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Pacing (long post, sorry)
My daughter left for a visit to her boyfriend's mom's yesterday. Tried as she might, things were not quite where they needed to be for me to get through this 'trail' of her being gone and my son not staying with me. (She usually goes to TN for a visit with 'him' every 6 weeks or so & my son typically stays with me when she does)
Yesterday, I went to get some pet shampoo & towels from the laundry room & wash a couple of pillows. When I opened the soap drawer on the washer, I noticed it was DISGUSTING...so I took it out & proceeded to the kitchen sink to wash it. Done. Returned it. Put the pillows in the washer. Grabbed the pet shampoo & towels. Grabbed my youngest pup & bathed her in the sink (I love little doggies). On to the next one and the last in the same way. Sitting on the floor of the family room to dry/brush them, I saw the floor needed vacuuming. So I did. Yesterday was garbage day & my daughter had taken the bins to the curb before she left. My son was going to come after school and bring them in. It was windy yesterday and the garbage people seem to think leaving the bins in the street is okay. So I brought the smaller recycling bin in mid-day. I heard a can rolling down the street a few hours later & not knowing when my son would arrive, I brought the other one in. My daughter was not able to get all the paper garbage from our round of organization into the bin for take-out yesterday, so there were several bags piled on the floor between my kitchen & dining room. I put them in the garbage bin I just retrieved from the street. Texted my son to let him know and 2 minutes later, he pulled in. Ugh. We had gotten the day bed put together in the den for me just in case I could not make it upstairs. Or so we thought. I had sat on the bed to play with the kitty and the mattress platform shifted. So when my son was here, he cut a piece of mdf to brace the platform. It didn't work. So he went to the basement and brought up a box spring. Now the bed was super high & one end was a tad raised, but it would probably suffice. We had dinner. He did his laundry and went back home to his dad's. Today, while trying to fix the satellite in the den, I discovered the cable from the wall was not hooked to the receiver (the receiver was connected to the tv, tho which I'm sure was the only thing my daughter checked). I looked behind the wall unit to get the cable...it was stuck under the unit. So...I emptied the wall unit just enough to be able to tip it far enough to pull the cable out. In that process, I thought of a brilliant idea for the day bed situation. My son left the hand saw in the kitchen, so I pulled some unuseable laminate planks from the basement & cut 3 of them to size. Took the mattress & box spring off. Put the newly cut laminate planks down. Then the platform and returned the mattress. I now needed to return everything to the wall unit and re-wash the sheets that were on the day bed because the kitty had been laying all over them. I am probably pushing myself way way way too hard seeing how I just came out of a hella flare 2 weeks ago but...pacing is for pansies and I ain't no flower. I'm tired of being a hostage to this stupid crap. If I end up not being able to move, so be it. At least when they find me, I will know I accomplished something for the first time in months, if not years. |
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My friend |
That is seriously amazing! I hope, hope, hope that you are able to move tomorrow. It's like you did two weeks of rehab crammed into one day.
If you get kickback, don't get discouraged just take as confirmation that you maybe overdid a wee bit. ;) |
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I will try really really hard not to get discouraged ;) |
Wow you really got a lot done! Thanks for sharing it with us. It does feel good to get things done.
:-) zinnia |
Wonder Woman! I'm sure it helped your mood to get all of that accomplished.
I find it hard to figure out pacing and limits because they change so much from day to day. Sounds like your house will be ready for your visitors this weekend so you can have some nice quality family time! |
Ha! My daughter is good at organizing. Cleaning? Not so much. OCD & RSD are NOT friends!!!
Both my mom & my son are coming to work...there is no 'play time' allowed yet! Just trying to make sure that the basic common areas are not of the "omg, I'm so embarrassed" clean & more " yes, please come in" clean for an impromptu meeting I have Friday morning. And...I could never compete with Wonder Woman....gabapentin took the body that fits the uniform!!! I'm 'Wider Woman' ;) |
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Even though it's not a social visit I'm sure the extra help will be nice. |
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The extra help is pretty much a requirement. No way I can keep this up. Been at it (as a flower...super pacing) for 2 hours and I've barely started and yet my body is nearly done. Hard to believe emptying the black water from about 6 tiles of the kitchen floor that it has been mopped in the past month. Ick. So many more 6 tiles to go... |
Sorry I haven't replied sooner...I've been reading but not feeling very well lately and not able to post much. I know it feels good to get stuff done and I certainly go through stretches like this too where no matter what the cost I just need to DO stuff. And honestly...keeping busy for me is a good thing and why I still work (and can't wait to get back to it now)...keeps my mind occupied with something other than the pain. Not that the pain is less or goes away...but when all you can do is sit and think about the pain it feels so much worse. Even if there's hell to pay in the way of a flare up after...sometimes it really is worth it for that short period of normalcy.
Just remember to take care of yourself. Hugs. |
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At this moment, I am so incredibly grateful that my mom will be coming tomorrow after my business meeting. I worked from 8:30a - 6:30p (I DID a bit more resting today), then I took a nice long jacuzzi epsom bath. My kitchen, entryway and powder room got done today. Unfortunately, my knee/leg is NOT happy with me and I am not sure I can do anything more than answer the door & walk this lady out tomorrow. Thank goodness my mom is bringing me a chocolate bar! |
wow a jacuzzi epsom bath sounds so good for an aching body. Glad you are taking care of yourself. It does the soul good to see their accomplishments, even if you do hurt later. I was feeling overwhelmed this morning and talked to hubby about some of the things I thought I had to do, just being able to talk about them shrunk them down to their real size. He offered to do one, we crossed some of those things off the list lol and broke the others down into baby bites.
How do you eat an elephant? one bite at a time and now that I have RSD there is lots of resting while chewing in between. hahaha :-) peace zinnia |
Well...I got 4 days out of it.
I know in my original post I said 'pacing is for pansies & I ain't no flower' but I DID pace myself. Granted, not as much as I probably should have but I would sit for about 20-30 minutes after each 20 minutes or so doing stuff. If I was in one place, I would go a little longer. If I was back & forth walking, I would stop a little sooner. It took 4 days to get a 10x12 room, a kitchen, a foyer & laundry room each partially done, so I don't think I REALLY went overly. But I DID do more than my body wanted. I'm so grateful my son came today. Did some things around the house, made dinner & had me meet his new girlfriend. He was also here to help me up the stairs to settle in. My pain level has shot pretty close to the roof & the spasms are back. I'm thinking my furbabies and I will be in my room at least tomorrow. It was wonderful while it lasted & I'm not sure I can say I regret one single thing. |
Thank you for sharing with us Always Believe. You have been in my thoughts and prayers. I am glad your son is there helping you. Family support is such a blessing. My son is having some serious problems with his teenage son. I went over yesterday and just sat with him. I do not have any answers. I helped him look at some options. It felt good that he called me and that he wanted me to come over, just to be of support. His big dog worries me around my foot, he wants to stand and put his paws on my shoulders, he thinks he is a huge puppy. Hubby usually goes along and keeps the dog entertained. I did have to take my shoe off when I got there.
I was thinking this morning about the importance for me to keep resting my foot, balance of using and resting, and even to see the resting as a positive, IF I do the resting THEN I will be able to do the work. You are helping me to see this from a positive view. Perspective can sure changes things. :-) peace zinnia |
Pacing (long post, sorry)
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Oh man, I hope the situation with your son finds an easy resolution. My son's dog worries me too! I'm glad your husband can keep the furbaby occupied! My daughter is going through a bit of balance issues herself. I realized that while I taught my kids to give everything their best shot, I never focused on balance. I am learning myself how important balance is. |
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Woman! You make me laugh. |
hi always. i hope you are feeling better today. i try to move as much as i possibly can too but also find that if i don't pace myself i will end up with an rsd flare that can last for days if not weeks sometimes. it's frustrating but that's what rsd can do sometimes. i hope again that you are feeling better.
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Alas, I continue to be hit with setbacks. Nothing due to what I've been doing. Everything to do with my 'support system'. Unfortunately, I NEED my support system...however, it seems they all have other things to do and my needs do not factor in. At least not without being a whiny b&*@h. Even programs through the state/county/social services are not able to help. My SSDI is ~$25/month over. If there are things I can control, I do my best to figure out solutions. Sadly, most of the issues I am dealing with are not under my control (The amt of SSDI I receive; utility bills (they are all on budgeted amts); no medical treatment; not being able to work; not being able to complete my ASN). The only things I see left to do are: -Sell my house (most likely at a significant loss) -Buy another house that is more conducive to my needs in a location that is more friendly to my RSD (no cold/no snow/limited rain) - which would leave me distanced from my aging parents which was why I moved here to begin with -Totally give up ANYTHING and EVERYTHING regarding all things nursing (I was looking at reinstating my IL license to at least have that on hand ~$250 eeek! Simply cannot afford that with property taxes coming.) -Apply for Medical Cannabis Card ($50/application; ~$60/product....not sure I can really swing either and certain this would affect my nursing license) I'm so over everything right now. I have reached out for help and get slapped down constantly. The ONLY help I have is being able to vent and someone listens...nice & appreciated but doesn't get my trash can to the curb & back or go to the store for me or get the laundry done or... I :heartthrob: you all! |
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I am so sorry to hear all this...looks like you have some very tough decisions ahead of you and I feel for you. It's even worse when you feel that you have no support system that you can rely on. Even with a support system I still feel frustrated at my inability to do things like take out the trash myself...and it's made worse when the person who DOES take the trash out complains about it (even in a joking way). I wish I could do more for you than just be moral support...that I could offer some fine words that would just make it all better and easier...but I got nothing. You are in my thoughts and as always if you need someone to listen I am here. Hugs. |
Oh Believe! I am so sorry to hear that you are going through all of this. I have been avoiding responding on too much here lately since I have been dealing with some of my own problems, but I wanted to stop by and give a hug.:hug::hug:. You really sound like you needed as much support from us as we can give. The emotional support from all of the members here on NT can help a lot sometimes. Maybe we can't help taking out the garbage, or making the big decisions in life that only you can make, but we are here to listen when you need someone who can understand some of what you are going through.
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Thank you. As anticipated, I don't qualify for in-home services from DHS. It would seem while in a flare, I do but otherwise not. For my ability to qualify, my flare has to last or be expected to last at least 12 months. I've had flares last almost 3 months...12 months would kill me.
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This is one tough disease for many many reasons. And you are hitting on a very important cause for hardship. A person can really be suffering physical CRPS pain in a terrible way, and life just keeps rolling on for those around that person, including govt, insurance, neighbors, family, etc. They keep moving on, while the CRPS patient is trapped in hurt and disability. Then when we find ourselves without resources and with few to no answers it really and truly does lead to frustration. It happens. It is very real. I too wish I had a witty saying or a brilliant break through idea in this case. But, I don't have that. The best that I have is my friendship. And I freely offer that to you.
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:hug: I :heartthrob: you Spike |
hi always. i wish i could help you more too but i hope it helps to know that i understand and care and am here if you need to talk. i hope things get better for you. i hope things get better for all of us suffering from this horrible disease. love and hugs.
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