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-   -   Twitching from neuropathy or Lyrica? (https://www.neurotalk.org/peripheral-neuropathy/233355-twitching-neuropathy-lyrica.html)

banjanti 03-05-2016 10:54 AM

Twitching from neuropathy or Lyrica?
 
As you may know I was diagnosed with polyneurophaty after EMG and NCT. I don't really remember too much twitching before, I definitely seen it in my feets that are affected, but I also feel it in other parts like buttocks, but can't verify is they are visible or is just a feeling
I'm wondering can be side effect of Lyrica or part of neuropathy?
Should I consider another test or just wait and see?
New symptoms definitely add up to anxiety

Physical exam neurologist concluded didn't show any pathologies, reflexes are normal, so it's the strength
I don't think it can be ALS, but that's one scary though

Thanks for any advice!

chris85 03-05-2016 11:48 AM

I had some weird twitching cramping thing in my legs for a while, it used to wake me up, then it went away. Perhaps it will just be a temporary thing.

banjanti 03-05-2016 11:59 AM

Thanks Chris! That's comforting
Almost no brain fog today and pain reduction is significant, lyrica is here to stay if no other sides are coming
Fingers crossed

pinkynose 03-05-2016 05:51 PM

Since the beginning I have had twitching in my feet.
 
Now they are more like a pre twitch or a feeling. They only effect 1 foot at a time. I have also had them in other places but they were more apparent and possibly are fasciculations. I have read that a number of people with primary PN get secondary Restless leg syndrome and I believe that is what I have. I don't take Lyrica so I can't say about side effects.

banjanti 03-05-2016 06:19 PM

Quote:

Originally Posted by pinkynose (Post 1202820)
Now they are more like a pre twitch or a feeling. They only effect 1 foot at a time. I have also had them in other places but they were more apparent and possibly are fasciculations. I have read that a number of people with primary PN get secondary Restless leg syndrome and I believe that is what I have. I don't take Lyrica so I can't say about side effects.

Thanks for your reply!
Now I just noticed that my big finger in feet moves by it's own! Not constantly, happens for a while then stops
That freaks me out

pinkynose 03-05-2016 10:17 PM

Don't freak!
 
That happened to me too in the beginning but it stopped. Thank you for reminding me. :) If you need more info on RLS let me know. I was in a group for a few months before I realized my primary issue was neuropathy.
Quote:

Originally Posted by banjanti (Post 1202823)
Thanks for your reply!
Now I just noticed that my big finger in feet moves by it's own! Not constantly, happens for a while then stops
That freaks me out


banjanti 03-06-2016 07:08 AM

Quote:

Originally Posted by pinkynose (Post 1202837)
That happened to me too in the beginning but it stopped. Thank you for reminding me. :) If you need more info on RLS let me know. I was in a group for a few months before I realized my primary issue was neuropathy.

Any info would be helpful! Thanks!

banjanti 03-06-2016 02:51 PM

Quote:

Originally Posted by pinkynose (Post 1202837)
That happened to me too in the beginning but it stopped. Thank you for reminding me. :) If you need more info on RLS let me know. I was in a group for a few months before I realized my primary issue was neuropathy.

One more thing: what abnormalities you had on your EMG if any? (I guess you did since you're taking about neuropathy)
I have abnormal findings and that twitching on top of that makes me anxious

pinkynose 03-06-2016 04:48 PM

Links
 
here is an article about diagnosis:
http://www.clinicaladvisor.com/restl...rticle/402886/

Here are 2 others:
http://www.ncbi.nlm.nih.gov/m/pubmed...hy%20and%20RLS

http://www.ninds.nih.gov/disorders/r...tless_legs.htm
Quote:

Originally Posted by banjanti (Post 1202868)
Any info would be helpful! Thanks!


pinkynose 03-06-2016 04:51 PM

Quote:

Originally Posted by banjanti (Post 1202917)
One more thing: what abnormalities you had on your EMG if any? (I guess you did since you're taking about neuropathy)
I have abnormal findings and that twitching on top of that makes me anxious

I have symptoms of SFN. Nothing substantial showed up on my EMG.

banjanti 03-06-2016 05:26 PM

Quote:

Originally Posted by pinkynose (Post 1202932)
I have symptoms of SFN. Nothing substantial showed up on my EMG.

Thanks for the links. My EMG had various pathologies in it, adding twitching to that I fear for something more serious
I'll be calling a neuro who did the test tomorrow

KnowNothingJon 03-06-2016 09:34 PM

Do you drink enough water? How about supplementing magnesium? I only ask because I had some twitching that troubled me greatly. Hydrating better and using the now discontinued mortons epsom salt lotion helps.

I still have them at times, but becoming accustomed to them and lessening them with the above has helped me.

banjanti 03-07-2016 07:27 AM

Quote:

Originally Posted by KnowNothingJon (Post 1202958)
Do you drink enough water? How about supplementing magnesium? I only ask because I had some twitching that troubled me greatly. Hydrating better and using the now discontinued mortons epsom salt lotion helps.

I still have them at times, but becoming accustomed to them and lessening them with the above has helped me.

I'm on 500mg chelate magnesium a day, I'll try drinking more water

The twitches don't bother me so much, but the abnormal EMG and twitches combined, I'm going in my head about what can that be
I'll be happy if they stopped only to discard the worst

KnowNothingJon 03-07-2016 10:23 AM

I hope they stop for you as well. I am uncertain if mine have truly slowed down or I've just become accustomed to them, truly.

My wife points them out to me more than I take note at this point.

I find mindfulness, rather my cobbled together version of such, to be my most useful tool. Stress is tough on the healthy. It magnifies my symptoms like an obnoxious magnifying glass.

Easier said than done at times, but try and center yourself as much as possible. I know it is difficult. I still struggle, less so, but it is a battle. I'm better for reducing my stress and anxiety.

banjanti 03-07-2016 12:49 PM

Thanks for your advice and support!

Did you had en EMG done and anything unusual found on it?

KnowNothingJon 03-07-2016 03:41 PM

Yes, I have length dependent neuropathy. I don't recall the specifics of my results, but it lead to my diagnosis of diabetic polyneuropathy.

banjanti 03-08-2016 04:07 PM

Update: called the neuro, told me to get of lyrica, twitching is gone - yah! Pain is back - boo
So I think it was the pill after all, too bad as it was really working well for the pain, 90% reduction just in a week...


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