Could use some moral support
 

Not sure I used the right word. But I am not sure what is exactly going on
now. I am just going from one issue to the next it seems.

On Friday at physical therapy I almost passed out on my therapist.

He is so good, and his words were I had never seen one of your spells.

Well I knew that and was hoping you never would. I was hoping they
were over, or at least to the degree I was controlling them.

But I knew that the breathing issues haven't completely gone away. I've
just been able to get them before they got to bad. But this was something
completely different. And it didn't want to leave me alone the rest of the day.

But thankfully he was there and is good.

I was being evaluated for my balance issues and it was going pretty good.
But the first one set my problems off and I'm not sure what to think.

I got so dizzy and had to sit down. And then it was a really big problem from then on.

He went to the point that it was time to start monitoring my blood pressure,
but they are always good about not just taking over.

THey want me to make the call. Do you think I should do this.

So it was. SHould I check you out. And yes you should.

But he told me when we were finally back to me, that he was just
about ready to lay me down when it started to look better.

But I seem to be going up and down fast with my blood pressure.

So now I get to go back to my primary again. ON Wednesday, the
soonest she could get me in.

To see what is up. NO clue what to think.

But was looking it up on computer, and I'm thinking it all comes
back to heart, kidney or just being me.

Donna

Just a quick note to you...I see you are on line....
So this spell was dizziness only? how was the breathing involved?
What is wrong with your heart kidneys?
PM if you want to...
This sounds really scarey...how long have you had these dizzy spells...I forget.
((((HUGS))))
bizi

Oh boy Donna, when you say these went away for awhile did you ever find a cause for them before when this happened? I wish you the best in finding out what it is that is going on, I would be really scared too, I wish I could offer more then a cyber hug. :hug:

I can't exactly explain this is what I used to think was my seizures at one point. I also have thought resently they were connected to the hard time breathing with my asthma. Its just that I don't have a clue where its leading.

Its maybe connected to low and high blood pressure and standing or sitting when its going on. I just don't know how to explain exactly. Its something that I wouldn't have ever probably gotten a answer for but I was luckily enough with this particular therapist. He seems to tune in on me and when I'm not with him exactly. He seems to know when things aren't exactly like
they should be.

As a child I had issues with my kidneys but they were just there, as with other things. Its so odd all my life I just had things show up that I had to deal with. If they came then I seemed to be the one in the family that
got them.

My kidneys it was if they decided to fail they would. It was possible that I'd
be on dialysis at anytime. And I have a spot in one eye that could go and put me blind in that eye.

Just part of life it seems

Donna

Hi,
'Sending you good vibes and hopes that the dr on Wed can help you.
I suppose the good news in this is that the PT witnessed this. It is hard to explain strange things to drs.

Try not to worry between now and the appt.

Mari

Wow...with all of this and you still have a cheerful mood!
You are amazing.

That does kind of sound like a seizure....of some sorts.
Glad that you had a good PT to observe you through the incident/spell.
and am very glad that you are seeing your doctor...have you seen a neurologist before?

bizi

:hug: Donna :hug:

I do hope that you will get answers to all your questions that won't be upsetting.

befuddled2

How are you feeling today? Did you eat that day? Maybe it was the heat and being exerted and exhausted? Just throwing out some idea's.

I get dizzy when I get up fast, or stoop down then get up, but that is due to my low blood pressure.

I am glad you got a quick appointment with your PCP and don't have to wait.

Be careful, take care, sending lots of hugs, Nikko:hug::hug::hug::hug:

Yes I ate that morning. And I don't usually have low blood pressure at
all. So this is really odd.

I am just going to wait on my doctor to see what she thinks.

I know my therapist says it sounds and looks like
hypotension or something like that.

Donna

Good Luck tomorrow at your appointment.

Will be thinking of you.

Hugs, Nikko:hug:

Keep us posted Donna, we're all thinking about you and wishing you well. :)

I really appreciate everyone here. I am always in awe as to
how you pick me up when I have fallen.

This is a trying week. Today I go to the pulmonist to see if
there is anything we can do for my asthma.

And of course tomorrow for the rest.

Donna

How did the pulmonologist visit go?
bizi

Well it seems he isn't interested in doing anything but charging me
money. My lungs are fine is all he says.

My asthma doctor wants to know if there is anything else to do for
my asthma. Hmmm, maybe a different pulmonist


Donna

Hi, Donna,
Keep going until you get the answers you want.
'Sending you good vibes.
Mari

Thinking of you! :Wave-Hello:


:hug: Nikko

Thanks Mari

Thats exactly the thought I had too. And its the way I've felt with my
PT too. And with the way I've been treated by the staff that has been
treating me there. So I am being spoiled by them to a degree.

Thankgoodness or I don't think I would have found the guts to worry about
me.

But todays appointment, the doctor is good, she worried the right amount.
First she worried about the meds I'm on, checked to see if any
of the ones I'm on can be the problem. Nope don't seem to be. Next we
talked about the support hose, Am I wearing them all the time. Yes, good.

Because thats the thing we do with the problem your having, I'm not sure
I'm spelling the first word right. It sounds like Ortho hypotension.

Anyway, then she said, have you ever had a tilt table. No I haven't

Would you be willing to have one. Yes. Do you know what it is. To a degree
I do. I have heard of them, and I need to research some more. But they
are given in lots of cases when seizures are thought, but not seen in EEG's
but then heart issues are though maybe.

Anyway, then they were supposed to do a sit down which was already done.

And a stand up blood pressure check, but at 2 minutes of standing, well the
girl that was to do it, was trying to schedule I think the tilt table, after 5 or 6
minutes when I was back to fine pretty much. She came in telling me that
they would after all call and schedule it. And as a after thought kind of
yelled out to the nurse, oh I'm supposed to be checking her blood pressure too.

So suffice to say it was 132/85 and 132/95 which was down from the PT's
readings a hour earlier.

Donna

You take blood pressure medication?
A tilt table sounds very interesting....
Sounds like your doctor is paying attention?
bizi

I take one for my migraines. But have for 3 or 4 months now. But its
not something that should be causing this. She double checked for
this.

I'm just waiting.

I had a workshop for parents last night, in a town close by. And Now I'm
worried I might have had someone from the cooperative that I have trouble
with. NOt realizing she works for them.

I'm afraid of this because she took the evaluation sheet she was filling out
with her. And wasn't to open with the information about herself or her children.

Now I'm worried. But its over and its life. I didn't lie so I shouldn't worry.

Donna