Sweating
 

Tayla mentioned sweating on another thread and I didn't want to change that thread to another subject.

I sweat like crazy and I don't know what to do about it. I can't take any menopausal meds which do help but they sure do a job on my bladder disease. I can't do a lot of perscription meds. which I don't know if there is any out there for sweating anyway.

I can't wear long sleeves no matter how cold it is. I start out with a short sleep top on and put a jacket on over it. I layer up in other words. Then I start coming out of everything within minutes no matter how cold it is.

I read in a book that sweating was part of the RSD so I know there are some of you that deal with it.

I am uncomfortable no matter where I am. Any ideals on this.

Thanks in advance,

Ada

Hi Ada,

Sweating is controlled by the sympathetic nervous system, in fact there is an operation available for hyperhiridosis where the sympathetic nerve is cut ,this proves to be a godsend for these people whose lives are often made so difficult from constant streaming from hands and feet.
I had very heavy sweating in the early days of my RSD but these days I am more like a prune:(
Of course there are other reasons we sweat and women going through menopause may also often experience uncontrolled sweating so if sweating is a problem and you are a women of 'the right age' then there maybe a non RSD element to your sweating and therefore some fairly routine treatment for it.
WE have a wonderful deodorant here called Driclor which only needs applying every 3 days, this helps and of course keeping away from synthetic materials by wearing cottons and wools will also help.
Apart from that I am not sure what other ways are best to manage it but it sure is a nuisance.
Regards
Tayla:hug:

Hi Tayla,
 

Thanks for the info.

I was having the hot flashes but they ended awhile back. What I do is just sweat all over. I went into the Drs. office yesterday and I was sweating so bad he turned the air on for me.

I get up of the morning if it's cold and put on a long sleeve light sweatshirt and light sweatpants. Within a half hour I am coming out of those clothes and putting on shorts and a short sleeve top. I sleep with a fan on, I have for a few years.

I was sitting at the computer and my body starting getting hot all over awhile ago and had to turn the fan on. I keep one by the computer too.

I am never comfortable. I can be freezing but sweating. I did read in a new RSD book I got that RSD does causes sweating. I always wonder what is causing what between RSD and Fibro.

I never heard of that deodorant. I do pour on the deodorant and cologne after a shower or bath before I go out. LOL

My pain seems to get higher when I get too hot also. I get so uncomfortable that I am a mess until I get cooled off.

Wool is out for me and knit is definately a no-no. Nowadays tops are made out of that knit stretchy material and I can't wear them.

Cotton it is.

Thanks,
Ada

Hope this helps
 

hi ada,

I used to have total body sweats :( and did the same things you
have to until I had clonidine put in my pump. Applied to the correct
area along the spine you get a continuous systemic sympathetic block.
I have low blood pressure, 90's/60 and it doesn't affect my blood
pressure at all. So they've SLIGHTLY increased since fall but go away
as the day warms up. I remember you are worse in hot weather.
Actually, Clonidine is used for hot flashes from menopause !!

Unless you have really low blood pressure,
hooshmand has a puzzle on this # ...he mentions "When
the patient is treated with.......Clonidine, not only is....hypertension managed, but also the patient receives systemic sympathetic block." I know you
have heart disease also & this may help that. I don't
know how well you do with patches ?? I have a tape
allergy myself. My sweats have been decreased by 75 -90%. Strange how mine are worse in the winter.
Maybe because my SNS is highly reactive to
cold weather thus more sweating.

www.rsdalert.co.uk/drugs/Clonidine.htm
"A lot of RSD patients have problems with sweating. Clonidine , which is available in patch or tablet form, specifically targets the sympathetic nerves. That is why these patches are used to block the pathway of the nerves, thus relieving pain. In tablet form it acts as a systemic sympathetic nerve block because the sympathetic nerves control the calibre of blood vessels by acting on the smooth muscle surrounding the vessels, thus allowing them to open up . They use Clonidine as a blood pressure tablet, but it is also used for menopausal flushing and sweating… and it can also help RSD sufferers."

I know you are sensitive to meds and this may not be
an option to you, but maybe this will help someone else.
xxoo Hope :hug:

Hi Hope,
 

Thank you so much for that info. I read up on clonidine.

I see my Dr. tomorrow and I will ask him about it. He usually lets me try anything I want to.

As far as my blood pressure, it use to be low but since the RSD and all of the other problems it bounces all over the place.

I don't ask him for much because I have tried most of them. I have 2 of those popcorn tins full of meds that he's let me try over the years. yes I hang on to them to remind me of what I had taken and sometimes I will try them again such as I did last week with the Elmeron and Neurontin. I get this crazy ideal that I am doing better in that way, taking meds, and boy does that ideal go out the window real quick.

I won't even take my heart meds because of the side effects. He agrees with me, I'm better off struggling without them then to worry about something happening on them.

We are going to turn my VNS up again tomorrow in hopes I can handle it. I went in Monday but had to have triggerpoint injections due to too much pain. I'm still trying to make this thing work for me.

As far as hot weather, I go nuts in hot weather. I have spent most of it in this summer due to the heat and the humidity. We broke records this year on both and I just couldn't handle it.

Winter is just as bad on me on in a different way. Last winter was my worst. Bill was wanting to go to Arizona last winter to help us both but we didn't make it. I am not looking forward to it either. In other words, it's a no win situation.

I'm still having trouble with my feet. I have trouble walking now so that's cut down on taking walks. I did get a treadmill so I could do a little walking on it in the house. I am one of these types that don't want to give up, that comes from all of the support I get though around home and on here with all of you.

I hadn't seen you post in awhile Hope. I hope you are doing ok. I got a PM from a couple of others that are in hiding today. I know everyone needs those breaks.

Thanks again for all you do to help me.

Ada

I asked about this a while back. I constantly sweat except under my arms, go figure. I use gold bond powder, just a light dusting about 2 times a day. I don't need to do that all the time but most days. I can be shivering with 2 sweaters on, it's 90 degrees and sweating at the same time, nights are the worst. Cotton fabrics are the best and also "modal" it's a fabric made from beech tree pulp and it wicks away sweat better than cotton, it can be hard to find but worth it. I even bought sheets made with Modal, love them.
Hang in there, SWEAT is not Sweet for us! :D

Hi Septmystic,
 

I didn't even think about the underarm sweating. I actually don't sweat under my arms.

I forgot to talk to my Dr. about the clonidine. We got side tracked with the VNS trying to get it turned up.

I never heard of that kind of material. I do try to stick to strictly cotton but it's hard due to jeans and tops being made more out of other material.

I love the new stretch material that the blouses are made out of but I have to make sure it's cold outside to wear any of them.

I love jeans but I can't wear them unless they are stretch material and it's got to be cold for them too.

It was about 80 here today and I laid down to take a nap and I woke from cold chills and pain and electrical shocks in my legs.

I did meet a girl today with RSD. She has a SCS in her. She has since 94. She actually likes it. My friend is having hers taken out. They just put it in about a month ago and it is making her worse. You sure can't tell what will work for each person with this.

Thanks for that info. Have a good evening.

Ada

sweating & then sweating some more
 

Ada,
WHEW is it hot in here???? NOOOOOOooooooooooooo but I will sweat when everyone else is freezing. Today for instance: It was really cool in the house this morning. Here I am with a tank & light cotton slacks on. Sweating while just setting in my recliner. My hubby is in heavy sweats, & a flannel shirt. Cold with a little electric heater blowing on his feet. I do this several times a day, sweat & then get cooled down, sweat, cool & so on. It goes in cycles with me changing clothing. Only I have to keep something on my feet & ankles or they will get cold even when I am sweating everywhere else except under my arms. Like you & someone else here, I don't necessarily sweat under my arms *LOL* Go figure???!!! I am so sick & tired of sweating.

And I keep forgetting to ask about using clonidine with my PM doctor. It seems there is always so much to try to get in during the 30 mins allowed.

Hope,
I finally did ask about getting a pump & he said he thinks I am an excellent candidate for one. YAHOO!!! Except he is nto sure if my having had a 3 Level fusion surgery. He is going to check with the guy about that. I hope it isn't a factor against having a pump. Cross your fingers with me on that one. Either way I had to have that surgery or end up paralyzed. He has just been waiting for me to ask about getting a pump. He expects the patient to be the aggressive one about treatment. He will be as aggressive treatment wise as I want to be.

DebbfyV

Re sweating
 

Hi there,
I too tend to sweat a lot, my mom will say that it is cold and I will be red hot. I tend to find that my leg affected by RSD will be either much more colder or hotter than my good leg - it's weird, but I guess it is just another symptom of RSD, the horrible monster!!
If you are worried that you may smell, because of how much you are sweating then please use perfume and deodorant's and also shower regulary
Hope this helps you all
Pain free huggles
Alison
-x-

There is no cure - but there is hope

Hi
 

I too am sick of sweating Debby.

I can take a shower and within an hour I am burning up again. My skin gets so hot at times. Bill use to tell me that I was burning up when he got close to me. I can be freezing and burning up at the same time.

Ali, I agree on the colognes and deodorant. So far I haven't been told I am stinking anyone out. LOL I do collect perfume and cologne bottles so I hav over 400 fragrances to choose from. I love White Diamonds and also some Avon brands are pretty nice. I guess we should just start taking a bath in the colognes.

I am just wondering if this ever lets up or if it a part of the RSD that is with us forever.

Ada

Hi,
 

I saw my Dr. today and got my prescription for the clonidine. I will pick it up tomorrow. Keep your fingers crossed that it helps the sweating.

Thanks so much for the advice.

Ada

Ada,
I got one over on you *L* I can come out of a shower sweating. no kidding. I haven't taken a shower in warm or hot water in years. And if I actually do lather up using warm water, I end up turning it to cool water to cool my body down before I get out to towel dry. Then like I said before I finally get finished driessing I am sweating again. So yes it is miserable.

Thanks for your post on my thread. I had to distract myself a bit from all that is going on.

DebbyV

Hi Debby,
 

I think we are about even on that one. I actually do the same thing. If I get my water too hot in my tub, I am running cold water to cool me back down. My swamp cooler is in the hallway by the bathroom door and I actually keep it running while I am taking a bath to keep cool then when I get out of the tub, I am turning it off to warm back up. What a mess, huh?

I am sitting here now with the fan going on me and it is about 50 outside. It's cold in here but I still have that fan going. I was lucky, one of my fans went shot last week and another one is going. I still have 2 more though. I have one in every room. I have tv's in every room and if I am watching tv in one room I have to turn the fan on me to watch it.

When I went to the Dr. today, I started getting to hot and my nurse got me some ice water and by the time my Dr. got in there I was freezing. He was going to turn the air off for me and I told him no, just give me a minute and I'd be burning up again.

We were talking about Bill today. They were good friends. Bill always told him that I was freezing him at night. He was laughing about how opposite Bill and I were. We reminise about him every once in awhile. I did freeze him out every once in awhile.

I do know what you are talking about girl about trying to get your mind off of your loss. I was that way when I lost Bill. I came on here to talk to everyone here. I hope it gets easier for both of us in time as I do for DiMarie. We all have a long road to go yet, I know that.

I do hope you get some rest tonight Debby. It's hard I know but you have to get rest to be able to keep going.

Ada

All I can say OMG Im not alone!!

I have had this crap going on since the begining of my RSD deal. I thought it was the birth control i was on bc i am on it continuosly so i dont get a cycle and just blew it off as hormones, welll this summer I started a shot that just shuts down the ovaries and no hormones involved at all.. and thouhgt ok this will be good now that summer is here and i can enjoy some heat... WRONG!! so they blame it on my RSD i guess from what you guys are saying. I wake up sweating and need to head right for the shower bc im soo sweaty and I sleep with the ac and a fan blowin rihgt on me!! ANd during the day.. its 50-s her now and still have the ac on and fan blowin on me and sit in the living room with a hand fan blowing bc im soo darn hot. I get so hot at times that it gets me sick!! I can feel the hot flashes come on and face gets almost purple and its either get cooled down or else i iwll be sick. I have my secrets spots to get cooled off in.. like at walmart .. i pretend to look for veggies or ice cream just to get the coolers to get me cooled off... i even got a trick that bc summer was here it helped when i got hot to take my flip flop off and walk bare foot in the stores.. cool floor... lol.

Im just glad its not me!! i wish there were things that we could put in our purses or whatever, to make it get cold and we wouldnt have to refreeze them... like those hand warmers... I also put my pillow cases in the freezer when i get bad so i can sleep on a cool pillow... puts me right to slepp too!!

OK.. enough ramblin.. lol

Amber:p

holy moley....
 

i can't imagine what it would be like to WANT to get cold......lol.....
i went through the hot flashing crap, sweating, and feeling sick to my stomach..............i started taking my hormone pills and it really eased up some............i still get a few hot flashes daily, or if frank touches me, i instantly get one...(he insists he is HOT STUFF) LOL
But normally i am freezing......i wear my winter robe all day indoors when the air is on.even go outside with it on....myneighbors think i am nuts..........:P.......and i have an afghan on top of my legs............
i hate the grocery stores......can't imagine heading to the freezer section to cool off....laugh...i stay way far away from those aisles........frank has to get stuff out of them for me.............
he used to be really hot too, but since this horrible past year and a half, he enjoys the heat now.............
we are heading south soon, so i will be soooooo happy to not see any snow this year...........
take care ada...........good talking with ya last weekend..............
debby, i totally understand your need to distract yourself...........we are here for you whenever you need us..........