NeuroTalk Support Groups - I'm hating life now

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - I'm hating life now (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/25143-im-hating-life.html)

I'm hating life now

Hey all right now I am doing not great, I hate my life right now I went to get my eyes looked at yesterday and I was lucky they could even renew my scrip my eyes where so blurry I could not focus on anything and of course my eye doc knows I'm on a ton of meds he said with the meds I'm on no way I can focus :( I have a new sinus med Im trying it seems like all the ones I try do not work so one more brand, of course I have to still stay on my inhaler, rrr I never had proble,s with breathing till all this :(

I had joined a group in Nov. of 05 and no one talkes to me, why? I guess they hate me as you all do over here too so I will just read and not bother you all good luck after all I guess your RSD and TOS is worse than mine.

I dont know maby Im wrong but it seems like I have no one to talk to and kids start school soon so my days will be more empty and quite, I cannot drive doc has taken it away, no noise, no stress,a little standing a little sitting life is fun for us all.

We make a good team, I seemed to be disliked as much here also but that's ok, it seems to bother those people more then it does me.

I will PM you. I haven't forgotten you. I finally got that job done I was trying to do. It took me 3 days but got it done.

It's been so hot here in Co. it's hard to get out in it.

I am so sorry you are having such a hard time of it. The forum will calm down soon and you will get some help from some good people on here.

I'm having some bad days also. Not from the forum but things going on with my health and other issues.

I'm sorry about your eyesight. That seems to come with RSD also sometimes and as you said the meds we are on.

There will be others that come on here just give them time. In the meantime I will PM you again.

Ada

Please don't feel that way...life is good!

:) Flippnout,

I am saddened to read your post. Many of us deal with vision problems for a variety of reasons. I once stopped taking a medication because my vision was so blurred that I could not read for hours at a time after taking it. Not being able to see just outweighed the benefit of taking that medication. Don't give up trying to find out what is causing your vision problems.

Why would you think that people on the forum hate you? Don't assume that you are not liked, welcomed, or worse just because many people have not communicated with you before. I am not much for chatting and come here mostly for information, understanding, and support. That does not make me unfriendly, I just tend to post only when spoken to or when I can add to a conversation or when there is a topic of interest (like your post today). There are many others like myself on the forum and it would be a terrible mistake for you to take silence for something that it is not. I'll be here as will many others should you need to talk.

Finally, life is such a precious gift. Don't waste any of it with negative thoughts, much less hating life. Cherish life - Embrace life - Live life to the fullest. Enjoy life because it is but a vapor that soon passes away. Life is good even on a bad day.

Best regards,

:cool: EJ

I just wanna send you a big soft cyber hug bud..

(((((((((((((((((:hug:)))))))))))))))))))

Sandra

Hi Flippnout,
I am sorry your feeling this way. I think that we all feel as if the world is mad at us . The things we have to deal with on daily basis are just too much. Please don't give up on this place too soon. I have gotten so much help here.
Sometimes i just come on and read. I am not always able to type as much as I want to. But everyone here has helped me in some way. Hope you feel better.

Sue K.

Hi Flipnout!
Please don't ever get the idea that we hate you here!! where did you get that from?? we care about you as well as every single person here.I am so sory to hear about your eye site and so forth And Ada.. what the?? You know we speak to you as well. Let us not do this to each other and to this board ! Everyone here is entited to have a bad day, a bad mood, etc. but to say your not liked here is not true. Ada, I don't understand why you would say this as well?? what's up with that!! Hugs all around to all. Love, Desi

Hi Flippnout,
Sorry to hear that you are going through such a rough time. I know what it's like to be so restricted and feel so isolated. I haven't been on this board for very long and don't check in as often as I would like to. I only have a limited amount of spoons and some days I have to do "normal" things like laundry and pay the bills. By then, I'm tired or in too much pain to sit at the computer. Sometimes, I check in and read some of the posts & have to quit before I can even reply to any. (Sorry, everyone - you all are in my thoughts and prayers). Maybe it's that way with others as well. Some days it's just so hard getting through that while we have the best of intentions it just doesn't get done.
I hope you get the blurriness problem resolved soon. That must be so scary & limit even more of what you might be able to do.
Linmarie
:hug:

Hugs. Sometimes I don't know how to respond to someones post. I have a hard time taking my words from my head and putting them on screen. They sound GREAT in my head, but when I start to post they come out jumbled.

I believe that everyone on this board, old and new, have so much to offer everyone else. Even the littlest piece of detail about life, or something like it, is so beneficial for us. Even you. As for the other board, I cannot comment. I can say however that they are not us. As a community I think we are strong, and you and your voice/posts add to that strength. Please rethink your decision to pull back from the group. With all that you have going on right now, blurred vision and RSD, please continue to receive all the support you need. AND, if you need more support than you're getting, just scream I NEED MORE SUPPORT. We'll be glad to offer it to you.

Hugs.

blurry vision is a problem with TOS also - as well as just getting older:(

I'm not on any meds and ever since I got RSI/TOS my close /reading vision has really been affected.

i'm sorry.....i truly wish i had the power to make everything all right for you and everybody else and myself too. i hope you have better days soon:hug:

support is here, and i think everyone answers questions. i think sometimes i read where people just make a statement, and so it is not seen that it needs a reply. i read almost all the posts, and put the 'thanks' on the info ones or the pep talk ones, and i reply if something is something i have dealt with. but as far as support, i don't think i have ever asked a question and not gotten an answer. so keep asking, my friend. joan

Hey I have got to say thank yo all! I have had some issues and they caused a bad flare up but feeling somewhat better NOW. I do not know what I would do without this board thank you for caring.
I had some people who cared less not from this board but in real life, they have given me dirty looks and said some mean things all because I have something and cannot see it. They see me in a wheelchair or parked in handicap but think hey he looks young, and I dont see anything wrong so he is fine and pass judgment on me! and it hurts after awhile, along with the fact I have to say sorry for my spelling cause I am getting dumb from all this, so I type bad with one hand and cannot spell :(
But I thank you ALL! and I care for you all TOO! ready group hug 1-2-3 rrrrr no didnt that feel good? ok we can all let go now.
HUGS
flippn

Hi flipping out...

I know how you feeling when people say mean and horrible things... I am only 21 and i have people say almost on a daily basis.... She looks fine... Its all in my head.. Or she is to young to have pain like she says she does... What i have learned are the people who really mean something to you and you mean something to them will not pass judgement... Its hard and a horrible thing to go through but really it is a learning exprince... I too have a hard time typing.. i think this board is great and that all are here for support... I really hope you have some better days coming your way...

Gental Hugs... :hug: :hug: :hug: :hug:

I agree that we are here for you. It's ok to have bad days and to vent here. We all have them. Please know that I also read the post alot, but sometimes I just go thru periods when I don't have anything important to say. I wish I had answers, but the best I can offer is to listen and not take it personal. Stay with us.
Mary

Hey Flippinout,
I am glad that you are feeling a bit better. I think that we all know about having those times when everything looks so bleak, and we feel so bad. I am sorry that you felt that you weren’t being included here. NO ONE should feel that way...it shouldn’t happen at all. Not to anyone.

I also do a lot of reading here, but not so much posting. Not like I used to anyways. I think that is because I am an old hand at this RSD stuff now, and don’t have so many questions that I need/want answers for anymore. I also think that it is because the treatments that folks are getting done now, are not ones that I know anything about, and so I can’t really comment much on them at all. But, I am still here! Like Joan, I read almost every post when I come to the board. And I do try to post where I think it can be helpful and/or supportive.

I so totally understand what you are talking about, with folks not understanding, and assuming that you are OK because you LOOK ok. That you are “too young” to have the problems that you have. That you shouldn’t be using the wheelchairs or electric carts, let alone the handicapped places. You know what though? They don’t know ANYTHING. That is just folks being judgemental and ignorant....so don’t let it bother you so badly. YOU know what you need. YOU know how you feel, and what you can do, and can’t do. Fart on anyone that tries to tell you otherwise, or that makes you feel badly! LOL

I have been dealing with RSD since I was in my mid-to-late 20's. I just turned 38 this past July. I have heard it all......caught all kinds of crap for being “too young” to have something so bad wrong with me. I know that most of that kind of crap comes from the fact that folks can’t usually see anything wrong with me...just as you have said. But, I have finally gotten to the point that I really don’t care. It isn’t for anyone else to try to tell me how I should feel, or what is or isn’t wrong. I KNOW how I feel...and I know what I should and shouldn’t do...and I refuse to let how others look at me change how I do things. If that makes sense? In other words, I am not going to get myself all worked up because some ignorant, narrow minded folks *think* that I should be better by now, or that I don’t have anything wrong with me, just because they don’t understand, won’t take the time to understand, and don’t have a clue what it is to walk an inch (let alone a mile) in my shoes.

It isn’t right, but folks tend to think that after a certain period of time, we should “be better”. I do think that this comes from not being able to see what is wrong, and not understanding about RSD or other kinds of chronic pain at all. That is why we get the stuff from family and “friends” about milking this just to gt pain meds....or to get some kind of attention...or whatever. You know what I have decided? I have decided that folks that think like that are probably ones that would do such a thing themselves. I mean, why else would they even come up with the idea or notion that a person would do that, if they weren’t capable of doing that same thing themselves? Maybe that is harsh....but that is the conclusion that I have come to. Of course, this is just my opinion about this.

Hard as it is, you have to try to learn to “be a duck” and just let things roll right off of your back, like a duck’s feathers let water roll of it’s back. People will be how they are, and there isn’t anything that we can do to change them. Keep the good, nice, and supportive people in your life, and let the others go....or at least keep them at arm’s distance, so that you don’t get hurt quite so bad. You will run into judgmental people where ever you go. You can’t let them bother you so much. All that does is stress you out, which leads to increased pain levels. None of us need that. YOU don’t need that.

Please please don’t worry about your spelling or typing here, Ok? No one here should ever make you feel badly about that. We ALL have issues with spelling and typing; either from having upper body problems, or even lower body ones (that don’t allow us to sit for long, and cause attention to wander as pain increases), or because of meds that we take...or ALL of those added together. I haven’t had any problems understanding your posts at all. In fact, I got a kick out of your “spider pig” one on another thread. My son goes around here singing Spider Pig now, too. Anyway, please don’t ever worry about typos or bad spelling, and PLEASE don’t let that be something that keeps you from posting when you need or want to. Ok?

I know that lots of my posts get skipped over because they tend to be “too long”. I figure that is other folk’s loss, because some times I DO have some helpful information, advice, or support in my long posts! LOL. I just seem to type like I talk (a lot! LOL), and it doesn’t seem that is going to change. But, because I know that I write long posts.....I can see that this one is getting (or already is! LOL) pretty long. So.....I am going to wind this up here. I just wanted to let you know that I am glad that you are here with us. I am glad that you are feeling better. I hope that you keep posting....and PLEASE don’t let those yucky judgmental people get you down too much. Ok?

Take care. :hug:
Jose

You aren't alone flippinout. I have 3 "invisible" disabilities/conditions. I have 1 sister who is maybe just getting tired of my excuses as to why I can't. Well, for me anyway, such is life. I always say that my conditions aren't as bad as all of yours, but boy do I have my days.

Hang in there sweetie. People say things and it's up to us whether or not we want to let it get to us. Once they have walked a mile in your shoes it will entitle them to judge you, and not before. Some people have no tact, no compassion, and NO social graces.

Do what you can, when you can, and if people are insensitive to that, maybe they are replaceable in your daily life.

Hugs and Prayers

I used to get offended by what people say and think, but now i just take it from the source .... I believe even my husband doubts me and thinks i could do more, in fact he has said so, but you know what? i know i do all i can do and so too bad for them all. God and i know and no one else matters.
joan

Hi Flipnout!
I am truly thankful that you came back on! Your a special part of this group and we do care! As for people who laugh and call you names, their the ones with the problem, NOT you! People even laugh at heavy, thin people who wear odd clothes, hair, etc. To me, this is so wrong. But to laugh at someone in a wheelchair, sick, can't hardly walk, well they need a good whippin' in the wood shed is all!! As for your spelling.. I make so many mistakes in this as well. Remember;"To err is human, to forgive is divine"(I don't even know if this quote is right??) LOL love and Hugs to you, my friend!! Desi

Happy your back. Forget the spelling. We all have trouble with that. Iam always checking what I wrote, it takes me forever.

Sue K.

Stay strong. It's all we have left.

I'm rarely very chatty but always respond to direct questions or statements.

People in our condition definitely need a hobby or something. It's easy to get bored when there's little we feel up to doing.