NeuroTalk Support Groups - whatkindofWORLDdoyouwant.com

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whatkindofWORLDdoyouwant.com

whatkindofWORLDdoyouwant.com

http://www.whatkindofworlddoyouwant.com/

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Augie's Quest
http://www.whatkindofworlddoyouwant....view/id/382360
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.

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Eric Lowen
http://www.whatkindofworlddoyouwant....view/id/401480
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.

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Scott Stafne
http://www.whatkindofworlddoyouwant....view/id/450622
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.

http://www.whatkindofworlddoyouwant.com/

http://www.whatkindofworlddoyouwant....ges/header.jpg

A Midwinter Night's Dream
http://www.whatkindofworlddoyouwant....view/id/464551
Every time somebody watches this video, $2 will be donated to fight ALS, also known as Lou Gehrig's Disease.

http://frame.revver.com/frame/120x90/464551.jpg
Description: A gala event ran by High School Students has raised $472,000 for ALS research in the past three years.
Charity: augiesquest
Author: Chris Lynch
Credits: Chris Lynch, Sarah Pattison, Don and Jess Strasser
Views: 230
Posted: 11/02/07 2:34 AM
http://www.whatkindofworlddoyouwant....ges/header.jpg

Bumping it up for you Bobbi, keep on clicking away guys. Please:grouphug:

:D did you catch anything bobby?

this is a wonderful picture. where was it taken?

how cool! thank you for sharing this bobby!!!

oh my gosh bobby!!!!!!!! i am so excited for you!!!! so happy you got to do this. :D man i am grinning ear to ear.

i did a tandom jump years ago. i'll have look for my pictures. lol..didn't have digital then.

it's awesome huh? dumb question. lol

i am going to copy these to the ccf so everyone will see them.

hehe..can you tell i'm excited?
wow bobby AWESOME!!!!!!!

so glad your son got to jump too. :)

'Quest' Follows Exec's Mission For A Cure
By Michelle Archer

USA Today
12/17/07

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Contributed photo
Augie Nieto has proclaimed himself as a face of ALS and appeared on Jerry Lewis' Labor Day MDA telethon.
Sometimes it’s easy to pinpoint the moment things go wrong.

For fitness executive Augie Nieto, it started with a backache in 2004. Other signs followed: weakness, slowed speech, involuntary muscle spasms in his right arm, difficulty shaving. After being unable to hold on to a tow rope while waterskiing in early 2005, Nieto went to the Mayo Clinic.

Several tests and a few days later, Nieto returned home to Corona Del Mar, Calif., with a dreadful verdict. Doctors were fairly certain he had amyotrophic lateral sclerosis, also known as ALS, or Lou Gehrig’s disease. He was 47.

“Augie’s Quest,” co-written with T.R. Pearson, is about Nieto’s battle with ALS and his mission to find, if not a cure, at least an effective treatment for the disease that’s killing him.

ALS is a fatal disease that attacks motor neurons in the brain and the spinal cord, leaving the neurons unable to control muscle movement. As the neurons lose function, the patient becomes paralyzed. Because ALS victims go on thinking, seeing and hearing as well as they did before ALS, they are essentially trapped in a degenerating body. Most patients die of respiratory failure within three to five years.

Not only is there no cure, there is only one FDA-approved drug for ALS, and it, at best, extends life for a mere two or three months.

Nieto, who built a fortune by popularizing the Lifecycle exercise bike, had the means to seek no less than seven second opinions from coast-to-coast. A few short months and an unsuccessful suicide attempt later, Nieto digested what he learned.

No one knew what caused ALS, and research efforts were scattershot, underfunded and largely conducted in an uncoordinated vacuum, he decided. “That’s no way to run a business,” he says.

Nieto doesn’t dwell on the larger issue of the state of health care in the USA, but its dysfunction is revealed time and again.

Nieto has also proclaimed himself as a face of ALS, saying that as in business, it’s important for the disease to have a “brand.” Now in a wheelchair and experiencing speech difficulties, he’s appeared in The Wall Street Journal, on the “Today” show and on Jerry Lewis’ Labor Day MDA telethon.

http://www.hartfordbusiness.com/news4025.html

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A Cruzin Cooler, a motorized scooter with a cooler and a cup holder, is displayed at the Consumer Electronics Show (CES) in Las Vegas, Thursday, Jan. 10, 2008

"JJ's Route 66 Cruise for ALS" video

http://rwarn17588.wordpress.com/2008...for-als-video/

Readers may remember John "JJ" Bouma's tour on Route 66 to raise awareness about amyotrophic lateral sclerosis, aka Lou Gehrig's Disease, and raise funds.

A photographer traveled with the caravan to document other people near the route who have the disease. This video is the result.

Bouma died of ALS in December 2006, at age 54.

Before you turn off your computer...

How This Works
For charity specific donations , whatkindofworlddoyouwant.com will pay $1.00 per view of the designated charity’s videos - until the number of viewings equals the amount donated less .04 per view. The .04 expense is Revver.com's .03/view webhosting charge and California Community Foundation's (CCF) 1.25% administrative expense. OVER 95% of money donated goes directly to the chosen charity!

For general donations, whatkindofworlddoyouwant.com will distribute OVER 90% of money donated to the selected charities. This is determined primarily by the amount of views per charity and available funds. The 10% expense sinclude Revver.com's .03/view webhosting cost, CCF's 1.25% administrative expense and site maintenance.

Donations may be made in the name whatkindofworlddoyouwant.com or directly to any of the charities and site will acknowledge the donation in the its list of contributors.

Donations to whatkindofworlddoyouwant.com are tax deductible and payable to the California Community Foundation . The foundation's administrative expense is 1.25% of total donations and paid by whatkindofworlddoyouwant.com. Contributions to the California Community Foundation represent irrevocable gifts subject to the legal and fiduciary control of the foundation's Board of Directors.

Because you're on the second page

Buckley's Friends

Many thanks to Cultural Offering, which is a must-read site, for pointing us to the marvelous article that William F. Buckley Jr. wrote a few years ago about some of his close friends. An excerpt from the section on David Niven, who was suffering from Lou Gehrig's disease:

I remember one afternoon, coming back from skiing to go to work. He was there with his paintbrushes and hailed me. He wanted to tell me something. His face choked up with laughter. It was hard to make out what he was saying, but I managed. He had been in his car when stopped by the red light in Gstaad. An old friend who knew nothing about the illness was coincidentally stopped opposite him, headed in the other direction. He leaned out the window. "What have you got?" he asked David.

"I tried to get out to him," he had a problem with the words, "that I had amytrophic lateral sclerosis. He could hear me well enough but couldn't make out what I said. He yelled back just as the light changed. 'Oh? Well I've got a Lamborghini 500S!' " It hurt David to laugh, and that was the truly unbearable burden.