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-   -   East Coast TOS'rs (https://www.neurotalk.org/thoracic-outlet-syndrome/31805-east-coast-tosrs.html)

LinJane 11-08-2007 12:06 PM

East Coast TOS'rs
 
Maybe after the holidays we can get some east coasters together. So Cal gals sounded like they had a great time! If anyone is interested lets see what we can do. I live in central NJ. I know Mark and Di live in PA. Anyone else close by?? I'll travel to PA. Maybe we could get rates at a hotel. I used to stay at the Best Western by Geisinger before and after surgery. Pretty inexpensive and not bad place. Maybe we could get Dr. Togut to come!

Let me know. I'm supposed to see Dr. T. next week but I'm going to have to cancel. Something has come up with my daughter's school. Hopefully gettin getting another appointment won't be a problem.

DDayMBB 11-08-2007 05:41 PM

Hey Linda Throw in some cookies and and sure Dr Togut would be there for sure... do not know how many times you have seen him, though have to say that man likes his sweets:D than again... I wish I were in his shape he jogs miles every morning!!! I think it is you, Krankie, Di, you myself thats about it.. I kinda like the idea of the Bahamas :cool: though reality and between doctor appointments, let me know! I also know I am missing a lot of people so! Bahamas will happen this April come hell or high water, have to for our anniversary!

LinJane 11-08-2007 09:36 PM

Hey Mark I can come up your way. Sorry no Bahamas. My family and I are going to Disney the end of Feb. My oldest starts college next year as my youngest starts Kindergarten! Great planning! If Di can and we can get anyone else we can plan something. I didn't know Dr T. was a sweets guy! I'll bring him cookies when I see him. He's great! He did wonders for me. My life has been so much better since he did my surgery. The pain I feel now is NOTHING like what I went through before. I know you understand.

I just have to wait until after Christmas but it would be nice to meet as many in the area as we can. Thanks, Linda

jesp 11-08-2007 10:00 PM

Hi Linda,

Remember me? I live in Central NJ like you and we have the same neuro. I don't get a chance to post that often, but an East Coast meeting would be fun.
Jeanne

DDayMBB 11-08-2007 11:25 PM

Quote:

Originally Posted by jesp (Post 165694)
Hi Linda,

Remember me? I live in Central NJ like you and we have the same neuro. I don't get a chance to post that often, but an East Coast meeting would be fun.
Jeanne

Jeanne, nice however unforunate it may be nice hearing from anonother from another from the "area". and who knows maybe able to get something together... how 'bout down your way? like A/C?

DDayMBB 11-08-2007 11:38 PM

Quote:

Originally Posted by DDayMBB (Post 165720)
Jeanne, nice however unforunate it may be nice hearing from anonother from another from the "area". and who knows maybe able to get something

together... how 'bout down your way? like A/C? If we get enough people may get the Trop, Trump, etc.. or that to lend the use of a room out of good faith and PR for a couple hours, besides always a legitimate tax write off!!!

LinJane 11-09-2007 09:24 AM

Jeanne I do remember you. Haven't heard you around here in a while. Hope you are doing ok. I see Dr. P. alot. He's a funny guy.

Mark Anywhere is good for me, just after Christmas. I'm so busy right now. A/C sounds like a good spot. If we can get a few people it would be great.

Lin

gibbrn 11-09-2007 06:11 PM

Go f or it guys
 
I wanna come!!!!!!!!!!!!!!!!!!!!!:D:D:D

Can't afford the trip!! no pay right now.

but get together guys you will revel in amazing people and huge spirit and love!!!!! best thing it did for me was really personalize this place even more....I know you guys are my friends and confidants but meeting everyone made it even more special!!!!

love and hugs,
Victoria...pls excuse speling cat is on my lap and doesn't want to go...lol
Vic:hug:

Dolfinz 11-09-2007 09:39 PM

Hi everyone.. I am in Mass . A/C is too much for me right now but if anyone wants to do a New England one also that would be great.. Pennsylvania might be o.k. I have family in New Oxford-Gettysburg area.

tshadow 11-10-2007 08:14 AM

You all have just GOT to get one together. And informal at someone's house is best - the kind where you meet at a formal place and a doctor talks and controls it all - well, I just don't think that's condusive to the kind of bonds we've made in So. Cal. where we feel like family by the end of the afternoon.

I so much want you all to meet, as it has been THE single most important factor in my healing path. No joke.

mucker 11-10-2007 06:32 PM

Hi sounds like a great plan i would love to be able to meet yas. But i am just thinking here could we find a place half way between us and yous in the states. That way may be we could afford it better and it would not be so hard on any of us for the traveling. I live in Halifax and there are a few more from here as well as NB. Oh this is going to sound a little ignorant on my part but were is A/C and PA i have never heard of these short forms or i just don't remember them. The worst part is we learn a lot of American history and all about the states in school i do believe we learn more about your country then you are taught about us in school. Please don't take offence now that i am reading what i said it could be taken the wrong way so don't any one get up set. But what i am saying i just don't remember this any ways i think it would be a great thing for the people on the east cost to get together. It sounded like the west cost had a great time. If we are going to do this let me know if i can help with the plans in any way.:grouphug:

LinJane 11-10-2007 07:21 PM

Mucker Please do not feel ignorant. I know NOTHING about Canada. We are not taught anything about your country. I live in New Jersey. The East Coast. A/C is Atlantic City which is a major gambling town. PA is Pennsylvania, just west of me. I would love to see a map and see where you are located. we are close to New York State. If you could give me an idea where you are, maybe we could figure something out!! Linda

DDayMBB 11-11-2007 03:55 PM

Hell, the Bahamas was just a joke... hey we will work on a location and time frame maybe spring would work out better, not only road conditions, but also cold on our bodies:hug:, just a thought sounds like we have more voices from further north at the moment... maybe Conn. for a half-way point from what I see so far?

LinJane 11-11-2007 07:44 PM

Mark Mucker and everyother East Coast TOS'r I agree that Atlantic City, as much fun as it is, may limit some of our northern'rs. Connecticut sounds good. I also agree Mark that weather may become an issue. We are planning a Disney trip the end of Feb to beginning of March. After that I'm good! We should see if we can get a map and everyone pinpoint where they are located. I bet it would be very interesting for everyone to see.

Thanks for everyones interest, Hope everyone is ok. Linda

finz 11-12-2007 03:19 AM

As much as I'd love to go to AC.......it's not in the budget or my body's capabilities right now.

Are you from western Mass Dolfinz ? I know I used to know, but my brain isn't functiong :winky:

I'm in Marshfield, Mass (half way between Boston and Cape Cod). I'd be game to have a gathering, if you pretend not to notice my lack of housekeeping ability :o For anyone daring enough to risk frost bitten piggy toes, I have a hot tub :)

Dolfinz 11-12-2007 02:40 PM

Hey Finz... How are ya ?? I am Central Mass.. Leominster ( North of Worcester) Finz can you drive ? Maybe we could do somewhere Springfield or Conn. I'd be willing to drive some people if they can't drive....

dabbo 11-13-2007 11:47 PM

I have family all over that area (hartford/springfield) so if this get together comes along (and IF i have an income by then) i'd love to go.

horsemommy 11-14-2007 02:56 PM

A/C is practically in my backyard! I'm not sure when/where you all decide to get together. But keep me in mind.
I know I'm new to the board but could use some commiseration. The hubby just doesn't get it. (altho he suffers from RSD in his right ankle~you think he would have alittle sympathy)

Dolfinz 11-14-2007 04:10 PM

Hi everyone.. hope everyone is having a good week.. hope no pain !

Well, it sounds like we all may have to have different get together's !! I know I can't afford A/C.. and I know there are a few New Englanders here, so maybe the New Englanders can meet some where and the ones from like Jersey or Pa or that area( people who couldn't travel up North ) can meet and Maybe we could make an annual meeting somewhere ?? Some time in the summer ?? Just some thoughts that's all.. I would LOVE to meet EVERYONE but it's gonna be hard for me at least...

I hope everyone has a great rest of the week ! :hug:

LinJane 11-14-2007 05:22 PM

I agree, it will be hard to accomate everyone on the East Coast. Maybe, everyone who is interested can post where they live and we could map it out to see if we could atleast get a general area. If we have to have more than one than that's ok. Spring is good for me. My daughter will be going to College in the fall so summer will probably be busy. Also we own an Air Conditioning and Heating business so summer is very busy.

It may take awhile to pin point a time and place but we can try. Lin

olecyn 11-15-2007 11:19 PM

I am soooo excited
 
To hear the east coast TOSers are planning a good time together.
It just makes me ALL happy and joy, joy inside.
XXOO

tshadow 11-16-2007 11:13 AM

whoooo-hoooooo

whoooo-hoooooo

Good think I'm not coming, I'd end up sounding like Liz Taylor doing her immitation of a werwolf call! :eek:

finz 11-19-2007 04:40 AM

LOL Tamara :D

Dolfinz........Mostly, I can only drive a few minutes, around town, etc. I could drive longer if it's one way/overnight, so that I can take drugs after I get there (but then I can't drive home)

We could keep the AC gambling theme going....Foxwoods anyone ? I can take the bus there ;)

Dolfinz 11-19-2007 09:53 AM

Hi everyone !

Finz... Maybe I /we could think of something, I could drive out to get ya if need be.. Foxwoods... it's gonna depend on when.. financials are not yet right if ya know what I mean.. Let's "throw" it around a bit and see who would be interested ?...If someone wants to pinpoint where I am.. I am in Mass. (Leominster) north of Worcester..... Tam.. sorry your feeling yucky....

Hope everyone has a great pain free day... :hug:

LinJane 11-19-2007 09:55 PM

I have been alittle busy lately so haven't responded to this site lately. I am still interested to see what we can do. If we can wait until spring, that would be great. I am also not in a financial situation to do anything now. But, I really, would like to see how many we could get together. Thanks, Linda

Dolfinz 11-20-2007 10:07 AM

I think Spring is much better also.. the weather is a big factor for me I hate driving in the snow !

DDayMBB 11-21-2007 03:00 PM

From the sounds of things it just may be a good idea of having two different area and spring does sound like a good idea also. I would hate to leave anybody out due to location:(, I know just how my body feels and also how my finances stand. I kind of like Tams suggestion of a meet without a doctor, that way it is not structured and we could be ourseleves!

LinJane 11-23-2007 08:09 PM

Mark sounds good to me. It would be one thing if there was a doctor there in a friendly supportive way and not like a lecture. I would rather just get together and meet as many as we can in one place. Talk, and have a good time. Spring is the best time for me. Weather would make a big difference for driving and pain. Linda

Dolfinz 11-26-2007 08:28 PM

Hi everyone !!

Mark that is the way I would want to meet everybody too ! Just all of us and getting to know everyone! I think we need to keep this on the table but wait till Spring gets closer ???? I definately want to do something !


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