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JKPHOTO 12-23-2021 02:03 PM

Chiropractic Neuropathy Specials
 
I have been checking often to see if there is any new in the treatment of neuropathy. I have been finding countless Chiropractor Neuropathy Specialists popping up across the Nation that offers a consultation to determine if a patient would qualify or not. Then the try to sell the patient an expensive package. They use vibration boards, ReBuilder, red light devices, supplements, and other methods.
Has anybody tried these, and did you get any help? I keep trying different types of treatment, but with no successes. I guess everyone is different, and perhaps some people can get help, but so far, I am not one of them. I have multiple causes, probably, and that is why mine is so severe.

Diabetes
Low B12, probably from long term Metformin use.
Statins
Low D vitamin
And some alcohol

I don't believe my former doctors were monitoring my vitamin levels. I have discovered all of this way too late. Is there any reason for hope for this condition?
I have tried all of the known supplements, but none have helped me. I am sick and re-tired of spending the money for such a hopeless, in my case, condition.

Happy Holidays,


JKPHOTO

caroline2 12-23-2021 02:27 PM

I have posted countless times what has worked in my life: Grape Seed Extract, Inosine and Sphingolin.

JKPhoto: Have you addressed the issues you mentioned. That is where to start and good nutrition is so vital. **

JKPHOTO 12-25-2021 07:28 PM

Supplements
 
I have tried the Grape Seed Extract for about 2-3 years, and Inosine and Sphingolin for only about 3 months each. I am out of the Inosine.
So that is the end of the Inosine. But I will retry these since I have nothing to lose now. My condition is rapidly spreading, and it is worrying me. But I had a good life.

JKPHOTO

jbox 01-01-2022 08:38 AM

I tried Grape Seed Extract (gave me headaches), Inosine (didn't do anything), Topricin cream (didn't do anything). I did a big chiro package without noticing a substantial change. That being said, I have idiopathic small fiber, possibly a mild case of Fabry's disease, which docs are exploring and testing for now.

Since you have diabetes, some of the nutrition stuff may help, like vitamin D and b12 if you're low, and low carb to minimize blood sugar spikes seems to help most diabetics control symptoms. I feel worse if I eat a big meal even though I'm not diabetic. Hope you find something that works for you : )

JKPHOTO 01-01-2022 06:17 PM

Chiropractor
 
Thank you.

Please tell me what treatments the Chiropractor did? I am grateful for the life I had, and I should not focus on the pain and hopelessness of the condition I have acquired. I have been looking for an answer to get some hope, but I still haven't found what I am looking for. There are many practitioners that say they can reverse the condition, but in my case, I feel it is too late for improvement.

JKPHOTO

JKPHOTO 01-01-2022 06:31 PM

Yes, I am taking Vitamin D3 and B12. My recent labs show my D Vitamin is at a normal level. My Vitamin B12 is off the charts high. Probably not an issue, but I plan to lay off it for time being. I have tried R-Alpha Lipoic Acid, Benfotiamine, Fish Oil, Grape Seed Extract, Borage Oil, Turmeric, and the list goes on.

JKPHOTO

jbox 01-29-2022 09:49 PM

Quote:

Please tell me what treatments the Chiropractor did?
MLS laser, rebuilder (this is a joke but part of the package), "matrix" machine which is basically the older version of what they now call Sanexas. I paid a few thousand for a package because I was desperate like almost everyone with SFN AND because there are plenty of journal articles showing efficacy of laser therapy. Unfortunately it was really hard to know if it was helping because I improved for a few months, then felt horrible, then was relatively ok. After 3-4 months of treatment, I can't say I felt significantly better.

What would my disease progression have been without treatment? Who knows! That's why I was hoping for substantial progress.

Lately (without having gone for laser for months) I've been feeling better, but I've thrown the proverbial kitchen sink at my problem though. I made a separate thread with all the stuff I've tried and my results. Obviously YMMV, especially since no one knows what the cause of my SFN is. Good luck!

StevenD 04-02-2022 02:31 PM

I have mentioned this in the past, but I will restate it for anyone new to the forum. I believe that the treatments offered by most chiropractors will only drain your wallet and provide at best very temporary relief. Supplements may help some people if they happen to be a person truly deficient in that supplement. The only true relief I have found for my PN is treatment with a class IV K laser. Unfortunately, it is not universally available, it costs a lot, and it is not covered by any medical insurance. Three years ago, I had severe pain up to my knees 24/7, as well as all of the normal symptoms of PN: numbness, temperature sensitivity, cramping, pins & needles, etc. I now wear shoes every day, all day, no longer have cramping or temperature sensitivity, and rarely have anything i would classify as pain. I no longer take any prescription medicine or supplements for PN. I basically am back to where it all started with tingling (not pins and needles) in my toes. My nerve conduction tests are back close to normal, and my neurologist says I am his only patient in which he has seen such improvement. I have come to know other patients at the same neuropathy cline I go to and many of them have told me that they have had similar relief from the many PN symptoms as well as improvement in their nerve conduction tests. I know different things may work for different people, but I tried almost everything I could find in my research, and Class IV K-laser treatment is the ONLY thing that helped me. I wish the best to all people sufferening from this condition.
+++
+

caroline2 04-02-2022 02:42 PM

I have NEVER gone to a chiro for neuropathy issues....for my back yes, many years...

I have done all my research for the neuropathy that hit my body and it was due to hip replacement and nerve damage...and asking experts that knew what to take etc...and the info on this forum...

echoes long ago 04-03-2022 10:51 AM

Quote:

Originally Posted by StevenD (Post 1299146)
I have mentioned this in the past, but I will restate it for anyone new to the forum. I believe that the treatments offered by most chiropractors will only drain your wallet and provide at best very temporary relief. Supplements may help some people if they happen to be a person truly deficient in that supplement. The only true relief I have found for my PN is treatment with a class IV K laser. Unfortunately, it is not universally available, it costs a lot, and it is not covered by any medical insurance. Three years ago, I had severe pain up to my knees 24/7, as well as all of the normal symptoms of PN: numbness, temperature sensitivity, cramping, pins & needles, etc. I now wear shoes every day, all day, no longer have cramping or temperature sensitivity, and rarely have anything i would classify as pain. I no longer take any prescription medicine or supplements for PN. I basically am back to where it all started with tingling (not pins and needles) in my toes. My nerve conduction tests are back close to normal, and my neurologist says I am his only patient in which he has seen such improvement. I have come to know other patients at the same neuropathy cline I go to and many of them have told me that they have had similar relief from the many PN symptoms as well as improvement in their nerve conduction tests. I know different things may work for different people, but I tried almost everything I could find in my research, and Class IV K-laser treatment is the ONLY thing that helped me. I wish the best to all people sufferening from this condition.
+++
+

Has your numbness receded as well? What was the cost of the Class IV k laser treatment and where and what type of medical professional administered it?

caroline2 04-03-2022 02:08 PM

Quote:

Originally Posted by JKPHOTO (Post 1297625)
Yes, I am taking Vitamin D3 and B12. My recent labs show my D Vitamin is at a normal level. My Vitamin B12 is off the charts high. Probably not an issue, but I plan to lay off it for time being. I have tried R-Alpha Lipoic Acid, Benfotiamine, Fish Oil, Grape Seed Extract, Borage Oil, Turmeric, and the list goes on.

JKPHOTO

I have been trying "things" for over 30 yrs and I land on some that do make a difference and some that do not but I give them a chance...

Jomar 04-03-2022 02:37 PM

Quote:

Originally Posted by echoes long ago (Post 1299149)
Has your numbness receded as well? What was the cost of the Class IV k laser treatment and where and what type of medical professional administered it?

Class IV k laser treatment - Google Search

You can also search for cold laser, soft laser or low level laser.
The chiro I used to go to had one, I had soft tissue pain and some joint pain areas, 20 seconds per area and pain was gone.

May or may not help for PN, but might be worth a few treatments to find out.
laser therapy internet guide - LaserWorld - The Low Level Laser Therapy - LLLT - Internet Guide

caroline2 04-03-2022 03:40 PM

Quote:

Originally Posted by Jomar (Post 1299151)
Class IV k laser treatment - Google Search

You can also search for cold laser, soft laser or low level laser.
The chiro I used to go to had one, I had soft tissue pain and some joint pain areas, 20 seconds per area and pain was gone.

May or may not help for PN, but might be worth a few treatments to find out.
laser therapy internet guide - LaserWorld - The Low Level Laser Therapy - LLLT - Internet Guide

I've had various laser treatments from chiros over the years and with added charges to the regular visit, and they helped but like everything else all temporary relief.

StevenD 04-06-2022 02:50 PM

Quote:

Originally Posted by echoes long ago (Post 1299149)
Has your numbness receded as well? What was the cost of the Class IV k laser treatment and where and what type of medical professional administered it?

Yes, my numbness has greatly improved. PN seems so crazy in that it is can cause such numbness but at the same time hurt so much. Although I have never stopped driving my car, for a couple of years I didn't feel very safe since my only sensation on the pedals was mostly pressure. At some point after starting laser treatments, my big toe (numbest point) started tickling and I noticed my dog was licking it. A month or so later, she was licking it again for some unknown reason, and this time I could feel the warmth of her tongue.and even the texture of it. I feel safe driving again, and when I walk barefoot on a carpet, I can again feel differences in the pattern with my feet At my annual physical, my doctor touches my toes with a feather and I can feel it. He also puts me through the drunk driver test and my balance has improved.

To be clear, a class 4 therapeutic laser is not a cold laser or LLLT. A class 4 laser would burn you if held it long enough over the same location. It could also blind you if you stared into it. I tried LLLT and for me it offered no benefit. It doesn't penetrate deep enough. My successful treatment was with a K Laser, a specific brand. Similar class 4 lasers may work as well. I cannot speak to that. K Laser used to list a map online of every place in the US that was using it, but I can't find it anymore. If interested, you could do a search for local clinics that use class 4 lasers for therapeutic treatments, I guess you could call around to see what they would charge. As I said, it won't be cheap but it is the only thing that helped my PN that was induced by and later worsened by prescription medication. I'm still not 100%, but my quality life is greatly improved.

To answer the other questions. I have had treatments at two different locations.: One was through a chiropractor who was a franchisee of a company call Realief Neuropathy. He charges $4 a minute for treatments that last from 20 to 30 minutes and then, if desired (included in the price), he has a therapist use some plastic tools to remove what he refers to as contractures in the muscles. They were very painful at first, but now that my neuropathy has gotten better, it doesn't hurt it all. I also had treatments at a pain clinic at a price of $60 for a 20 minute session. I think the doctors there just bought the laser for a way to have some of their assistants earn a little more money for the practice when they aren't busy assisting the doctors. From talking with others, I believe it would cost a minimum $2000 to have enough treatments to notice significant improvement, leaving you no doubt as to whether or not it truly helped. You would notice improvements after a few treatments, but until you've had several, you may wonder if it is just wishful thinking. If possible, get a nerve conduction test before and after treatments. That should prove to any doctor that your symptom relief is real.


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