DBS today
 

Dear friends, it's been a bit of time since I have posted on this forum, but there is a reason, and that reason is called DBS. Yes, dear friends, I have had to make a choice, now no longer be postponed, and I absolutely do not regret to have done, in case, I repent today, not to have made this choice a little earlier.
In fact, I was at the point of taking up to almost 1 g of levodopa per day, with very little results, but today with DBS, I take 50mg a day, and only because the neurologist has advised me not to suspend it completely.
Certainly surgery is not for everyone, unfortunately, but for those found to be candidates, I say (and remark) I am not a doctor, I say do it, because although it is not a small thing, after doing this, you reborn. guaranteed ...

That's great! I also had dbs after waiting 6 years. I had the surgery done a month ago. Guess I'm a Cyborg now LOL! What a relief it has been! I'm about 90% better! Yesterday I forgot I had Parkinson's! Still hoping for a cure but this should help me get there.

Zanpar321 Thanks for your answer, it seems almost a miracle, after about 11 years of illness, get back to doing the things that I did when I was not even sick. :eek:

Great news.....glad to hear it went well and you have your life back....I get the feeling that the surgery teams are improving in DBS with each procedure they do....good news for all of us PD'ers that might follow you up the road...enjoy the new freedom and life.....best....

Eric

Looking forward to the DBS systems now being tested that will react real time to turn the DBS on/off and adjust based on feedback from the brain. Maybe a couple of years away!

Real-time adaptive brain control: Combining a BCI with DBS to treat Parkinson’s | ExtremeTech

Immediately*after surgery,*I*participated in a*clinical trial*on a new*device called*"adaptive*neurostimulator",*which provided the*stimulation*only when needed,*and in my*feeling,it gave me*more comfort*than*fixed*delivery*(*MedtronicActiva*PC)* already excellent, that implanted to me.:winky:

Add me to your list
 

Hi all
Yes, I was a doubting Thomas, also. But this November, it will be one year since I decided to have DBS. We all have the operation with different expectations - mine were to take control over my horribllle dyskinetic body. And today, I am so much improved. No longer do I twist and wryth every joint, but I can sit so quietly without of that type stuff anymore.

I just kept putting it off, thinking, "well, if I've made it this far . . .!"
Why did I takke so long?? Please start asking questions to see DBS is an option for improving your quality of life. It was worth it!

Peggy

Prayer for YOU today, sim00.

So glad DBS helped you Peggy! It's been wonderful for me too!

Thank you so much.

Very glad to hear your improvement, Peggy.

I really don't know how to put this into words. I had the procedure done this Monday, and so far, the results have been difficult to track as far as far as the symptoms that have changed. Currently the shuffling of feet is a shadow of what is was, and the on/off transisition is gone!!!!

All I can add is, please. please, consider having this done. It is absolutely life changing.


David

Hi David,
consider*that the best results*are obtained after*at least one*month after surgery*and at*the neurostimulator*must*be adjusted*finely*and our*body has to adapt,*and this*is totally subjective.*The full path*requires*nearly 1*year for*the finaladjustment.

So glad you had the DBS done David. I'm guessing you don't even have the system turned on yet. I'm still fine tuning the system at 6+ weeks after the surgery. So glad it helped and will likely get better over time!

True, it isn't even turned on yet, but there are definitely changes. We'll give it some time to analyze further. All I know is that I was very hesitant to go through with DBS, and now I can't imagine not.

Dear friends, after about 4 months after DBS surgery, I feel very well, because I do not take any more medicine. I do not feel constantly tired, and to all of you my dear friends, fellow sufferers, I strongly suggest, does not arrive to the point of almost no return. Who can make dbs surgery, do it quietly. do not worry. the drugs also kill more quickly.:eek: