time! yeaaah!!!:hug:
Yes, I agree with you that having a good PM doc makes all the difference in the world. OMG Dawn, your "Happy dances always brightens my day/ night, Dawn. :D I love your Happy, happy happy joy dance dudes too! too "cute" LOL Thank you again, Dawn.. Your a sweetheart:) Love, Desi :hug: P.S. I think I am in love with my new pain doc. don't tell no one!! HA HA!:p

Hi Eric (Eric??)
Welcome, I have replied to your post by copying it to its own thread, I hope you don't mind; I'm sure you'll get a wider response that way, it's here:
http://neurotalk.psychcentral.com/sh...ad.php?t=22644
all the best :)

I hate that my first post in days is going to come across as criticisng another member, but I feel I must speak out:

Artist. You aren't the first to "move" a post to another thread in order to see it receive more attention, but like Mike in a different context, I'm not comfortable with this as a growing trend.

A major problem is in the fact that the new thread begins with "reply to...(original poster); I think I would feel distinctly uncomfortable the first time this happened to me.

Also, the "transferred" post would have words that can't really be understood outside the context of the original thread; without that context, the whole post carries an air of being disjointed, confusing. This wouldn't be true every time, but I think it safer to err on the side of caution when thinking of "transferring" posts.

Also, its hijacking!!! Yup, the moment you post that link, you are inviting others to move someplace else, someplace they never would have thought of without the link sitting there. Some would probably continue reading the thread to the end, then return to the link, while some wouldn't.

Does one have to hijack an entire ship? Or would a mere lfeboat be sufficient?

Having had my say, I hope I haven't offended anyone (especially dear friends); I hoped my ideas might help clarify some possible issues that might not immediatly come to mind.

I don't plan to make this a campaign issue, this is far from any hill I might choose to die one, I just wanted to give my thoughts...Vic

Hey Vic,

All your points are well-taken, I apologise to both Desi and glorybeeric, and the forum, and will never do it again, I see the dangers there.

I hope my intentions were clear; I wanted to reply to glorybeeric properly, who introduced several new topics, without upsetting the flow of Desi's thread, and at the same time hopefully bring a new member's questions to a wider readership. My responses were very much off topic as far as Desi's thread goes and this seemed to me a reasonable solution at the time.

I see I have accomplished the exact opposite of my first intention, and probably now jeopardised the second. Stupid of me.

So sorry everyone, thank you for pointing it out, Vic,
all the best.

Hey Vic,

I don't want to touch my first response to you and the forum, in principle you are quite right, it is a practice fraught with forum dangers, certainly, and I mean my sincere apology.

But I'd like to add a few things. I'd like to point out that in *this* thread I did not lay claim to "moving" the post, just replying to it in a new thread. The original is still here, in context and can still be responded to. And don't all links included in a post take you away from that post?

I began the new thread with a link to the original post, which links back here, so in the new thread the context is easy to see. But frankly there is little in context in glorybeeric's post, it's mostly kind of off topic or new topic, (a common thing with new posters, we don't mind, lol...) so it makes a stand-alone very well, another reason I thought a niche of its own would be beneficial. But off-topic though it may be, I found it most interesting and wanted to respond, though I couldn't see how to without virtually ignoring Desi's topics and helping to send her whole thread in a different direction.

A good example of this happening (without this coming down to a finger-pointing tussle, I really, really hope) is when you insert your antioxidant/IR injury posts into others' threads with only a tenuous connection, I always have that problem. I've mentioned this before to you in both email/PM and public post, though you've never responded on the subject. Your research-related posts are so strong, and necessarily long, I feel they should stand in a thread alone. I don't like abandoning the original poster or their topic, but your posts often can't be answered in just a few words.

In these cases, I usually don't reply, even though I'd like to, or may give only a partial response; I don't feel I have the right to take over someone else's thriving thread. Or maybe I'm just more of a chicken than most, lol!

In fact I thought that tenuous or inappropriate post insertion resulting in an almost complete switch of topic *was* hijacking, (not the moving or sidebarring of posts) but since it's my day for being wrong...I probably am :rolleyes:...

So, what's a good way to get round all this, any suggestions? Do we just put the little smiley with the OFF TOPIC board on the next new OT posts, even though they may be fascinating, or...what? I suppose we do.

If the OT sign is taken as a hint to the poster to start his/her own thread, that would work, as long as it's understood as such, not as a criticism of the post itself. Or maybe we could find a "Separate Thread" smiley to use...

Certainly, having tried giving glorybeeric's thread its own space, it doesn't look quite kosher...that's not the answer either, I do see that.

Sorry Desi, yet more getting-in-the-wayness :o
Newish forums ....still finding things to iron out, lol
all the best :)

Great news Desi!
 

Hi Desi - I'm so glad you were brave enough to try a new doc AND that he was a good one! Happy dance, happy dance! YAYYYYYYY!
big victory hug!
I hope the new stuff works for you. My fingers AND dancing toes are crossed for you.
:hug:
Molly

[COLOR="Blue"]Artist, no need to apoligize! IMO you did do the right thing by moving that post, as I too was confused, LOL I just think The "New" person", Hi Glorybee:D did not know where to post, so I was happy that you moved it. I don't want to start trouble here, it's just, I was NOT at all bothered by the fact of you moving it. I felt cheated! LOL NOT! Love ya! Desi[ :hug:
Molly, thank you, thank you! Yes, the medication is working, but makes me so tired!! :confused: I started taking this June 26th. I am allowed to sprinkle the contents onto a small amout of applesauce. I wonder if it would be ok to sprinlkle only half of it out, as this medication (time released morphine) <30 mg. ?? Anyone have any ideas or has anyone ever tried this? My husband and I have legal custody of a 7 yr. old and all I want to do is sleep on this med. I remember her coming into my room and saying;"Mommy, Im hungry"!. My hubby is sick and I wake up at 3:00 a.m. and feel so guilty, I go downstairs and here is her little yellow bowl filled with milk. (she made herself a bowl of cereal) OMG I feel so quilty, friends.. help! I feel like the worst mother on this planet!! Love and thanks! Love, Desi Q/COLOR]