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Shot Down Again!!!!
Will it never end??? A month ago I applied for a Handicapped Placard for my car. I filled out the forms sent them to my doctor, she did her part, listing my RSD, etc and than I sent it off the my State Motor Vehicle Office. Massachusetts if anyone is wondering. Well yesterday I get back a denial letter. They do not recognize RSD!!!!!! A**H**les!!!!! I am mad as Hell! They added that if my doctor was to be much much more specific about my condition and if she CAN CONVINCE them that RSD is real, than they might reconsider my placard. What the???????? Is this what we all have to look forward to everytime we turn a corner? What moron is sitting in his or her office in Boston making this decision on my behalf I wonder? I don't think I will bother with it. It is just too much of a hassle. I can still walk enough to get from any parking spot to where I am going.
I think it is ironic, they do everything they can to keep people from utilizing the handicap parking spaces legitimately here and yet they do nothing to the ones who park in them illegally!!!!! That's Taxachusetts for you!!! Chin Up!!!! Mark :) |
Hey Mark...
I live in upstate NY.. and thought it was universal for these handicapped things, but all i had to do is take the yellow form that my doc had to fill out and take it to my local town hall and they gave me the handi capp tag. ANd its good till 2011~~ ?? Could you do this also to advoid the Stinky DMV crap?? we even have temporary ones that are red that will get ya though 6 mos. I had that in the begining but then RSD took all the way over and i got my perm one. Now if i wanted the handicapped license plate .. yea i would have to go to DMV.. but i have vanity plates so i cant have them and the handicapped guy on them too. Just a thought.. i will share my tag if i could!! Hugs AMber |
mark,
this is infuriating!.....i'm angry on your behalf......do they really think that places like MassGeneral and ClevelandClinic and the U of Penn have been fooled by the thousands of patients they've treated for this "unrecognized" disorder?.....sheeeeesh, even social security now admits that rsd is real! i think in your position, i'd print out everything i could find (from reputable sources, of course, that the dmv would 'recognize') and send it to them!....it would make one heck of a stack, wouldn't it?....or maybe send them a few reprints every other day......or - i don't know what!!......but i'd need some kind of revenge! we've been fighting this "rsd is real' battle for SOOOOO long now and it sounds like u r as disgusted as i am with the morons who r making it difficult for us when we try to live as normally and independently as possible. as soon as i find my wand, i will hex them all with a month of rsd! liz |
That blows - here I will help you start making that list
http://rsdrx.com/Social%20Security%20Ruling.htm just click the link for the pdf print it out and gather more Hugs, wish I could go kick their heinies into gear for you. Let us know what you need from us - I am sure out of everyone here, we all have LOTS of research saved to our bookmarks and computers and would be GLAD to share just to get you to where you need to be. Hugs, lots and lots. |
Mark
Because SS does not list RSD as a "listed impairment", but MS is listed, anyway your Dr. than has to submit a list of what limitations RSD has caused for them to be able to decide you need a permit. If you are able health wise to fight this unfair practice-please for all of us do so!! Otherwise they win -we lose::mad: None of us like to think this, but there may be a day you just do NOT feel well enough to walk the extra steps to where you need to go. I am also MAD on your behalf!!!
While we are on the subject of handicapped permits, either placard or a plate, be extra careful in looking around when you get out of your car and when going back to your car. The neuro dr. here said a lot of handicapped people were being picked out and robbed because they make an easier target, sad-but so true. Just last week an elderly couple were robbed at my local food store while walking to their car. Mean,hateful people watch the handicapped spots and see who uses them and uses this information to help decide the next victim. So just be aware at all times, maybe carry pepper spray-if legal in you area- or a extra loud whistle on your keyring.:D It is not my intention to scare people, just to inform.:hug: Carose |
Handi-cap parking
Maybe....just maybe....you could find out the email addy and we all could put our two cents in! :winky:
Peace out Hippy |
Here it is:
http://www.mass.gov/rmv/feedback/index.htm You can submit feedback from this page and submit it to the Motor Vehicle. Also, it might be wise to contact the Governor of MA: http://www.mass.gov/?pageID=gov3util...ov3_contact_us We just need some info from Mark and we could get all get involved and inundate them with our concerns for him. |
i am in Massachusetts too and my doctor just wrote 'permanent nerve damage from surgery and difficulty walking' and i got mine. i guess because RSD was not mentioned, at the time i was yet to be diagnosed.
So try again. i got one that will be renewed forever ... like RSD ... :( joan |
Diagx
My doctor did not have to write a diagx for PEnna. He just had to write that the arms or legs were unable to carry or walk X amoaunt of distance. Also, there is a spot that the police office could fill in if you use a wheelchair or walker., or the disability is visable to them.
Better off if possible not putting the diagx and ust list disable to walk or carry items.. Appeal the action!!! dianne |
The first time I got my disabled placard I went down to the DMV myself, with the information the doctor had given me in the form . Human interaction is always an important step ,especially the first time . You can explain things to a clerk( gov. employee :confused: ) who has no medical back round that they may not understand at all without you.It could mean the difference between getting the card and not.
Now they just send me 2 or 3 year renewal placards in the mail like clockwork. I agree with the other posters who said that your doctor should write your limitations in the form, not just a diagnosis-remember who is reading this information - . I believe I first got a card for severe TOS. Now most DMV workers don't know a thing about thoracic outlet syndrome ,nor was it listed a an "acceptable handicapped disorder" at that time ,but my neurologist wrote that I was unable to carry anything for short distances, or walk for any length of time and carry my arms;) The description of my limitations was much more beneficial than the name of the disease itself.I spoke briefly with the clerk and passed:) Please try again Mark and maybe go down yourself with a more descriptive analysis of your limitations in the form .I am sure your Doctor will be more than happy to help you out. I really think you will come away successful !!!!!!!!!! and your chin will be way up:) Peace GnP |
Mark, I just want to say how very angry I am on account of your not being reconized with RSD!! I think it's time we do be reconized by stupid people that don't bother to listen or educate themselves with what we go through! Write to your congressman maybe?? Oh, and Mark, please don't quit now, as this will mean they win.. You are the winner here, my friend! Love, Desi
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Hello,
Sorry about your trouble with your permit. In the city I live in the criteria for being granted one are very specific to one's ability to ambulate. You are supposed to be needing some type of aid such as crutches, cane, wheelchair to enable you to access the permit. Our GP must write a very lengthy report as to why it is necessary to require a space close to the building. I must admit though, when I see some of the people jumping in and out of their cars which are displaying permits I am sure they are "borrowed" from granny.:( Something that does amuse me though is I often see people using these parks yet they go into the shopping centre and walk around and around for hours on end---I have to ask "why do they then need to park near the door"?:eek: Tayla:hug: |
Mark,
I live in MA too. This state could care less about those of us with health issues. My Doc did not put dowm RSD. He put mostly that if I fell it would cause major problems and that my condition will not improve ever. Keep trying, I know its hard don't give up.Try to see your state rep. in your area. Go right to the office. Richard Neal helped me alot. Good Luck. also e-mail the Gov. He seems to care a little more than the last one. Sue K. |
Hi Mark,
I agree with most who have posted here. I also talked with my MD about getting a temporary handicapped card. He agreed that I don't fit the requirements. Specifics like - not being able to talk more than 200ft without stopping, heart, lung issues, using a cane, crutches, etc. I really need it for work - specifically in the winter. I'm in horrible pain in the winter. But, I don't meet their specific disabilities. If I were you, I would resubmit the request but call them beforehand - get a person who you can direct this request to. Talk to that person and explain - reiterating that your doctor agrees that you need this. Send the form directly to that person. Just a thought.... I'm sorry that they are being such D!cks.... |
I Will!!!!
You guys are right. I shouldn't just give up. I have never been a quitter before so I shouldn't start now. It's just that I am so dang tired! It seems to be a constant in this state. I am always haven to explain myself indepth to folks and they still look at me like deer in headlights.
Well I will go forth with the paperwork and see what happens next. Just to clarify things.. On the original forms, my doc had explained what RSD was and that I needed the use of a cain. This is what is so frustrating. Those Pinheads in Boston should simply accept that. Who are they to question a medical pro? My DMV is quite a jont from where I live so that is why I mailed it in the first time, but I won't make that same mistake the second time. Thanks for the kick in the butt!!!! :D I will keep you posted!!! Chin Up! Lotsa Love Mark :grouphug: :grouphug: |
Go for it Mark... I get so upset with the whole Disabled Badge thing. I have had such a time with dealing with idiots and it.
About 10 years ago in the UK you could walk into your local social services and say "I have xxxx give me a badge" and even if you only had it in your fingers then you got it. Then... the laws got much stricter... You only get the badge if: you receive the higher rate of the mobility component of the Disability Living Allowance; you receive a War Pensioners' Mobility Supplement; you use a motor vehicle supplied for disabled people by a Government Health Department; you are registered blind; you have a severe disability in both upper limbs, regularly drive a motor vehicle but cannot turn the steering wheel of a motor vehicle by hand even if that wheel is fitted with a turning knob; or you have a permanent and substantial disability which means you are unable to walk or have very considerable difficulty in walking. The walking one... you cannot walk for more than 100m before resting and pain becoming overwhelming. bizzare.. though I do go mad when people who don't need them get them. Go get em Mark!!!! xxxxxx |
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