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-   -   Brachial radial pruitis (https://www.neurotalk.org/general-health-conditions-and-rare-disorders/23461-brachial-radial-pruitis.html)

seabare 07-09-2007 10:36 PM
Brachial radial pruitis
 
Hello to all. I am hoping to find more information on the above: Brachial radial pruitis. I have been suffering from severe intense itching in the elbow/upper arm area for over 15 years. Nothing to show for it until recent diagnosis by dermatologist of BRP. Appears to be a relatively rare condition that manifests itself in the intense itching, often @ night and in warmer weather, however mine is year round.

Little is known apparently about BRP, however the opinions are that it is a neurological condition due to nerve damage caused either by sun exposure or problems in the C-4 to C-6 region of the spine.

I have found only one other thread thru an unlikely blog so am searching. I'm interested to find others with this condition and what their Dr. is doing about it. Some sufferers are on Prednisone (me) and/or Neurontin or Lyrica. Some people find relief by acupuncture, some chiropractic. Some, only icing the area does it. Some also take amitriptylene or doxepin.

Anyway, if this sounds at all familiar to anyone, I would like to hear what avenues are being taken and if they work!

Nancy Wavrock 08-13-2008 08:56 PM
I have severe pruitis (BRP) as well....despirate for advise
 
I'm Nancy, from Florida, and I've also been plaged for over 10 years with severe pruitus ( itching) of my arms (both) which increases at night. This keeps me awake, suffering now from many years of insomnia.....constantly trying to find relief. I've visited allergist, dermatologist and my PCP looking for answers and help. This started after surgical menapause.I've had my Hormones monitored carefully, through saliva testing.
I take HRT, a compounded formula cream , but doesn't help. I sleep with ice wrapped around my arms, and my husband calls me a hockey player.
If anyone has any suggestions, please contact me. I live in Florida. The sun intensifies the itching during the day, so, I've been keeping out of the sun.
Looking for some advise and answers......

Nancy

lburley 10-03-2009 12:18 PM
I also have brachial radial pruitus and have discovered that not only is this a rare disease, but most doctors haven't even heard of it. I bounced around for five years from family doctor to dermatologist to neurologist before I finally found some information on the internet and was able to diagnose myself. I took several articles I had found to my family doctor whoe read them and agreed that was what I had. I now take 100 MG Lyrica twice a day and that has helped tremendously, but I still need ice packs on some evenings. Here's what I know:

Symptoms: Severe itching on arms, shoulders, lower neck, upper back. Itching changes from year to year and always occurs in certain spots. This year, it's my upper arms. Last year, it was my lower arms. Itching cannot be satisfied by scratching and if you try it that way, you'll simply scratch until you bleed. My arms are covered with healed scratch marks. This disease is seasonal--itching begins mid-summer and lasts until January/February with decreasing intensity. The symptoms are also strongest in the evening and night time. Rarely bothers me during the day unless I have tight sleeves or am sweating (like during a workout).

Treatment: This is a nerve disease so trips to dermatologists are useless. The only thing that may work from their perspective is to numb your skin and that's just not practical on a nightly basis. I take Lyrica which is often prescribed for fibermyalgia patients. The nerves in my arms are damaged, most likely from some combination of too much sun and a genetic predisposal to this disease. But the damage is not severe enough to be felt as pain--my brain thinks my arms itch and it also feels like a burning just below the surface. That's not so bad--much better than the itching. I take 100 mg around 6:00 in the evening, just when the itching may start. I take another 100 mg at bedtime, around 10:30. This drug makes my life bearable again but does not completely fix the problem. I also take a bag of ice to bed with me because when I turn on my side, my arm often starts to itch. I'm guessing from both the warmth and the tightness. SOmetimes if I just get my arms out from under the covers, the itching subsides.

I wrote this blurb here in hopes that some day some one will see it who will know of a better way to treat this or maybe even a way to cure it. I tried hard to stay out of the sun this year but it made no difference. But I live in Arkansas, so it is very difficult to avoid sun. And maybe someone else who suffers from this will see it and finally be able to go to her doctor and say this may be what I need to do. I had one doctor tell me to wear mittens to bed because I was performing phantom scratching--I only THOUGHT my arms were itching. I had another doctor prescribe some useless cream and when I reported it didn't help, he said that was too bad. Hope you find a way to figure it out. Apparently, a lot of doctors don't think itching is much of a problem. Wish they could go 7 months every year, not being able to go to sleep for hours and then being woken up in the middle of the night and having no alternative but to get into a cold shower for relief. Or having to tell your lover you just can't touch my arms at all--try hugging that way. I tried to find a doctor in this state who had even heard of the disease, and so far, no luck. I'm just glad I have a family doctor who was willing to listen and try something else every time one treatment didn't work. It was his idea to try the Lrica and it has been wonderful. Hope the rest of you find some relief as well.

pabb 10-03-2009 02:51 PM
i would wonder if lidoderm patches might help?

Nancy6627 11-29-2009 03:52 AM
Severe itching on arms
 
I have never heard of brachial radial pruitus until now. I have suffered from severe itching on my arms for 30 years. At first it only lasted a short time and only a few times a year. The older I get the more often it occurs. Lately it seems like a constant battle to stop the itching. Lately I have been to the ER twice in a couple of weeks. I scratch so much that my arm is dripping in blood. It switches from one arm to the other. Sometimes both at the same time but mostly one side or the other. No Dr. has been able to give me an answer. I've had two biopsys that came back as inflamation. How is brachial radial pruitus diagnosed? I never know what will bring it on or what will stop it. The only thing that seems to help is lots of massage oil 5x's a day on my arm.

Nancy6627 12-02-2009 03:29 AM
brachial radial pruitius
 
Quote:
Originally Posted by lburley (Post 573884)
I also have brachial radial pruitus and have discovered that not only is this a rare disease, but most doctors haven't even heard of it. I bounced around for five years from family doctor to dermatologist to neurologist before I finally found some information on the internet and was able to diagnose myself. I took several articles I had found to my family doctor whoe read them and agreed that was what I had. I now take 100 MG Lyrica twice a day and that has helped tremendously, but I still need ice packs on some evenings. Here's what I know:

Symptoms: Severe itching on arms, shoulders, lower neck, upper back. Itching changes from year to year and always occurs in certain spots. This year, it's my upper arms. Last year, it was my lower arms. Itching cannot be satisfied by scratching and if you try it that way, you'll simply scratch until you bleed. My arms are covered with healed scratch marks. This disease is seasonal--itching begins mid-summer and lasts until January/February with decreasing intensity. The symptoms are also strongest in the evening and night time. Rarely bothers me during the day unless I have tight sleeves or am sweating (like during a workout).

Treatment: This is a nerve disease so trips to dermatologists are useless. The only thing that may work from their perspective is to numb your skin and that's just not practical on a nightly basis. I take Lyrica which is often prescribed for fibermyalgia patients. The nerves in my arms are damaged, most likely from some combination of too much sun and a genetic predisposal to this disease. But the damage is not severe enough to be felt as pain--my brain thinks my arms itch and it also feels like a burning just below the surface. That's not so bad--much better than the itching. I take 100 mg around 6:00 in the evening, just when the itching may start. I take another 100 mg at bedtime, around 10:30. This drug makes my life bearable again but does not completely fix the problem. I also take a bag of ice to bed with me because when I turn on my side, my arm often starts to itch. I'm guessing from both the warmth and the tightness. SOmetimes if I just get my arms out from under the covers, the itching subsides.

I wrote this blurb here in hopes that some day some one will see it who will know of a better way to treat this or maybe even a way to cure it. I tried hard to stay out of the sun this year but it made no difference. But I live in Arkansas, so it is very difficult to avoid sun. And maybe someone else who suffers from this will see it and finally be able to go to her doctor and say this may be what I need to do. I had one doctor tell me to wear mittens to bed because I was performing phantom scratching--I only THOUGHT my arms were itching. I had another doctor prescribe some useless cream and when I reported it didn't help, he said that was too bad. Hope you find a way to figure it out. Apparently, a lot of doctors don't think itching is much of a problem. Wish they could go 7 months every year, not being able to go to sleep for hours and then being woken up in the middle of the night and having no alternative but to get into a cold shower for relief. Or having to tell your lover you just can't touch my arms at all--try hugging that way. I tried to find a doctor in this state who had even heard of the disease, and so far, no luck. I'm just glad I have a family doctor who was willing to listen and try something else every time one treatment didn't work. It was his idea to try the Lrica and it has been wonderful. Hope the rest of you find some relief as well.
Thanks. I will try Lyrica. Is brachial radial pruitius diagnosed by the symptoms? Or is there a blood test?

bjk717 08-10-2012 09:40 AM
FInally.
 
Thanks LBurley -- your account of your symptoms is exactly what i have had for the last four years. Countless doctors couldn't tell me what it was and worse made me feel awful -- that i was making it up, it was psychosomatic or attributed it to stress. One doctor told me to give up and stop trying to figure out what it was.

I have been to acupuncture for this over the last week -- she worked on the C5 and C6 vertebrae and i'm so pleased that for the last two nights since the session, all has been quiet on the itchy arms front.

Try acupuncture. it works!

Nancy6627 08-12-2012 03:25 AM
Relief with Lidocane Patch
 
Recently I have found relief from the itching by using Lidoderm which is a lidocaine Patch 5%. They are prescription only so you need to ask your Dr.
So far this has been the greatest relief I have gotten. I hope it may help some of you.

badbackpain 08-14-2012 03:47 PM
brachialradial puritius
 
I suffered with this for 8 years. Got some relief from prescription cortoid cream, and sleeping with ice packs. Had no neuro problems, it was all Florida sun and heat related. Many living in tropics get it. My new neurologist recommended trying Capsacin,,, its burnt and hurt, took 2 applications but got rid of it for good!!!
It was really great, I am so happy , and strongly rec anyone with this try it. It worked for me.

Silver 08-20-2012 07:23 PM
Quote:
Originally Posted by lburley (Post 573884)
I also have brachial radial pruitus and have discovered that not only is this a rare disease, but most doctors haven't even heard of it. I bounced around for five years from family doctor to dermatologist to neurologist before I finally found some information on the internet and was able to diagnose myself. I took several articles I had found to my family doctor whoe read them and agreed that was what I had. I now take 100 MG Lyrica twice a day and that has helped tremendously, but I still need ice packs on some evenings. Here's what I know:

Symptoms: Severe itching on arms, shoulders, lower neck, upper back. Itching changes from year to year and always occurs in certain spots. This year, it's my upper arms. Last year, it was my lower arms. Itching cannot be satisfied by scratching and if you try it that way, you'll simply scratch until you bleed. My arms are covered with healed scratch marks. This disease is seasonal--itching begins mid-summer and lasts until January/February with decreasing intensity. The symptoms are also strongest in the evening and night time. Rarely bothers me during the day unless I have tight sleeves or am sweating (like during a workout).

Treatment: This is a nerve disease so trips to dermatologists are useless. The only thing that may work from their perspective is to numb your skin and that's just not practical on a nightly basis. I take Lyrica which is often prescribed for fibermyalgia patients. The nerves in my arms are damaged, most likely from some combination of too much sun and a genetic predisposal to this disease. But the damage is not severe enough to be felt as pain--my brain thinks my arms itch and it also feels like a burning just below the surface. That's not so bad--much better than the itching. I take 100 mg around 6:00 in the evening, just when the itching may start. I take another 100 mg at bedtime, around 10:30. This drug makes my life bearable again but does not completely fix the problem. I also take a bag of ice to bed with me because when I turn on my side, my arm often starts to itch. I'm guessing from both the warmth and the tightness. SOmetimes if I just get my arms out from under the covers, the itching subsides.

I wrote this blurb here in hopes that some day some one will see it who will know of a better way to treat this or maybe even a way to cure it. I tried hard to stay out of the sun this year but it made no difference. But I live in Arkansas, so it is very difficult to avoid sun. And maybe someone else who suffers from this will see it and finally be able to go to her doctor and say this may be what I need to do. I had one doctor tell me to wear mittens to bed because I was performing phantom scratching--I only THOUGHT my arms were itching. I had another doctor prescribe some useless cream and when I reported it didn't help, he said that was too bad. Hope you find a way to figure it out. Apparently, a lot of doctors don't think itching is much of a problem. Wish they could go 7 months every year, not being able to go to sleep for hours and then being woken up in the middle of the night and having no alternative but to get into a cold shower for relief. Or having to tell your lover you just can't touch my arms at all--try hugging that way. I tried to find a doctor in this state who had even heard of the disease, and so far, no luck. I'm just glad I have a family doctor who was willing to listen and try something else every time one treatment didn't work. It was his idea to try the Lrica and it has been wonderful. Hope the rest of you find some relief as well.
Have you tried Llysine...just over the counter, the first 3 days triple the dose, also take extral Vitamin B. I also dust myself with common corn starch for the itching...

STL reader 09-18-2012 10:09 AM
Thank you for your post!!
 
Quote:
Originally Posted by lburley (Post 573884)
I also have brachial radial pruitus and have discovered that not only is this a rare disease, but most doctors haven't even heard of it. I bounced around for five years from family doctor to dermatologist to neurologist before I finally found some information on the internet and was able to diagnose myself. I took several articles I had found to my family doctor whoe read them and agreed that was what I had. I now take 100 MG Lyrica twice a day and that has helped tremendously, but I still need ice packs on some evenings. Here's what I know:

Symptoms: Severe itching on arms, shoulders, lower neck, upper back. Itching changes from year to year and always occurs in certain spots. This year, it's my upper arms. Last year, it was my lower arms. Itching cannot be satisfied by scratching and if you try it that way, you'll simply scratch until you bleed. My arms are covered with healed scratch marks. This disease is seasonal--itching begins mid-summer and lasts until January/February with decreasing intensity. The symptoms are also strongest in the evening and night time. Rarely bothers me during the day unless I have tight sleeves or am sweating (like during a workout).

Treatment: This is a nerve disease so trips to dermatologists are useless. The only thing that may work from their perspective is to numb your skin and that's just not practical on a nightly basis. I take Lyrica which is often prescribed for fibermyalgia patients. The nerves in my arms are damaged, most likely from some combination of too much sun and a genetic predisposal to this disease. But the damage is not severe enough to be felt as pain--my brain thinks my arms itch and it also feels like a burning just below the surface. That's not so bad--much better than the itching. I take 100 mg around 6:00 in the evening, just when the itching may start. I take another 100 mg at bedtime, around 10:30. This drug makes my life bearable again but does not completely fix the problem. I also take a bag of ice to bed with me because when I turn on my side, my arm often starts to itch. I'm guessing from both the warmth and the tightness. SOmetimes if I just get my arms out from under the covers, the itching subsides.

I wrote this blurb here in hopes that some day some one will see it who will know of a better way to treat this or maybe even a way to cure it. I tried hard to stay out of the sun this year but it made no difference. But I live in Arkansas, so it is very difficult to avoid sun. And maybe someone else who suffers from this will see it and finally be able to go to her doctor and say this may be what I need to do. I had one doctor tell me to wear mittens to bed because I was performing phantom scratching--I only THOUGHT my arms were itching. I had another doctor prescribe some useless cream and when I reported it didn't help, he said that was too bad. Hope you find a way to figure it out. Apparently, a lot of doctors don't think itching is much of a problem. Wish they could go 7 months every year, not being able to go to sleep for hours and then being woken up in the middle of the night and having no alternative but to get into a cold shower for relief. Or having to tell your lover you just can't touch my arms at all--try hugging that way. I tried to find a doctor in this state who had even heard of the disease, and so far, no luck. I'm just glad I have a family doctor who was willing to listen and try something else every time one treatment didn't work. It was his idea to try the Lrica and it has been wonderful. Hope the rest of you find some relief as well.

Oh MY! Reading your post was like reading my own diary! Everything you mention is exactly what I am dealing with. Even sleeping with the ice bag. Doctors always think I'm nuts - and you're right - dermatologists are especially useless.

I've had this condition off and on for at least ten years...but this summer has been brutal. Right now I'm typing with an ice bag balanced on my arm.

I'm printing your post and taking it to a new chiropractor this week. Thanks for summing it up so well.

r3volution 10-15-2012 12:31 AM
As bad as poison oak!
 
I've got it too and it is brutal. Its ice packs on both arms for me to fall asleep nightly. For me it goes away in the winter, thankfully, because if I had it year round I seriously might consider killing myself because the itch is so bad it is painful and difficult to sleep. I am fairly certain it is heat related and not sunlight related because I have tested my reaction to both and it seems to react negatively to heat conditions but not necessariy to sunlight without heat. In fact, when I first got this 9 years ago I was living in a very hot and humid SE Asian country with no air conditioning in my house. But at the time, when I would travel and stay in air conditioned hotels for any length of time, the condition would go away until I returned to non-airconditioned accommodations. I too have been to the dermatologists and they are useless. I have come to the conclusion that it is nerve induced because it comes from underneath rather than the superficial part of the skin. Lately I have felt a subtle tingle and slight burning sensation radiating into my index fingers.
I'm still searching for a treatment or cure. Please share if anyone gets rid of this thing.

cath4512 10-21-2012 09:38 AM
I have peripheral neuropathy in my feet ( idiopathic at the monment) which started in June & seems to be progressing quickly.
A few weeks ago my arms started to itch really badly, to thr point where I have cut myself with scratching them.I dont know if its connected to the PN or not.
I see my neurologist in November so hope he can shed some light on it.
I find that cold flannels wrapped round my arms helps a bit.

bethhansen 11-11-2012 09:43 PM
Add me to your list!
 
Yes, it is brutal!! I have had it for 30+ years and have never found a doctor who knows what to do. Also, I thought that I had been going through menopause with hot flashes for over 20 years, but I think part of this disease is connected to heat, and my body seems to want to produce too much heat, too often, and then I get the attack of the burning itch on neck, upper arms and back. I am even breaking out on my neck now, probably from scratching too much. I am so thankful to find all of your comments, as you convinced me that I am not just going "nuts". I think I will try the acupuncture. I will let you all know how it works for me.



Quote:
Originally Posted by r3volution (Post 922663)
I've got it too and it is brutal. Its ice packs on both arms for me to fall asleep nightly. For me it goes away in the winter, thankfully, because if I had it year round I seriously might consider killing myself because the itch is so bad it is painful and difficult to sleep. I am fairly certain it is heat related and not sunlight related because I have tested my reaction to both and it seems to react negatively to heat conditions but not necessariy to sunlight without heat. In fact, when I first got this 9 years ago I was living in a very hot and humid SE Asian country with no air conditioning in my house. But at the time, when I would travel and stay in air conditioned hotels for any length of time, the condition would go away until I returned to non-airconditioned accommodations. I too have been to the dermatologists and they are useless. I have come to the conclusion that it is nerve induced because it comes from underneath rather than the superficial part of the skin. Lately I have felt a subtle tingle and slight burning sensation radiating into my index fingers.
I'm still searching for a treatment or cure. Please share if anyone gets rid of this thing.

jhurst90 05-07-2013 08:10 PM
Intense arm itching
 
I suggest, based on my personal experience, this is an allergic reaction to berries, primarily strawberries, secondly blueberries. Hence the seasonal aspect. Eating as well as working in the patch results in incredible, under the skin, itch in the forearms. Advil is the quick fix but the cause seems to be a reaction.

Lotsietutank 05-29-2013 04:49 PM
Finally I see others are like me!
 
I have suffered with this for years. I have seen dermatologists, internal med docs, neurologists, and even an allergist. Most said stress and while on Prozac...another said itching was a symptom of Prozac. Two years ago....an allergist told me it could be allergies. So he placed me on Claritin....it is the only thing that has ever helped. I take 3 to 4 claritins per day but I still have big bouts with itching. Finally I found this post...Since finding it, I have read a lot more. What is working for you all? Where should I start?

ginnie 05-29-2013 07:00 PM
To all itchers
 
I am glad that something at least is good. Doctors are starting to pay attention to this. My mother had something like this for many of the last years of her life. (30 years ago) They always told her it was all in her head, making her feel really bad. It wasn't in her head. I appreciate this thread, as now I know what my mom most likely had. I hope relief and a cure can be found. ginnie

Rsilvey 09-17-2013 10:14 PM
Going crazy with this itching!!
 
Quote:
Originally Posted by lburley (Post 573884)
I also have brachial radial pruitus and have discovered that not only is this a rare disease, but most doctors haven't even heard of it. I bounced around for five years from family doctor to dermatologist to neurologist before I finally found some information on the internet and was able to diagnose myself. I took several articles I had found to my family doctor whoe read them and agreed that was what I had. I now take 100 MG Lyrica twice a day and that has helped tremendously, but I still need ice packs on some evenings. Here's what I know:

Symptoms: Severe itching on arms, shoulders, lower neck, upper back. Itching changes from year to year and always occurs in certain spots. This year, it's my upper arms. Last year, it was my lower arms. Itching cannot be satisfied by scratching and if you try it that way, you'll simply scratch until you bleed. My arms are covered with healed scratch marks. This disease is seasonal--itching begins mid-summer and lasts until January/February with decreasing intensity. The symptoms are also strongest in the evening and night time. Rarely bothers me during the day unless I have tight sleeves or am sweating (like during a workout).

Treatment: This is a nerve disease so trips to dermatologists are useless. The only thing that may work from their perspective is to numb your skin and that's just not practical on a nightly basis. I take Lyrica which is often prescribed for fibermyalgia patients. The nerves in my arms are damaged, most likely from some combination of too much sun and a genetic predisposal to this disease. But the damage is not severe enough to be felt as pain--my brain thinks my arms itch and it also feels like a burning just below the surface. That's not so bad--much better than the itching. I take 100 mg around 6:00 in the evening, just when the itching may start. I take another 100 mg at bedtime, around 10:30. This drug makes my life bearable again but does not completely fix the problem. I also take a bag of ice to bed with me because when I turn on my side, my arm often starts to itch. I'm guessing from both the warmth and the tightness. SOmetimes if I just get my arms out from under the covers, the itching subsides.

I wrote this blurb here in hopes that some day some one will see it who will know of a better way to treat this or maybe even a way to cure it. I tried hard to stay out of the sun this year but it made no difference. But I live in Arkansas, so it is very difficult to avoid sun. And maybe someone else who suffers from this will see it and finally be able to go to her doctor and say this may be what I need to do. I had one doctor tell me to wear mittens to bed because I was performing phantom scratching--I only THOUGHT my arms were itching. I had another doctor prescribe some useless cream and when I reported it didn't help, he said that was too bad. Hope you find a way to figure it out. Apparently, a lot of doctors don't think itching is much of a problem. Wish they could go 7 months every year, not being able to go to sleep for hours and then being woken up in the middle of the night and having no alternative but to get into a cold shower for relief. Or having to tell your lover you just can't touch my arms at all--try hugging that way. I tried to find a doctor in this state who had even heard of the disease, and so far, no luck. I'm just glad I have a family doctor who was willing to listen and try something else every time one treatment didn't work. It was his idea to try the Lrica and it has been wonderful. Hope the rest of you find some relief as well.
I felt like I also was reading my own diary! I have fibromyalgia and the above meds mentioned are all ones that I have tried and am allergic to them: Neurontin, Lyrica, Predisone, Amyitryline. My only salvation are the ice packs but with that I'm still waking up due to them falling off, leaking, etc, I have celiac disease so I'm wondering if it could be a Celiac rash, although there's usually no rash! The doctor is sending me to a Dermatologist and I'm just not real sure that will work. I do have major problems in my back and am wondering if that is the answer to my problem. I can't imagine living like this but if i have to, I have to. Any suggestions?

glenntaj 09-18-2013 06:28 AM
The Celiac rash--
 
--is called dermatitis herpetiformis, and is diagnosable by sampling the lesions and looking for the telltale IgA deposits:

http://en.wikipedia.org/wiki/Dermatitis_herpetiformis

http://emedicine.medscape.com/article/1062640-overview

ed c 11-15-2014 11:39 AM
Itchy arms--BP
 
I'm happy I found this site...I have suffered from BP for about a year...tried lots of things..lemons...witch hazel...ice.. Tricalm...all the things suggested here. But, I finally am getting relief...GAPAPENTIN ..My dr actually prescribed this for me a while back for mild anxiety, and sleep aid. I don't take it regularly anymore, but had several capsules left. After reading several suggestions on several websites, I went back to a regular regime of 300mg/3 times a day, starting 4 days ago....and I am virtually itch-free!! I have occasional prickling on my arm ,but NO where close to the itching I have had for the past year.....and I'm sleeping better and not waking up to scratch . I still am using some topical creams (just as a safety measure).
ASK YOUR Doctor for some GAPAPENTIN.....you may feel a little "slow", but even if you took it late in the day...you could sleep and not itch! I do not sell pharmaceuticals.....I'm just an itchy guy! Hopefully "former".

Kitt 11-15-2014 02:14 PM
Welcome ed c. :Wave-Hello:


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