LDN Interview with Dr. Skip Lenz on WOR
 

http://wor710.com/pages/48794.php

Look for Health Talk with Dr. Ronald Hoffman, the interview with Skip Lenz, 8/22

I'm going to put it on my server too

http://www.larrygc.com/ldn/M070822skipLDNwor.mp3

Thanks, Larry! Cool.

Thanks Larry I heard that and also took part in his survey:)

I'm just going to copy my summary here, for those who are unable to listen to the podcast:

I didn't realize that Skip was a PHD/Doctor of Pharmaceutical Science, who graduated with the highest of honors. Seems Skip was pretty skeptical when he first learned about LDN too, but now he figures Dr Bihari should get a Nobel for his "discovery" of the various uses of LDN.

I didn't realize that LDN was so successful with HIV in the 1980's, and that one of the first patients that used it for that purpose is STILL alive, and STILL only using LDN. To me, that's an amazing anecodotal report since we know that HIV WILL kill a person without treatment.

He talks about using it for Crohns, Chronic Fatigue, Fb, some Cancers, RA, HIV, MS, Lupus, Parkinsons, Autism, etc. and I found his explanation of why it works for all those diseases interesting. Skip see's LDN as a true example of "immune modulator". He describes main-stream "immune modulators" as drugs that are known to EITHER enhance or suppress the immune system. However with LDN, he says it is an example of a TRUE immune modulator because it apparently has the ability to modulate by BOTH suppressing or enhancing our immune system, as/when required by our bodies/diseases.

He still seems to think that immune suppressors, like our interferons, will not prove compatible with LDN.

Apparently LDN is available in a topical cream (that does not penatrate the skin) that can be used for such things as skin itching conditions. There is a transferable (?) preparation (which goes into the blood system) as well. I think he said they use this for Psoriasis.

Cherie

Hi Larry! Good to hear from you. I've been wondering how you're doing. Hope the LDN is still keeping you mobile. After three years on it, my neuro says I seem to be pretty stable. However I wish he had let me try it sooner, before my legs got so bad.

Thanks for the info.

Cherie,

I was a bit disappointed that Skip spent virtually no time relating how LDN was beneficial to MS patients. I realize that the doctor/host at the radio station controlled the interview but found it interesting that MS was basically ignored. Skip, on the internet, has highly praised LDN's effect on MS patients.

Was there something that I missed here?

Harry

Hi Harry,

My impression is that he was more interested in exposing the drug as a broad possibility for many different conditions. He is working to get funding established for the needed studies to have it FDA approved.

It was kind of like a book tour that celebrities do, in my opinion.

Hi Harry, nice to see you on the board! :) Hope you and your wife are hanging in these days! How is she doing?

Yeah, I suppose you raise a good point that I hadn't thought of. Although he is very supportive of LDN for MS, and attends the LDN conference to sing it's praises, I guess he could have said more about MS specifically in this interview.

I've talked to Skip on the phone, but because he is SO approachable/helpful, I hadn't really considered him a big-wig in the pharmaceutical world. My compounding pharmacist in Canada is also very well respected in his field, so it's good to know we have this kind of expertise on our side anyway. I liked hearing that part of the interview (his credentials), combined with his theories on how the drug might be working in our bodies. Personally, that adds credence/a sense of comfort for the use of LDN with whatever ailment.

He's the largest compounder of LDN in the US, and he is intimately aware of the effects of this drug on his patients/customers. Perhaps, in his experience he's seen that LDN works wonders on so many ailments, so he wants to ensure that message gets out (not just about MS). :cool:

I enjoyed the interview from "the big picture" point of view.

Cherie

Hi Cindy,

Getting something like LDN approved for use in any particular disease (such as MS) would take millions of dollars so I hope Skip knows a lot of very rich people! The pharmaceutical companies won't touch LDN for something like this because the drug's patent expired a long time ago. It will be interesting to see just how LDN is going to be handled in this situation.

Harry

Hi Cherie,

I read the board daily....just haven't replied to too many messages lately.

Marg isn't doing very well at all. Her eyesight deteriorated last year due to pale optic nerve damage and nobody can figure out just why. The use of her hands has gone down-hill as well. The docs think it may be the MS but since her MS had been stable for a number of years, they aren't really sure.

And lately her liver is producing large red blood cells and that is being investigated as well. She isn't a very happy camper these days!

That's what I thought as well because he has been quoted as saying that if any of his relatives had MS, he would insist that they be on LDN.

Take care.

Harry

Hi Harry, so sorry about your wife's illness lately -- I hope she feels better soon:(

I'm just happy to see that there are researchers out there who want to find something to help their patients and not just in it for the money. :rolleyes: I thought that Skip got that point across quite well.

Sorry to hear about Marg, Harry. We all hope that we will stay stable, but don't necessarily . . . no matter what we try. It's such a mysterious & wicked disease!

I'm glad you're still out and about, trying to find something that might help her!

Cherie

Back in May I had a massage and a Reiki session, in June I had another of each. Been walking since May a whole lot better than since prior to my 3/2002 attack. I think it may have been the CMT who did both of those sessions being a big factor. She helped me heal a whole lot of issues. Not all, unfortunately.

But I've been going on walks most every day since May.

Hi Sally,

Yes, it is refreshing to see researchers doing this work for the sake of research and helping people.

I just hope that Skip's point goes somewhere because it didn't work in the case of Prokarin when it first appeared. Some MS docs, the NMSS and big pharma ensured that the established MS medical world kept news of Prokarin in the background. They have tried to do the same against LDN but its low cost and acceptance by more medical people have kept it going. Whether it will survive the fight against the established pharmaceutical industry is another matter. I really hope it does!

Take care.

Harry

Larry honey, this is great.:Tip-Hat: You are not only a LDN success story but also a "Mind over matter, success story.

I mentioned in another thread about my DD's total remission. I think it's the LDN working in the early stages of her MS and she thinks meditation made it go away. It may be a combo of both therapys.

Keep up the good work.:D

Hey there Larry! Glad to hear your "alternative" therapies seem to have helped! Whatever works with this miserable lot we're all battling.

Hi Sally -- Sure hope and pray your DD stays in remission!! It's bad enough for we grandma's, but I just can't imagine having young children and this disease at the same time. :( Go LDN!!

Hi Harry -- Good hearing from you, but so sorry Marge isn't doing well. This is such a fickle disease, one day you're up and the next -- well, you know. I'll be praying for some improvement for her and more better days than bad.

Yes, I too hope LDN doesn't get lost in the pharmaceutical maze. Being they won't be making much money from it, they'll surely be tempted to push it to the background.

Take care everyone.........:)

Surely a combination of directed massaging of my legs, Reiki, and the practitioner of both.


If the one who provided the services were in close proximity, I could have repeated treatments and get better and better. Maybe one day. Unless the healing changes remain from the 3 treatments of each type.

Glad to hear of this interview. In fairness I gotta say that LDN does not 100% stop MS, at least it didn't for me. I've been on it several years now, and still had a few new lesions and 1 relapse.

Its hard to know if I did better with LDN than I would without it, but clearly it doesn't completely keep it at bay.

I do hope they get real trials going with time series MRI to prove it one way or the other, but given the size of the clinical trial pipeline for MS I kinda doubt that anybody will pony up the money for LDN unless somehow a patentable derivative can be produced.

I hear you Dizzy. LDN is definately not a cure, but its the best I have found for slowing/stopping my progression of MS disability.

I've had a few minor flares, but nothing that has advanced my disability. The only thing I can't seem to slow is my aging.:eek: MS and aging really sucks big time.

Anyway, I'm sticking with it until a cure comes along, which means that I will be on it 'til I die of old age.:p

I don't think it's a cure either, but I so think it's the most effective treatment we have at the moment.

Cherie

Actually since we're discussing this has anybody looked at the sheer size of the clinical trial pipeline for MS??? One good site that has this is http://mspipeline.wordpress.com

I guess I should have said earlier that indeed, I have not progressed in the ~4 yrs I've been on LDN. So I'm still going to take LDN (I also take copaxone).