Ketamine Infusion Treatments
 

Hi Everyone.

Say, is there anyone out there that has tried ketamine treatments? Not sure if we've talked about this before or not.

I'm told that I could possibly do a ketamine infusion treatment that would be a daily IV treatment for 3 weeks down at Mayo Clinic. I believe this will keep me from working - I'd need to take 3 weeks of short term disability.

Is there anyone out there that has done this type of treatment?

Hey,

I haven't done this treatment - but GnP has.

However I have been on daily oral ketamine for over a year and it has really helped my pain and has allowed me to go to uni so it's great :D :D :D YAYAYAYAY so I would really REALLY advise it!

Love

Frogga xxxxxx

Hello,

I have had repeated Ketamine Infusions but never as an outpatient so I am sorry but I can't comment on the outcome. Hopefully someone who had done it this way will be able to advise.
Tayla:hug:

there's so much discussion about IV Ketamine--would be good to hear more..

Frogga... more please about ORAL Ketamine... how prescribed, dosage, etc.

I'd heard about this from mom whose daughter had horrendous pain following surgerys for Chiari --she said it was the only thing that helped
( her daughter also had intensive sedation in-hospital + narcotics, etc...)

Good to hear Something helps this pain!!!

ORAL Ketamine
 

Hi.

Yes, Frogga, I would like to hear more about the oral ketamine. What are the side effects?

thank you.

Sorry I have not had consecutive ketamine IV boosters .
I have only had one booster followed by an oral protocol.
Dr.Schwartzman does offer a 10 day outpatient protocol
IV boosters - 4 hrs @ 20 mg /hr for 10 days

He did tell me that these are not as effective as the wide awake coma treatments as RSD is stubborn .The brain likes it's new rewired system and does not want to go back to its old way of functioning .
As soon as the ketamine is out of our bodies the brain goes back to misfiring That is why it needs to be rewired around the clock. and it needs a lot and sometimes repeatedly and often.
At least that is his theory.It does make sense.
Ketamine is an Nmda antagonist- that is why it works so well
If you trust your doctor and want to try this outpatient protocol why not?
There are abstracts on the topic so why don't you google it to become more informed,
I am sure any good amounts of ketamine will give you some relief and if you are lucky it will last awhile.
What would be wrong with that?

peace.

GnP

Tried ketamine nasal spray and drops on tongue
 

Frogga and others who have tried ketamine.....
Just wondering how you are taking the ketamine. I tried both the nasal and tongue route and neither helped at all. What are you using? Just curious. Maybe there is a pill or something. After having a really bad neuropathic reaction in my mouth to a liquid med. I am scared to death to take anything on my tongue again.
Thanks,
Sydney

Hi

I have it liquid.. 25mg qds. I can take slightly more in flare ups. I had nausea, headaches, chills etc when I started it and if I miss a dose I feel horrendous. I find it helps the sensitivity (can now bear socks and people touching my legs and arms which previously had me in hysterics it still hurts but only 8/9 out of 10... I went onto it from 125mg fentanyl (diuladid?) and up to 270mg morphine and break through meds. (though still need other stuff). It's not a cure and I am still severly disabled BUT it has given me the chance to get up, have several hours where I can concentrate enough to work and for me, from crying 20 hours a day, it is a 100% step forward.

Love

Frogga xxxxx

ketamine infusion Mayo
 

Which Mayo Clinic do you refer to ? Scottsdale, AZ or Minnesota? I didn't know they did it there. Has anyone here had contact with a Dr. Harbut? He seems very skilled at doing the ketamine low dose infusion with very good results.

I have just been researching Harbut. He made a recent move from Little Rock and is at a new place, but needs to obtain funding to restart the Ketamine the way that he does it. He currently is not taking any patients. However, they seem to have some set-up with RSDHOPE.org that they will report when he is back to doing the treatment :(
Lori Lee

i just had an iv ketamine treatment on moday, it lasted like 5 hours i think, then time to wake up. because i was already taking ketamine for 2 years i got a double dose. usually the dr leverone would give approx 500 mg over the time frame, slowly increasing the flow. i started at 1000mg and he started the flow at full speed, getting booster of more every so often. i have to take 40 mg ketamine pills twice a day and an ativan pill at bedtime. i never fully went to sleep, which again was a first for him. i was able to talk but i was def not coherant. usually his patients are just asleep, but not in a coma, and are able to breath on their own. i was able to leave the surgery facility once i was able to get up and walk. i'm supposed to stay at home for 2 weeks, and not drive or really do much so i make sure i don't re-injure myself and prevent myself from having a relaspe and coming out of remission. i haven't had any pain for 2 days, and pretty much have just been really tired. i have dilaudid incase i do get any pain, but i haven't had to take any. hopefully after the two weeks i won't have to take any pain meds at all. all my symptoms have gone away. obviously my range of motion and strength aren't back and i'm thinking of going back to pt once i'm able to drive after the two weeks to get all that back. just keeping my fingers crossed i don't get it back. if i do then i can have another one if i feel i need it, he also has an option for doing it several days in a row, going home after each 5 hour infusion and just coming back each morning. its $2k a day, $1 k for the doc and the other for the facility. everyone was super nice. i would def recommend it to everyone. its not covered by health insurance, because it still is experimental, but i know my insurance- blue shield, but they are going to reimburst me. i just have to submit my receipts to them. i have dr leverone's number and email if anyone would like them to discuss things with him. i never had to go in for an evaluation, we did everything over the phone and email. the facility he uses is just south of ucla, and hopefully over the next few months he'll be able to do them in northern/central ca in salinas. i haven't had no pain for 5 years and i definately think that even if it doesn't stick that having it done is still worth the $2k. its amazing to not have any pain at all. i'll keep everyone posted for sure and will answer any questions.

happy new year everyone!!!