Question for everyone.......
 

Hello All,

I know alot of you don't know me but I have been around along time on both boards BT 1 and 2. The last few years I have been lurking more than posting, however within the last couple of months I have found myself posting more and more. Maybe it's the increased pain or that I have missed the friends I made on this board.

I have noticed recently that there seems to be quite a few folks posting about having neuromas removed from their feet. I would like to see how many with RSD in their feet have had neuromas removed, and later developed RSD.

I had a neuroma removed on my right foot and over 15 years later developed RSD in that same foot from 2 fractures in that same foot. I am curious if this is just a coincidence?

Please post if you have had a neuroma and you later developed RSD in that same foot.

Thanks in advance.

Now I know why I quit posting and just lurk.

It's pretty bad when you can't get one person to answer your post.

Thanks to all,

Dear Barb -

Please bear in mind that you asked a pretty specialized question and then asked people to respond if they fit the profile. To be honest, I wouldn't expect a lot of takers if I put up an inquiry along those lines.

Bottom line: don't be discouraged be the lack of a response.

Mike

Hi.. Welcome back from lurking
 

Barb~

I am sorry there is a lack or responses to your question... I have RSD in my arms so i am not much of help to you... Please bear in mind it is also Laborday weekend many people are gone.... Dont get discouraged welcome back and i hope you find some responses and you conutinue posting....


Pain free days and Gental Hugs!!!! :hug::hug::hug::hug:

Barb,

I have had a neuroma removed from my left foot, and now I have rsd there. I also fell a few months ago, and broke my toe on the right foot, now I have rsd there also. the neuroma ended up forcing me to have 5 other surgeries after it. I ended up getting something like the flesh eating bacteria and had to have all the flesh removed from the top and bottom of the foot. Before the neuroma surgery, I had 3 surgeries on that foot. it was my pod that suggested that I had rsd over 3 years ago. we just couldn't worry about rsd, because of the infections. I'm getting a block for the right foot, and I am thinking of getting a stim for the right. I really need to be able to put a shoe on and get out.

Hope that helps.

Mary\

Sorry Barb,
No neuroma for me but I hope there is someone who can share their story with you
Cheers Tayla:hug:

barb, try posting on the Peripheral Neuropathy forum. i know i have read posts there that mention neuroma's.

http://neurotalk.psychcentral.com/forumdisplay.php?f=20

you can also use the search feature and type in neuroma to find more information.

also...this is a holiday weekend. posting is slow forum wide.

I had a neuroma removed 9/19/02 and got RSD from that surgery!! It is comming up on 5 years of RSD and still not getting any better.. Im not sure if it was the acutall neuroma surgery that triggered RSD or if was the fact that the doc doing the surgery did it all in 9 mins including anesthisia!! soo?? i am in your club .. not a lucky club or one i really wanted to be in ,,but im in there!! LoL

:wink:Amber

hi barb,
could be, that since you posted on a holiday weekend with a very specific question, that is why you will get your answers in dribs and drabs ....
i had a neuroma in my left foot removed in may and then in july had my hip replaced causing nerve palsy and that was also the beginning of my rsd many years ago. i do not think the neuroma had anything to do with my rsd.
joan

Hi Barb,
Iam sorry you didn't get the response that you wanted. I have no idea what neuroma is. I've had RSD for 8 years and I am still learning. I
have learned so much from this board, information I could never get from my Docs. What is a neuroma? Your information would be very much appreciated.

Sue K.

A neuroma is a noncancerous (benign) growth of nerve tissue that can develop in various parts of your body. Morton's neuroma occurs in a nerve in your foot, often between your third and fourth toes. The condition isn't a true tumor, but instead involves a thickening of the tissue around one of the digital nerves leading to your toes. Morton's neuroma causes a sharp, burning pain in the ball of your foot. Your toes also may sting, burn or feel numb if you have Morton's neuroma
this is the one i had .... hurts like the dickens!!! joan

To all that read my post and are reading again, my deepest apology for being so crabby, I have been in a lot of pain the last few weeks. Also my PMD is not what I thought, all his patients are cookie cutter patients. We all receive the same meds and dosages, the same treatments and you are lucky if he says more than 10 words to you or ever listens about pain and what has worked for you before. This is the 6th PMD I have been to since returning from 12 years in Vegas.

I would like to thank all that answered my post it is appreciated.

To Mary, Amber and Joan, I would like to thank you 3 for answering my post. Also I wanted to say to you 3 that I have another neuroma in my left foot (opposite than original) I opted out of having it removed until it becomes unbearable.

Joan, Is your RSD in the same foot the neuroma was removed from?

barb,
don't be sorry, we all know about those crabby days. The way we have to live. its no wonder we get crabby.
Thanks for the info Joan.

Sue K.

RSD in arm
 

Hi Barb,

I have RSD in my arm(s) so I don't have any knowledge about neuromas. I hope it's a lower pain day today. The pain never really goes away, so I hope it's tolerable.

:hug:

hi barb and all,
yes, let me explain about my neuroma. i had a difference in my legs sizes all my life [i refer to the thread about the long history sue and i have been back and forth discussing about our congenital hips from birth] so when i went to the doctor's 11 years ago, i had extreme pain in my left foot, moderate pain and constant dislocating in my right knee, my left hip that had been replace 20+ years ago was crumbling, and my back was in bad shape. the doctor said my neuroma was probably caused from walking on my toes on that foot all my life to make up for the leg difference. so i then tried an injection that was horrible and did nothing so i had it removed. during that surgery, i also had a torn miniscus repaired in my right knee and some arthritic junk [great medical term,eh?] scraped off in that joint. i did extremely well post op and then had my hip replaced six weeks later. that was a disaster, i awoke with foot drop and pain in that left leg, iwas also in bad shaper from problems from the medications. it was later diagnosed as neuropathy from a nerve being stretched too long during an extremely long surgery. that hip was no good and was broken within a years time and i had to have it replaced again, this time in boston where i should have gone for the other one ... anyhow, the doctor, while doing the hip replacement and reconstuction and lengthening, saw the nerve had scar tissue on it and scraped it but i only got back a bit of movement from that. to finish the saga, i, years later, had two facet blocks in my back, because i was in so much pain i could hardly get off the couch. i had right and left injections of the L4-L5 area to relieve the pain from a crumbling spine area and was started on exercises to keep the area strong and take some stress off the area. i was told the back knee and foot were all problems of the way i have walked all my like which makes perfect sense to me.
so that is my story ....
also i did not think you were crabby at all?? but i know the horrors of doctor who can make you crabby and i sympathize. i only use my pcp now because he cares and listens and gives me what i want and does not push what i do not want. so hopefully you can find someone who fits you and is there to help and not make things worse. i also see my hip doc in boston every two years or as needed and i adore him.
oh and i am glad i had the neuroma out but it does leave the toes numb. but with the neuropathy and the RSD what difference does it make? ha!
joan
so hope you are having a better day and i enjoy the subject.