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-   -   MS related dermtitis? (https://www.neurotalk.org/multiple-sclerosis/226280-ms-related-dermtitis.html)

Starznight 09-20-2015 10:39 AM

MS related dermtitis?
 
Has anyone heard of a dermatitis related to MS? I have already seen 3 doctors in two days over a horrendous and crippling rash that covered my hands in a single day, and has moved on to my body. Unfortunately after I had seen the last doctor and now it's the weekend.

Tomorrow I do intend to call the dermatologist as soon as they open. But she has suggested it could be related to MS, at least when it was on the hands. I can't find any information concerning it, so I don't know if it's normal to move onto the body.

I haven't had any kind of a fever, so German measles should be ruled out, though honestly if you want to know what it looks like, look up German measles images. What ever it is, the creams they gave me aren't helping, the Zyrtec (only anti-histiamine I can take) isn't working. And ice/cold water calms it some but doesn't make it go away either. Ugh this bites. And really really hurts. They're like a million tiny burns and when they group up they're just one huge blister.

There's been no changes in any of the soaps, foods, or anything within the house, so I'm stumped on this.

Kitty 09-20-2015 11:11 AM

Sounds terrible. I know it's not in the usual places Shingles usually appears but do you think it might be Shingles? Or something similar?

MSbelle 09-20-2015 09:23 PM

Doesn't sound MS related at all to me. Remember that just because we have MS doesn't mean we can't have other ailments.

Hopefully a blood test can help figure out what is causing this for you.

mrsD 09-21-2015 10:18 AM

poison ivy? There are many types of skin reactions to poison ivy.

And it will spread too. And it itches and stings. Hubby has some on his wrist right now, with only one blister but the rest is just bright angry red. It got on his watch band. Now he cannot wear his watch at all even after cleaning it. He is prone to psoriasis so he reacts with dramatic skin changes to poison ivy.

Were you outside doing weeding? Or have a dog you petted alot who was running around in bushes outside?

My son had to get systemic Medrol dospak for his poison ivy last year and a shot besides...it became hugely out of control. Each person reacts differently to it.

Starznight 09-21-2015 07:12 PM

An outdoor cat, but haven't been petting him a bunch, he's kind of the loner who only wants to be pet when he wants to be pet. No gardening either :(. It has me truly stumped, went back to the derma today and he's stumped as well, can't even do an allergy test since I'm so hyper sensetive right now that I'll test positive for everything allergic or not. And he's really limited in what he can do for me.

Right now the DH is out picking me up some plain white cotton gloves so I avoid touching things directly for a bit, going to apply the cream, slip on the gloves and act like I suffer from mysophobia for a bit, which hopefully will clear whatever this is up. It's now from my neck to my knees and super painful :(.

mrsD 09-22-2015 11:19 AM

How are you doing?

I was thinking last night.... Steven's Johnson syndrome perhaps?
This can be a drug reaction to something you are taking.
Many drugs can cause it.

http://www.mayoclinic.org/diseases-c...s/con-20029623

This link has a longer list of drugs..but still does not include sulfonamides. sigh:
https://en.wikipedia.org/wiki/Steven...hnson_syndrome

one thing missing from this list on Mayo, are the sulfonamide drug family. Septra, Celebrex or other related drugs also can cause this. I recall someone a few years ago who had a long reaction to Prevacid too.

So you could be regularly taking something that set you off.

I hope you are doing better today.:hug:

Starznight 09-22-2015 06:28 PM

It seems to be clearing up a little at last. So guessing it's something I'm touching, just no clue what :confused:. But it needs to finish clearing up before I can undergo allergy testing. I'll just be so happy when this is over with, even if I'm stuck wearing gloves for a while.

mrsD 09-23-2015 10:27 AM

Did you tell your dermatologist you had a food borne disease or your GI upset?
Thinking maybe salmonella, recently? Or some other pathogen or reaction to it?

Starznight 09-23-2015 05:17 PM

Yep, and both Docs I saw before the derma. I dunno, might just be bad dermatologists I saw, or they really don't think it's related.

mrsD 09-23-2015 05:21 PM

Do you touch your cat's dry food or treats with your hands?

Many brands have had salmonella recalls in recent years/months.

Best to not touch any kibble these days. We use a scoop or pour directly into a bowl. Also wash hands well after feeding any pets these days.

It is amazing that dermatologists can be so clueless these days.
I guess we are exposed to so many awful things today that they can't keep up?

NurseNancy 09-24-2015 03:01 PM

your rash sounds awful. sorry you have to endure it.

this may be a way out thought....i wonder if it could have anything to do with a parasite. IF that might be the case maybe an infectious disease dr could help.
this may really be out there. i've just been home watching some episodes of Monster Inside Me.

try googling to see if you can find a picture of your rash.
hope it goes away very soon.

mrsD 09-24-2015 03:25 PM

Oh, anyone who can watch that show, Monster inside Me.... is one brave soul! I've only seen a couple of episodes. The toxoplasmosis one and one other which I have conveniently forgotten already... sigh :o

Lately the research just into bacteria is dunning. Over 1000 different species just in your bellybutton, and about 900 different ones in your mouth!

Starznight 09-24-2015 04:02 PM

I love monster inside me :D but a bit warped in my personality.

I've always washed my hands well after handling pet food/treats/ even people food. Catholic school upbringing, wash hands before and after eating.

But whatever it is, does seem to be something in the house. It's clearing up well wearing the gloves, but this morning they'd fallen off when I was sleeping and I didn't immediately put them back on. After about an hour they were getting worse again, so scrubbed them down, put on the cream and tossed them back into the gloves. The little bit they were reacting is gone again now.

So gloves it is for the next few weeks till I can get an allergy test done :( painful, ugly and aggravating, but still not the end of the world... Well maybe not, depends on what I'm allergic to.... Please oh please not the iPad!!!

mrsD 09-24-2015 04:24 PM

Nickel allergy is a real thing. We have a long thread about it on the General forum. Recently the electronics have been found to have lots of nickel in them and on the cases.
The soap you use to wash your bedding and clothes with can be very harsh too. Try a second rinse and watch what comes out in that rinse water! You will be amazed. We use the sensitive Tide now, the one in the white bottle.

Some people react to the dryer softener sheets too. When Bounce first came out years ago, mothers were bringing their children to me with a red rash from the neck down! Then it was reformulated supposedly and the epidemic stopped.

Starznight 09-26-2015 01:17 PM

Well it turns out, it's eczema, one normally seen in young children :rolleyes:. So nice that all the doctors have fancy ways of telling me I'm immature :p. Juvenile heart flutter, childhood eczema (at 35 years of age) what's next whooping cough?

Still painful as all get out, as the derma says it will be worse as an adult that in childhood. But it also means I will be wearing cotton gloves for at least the next year, washing my hair with baby shampoo, and using only special 'non-soap' soaps (or the baby shampoo) and special moisturizers, ointments and the steriod creams. And it is making me more reactive to the copaxone injections, which if that worsens it might be time to think of an alternative.

Well at least it's not measles, or cancer (didn't know that was a possibility until they told me the results of the biopsy) so that's good :D and well, now I can say I'm not just young of heart but young of body too :p

Starznight 10-10-2015 12:44 PM

Just a short note of irony, after asking if whooping cough was next (seriously haven't heard of many cases of it in a long long time) wouldn't you know in the news during my trip to OH, there was a whooping cough outbreak at a local preschool :eek: Hopefully I didn't run into any carriers while I was out and about in town...


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