What has helped with your tremors??
 

I am just wondering if you can tell me what medications have helped with your tremors, and any other treatments??

Right now I am starting baclofen, but I think it's lowered my blood pressure (too low) so I might be needing to try a new medication for my tremors. I don't know too much about what medications to try for tremors.

The tremors I have are in my hands/ arms, feet/ legs, jaw and sometimes my trunk shakes. They are secondary of reflex sympathetic dystrophy (full body).

Thanks in advance! :)

hi IHH

my husband was given Propranolol for tremors tho I do know it also acts as a BP lowering agent so he does have to use it carefully, as he is already on BP meds
It does help with the tremors tho

:hug: sure hope you are feeling better today :hug:

also meant to add that the doc also told him to take Co Enzyme Q

Hi InHisHands...

first, I've got to say, you are SO cute!

I'm sorry to hear that you are having these health problems.

I'm writing to you on a sort of tangent, because I think your health problems are somewhat different than mine.

Howevere, when I came home today from a very stressful task, my right leg where I have the worst nerve damage kept buckling and I nearly fell several times.

At first I was so scared (I hate almost falling - I once fell and hit my head really badly) that I didn't do anything but be scared.

But then I remembered that I should have had a B12 shot before I went out today... and I totally failed to do that. So I had one as soon as I thought of it, and about three hours later I was able to walk to the kitchen without any buckling. (So I had a second shot)

If you are not on any kind of B12 prescription for injections and replacement therapy, you might try the sublingual Methylcobalamin lozenges. I would get the 5mg ones.

Methylcobalamin is the form of B12 our bodies make when then can get B12 from protein.

If you decide to try it, please be sure to look for the Methylcobalamin form... it works vastly quicker and better than the more common cyanocobalamin.

((((((((InHisHands)))))))))))

.

Can you tell me about your b-12 deficiency as related to movement disorders; have you been diagnosed with a movement disorder AND b-12 deficiency - of one causes the other. I was diagnosed with Essential Tremor two years ago - have all symptoms that "In His Hands" has - the last year (April) doctor's noticed my b-12 was extremely low (I was having balance/cognitive issues) but it was thought my ET was causing those as it's a neurological disorder. I began on supplemental b-12 shots. I take 0.5ml x2 a week for over a year now and got my tissues well saturated now - but it took at least a year. At my low I was at 177 - the most recent (2 weeks ago) shows 1200. I know immediately when my b-12 shots begin to wear off because I start to feel the "sensory" symptoms on my skin/beneath the skin. I've just ordered a book called "Is it B-12?" to learn more about how b-12 deficiency can impact the body. I don't have Pernecius Anemia - my disorder is metobolic as my body no longer seem to absorb the natural b-12 in foods I eat...

I have all symptoms you do and dx'd in 2005 with Essential Tremor. I take Primidone (50mg) 4x per day and Propranolol 40mg 1x a day. Careful with the Propranolol because it lowers blood pressure and makes you tired/weak. Primidone has worked well for me (gave me my life back!) but doesn't totally get rid the tremors. There are also other medications one can take for tremor - but not all work for everyone...

I take Mirapex 1.0 3x day. It helps for tremors and RLS. Hope that this helps.

Mama

Thank you everyone!!

ConsiderThis- thanks! :o You are too sweet! :)



My neurologist put me on Baclofen and it has helped dramatically!! I can walk with just hanging unto furniture instead of a walker! WOO! And I have my artist fingers/ hands back! I am not walking unassisted but it's better!!!! My doctor will deal with the remaining tremors if he can; they are all caused by my nerve problems- RSD (Reflex Sympathetic Dystrophy).

Thanks again all! :hug:

lithium asparate is what I use for my myoclonus

propanonol helped me too but mine were caused by my thryroid....thyrotoxicosis was what caused it.

WOW! I just happened to come across this thread and glad I did.

I not only have MS but essential tremors as well. I was put on Neurontin for nerve pain and spasticity and as a result it helped my tremors as well. I can now put on mascara without getting it all over my face. LOL.

Neurotin can make you a little sleepy while your body adjusts but for me it has been a miracle drug as it has helped with several symptoms.

You might try mysoline (SP?)

I had severe RLS in 2000 and was prescribed pergolide (Permax), a dopamine agonist. This particular medication has now been taken off the market because it can cause heart disease. Dopamine agonists can cause compulsive disorders as well in some people. People should be careful when taking these medications.

I stopped Permax in 2005. The RLS continued but to a lesser degree and last year I went to see a practitioner in Chinese medicine and am now receiving acupuncture and taking a simple herbal mixture. This has helped.

I'm also watching my diet and taking amino acid supplements which help with protein absorption. I'm coming to see that. for me, rest and a particular diet are essential.

Sometimes I still experience spasms and the compulsion to keep moving but these seem to come when I'm very tired. If I am careful with fatigue and stress, things seem to be a little better.

Everyone is different, however, and everyone has a solution unique to themselves.

treatments for tremors
 

Dear InHisHands
Please read the reply posting that I just wrote/sent to "walker604". I wrote lots of suggestions that might help in terms of treatments. I have spinal myoclonus and palatal myoclonus. One result of the spinal myoclonus is constant, involuntary spasms of my arms and shoulders and this seems to be something that you also have. I hope that my posting will help you. Please let me know if you if you can't find my reply posting to "walker604" and I will be glad to write you any help that I can. Take care :) Topsie

i don't think anything really does a whole lot of good. i have tried most all that they recommend. i do better or in my mind i do better on lorazepam(1 mg. 3 x daily. our bodies are all so different. sometimes i think if we think some thing will help then it might. i know i am addicted on the lorazepam cause i don't dare stop taking it. that is the problem with tranquilizers. i do hope you can find something that helps you. let me know and i will try it, too. grandma

I just want to greet everyone a Happy 2009!

Hi, my name is Rosie and I'm 23.. I live in the UK and am a Psychology student. I have severe generalised dystonia and severe full body RSD/CRPS. I get dystonic storms and have been in status dystonicus several times.. anyone got any experience with this? I have taken baclofen (110mg), trihexyphenidryl (can't remember dose, sorry) and 120mg diazipam daily and I still get spasms, twisting and shaking... The UK appears to be really bad at treating movement disorders. Any advice?

Love

Rosie

I also take 200mg/day Primidone but for BP I take Lisinopril/Hctz and Attenolol.
Somedays I need to take an extra Primidone for those bad days. I can now walk for up to about 5-10 minutes. More important is that I am working on getting my balance back. I got so weak, that I could not even raise my leg. Had to have a power chair to even get around our home. I also feel like I am getting my life back. Doctor tells me that I can go as high as 500mg/day before being considered for DBS (Deep Brain Stimulator). I know someone at our church who has had one installed for his hand tremors and it has helped him tremendously. A side affect for me seems to be that my brain is beginning to function again as well. I got so bad I could not even remember whether I had taken meds or not. Almost burned down home before getting good smoke detectors. Now at least I seem to be functioning as well as most people my age. But I know primidone becomes less effective w/time...either tremors get worse or body get better at removing it from the body or both. It is good to talk to others to know one is not alone in what they are facing.