Ok--here I Go--craziest ? Ever
 

I know many of you will now think I actually am bonkers...but i have seen things that look like others may be experiencing this.
An INTERNAL buzzing feeling?? This is not painful and is not on the surface of the body, rather is inside. Once was in the area of my ovaries...and once was in one of my legs. The ONLY way to describe this "buzzing" is more like an internal vibration...as if one of those small massagers was inside your body (no jokes here please :) ) I have only had it happen twice and it would go on for several hours, intermittently, and then just go away.

Well I had something like that too, from my repetitive strain injury {which evolved into TOS or maybe TOS all along:confused: }
- inside my arm muscles it felt like there was a current, buzzing or vibration running through them. It wasn't painful - just very annoying and kept me from sleeping decently.

My drs looked at me like I was nuts after trying to describe it to each of them.
Plus the fact that it never hurt when they pressed around trying to find sore/tender areas to document.

So anyway- I believe you!!

Nothing new
 

Most of us with neuropathy suffer from that internal/infernal buzzer. The more I do, the more I buzz. My step-mom asked me if I wanted a vibrating pillow to sit on to help with the sitting pain. I had to politely decline. I have a built in one. So to summarize, ....no we don't think you are crazy. Be sure to tell your neuro about this.

Billye

How sad
 

That a friend,aDr. a distant relative ,a stranger, somebody ever ourselves.
Make us think we are crazy,because we feel different..Well what your
feeling many of us are to,you are not crazy,please talk to your Neuro,
tell him-her what you have told us. And keep posting because we care,
and we have been there....:hug: Sue

Belinda...
 

Not crazy at all! I have it all the time. It's exactly as you described.

Belinda - you said one part of it VERY WELL!
 

I usually just say, that while my pain doesn't SHOW....it feels as if I've been scalded with boiling water - INSIDE AND OUT! That usually gets the point across.

It IS like noise! I try to think of it as my nerves screaming....either they are dying and scream in the process, or are hurt and crying OW! BIGTIME!, or protesting as they regrow and ask the brain very LOUDLY: OK WHAT DO I DO NOW????

It's like a high-tension-power-lines humm when you are near them. It's with you all of your waking and conscious life. I'm sort of used to it except on my worser days, but I have to tell you - IF it suddenly went away I sure would wonder if I was still alive!

I hope this all helps - j

HI Belinda!
I asked these great people the same question a few months ago. I was buzzing and didn't know why or what it was all about. Now I've come to recognize when it's happening. Sometimes I hurt when I'm buzzing.....sometimes not.
I'm sorry you are going through all this PN stuff, but I'm glad you found all of us!

Not crazy at all--someone is calling you on your internal cellphone and it's set to vibrate--mine is always set on vibrate!!!!!:p

I also know EXACTLY what you mean, I started 'buzzing a few months back' I first noticed it about 2 hours after taking my first ever 2mg of methylcobalamin. Needless to say I didnt take anymore for a while afterwards because the 'buzzing' kept coming and going for weeks after. Then I started taking the methylcobalamin again about 2 weeks ago as ive heard and been advised that it is the No 1 supplement to take for neuorpathy,im taking 5mg a day,still getting weird bouts of 'buzzing' usually throughout my whole body and also on about 3 occasions when im standing it feels like my feet are on a vibrating matt. But one thing I have to say is that in the past 7 days or so I have noticed a marked reduction in the numbness/altered sensations, not sure if I am just having a 'good' few days or whether the methyl b12 really is helping the symptoms (although it seems to be helping mighty fast,as its ive only been taking them for 2 weeks!!) Also for some strange reason my emotions seem to have calmed right down as well and I feel in a better mood.It may just be the placebo effect I guess.....

Mark,

It sounds likely that your body is being helped; if B12 is helping you it is not just lessening symptoms.

That is a familiar pattern. And many experience fluxuations in symptoms, even temporary worsening of symptoms as the body gets down to real work.

And regarding the buzzing. Some get buzzing as they are worsening, but some of us have had buzzing during both worsening and healing. I had buzzing only during healing.

No guarantees, but it looks good!

rose

Rose
 

I really hope that it is the B12 that is doing some major repair to my nerves Rose, im going to try and get my b12 figure along with the other blood test results, I should have asked the neurologist when I last saw him and he said they were all clear, im not due to see him again now for months but I may pop into the hospital and have a word with the secretary and see if I can get them. Another thing I forgot to add is that the constant tingling in my hands and feet have also diminshed a lot, I just prey that it is the b12 that is doing some healing. One question I do have is will there be any more benefit in taking 5 mg in the morning (as I am now doing) and also another 5 mg in the evening? Or even an extra 1 mg in the evening?...

Hi Mark:

I'm living proof that Methyl B-12 works.
I have no more tingling, no more buzzing, and only (very occasional burning), in my feet.

I started the Methyl B-12 immediately after my first episode of buzzing, pins and needles, etc. Drove me crazy. I remembered Rose's postings, went online to iherb.com and bought the Methyl B-12.

Started at 1000, and in two weeks, went up to 5000 every morning.

Best darn thing I ever did for myself.

Melody

buzzing and b12
 

i also have the buzzing in all of my extremities and my neck and head and have had it for years. it is almost always there and it is painful and noisy. my tinnitus gets worse when the buzzing gets louder. sometimes it changes and makes me feel like i am being electocuted.
i would like to know what if yu have been buzzing forever and now decide to take the b12, would it still work? is it too late?
would shots be better than oral and how do yu get your doc to do that without a copay each time?
and where was the onlline place to buy?
thanks
steff

Mark,

I hope so too. It can't hurt to take the larger amounts: some people benefit from the very large doses (apparently some different need), but most people who have been deficient the important thing is to get the stores full to overflowing with B12 and keep them that way for a good long while, then making sure never to become complacent and become deficient again.


Steff,

Most people (even those who have severe malabsorption of B12) do as well or even better on the regular daily oral dose of at least 1000 mcg.

A lot of people have ordered from iherb.com. Just get a reputable brand, and don't fall for hype. Look for methylcobalamin.

(Those who are not able to get methylcobalamin, cyanocobalamin or hydroxocobalamin are very good things, just don't have all the possibilities of methylcobalamin.)

There was some research showing that some with tinniits were helped by 15,000 mcg (15 mg) methylcobalamin daily for a while.

You never know.

rose

Steff:

This is what I take every morning.

http://www.iherb.com/ProductDetails....1&pid=117&at=0

Hi Melody taking B12 has definatley done something for me as well, like I said in the post above, my symptoms did get better BUT today I am feeling some of the numbness / altered sensations again which is a real letdown :-(

Hi Rose it was all going really well until today, now some of the symptoms have returned :-( although the tingling in the hands and feet are still greatly reduced which is good I guess...

Mark:

This is what I think. It takes some time for nerves to repair, regenerate, whatever they have to do to get better. We didn't get neuropathy overnight and nerves aren't going to repair over night.

I get "episodes" also, very occasionally, I feel like ants or bugs are crawling over me. I couldn't care less if some of me is numb. I don't notice that. But because my tingling, my buzzing, and that awful pins and needles stuff is gone, who am I to complain, if I get occasional OTHER stuff.

In my mind, my body is repairing itself. It never did that before I took the Methyl B-12.

Also, my eyes show no sign of diabetes, and my vision corrected itself (after 40 years of wearing glasses for near sightedness). You should have seen my eye doctor the other day saying "I don't believe this, whatever it is that you are doing, well it's working".

The only thing I'm doing (in addition to healthy eating, lifestyle changes, and not sweating stuff I can't change), well, it's the Methyl B-12.

And the energy is amazing. To me, it's kind of like an anti-depressant. (without taking an anti-depressant).

I mean, I like to get up and get dressed and go out and see people, and dress nicely. And yeah, if the weather is not cooperating my feet do burn slightly, but given what I was going through 3 months ago, this is much much better. I'll take this any time.

I'm no spring chicken, and for me to want to get up, put on makeup and jewelry and nice clothes, and go out to breakfast with my husband, well, I do that, instead of getting up, and doing nothing.

I think that if we try and have a good outlook (even if we are going through bleak times), well the nerves can do their thing.

And sometimes, I even take 10,000 of the methyl in one day. I haven't had one bad thing happen to me.

Oh, yeah, I have to correct that. Exactly three times, since I've been on the Methyl B-12, if I got up to fast, I got a little dizzy (I have no idea if my sugar was low, or if it's related to the Methyl B-12). But I just stood still, held on to the wall, and in 2 seconds I was fine. This happens if I blow my nose hard also. I really don't think it has anything to do with the methyl b-12 but who knows.

It's nothing really, and 99% of the time, I feel just fine.

Now if I didn't have scoliosis, and degenerative joint disease and sciatica, well, I'd be the bionic woman but hey, I'm 60 this year, and I'm happy just to get up in the morning. Everything else is a bonus.

Melody

Mark,

Picture someone investigating and repairing electrical problems in an appliance. Your "electrical system" is much more complicated.

That is often the way it goes. You need to look at it over several months (often ups and downs with a pattern of improvement overall).

rose