Need urgent help on Alcohol withdrawal symptoms along with B12 and Vit D deficiency
 

Hi Mrs.D and Melody

Your earlier posts and replies are very helpful and inspiring for me.

I need your advice/help to understand what exactly is happening to me, I have neurological symptoms.

About me :
I have drinking history of last 8 months (twice in a week) from April, 15 to Nov,15 and then 1 month daily drinking till 23rd Dec, 15.
I have been drinking Whisky and sometimes Rum. whisky brands glenlivet, Glenfiddich : 120 to 180 ml daily in evening followed by dinner.
Smoking : 6 - 10 ciggrattes daily

Problem started on :
On 23rd Dec, 2015 : Met with minor accident after binging drinking, had whiplash and minor bruises on hand.
On 24th Dec, 2015 : Decided not to drink anymore and not to smoke anymore. but didn't had any neck pain after that whiplash.
at 2.30 pm in night while i started to sleep, suddenly all my body started inner shaking or vibrating, feeling like seizures.
I could not sleep whole night and next day on wards i started feeling numbness and tingling in my left arm.
Also one thing i remember, while seizures were coming it made me to fart without much control on it.

I got admitted in florida hospital, Carrolwood - on 25th Dec, 2015
Doctor did CT scan of head and took some heart pictures along with few blood tests,
everything was normal including pulse and blood pressure.
They gave me IV through injection however. and from next day Diarrhea and yellow dark urine started with urine burning sensation.

Symptoms from 26th Dec to 15th Jan, 2016
1. Loss of appetite
2. mental tiredness, body weakness, weight loss (drop from 155 to 150 lbs)
3. can not eat spicy or oily or meat, cause diarrhea or constipation, now i am eating less spicy food and it is going ok now a days.
4. dry mouth (specially in night)
5. dehydration (specially in night)
6. Pain in neck while sleeping on one side, however i can sleep on back with less pain
7. Pain in mid back while sitting straight
8. Feeling mild vibration or shakiness in legs or body while sleeping, its not consistent however.
9. numbness in fingers
Left hand - first finger
Left hand/right hand - pinky finger feeling cold always

Symptoms From 15th Jan
2. mental tiredness, body weakness - comes and goes now a days.
3. can not eat spicy or oily or meat, cause diarrhea or constipation, now i am eating less spicy food and it is going ok now a days.
4. dry mouth (specially in night)
6. Feeling mild inner vibration or shakiness while sleeping on left side, however i can sleep on back with less pain
8. Body shakes along with increased heart rate as well.
9. numbness in fingers - These symptoms have been reduced
10. Left hand immense pain : right from lower head or neck to left hand wrist including left shoulder, triceps and elbow are starts paining in day time.

About Xray MRI and blood reports,
Doctor said, I have B12 deficiency and Vit D Insufficiency
However, CT Scan, Xray of back spine and Mri of Cervical come negative. except some existing stenosis.
report on 12/31/15 : Serum panel Vit b12 241 pg/ml
report on 2/03/16 : Vitamin D,25-OH, TOTAL,IA - 24L (Normal range states as 30 - 100ng/mL)


As solution, I am Taking daiiy below vitamins
B12 vitamins 1000mcg Cyano form - brand : Natures bounty [ From 4th Jan 16] : after breakfast in morning. after ceral and tea.
D3 - 4000 IU - brand : Natures bounty [ From 3th Feb 16] : after breakfast in morning. after ceral and tea.

Symptoms Today
12th Feb, 2015
all above symptoms are reduced to just below points
1. Left hand still innerly tremble and numbess, it is also spreading in other parts of body like left lag and right hand along with heart race.
I also feel upper/mid back muscle crawaling while sleeping.
2. Dry mouth in night ( usually i will have constipation in next morning and more body inner vibrations in night )
3. Constipation 2 times in a week. (after eating wheat product in night)

Doctors are saying you may be having alcohol withdrawal symptoms, but no one is giving me medicines which can heal this problem.
1. Please let me know if i should change the vitamins suppliments types or brands or i should take other vitamins too ?
Should i take heavy doses of vitamins ? Injections ?
2. Will neurological issues will be permanent problem for whole my life ?
3. Along with Withdrawal or B12 deficiency i also have anxiety about my health for sudden death or paralysis while sleeping, which really want to control.

Please help me. I DON'T WANT TO DIE !!!

*
Weight 148 lbs, Height 5.8"

Hi deepak2016

Other NT members will be far more able than I am to offer you thoughts about your neurological signs than I am.

However, as far as your drinking is concerned (I am in remission from alcohol abuse), standard advice is that men should drink no more than 21 units of alcohol per week, no more than four units in any one day, and have at least two alcohol-free days a week. Women should drink no more than 14 units of alcohol per week, no more than three units in any one day, and have at least two alcohol-free days a week.

One unit of alcohol is about 35 mL of 40% v/v spirits.

People who drink can be deficient in thiamine (Vitamin B1) - this deficiency can lead to neurological signs. This is discussed in this link, which includes a list of foods which are rich in it; https://ods.od.nih.gov/factsheets/Th...hProfessional/.

Taking thiamine as a supplement is another option though I would be inclined to discuss this with your health care team.

All the best.

[B12 vitamins 1000mcg Cyano form - brand : Natures bounty [ From 4th Jan 16] : after breakfast in morning. after ceral and tea.]

Did you find the B12 details in the sticky thread?
*Best if taken with an empty stomach & methylcobalamin form*
Many take it first thing in the morning.

Yes, I am also taking Thiamin - 25mg
 

Thanks Kiwi for your suggestion on thiamine.

I forgot to mention that i also take below vitamin
B-Complex with biotin - 1 pill daily after dinner.

which contains (Thiamin - 25mg)

https://onedrive.live.com/redir?resi...nt=photo%2cJPG

Guys please advice me.. :-)

Deepak2016, 25 mg/day thiamine is well above the RDA, which is about 1 mg/day. It seems that an intake of a lot of thiamine is probably safe - probably it is not absorbed well at intake levels above about 5 mg/day - the excess is just excreted. Because of this a Tolerable Upper Intake Level (UL) has not been set for it though that does not rule out the possibility that it could have adverse effects in some people (taken from the link that I posted above).

Biotin deficiency is very rare (people whose diet is adequate get enough from their food) but taking a pill containing it will probably not harm you.

The quick answer to your question is, YES. A level that low can cause neurological symptoms. The NEW recommended minimum level is 400 and those WITH neuro symptoms, should be keeping their level much higher than the minimum. That being said though, MrsD is the resident expert on Vit B12, (level, cyano vs methyl, how much to take, when to take, best brands, etc). She's also very knowledgeable about Vit D. I'm sure she'll comment when she sees your posts.

Yes, Deepak, your B12 level is low by today's standards.

400pg/ml is now the cut off for beginning supplements.

You can get low, from autoimmune issues, from using certain drugs like stomach acid reducers or metformin, from following a vegan lifestyle, or from inheritance of certain genetic flaws. (MTHFR) which is a failure to methylate B12 and folic acid.

This is why methylcobalamin is best to use, since you do not know if you are one of the 10-30% who have this mutation.

You need to take the B12 on an empty stomach with no food for about an hour after.

Dark urine is a sign of liver problems, so make sure you had liver tests for alcohol damage, and for the major hepatitis viruses.

You are the captain of your own body. Choose to treat it well by stopping smoking and avoiding alcohol and recreational drugs. Feed it healthy whole foods, and get good sleep. That is what it wants.

Could be trauma induced
 

Doctors are saying you may be having alcohol withdrawal symptoms, but no one is giving me medicines which can heal this problem.
1. Please let me know if i should change the vitamins suppliments types or brands or i should take other vitamins too ?
Should i take heavy doses of vitamins ? Injections ?
2. Will neurological issues will be permanent problem for whole my life ?
3. Along with Withdrawal or B12 deficiency i also have anxiety about my health for sudden death or paralysis while sleeping, which really want to control.

Please help me. I DON'T WANT TO DIE !!!

I had a low b-12 level and got into a car wreck also. After 4 days I went to ER with a burning pathway from hip to knee. Couldn't sleep and inner quaking. Started only right side but went to left side after 60 days. My b-12 wass 119 and started supplements (Methyl) plus injections, stayed with both until my number got to 900+, then stopped injections. Injections were once a month. I went down for about 18 months and bottomed out using a walker and taking pain meds daily. Since that time I no longer use the walker and take no pain or sleeping pills any more. It may take a long time to travel this road so you have to fight the panic and not worry about death or paralysis. I was absolutely convinced I was headed for a wheelchair for a long time. In my opinion, you have to say goodbye to alcohol, it wants to take you the wrong direction. If you search here for Alcohol Induced Neuropathy you can read other stories and maybe get a few pointers about getting sober. You are going to have to take better care of your body now. Good Luck, Ken in Texas.

Hii Mrs. D - 2/13/2016 12.23PM
 

Deepak:

I don't take stomach acid reducers and i used to eat meat a lot.
However if we talk about genetic flaws - Yes my mother and grand mother both had indigestion, bloating issues. but not any neurological issues signs.
In fact my all (2) brothers continuous have stomach related issues and also no neurological issues signs.

Things i would like to mention is,
I have a birth defect 'spina bifida' at spine level C7 - T1.
My Folate Serun on 12/31 was : 22.1 ng/mL

Question 1. what tests i should suggest my Doctor to see if i have any kind of Autoimmune issues, MTHFR ?

Deepak: Yes today i will visit CVS for B12 myethyl form for 1000 mcg (daily one dose, empty stomach, one hour gap)

Deepak: I already have done below tests and they all cames negative
1. HSV-1 and HSV-2 and Chlamydia
2. HIV
3. HEPATITIS A, B, C
4. Complete stool test
- Here they had found few Blastocystis species - they have given me probitics for this

Deepak : I have completely stopped drinking and smoking on 23rd Dec, 2015. I never took any kinds of drugs.
Thanks Mrs. D for your reply, i will have health whole food and good sleep. Thanks :-)

Thanks zkrp01 - 2/13/2016 12:38 PM
 

Thanks for sharing your experience, I hope you are fine now. I am happy for you. :-)

I have done Xray of spine, MRI of cervical spine, CT Scan of head
and they did not found anything related to injury or whiplash which can cause neurological issues.
I have spine bone issues and a birth defect 'spina bifida' - but Neurologist said it cannot be causing any of this issues.

I have few questions,
1. you had to use walker and pain meds is due to injury of B-12 deficiency ?
Can you please share more details on B-12 issues like what i have below

1- Shakes starts with left hand and now have been spread to left leg and right hand within 45 days
2. Left ear buzzing sometimes
3. Skin insect crawling sometimes, including face skin and ear skin
4. Left head lightness, left trample pain sometimes
5. Stiff neck muscle which was mostly on left side and now radiating to right side as well.

Just use the methylated B12 and methylfolate for folic acid, for now.

Since they are available and not too expensive you can do that yourself.

See what happens in 3 months. Your lifestyle changes, and the various vitamins, should provide some answers for you and progress.

You can do any further testing for autoimmune and MTHFR later if nothing improves for you. Also you could add in a good magnesium supplement (not oxide type), and Vitamin D 3000IU daily since you showed low D.

200mg elemental magnesium daily may help also. Avoid oxide, and use with food. The chelates available are glycinate, malate, taurate, carbonate, and SlowMag which is chloride in a slow delivery type tablet for better tolerability. Magnesium is lost thru the urine when drinking alcohol.

If you do not eat fish, esp salmon, you can consider some fish oil or krill oil. 2 a day is about average to provide the needed Omega-3's you need to repair nerves and other body tissues.

We have a long thread here about abstaining from alcohol.

http://neurotalk.psychcentral.com/thread104096.html

Many questions you have are answered there, and the posters on that thread are very supportive. Please read it when you have a chance... just do a few pages every day, to get started.

Insults don't show on x-rays
 

Left ear buzzing sometimes
3. Skin insect crawling sometimes, including face skin and ear skin
4. Left head lightness, left trample pain sometimes
5. Stiff neck muscle which was mostly on left side and now radiating to right side as well.[/QUOTE]

Tinnitus, both my ears sometimes have teakettles going off. Common symptom, search Tinnitus. Crawling sensations common, bugs, cold-wet also. Don't have any of the neck and head symptoms that you have but as far as your x-rays being clear, In the reading that I've done, trauma induced Neuropathy only has to have an INSULT to the nerves to trigger onset. My b-12 was very low and just had a hard shock up my right side in the accident. I got out and helped them sweep up the glass and picked up pieces of headlights. Was there a period of time between whiplash and start of symptoms? Four days passed before I sought help. Good Luck, Ken in Texas.

Please remember, you need to stop B12 for several days before any testing, in order to get useful results. If you don't you will see an artificial high that is meaningless to your desire to see
real progress.

i met with accident on 23rd Dec 15 at night 1am. and this symptoms had started on 24th Dec 15 around night 2.30am. so answer to your question is duration of 1 day.

on 24th night, i felt like my left hand was feeling like some electric waves are flowing in it as soon as i m started to sleep, due to which i had to wake up and again after few minutes when i tried to sleep.. again electric waves started coming. i could not sleep till 5 am. but after that i could sleep till 7am without any problem. and that morning my left hand tingling and numbness started.

This problem is worst at night and morning starts with dizziness.
Also i feel sometimes drinking tea makes it worse.. but i have not tried to stop tea.

Yes, i will make sure that i will stop all my vitamins intake before at least 4 days.

Battling more than one thing at a time
 

I had a period where I could not jump up after sitting or getting out of bed. I thought I had low blood pressure. Fortunately this didn't last too long. So be careful. Balance issues may come to call. Sleep is also an issue, I took Ambien RX for two years. It is hard to say goodbye to it but sleep is essential for healing, (5hrs IMO) Symptoms ,for me, came in an ever changing stream. Not fast change but about every six months I recognized something had changed. I did not have two battles like you do. I hope your symptoms stay light and managable so you can beat the Alcohol. A couple of pieces of advice, #1 don't fear taking pain relievers because pain can drive you to depression. I got off them, you can too later on. Hopefully your pain will be light. #2 Exercise to tolerance, keep your body body moving. Good Luck, Ken in Texas.

Thanks zkrp01

1. I do neck and other light back exercise daily - suggested by Physio therapist
2. I take anxiety pill - Xanax (Alprazolam 0.5 MG) - When feel so depressed or anxious- I feel more vibrations when i am scared or tense about my health.

Mrs.D - My daily receipe of Vitamin suppliments
 

I have prepared below list of additional vitamins
B-Complex - Daily 1 pill
B12 - Methyal 2500 mcg - Daily 2 pill empty stomach in morning
Vit D 1000 IU - Daily 3 pills
Fish oil 1000 - Daily 2 pills (Omega-3 300 mg)
Magnesium - 250MG - Daily 1 pill (no oxide form) :-)

I have attached below images of specification

https://cdn.pbrd.co/images/1yBkXR6x.jpg
https://cdn.pbrd.co/images/1yBoVQw7.jpg
https://cdn.pbrd.co/images/1yBs5wmS.jpg
https://cdn.pbrd.co/images/1yBxGdaE.jpg
https://cdn.pbrd.co/images/1yBBf9a7.jpg - Methyl form B12
https://cdn.pbrd.co/images/1yBFxeGE.jpg
https://cdn.pbrd.co/images/1yBLrSMP.jpg

That looks okay so far. Your magnesium chews have two
sweeteners that could be laxative for some people. Combined with magnesium, they could be "more" laxative. But many people don't react to them, so if you DO get loose, then cut the chewy in half and take one half in the morning and the other half in the evening with dinner.

GNC tends to be more expensive than other brands, so when these are done and you want to get more because you are feeling better, we can give you sources more affordable.

Thanks and my next steps - Nerve conduction test
 

Thanks a lot for your time Mrs.D

Yes i feel GNC is expensive medicines. I will follow your instructions on magnesium chews.

I will keep you informed about further improvements or doctor's findings.
I am going to do further tests on 2/17 - Cervical EMG/NCV, LUE, LLE
and i will get results on 2/22.

I'm glad to hear you are having more investigations of possible cervical involvement. Although your B12 levels can certain cause SFN, it doesn't typically present with such a rapid inset as yours did. The onset and your accident wasn't a coincidence...it has to have something to do with it.

Autoimmune conditions are 'triggered' by most commonly infection of some sort, but they can also be triggered by trauma...in the form of surgery, injury, etc...anything that causes physical trauma to the body where there is an immune system response.

Of course, there could be some hidden damage the MRI didn't pick up (did they use contrast?).

At least they are looking to make sure nothing is going on in the neck. And regardless of what set this off, now knowing your B12 is factor and doing something about will help you in the long run.

Thanks en bloc.
Yes, It seems that this trauma and/or Alcohol withdrawals at same time might have triggered some existing health issues, which may be related to cervical spondylosis and/or B12 and D deficiency. So now it will be interesting to see what nerve conduction test says. And yes MRI is not that trustworthy.. as X-rays had shown Spina bifida at C7-T1 but MRI didn't showed it. LOL !!!

Yes, It will help indeed. Thanks again. :-)

You might need to question the accuracy of the MRI...or even that it really is YOURS, if it doesn't show the spina-bifida. That is a strong indication that they may have mixed up your scan with someone else...seriously.

That is not something easily missed (I have spina-bifida as well). It is possible to mix up imaging with the person coming in behind you, as your name is already in the system (and they forget to put in the new patient info). Then their scan becomes your second scan...and the one on record. It is certainly worth bringing up...and easy to confirm by the doctor looking at the images itself to see if your spina bifidia is there...if not, then it's not your scan (spina-bifida doesn't go away). Kinda like looking at dental xray and yours fillings aren't there any more...lol

Just a thought.

hanks for bringing this point
 

Thanks for bringing this point.
Today i have an appointment with my primary physician, I will talk about this if there is spina bifida visible in MRI images, just to make sure it is my real MRI result.

Eyes check up results 2/15
 

Today visited eyes check for black floaters and itching eyes..

Diagnosis :
vitreous humor - Not very dangerous
and
Glaucoma - Very dangerous - Can cause blindness
However can be treatable but not curable. :-(

I don't know what more is on my way

Did he confirm the spina bifida on your MRI?

I assume you will go see an ophthalmologist for consult?

Yes ophthalmologist diagnosed me with Glaucoma

OH, I thought you said you were seeing Primary care...that's why I asked about the MRI and whether he confirm the spina bifida.

Deepak2016, you might find this general information about glaucoma helpful when talking with your ophthalmologist; https://nei.nih.gov/health/glaucoma/glaucoma_facts

There are various treatment options but usually it can be managed well.

Doctor have asked me to come back after one month again for detailed checking, like how much is eye pressure again.
And then only he will start the treatment, till then he have asked me to live normal life without changing anything that i am doing.

Thanks

Nerve Conduction test results - All normal
 

Hi All,

Nerve conduction test - Left hand and Left leg - results comes normal.
No nerve pinched anywhere. (as per doctor)

So i think there is some metabolic or indigestion issues only, I will keep you all updated with next news.

Thanks again :-)

I am getting worse day by day
 

Guys,

This is really so frustrating that everyone is asking me to keep anxiety in control, its all in my head.

I am getting worse day by day,, both eyes are getting itchy, gray eye floaters, glaucoma.
inner body vibrations, i feel half body is getting died slowly.
left hand numbness, left leg foot burning sensation when i am on bed for sleep.
hand tremors in sleep, inner body vibrations, neck muscle stiffness on left side only.
Left side of body from head to foot, everything is affected.

Right side of body is almost fine.

Guys please suggest what tests i should do,, i am getting worried now.
It seems that doctors have so much patience.

it can be a blood clot in brain or blood arteries or Lyme disease or something else ????????

Deepak2016, the fact that your signs largely affect the left hand side of your body suggests that some kind of brain issue might be involved.

Asking your health care team to arrange for a MRI scan of your brain is worth considering - the results of that scan could shed some light on what is going on.

Current symptoms - 2/21 and Lyme disease
 

Current symptoms - 2/21

Dizziness - no specific pattern
Periodontal disease - Tooth cleaning done recently
Glaucoma - diagnosed recently
Inner tremor and vibrations when i am on bed - Starts with left side
Neck stiffness - on left side
Gluten sensitivity - started recently - When i eat Wheat "Roti" (indian dish) - I get Dry mouth in night and more inner vibrations - I can eat white rice however.

Can anyone please guide me on Lyme or other infection related diagnosis tests ?
Also where i can get best Lyme disease related doctors ? any idea folks ?

"Inner tremor and vibrations when i am on bed - Starts with left side"

I get this too. It's not that common. I have small fiber sensory and autonomic polyneuropathy. It's at its worst when I'm lying in bed at night, getting to sleep, but it can start at other points in the day, in particular after meals. It's only ever on my left side, from about my shoulder to my foot, I would say. I also have hand tremors when I hold out my hands and try to keep them still. The fingers furthest from the thumb.

A piece of advice: take it for what it's worth, but stay away from gluten. I stay away from all grains and even carby or starchy veggies. You can look me up on here, if you're interested in the diet I've used to significantly reduce my symptoms and improve my energy and general well being since it all started.

Good luck!

stay away from gluten
 

Thanks for sharing your experience. we all will be fine soon.
Yes, Gluten or Caffeine will make us more dizzy, body shaking and tiredness.
body shakes more while sleeping.

Few advice,
1. Get your teeth and eyes checked regularly.
--> I have got periodontal gum disease and Glaucoma of eyes.

Few questions,
1. Did you ever tested yourself for Lyme disease ? did any doctor could do complete analysis of your health problem ?
2. Since when you are facing this issues ? 1 yr or 2 years or more

Yes, thanks, I'm being looked after by a team of physicians, and my eyes have been checked out. There is no risk of Lyme for me, or very little. Mine is most likely autoimmune and that's what we're looking into. It has been almost one year since all this began, but thinking back, perhaps symptoms started months and years before with gut issues.

It seems that we both might be having same gut issues (mine one is due to alcohol abuse for about 8 months),

How should i start the treatment ?
Which type of doctor i should visit ?
What are tests can diagnose my gut issues ?

Also, if possible please share your diet plan with me. Thanks in advance.

Can we share email id or phone number on this forum ?