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-   -   It's raining in GA :( (https://www.neurotalk.org/peripheral-neuropathy/226641-raining-ga.html)

St George 2013 09-28-2015 01:13 PM

It's raining in GA :(
 
And I hurt from the top of my head to the end of my toes !

Unless I stay on top on my oxycodone my pain spikes to a 10 very quickly. I guess with SFN, osteo and CTN in my wrist it's to be expected. I can't remember the last time it was this bad.

Maybe it's due to all the stress I've been under ?

I just miss him so badly. Yesterday afternoon it had been 4 weeks.....4 weeks is the last time I saw him and it's so sad. I try so hard to remember him not in Hospice but it's hard. That whole weekend was just gut wrenching.

Thanks as always for listening to me.

Debi from Georgia

mrsD 09-28-2015 01:32 PM

I agree weather changes are brutal for me too.

My condolences again on your loss:hug:

Try not to hyperventilate when you are sad or stressed...this makes the pain worse.

pinkynose 09-28-2015 02:44 PM

Stress is a huge contributor imo. My symptoms started suddenly after the most intensely stressful year. Hang in there.

February 09-28-2015 04:07 PM

I just want to say I am so sorry and wish I had something wise to say. Maybe a little pampering will help, like getting your hair done or a manicure. It may help you feel 100% a little bit better, even if it's for a short time.
Staying in the moment always helped me get through the toughest of times.
Wishing you the best.

Diandra 09-28-2015 05:29 PM

Dear Debi,
I am so sorry you are hurting, on so many levels.
Wish I could just beam myself to you and sit at your kitchen table, have a cup of coffee and pie and you could tell me what your husband was like. He sounds like a great guy, your Bubba.

We had my Dad at his home for the final months with hospice care.
It is hard to shake those final memories but, we had a literal trunkload of photos and old films, filled with happy memories and we looked at them together, as a family.
It was so healing. We picked out our favorites pics and had copies made....
Dad standing on a glacier in Alaska....Dad in pic with all his grandkids....Dad working in his beloved garden.

It may be too soon but when you are ready...it may help.

You are in my prayers, dear one.
D.


Quote:

Originally Posted by St George 2013 (Post 1174092)
And I hurt from the top of my head to the end of my toes !

Unless I stay on top on my oxycodone my pain spikes to a 10 very quickly. I guess with SFN, osteo and CTN in my wrist it's to be expected. I can't remember the last time it was this bad.

Maybe it's due to all the stress I've been under ?

I just miss him so badly. Yesterday afternoon it had been 4 weeks.....4 weeks is the last time I saw him and it's so sad. I try so hard to remember him not in Hospice but it's hard. That whole weekend was just gut wrenching.

Thanks as always for listening to me.

Debi from Georgia


St George 2013 09-28-2015 08:06 PM

Quote:

Originally Posted by mrsD (Post 1174094)
I agree weather changes are brutal for me too.

My condolences again on your loss:hug:

Try not to hyperventilate when you are sad or stressed...this makes the pain worse.

Thank you mrsD......you are always so thoughtful.

When I'm upset, I try to breathe like we learned in Lamaze classes to birth our sweet babies and it always seems to help.

Debi from Georgia

St George 2013 09-28-2015 08:08 PM

Quote:

Originally Posted by pinkynose (Post 1174107)
Stress is a huge contributor imo. My symptoms started suddenly after the most intensely stressful year. Hang in there.


Hey pinkyose......I'm hanging in there the best I can :)

Thank you !

Debi from Georgia

St George 2013 09-28-2015 08:11 PM

Quote:

Originally Posted by February (Post 1174125)
I just want to say I am so sorry and wish I had something wise to say. Maybe a little pampering will help, like getting your hair done or a manicure. It may help you feel 100% a little bit better, even if it's for a short time.
Staying in the moment always helped me get through the toughest of times.
Wishing you the best.

Nice to meet you February :)

I did get a hair hi-light and my toes done about 2 weeks ago and it did help my spirits. That place is always hopping and it was nice sitting around talking to everyone. I only cried twice !

I would really like to get a massage but I'm really hesitant too with this SFN.

Debi from Georgia

St George 2013 09-28-2015 08:16 PM

Quote:

Originally Posted by Diandra (Post 1174143)
Dear Debi,
I am so sorry you are hurting, on so many levels.
Wish I could just beam myself to you and sit at your kitchen table, have a cup of coffee and pie and you could tell me what your husband was like. He sounds like a great guy, your Bubba.

We had my Dad at his home for the final months with hospice care.
It is hard to shake those final memories but, we had a literal trunkload of photos and old films, filled with happy memories and we looked at them together, as a family.
It was so healing. We picked out our favorites pics and had copies made....
Dad standing on a glacier in Alaska....Dad in pic with all his grandkids....Dad working in his beloved garden.

It may be too soon but when you are ready...it may help.

You are in my prayers, dear one.
D.

Sweet Diandra.......I would love for you to beam yourself here to my dining room table....what a time we would have !

We did get a lot of pictures to the funeral home and they made a disc that kept playing at visitation. Wonderful comments from family and friends remembering the times long ago.

Thank you for your kind thoughts and prayers.

Debi from Georgia

Susanne C. 09-28-2015 08:28 PM

Dear Debi, so, so sorry to hear that the pain is still compounding. No way to suffer through a loss like yours without stressing every cell. The rain not only makes it hurt more, it is mood dampening as well. I hope the sun shines again soon.
Have your doctors been at all helpful with what you are enduring through this loss? I am worried about your pain levels getting out of control.

St George 2013 09-28-2015 08:41 PM

Quote:

Originally Posted by Susanne C. (Post 1174179)
Dear Debi, so, so sorry to hear that the pain is still compounding. No way to suffer through a loss like yours without stressing every cell. The rain not only makes it hurt more, it is mood dampening as well. I hope the sun shines again soon.
Have your doctors been at all helpful with what you are enduring through this loss? I am worried about your pain levels getting out of control.

Hey dear Susanne.......I too am waiting for the sun to come back out ! Looks like this weather is here to stay this week. Thank goodness today was the day for my new patch.

I'm so close to my PCP and old APRN that they know I would ask if I thought I needed something. I actually saw both of them last week when I went in for my sinus infection.

I am going to ask my pain dr if he can increase my oxycodone to 4 times a day but I'm not sure they are allowed to do that in that practice. As others are able to do I have extras but if winter gets me like this rain has I'm going to be in trouble. My pain dr has said anytime I want to try another drug he's willing to let me. But you know what that entails....titrating off what I'm on now before starting the new. I know I'm not ready for that right now. Don't think I can handle it mentally. I know he's right when he says an SCS is my best bet for pain relief but I just can't get my mind around having one put in. I was going to do the trial after the first of the year but that was when I thought I'd have Bubba by my side. Losing him will change a lot of things I had planned to do. Pain dr also says I need my CT fixed in my right wrist. That if I don't get it fixed there will come a time when even surgery won't help. Is that true ? Anybody know if it goes on too long it can't be corrected with surgery ?

I'm just lost without him :(

Debi from Georgia

uglogirl 09-28-2015 08:53 PM

Praying for you Debbie
 
Quote:

Originally Posted by St George 2013 (Post 1174092)
And I hurt from the top of my head to the end of my toes !

Unless I stay on top on my oxycodone my pain spikes to a 10 very quickly. I guess with SFN, osteo and CTN in my wrist it's to be expected. I can't remember the last time it was this bad.

Maybe it's due to all the stress I've been under ?

I just miss him so badly. Yesterday afternoon it had been 4 weeks.....4 weeks is the last time I saw him and it's so sad. I try so hard to remember him not in Hospice but it's hard. That whole weekend was just gut wrenching.

Thanks as always for listening to me.

Debi from Georgia

Praying for you Deb I can only imagine your sadness.


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