Rsd
 

Hello All,
I have previously posted and wanted to thank everyone for their support and consideration for me during this time. I had a few question though..........hope someone will be able to answer them as I am not going to the doc until 2 weeks..............I noticed that when I wake up from sleeping at night I am soaking in sweat and then I go from hot to cold to hot and then back to cold the pain also in my thighs is such a burning sensation that I feel that if my clothes touch it it hurts.....................Also, I have been urinating so much lately more that I usually do and I feel this is way too much...........just need to know if this symptoms were normal so I don't feel like I am going crazy :confused:

the sweating and the hot cold stuff is all quite normal rsd stuff as is the burning when something touches you.
the urination is not as far as i know. but not knowing you need to urinate and/or increased urination can be side effects from medications. i had that from cymbalta. so if you re on a new med, that could be it and that can be a problem. it could also be a separate issue like diabetes so you should have that checked sooner than later.
joan

I Meant To Ask, Where Is Your Rsd? Joan

peeing and pooing
 

I went through the sweats, never really cold, just swimming in sweat and not swimming in sweat. It has reduced down to occurring occasionally.

The meds make my my mouth, and it seems my large colon, feel so dry that I drink continuously and therefore pee a lot. Isn't this stuff so much fun?

:)Hi, I've registered although I haven't posted with my story yet. However, I couldn't resist responding to this these posts on rsd and sweating, etc. I have rsd that is everywhere now(long story) and it's gotten so that I can't even go anywhere because by the time I get there, I have sweat dripping all over as if I came out of the shower and didn't dry off. I have to watch what my clothes are made out of and what color they are so that they don't look as if I spilled a bucket of water down my back. In spite of the wetness my skin is cold and clammy. I've done this for years and it's become such a problem that I just wear cotton pjs and don't leave the house except for docs and hosp. I'm now back in my electric w/c from bilateral below the knee amputations and even though I deal with everything fairly well, I've decided that from now on " mohammad needs to come to the mountain" from now on instead of the other way around. It's just too much. I just stay home, keep up with my hobbies and entertain my grandkids. I certainly empathize with you all in a big way though. I'll try to post my neuro and health story, as well as my good things, when I have more energy and less pain. by the way, I followed this site several years ago, and my neurologist mentioned it to me and it reminded me it was still there. I'm so glad. susan from ky

Problems with urinating
 

Truthone,

According to my Dr., one of the side effects of having RSD can cause problems with urinating. Here's what he has sent on to my insurance co., as to the reason why he's prescribed meds for me.

Autonomic features including cyanosis, motting, increased sweating, abnormal growth of hair, diffuse swelling in nonarticular tissue, and coldness may occur in the later stages. Urologic manifestations include detruor hyperreflexia, producing urgency, frequency, incontinence, or urinary retention.

I've been on medication for this problem for approx. 2 years now. It definitely has help me in dealing with this problem. I'm taking Detrol LA.

Hope you can get some help dealing with this. I know only to well what it's like having to deal with everything that RSD puts us thru.

cjay

RE
 

my rsd in in my legs from a work injury

Well hi to susan from ky!
glad you posted. you are girl after my own heart, enjoying grandchildren and hobbies. i like to focus on the good stuff too despite the rsd. what hobbies do you do?
and truthone,
we are both legs so that is something we have in common. mine began post op from my third hip replacement. it was just the left leg and foot but now is in my right foot as well. i have twice had problems with urination, one while using trazadone for a year or so, where i could not tell when i needed to go and so almost didn't make it a few times, and once with over urinating which was from the cymbalta. both problems stopped when i stopped the meds.
and hi to mark,
we do talk about some yucky stuff,eh?
and in general to all,
as an icu nurse, i know that sometimes problems start right away from meds, and sometimes they come on after a build up of the medication in the system, sometimes over years. one has to be careful not to just assume it is a new problem and then add a new medication, thus possible adding another problem. i was taught, and i like to think, of all meds as poisons, because they are not natural to our bodies, and although we may need them, we need to be aware that our bodies can react to these foreign substances in a bad way. i used to have patients come into the hospital and they were on so many meds, and many of their problems were side effects from meds, and we spend weeks weaning them off this and that until they became 'normal' again and then saw what that patient really needed and addressed it. i believe meds have their place for sure, i take some, but i research all side effects, and i have more problems with meds, because my liver does not process many of them, and so i get a build up of the medcations effects which can be deadly. i found this out, not through a doctor and not by reading, but by talking to my pharmacist about why i was 'allergic' to so many medications that did not seem to have anything in common, and it was that i am not allergic at all, but my liver will not process them .... why? no one knows. so as i always say be your own best advocate and do not just take a med because a doctor says so, research it, and be aware of how you are reacting to it, keep a diary if you need to and talk to pharmacists and doctors.
joan

RE:
 

Mine started in my legs also from a work injury :eek: in 1998. It started to spread within 9 months and I now have it full body:(

Sending some gentle :hug: 's your way

Thanks
 

Thank you all for posting it is so nice to find a website like this so people can understand what I am going through. I noticed also lately that when I wake up or anytime during the day my hand are also burning and I had my bf touch them and he stated that they felt like fire. The pain in my hands is so bad that I just feel like wrapping them up in something. My rash that I have has come and go. This is a hard battle for me to face and I never even heard about RSD until my doctor told me about it now I try to educate myself as much as possible. Sending good wishing and pain free days to all! :)