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Brain started doing weird neurological things..
Hi 7 weeks ago I suffered a hypoxic brain injury where I was without oxygen for less than a minute. I was not unconscious, however very close. I was fine after the incident except for a ringing in my ears. I went to the ER about two weeks later because the ringing was becoming worrysome to me. They gave me compasene to treat me for a migraine they said sometimes migraines can cause ringing. But also referred me to an ENT. 27 hours after I was given the compasene I had a cranial dystonic reaction. I was unable to talk and my head was stuck looking at the ceiling. I rushed back to ER where they administered 50mg Benadryl to stop the reaction. Within 10 minutes I was back to normal. 6 days after that (would have been exactly 3 weeks after the hypoxic incident) my mind started doing things I couldn’t control. For example songs would replay in my head over and over, it started counting out my steps when i would walk, counting each bite I would chew my food, and saying “in” “out” with each breath I would inhale and exhale. This came on overnight out of nowhere. Also, the same night it came on I was unable to sleep. And have hardly slept since then (even the strongest sedatives never put my mind to rest) I am in a light sleep all night long. Ive gone back to ER multiple times and they said this was just anxiety and prescribed me anxiety medicine and sleeping pills. I’ve seen my regular doctor multiple times as well and she says what I’m experiencing should not be from the hypoxic incident or from the dystonic reaction, my concern is that I have brain damage but she said I would have had damage at the time of incident not 3 weeks later. Also I have had 2 MRIs and an EEG and both came back normal. However, I have been on the anxiety medicine now for 2 weeks and nothing has changed. In fact things are changing in my brain. Instead of saying “in” “out” when I breath there is a rhythm playing with each breath I take, it is humming “hum hum” EVERY time I breath it never goes away except when I am talking. I have an appointment with neurology this coming week, however, Neurology has already checked me over when I was in ER so I am not very hopeful they will have the answers... I have not been able to figure out a real diagnosis for my issue and neither have the professional doctors. If anyone has heard of symptoms like mine and can shed some light on this condition it would be so much appreciated.
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bmf07,
Welcome to NeuroTalk. You don't explain this hypoxic event so I am with the doctor. I do not believe you suffered a brain injury. You would have lost consciousness if the brain was truly hypoxic. Even if you were unconscious, it takes much longer than a minute to cause brain damage. I think you need to look at other events or maybe something else that happened at the time of the event you called hypoxic. Was there a traumatic event? What other things were going on? What high stress events were going on? It sounds like you are having a severe anxiety reaction to some trigger. What have you been reading? Have you been researching brain issues? Did you see a presentation of a brain injury? Did you experience an emotional trauma? I suggest you seek out a neuro-psychiatrist or maybe a neuro-psychologist for an assessment. I have been in a situation where the repeating symptoms were prolonged. They were not caused by a recent brain injury. It took weeks before meds took effect because those meds are slow to take effect. I suggest you read the Vitamins sticky at the top. A psychiatrist got me started on a similar regimen many decades ago. It can help with head injuries and/or severe stress issues. |
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Hi Mark, Thank you for your response. The event I call hypoxic was that I was strangled. And I believe I had a concussion too. My doctor did send me to concussion rehab but they were unable to help me as I have no balance issues, no sensitivity to light, no headaches, and no memory issues whatsoever. I did have high anxiety for the 2 to 3 weeks after the incident as I was very worried about the ringing in my ears. However I’ve been on anxiety medicine for over 3 weeks now and that anxiety feeling I used to get has completely went away. I’ve done hours of research on my own and found some articles that say brain damage can take days or weeks to appear because brain cells begin to slowly die. I also began researching the parts of the brain and found that brain stem damage can result in ears ringing (which I still have) it also affects the bodies sleep cycles. Which I am always in light sleep I can never fall into deep sleep. I am going to request a sleep study be done when I see the Neurologist on Friday. However, I couldn’t find any information on the brainstem in relation to what I’m experiencing when I breath. I know that for some reason my brain is responding to oxygen being inhaled and exhaled. Every time I breath in or out it is making a “hum” sound in my head. I am going to see a psychiatrist but not until May as my insurance is switching then. I have not heard of a neuro psychiatrist until you mentioned it. Is there a difference? Also what is the Vitamin sticky at the top? I’m unable to find that. Again, thank you for your response as any bit of insight is helpful in my time of struggle right now. Sent from my iPhone using Tapatalk |
Also, I saw you comment on another post regarding antipsychotics. Do you think it’s possible that the dose of compazine given to me somehow triggered an imbalance in the neurons in my brain? Doctors have told me one dose would not do that. But my reaction was severe and it was a termed a “cranial” one. And 6 days after that is when all my odd brain symptoms began. Just thought I would throw that out there. You seem very knowledgeable on neurology. My name is Bre btw.
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Bre, First off. Using a smart phone to read this forum means you miss a lot of information. Check it out on a laptop.
I do not think you suffered any brain damage AT ALL. If you did not black out, you were not likely even strangled. Somebody may have TRIED to strangle you. That alone is very traumatic. It can be like my claustrophobia. You likely have a case of PTSD. My mind did similar things after I was stuck in a confined space for a hour. Stop researching. It will only make things worse. Do you want to get better or worse? Research will raise your PTSD/anxiety levels. Most of what you will find will not even apply to your situation. A single dose of compazine should not be a big deal. A benzo like, Ativan, Xanax, Klonopin, etc are mild anti-psychotics. Brain damage that takes weeks to show up is not from an event like yours. It relates to immediate damage that gets worse over the next few weeks. You did not have any immediate damage. Ignore that idea. Did you suffer a neck strain/injury? They can cause a myriad of neurological symptoms. |
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Hi Mark, Thanks for the tip on using a laptop. Doctors have also mentioned PTSD as well. However I don’t have any signs or symptoms of it expect for the insomnia. I am a very happy, energetic, fearless, loving life type person. It seems PTSD stems from fear of a particular situation or occurrence, which I don’t have. Also, as for the breathing thing, it completely stops if I am reading or talking. Otherwise it is a constant thing my brain is doing and I am not able to control it. To answer your question about recent neck strain. Yes, during my dystonic reaction (I’m not sure if your familiar with what that is) my head was being pulled backward out of my control so that I was looking straight up at the ceiling. I was also unable to speak, as my tongue felt deformed. It was termed cranial and very severe. Days after the incident my neck was extremely sore. My thoughts are that somehow my brainstem was damage during this reaction? Doctors are quick to turn down my theory and say that one dystonic reaction would not have permanent effects. Do you have thoughts on that? Thanks again for your feedback Mark. Sent from my iPhone using Tapatalk |
My question about neck trauma was referring to the strangulation event.
You exhibit classic PTSD symptoms. All of your symptoms can be due to PTSD. Even the dystonia can be triggered by PTSD. Why do you think you had a concussion, too? As one who has experienced PTSD from 2 separate traumas, I have a good understanding of how symptoms can manifest but appear to not be related to the traumatic event. Have you had any post trauma counseling/therapy? You need it. It is important. You should have been offered it immediately after the event. Did you file a criminal complaint against the strangler? |
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What symptoms do I exhibit that are classic PTSD? Flashbacks, nightmares, detachment from others, loss of interest, anger, memory loss, feeling jumpy, turning to drugs and alcohol... I could keep going and tell you I don’t have a single one (besides insomnia) Yes I’ve reached out to a therapist and they too agree there is something wrong in my brain and it is beyond what they can offer me. Since I have no depression, anxiety, fear etc. Which is why I have an appointment with Neurology tomorrow. We will see what they have to say. Sent from my iPhone using Tapatalk |
If you try the Quick reply or the Regular reply buttons , it makes for easier reading/scrolling without the quotes..
https://www.neurotalk.org/faq.php?fa...q_vb3_replying I'm not sure how the Reply buttons appear on the Tapatalk format . |
Bre,
The counting of breaths or any other item or action, the repeating of thoughts, the intense need to define what has happened, the inability to let go of an idea, and such behaviors are all anxiety. You may not have nervous anxiety that you sense plainly but you have the obsessive and/or compulsive anxieties. Just because you do not have [Flashbacks, nightmares, detachment from others, loss of interest, anger, memory loss, feeling jumpy, turning to drugs and alcohol... ] does not mean you do not have PTSD. I was put on Klonopin, a benzodiazepine anti-anxiety med. It settled me down a bit so I did not have extreme panic attacks but I needed an SSRI to stop the other behaviors. Most are termed perseveration. I called them looping. I would loop on meaningless things. A license plate I saw. The spelling of a word. A stanza of a song as I tried to find the finish to the song. It was exhausting. It took a bit to find the right doctor. My doctor said I needed drug therapy and cognitive/psychological therapy to put the trauma into a understandable state. The goal of the psychological therapy was to convince me that a truth was not true to try to trick my mind into letting go. Not an option for me. Then, about two years after the trauma, I suffered a concussion that added brain injury symptoms. The immediate trauma therapy is often focused on helping your mind differentiate between what happened and what your mind thinks happened or is afraid of. It is a very complex condition with many different triggers and manifestations. Your symptoms are very similar to mine of 18 years ago. Your symptoms do not fit with a brain injury. What makes to say you may have had a concussion? I am not trained in the specifics but have enough experience and have done enough research to support what I think. I have a family member who suffers from severe PTSD that went untreated at the time of the trauma and that has left that person psychologically disabled. That person's spouse does not believe PTSD is real so there is no chance of treatment. But, those that truly know the person know that the PTSD is real and has had a serious effect. That person does not have [Flashbacks, nightmares, detachment from others, loss of interest, anger, memory loss, feeling jumpy, turning to drugs and alcohol... ] either but has alienated close family and replaced them with other friends who do not know the pre-trauma personality and function. Mark |
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Mark, During the initial injury I hit my head on the floor. However I went to concussion therapy and it was originally 3 sessions however the therapist canceled the other 2 because I had no symptoms matching post concussion syndrome. Another dead end. Today my neurologist said she has never heard of anything I’ve explained to her. She did say it was possible what I am going through is brain damage but at a cellular level and they would not be able to detect it on any type of test. Or tell me what exactly in my brain is causing this! She did recommend to see my therapist again ASAP to deal with coping with this damage. I can’t get in until May though because of my insurance switching. I am currently taking Remeron and Klonopin as I need both just to be able to fall asleep. I’ve been on these for 3 weeks now. No change in the odd mind stuff though. I know that Remeron is a non serotonin uptake inhibitor. Have you had any experience with these? Initially I was given an SSRI but stopped 2 days in as it gave me EXTREME anxiety, worse than if I took nothing. If this isn’t brain damage and this is all in my mind, is there a specific drug I can take the actually turns my mind off? I know it’s a silly question but now I feel desperate since I’ve reached another dead end with Neurology. Thanks for all your insight Mark. Sent from my iPhone using Tapatalk |
Bre, When you post, scroll to below the last post and use the Post Reply link at the bottom left. It makes scrolling much easier.
I am always amazed by clinics that offer 'concussion therapy.' There really is no such thing. It is more a way a concussion clinic can bill for services and make the patient think they are receiving treatment. There is no evidence that concussion therapy provides any benefit. But, some like the hand holding and being told they are doing better. Post Concussion Syndrome is not a diagnosis before 6 weeks or so. Any symptoms before 6 or 8 weeks are just normal concussion symptoms. Good to hear you do not manifest any. You may want to consider that you did receive a very minor concussion. Most recover within a few days. Military research has found that a concussion can cause PTSD to be greatly magnified. Getting strangled with the brain stress of even a minor concussion can be a recipe for PTSD. The confusion of "What is happening in my mind?" becomes additional traumatic stress. The Remeron and Klonopin may not be what you need. Even the experts do not fully understand what Remeron does. It is a tetracyclic antidepressant and/or atypical anti-psychotic. Many have good experience with Celexa. Amitriptyline in low doses helps many with insomnia. My doctor switched me from Klonopin to Gabapentin. I started at 1200 mgs an hour before bed. I still take it 18 years later but only 300 mgs. Without it, my mind and body stay attentive to too many stimuli. With it, I sleep soundly and wake up refreshed after 6 to 7 hours of sleep. I had a severe claustrophobia trauma 4.5 years ago that messed me up with PTSD. I lost 30 pounds in 6 weeks. The racing mind was miserable. My doc put me on Zyprexa for short term to help my mind settle down until Celexa took effect in a few weeks. I was on Zyprexa for 5 or 6 weeks. I was off the Celexa 6 months later. What SSRI did you try? The first few days can be rough. It appears you need a doctor who has a better understanding of the various drugs that may help. You need to understand that the concept "This is all in my mind." does not put you at fault. The stress messes up the brain's normal chemistry and can even cause physiological changes in brain matter. Please look at your struggles as outside yourself. Do not drink coffee or any caffeine beverages. They are seriously contra-indicated with your condition and meds. Your sleep is the most important thing you can try to effect. You need to get up in the morning at a normal time every day. No sleeping in, even if you did not get a good night's sleep. No naps during the day. Slow your activities a few hours before bed. Get everything ready, hygiene, lights down, morning preparations done, bed ready, make notes about anything you may be thinking about for tomorrow so you do not try to remember it and end all stimulating communications an hour or more before bed. Put your iPhone away. End your day with nothing that needs attention. You may sleep better falling asleep watching mundane TV. Things that do not require conscious response can help the mind let go. The meaningless distractions can occupy the 'thinking channel' in the mind so it can let go. And, scroll up to the top of the NT index page and read the Vitamins sticky. You need B-12 plus a bunch more. B-12 lozenges twice a day at a minimum. Get the methylcobalamin 1000 mcg lozenges. I take mine as soon as I wake up. Your brain needs extra nutrition. My best to you. |
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Mark, Thank you for all your advice. You have seriously been more helpful than ANY of the medical professionals I’ve seen over the last few weeks (and I’ve seen a lot)! My plan now is to seek more mental health support. Also, I have been taking vitamin D, a multivitamin, and Iron since this all started as recommended by my doctor after getting blood work. And now tonight just picked up vitamin b12 you recommended. If you don’t mind I will keep you posted with my status and keep you as a resource. You have been very helpful to me. Thanks again Mark. Bre Sent from my iPhone using Tapatalk |
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