Buzzing/vibrating feet?
 

I thought I had read a post about this before, but my fuzzy brain can't remember where. A few days ago, I got a weird new sensation in my left foot. Now it has spread to both feet.

It's very hard to describe. At first, I thought my foot and lower calf were twitching really really fast. But then I looked at them, and you can't see anything happening.

It's like someone took one of those cell phones that's set to vibrate when it rings and is holding against my skin. It even pulses intermittently like a ringing phone. Anyone else ever experienced this kind of buzzing in their extremities?

Someone please tell me I'm not crazy. No, wait, in case I really am crazy, just tell me I'm not imagining this particular symptom. :D

fanfaire
:cool:

Someone keeps calling my feet too. I wish they would stop because for the life of me, I don't know how to answer!:confused: I have the same exact feelings you are describing--a cellphone on vibrate and it will not go to voicemail, just keeps ringing and ringing and ringing..................:eek:. Mine goes in streaks. The last few weeks, I have been having this little spasm up the back of my left leg. It's not really bad, I can't say it doesn't hurt, but it's not very painful--it like "wake's me up" type of thing, you know, "notice me, I'm here!" Sometimes it is very mild, sometimes it is stronger and feels like it starts at my ankle and runs to my knee, that one hurts more, yet I know when it gets to my knee, it's over. I think it's just a nerve glitch.

The vibration is the easy part to deal with though, I would rather have it over pain anyday, I bet you agree!

Deb do you think it would help to put your feet on the do not call list?

I think the vibrating cell phone is a great descriptor! I get it in my feet and lower legs. The vibrations are extremely fast though. And yes, darlindeb25, I agree wholeheartedly that it is much more preferable than the pain. Although I don't know if that answer would change if the vibrations lasted all day.

I just checked, no one is calling me right now! :D

Buzzing...
 

...I think the buzzing sensation is pretty common among pn sufferers. Whether it's a good or bad sign depends I suppose , on where you may be in the degeneration/regeneration phase of it all. I notice more buzzing sensation as I have improved , this being about my sixth month of the malady. At least that's the way it seems for me. To my knowledge and what I have gleaned from others on this board, regeneration starts fairly quickly. I suppose the big mystery is what is going on at the moment? So ,it's another symptom of many that pn presents ,and I suppose if you wanted to know for sure it would be a punch biopsy, but is it worth the trouble ?

Fanfaire:

Yeah, we all get the buzzing, (some worse than others). I don't get it at all since I'm on the B-12 Methyl, but when I'm stressed, I get the burning.

And I agree with HeyJoe. The next time your feet feels like a cell phone, just tap your leg, tell it: "you've got the wrong number, I'm putting you on the DO NOT CALL LIST".

Hey, you never know!!! lol

Melody

Buzzing happens to many. It can also happen with central nervous system damage. Many have it as nerves degenerate, and some have it as nerve regenerate.

I had it briefly early in my regeneraiton, but not during my decline. Go figure.

rose

try soaking in epsom salts...
 

you might be totally amazed at how much better the feet feel!

It is cheap and easy to do for what you get in return!

I used to describe it as bees or flying bugs under my skin.
But its the little gremlin that shoots out from behind the chair-legs
while I'm watching TV, and jabs me with a 5" long ice-pick
a few times, HARD!!.... that really gets 'my goat'.
I've tried swatting with a fly-swatter or a rolled up magazine,
but I can never seem to catch him. :winky::cool::(

that gremlin gets around, i get the same ice pick stabs, actually respond verbally at times spontaneously.

Bravo, Dan!!!
Cathie

To Dan P
 

Did you ever have or ever get over the dreadful fatigue and/or stomach/gut issues?

I could probably have your wonderful attitude of just living with it and not finding a cause, if I only had the burning, buzzing, icy feelings, fasciculations and periodic agonising joint pain but felt well enough in myself on an everyday basis. However the fatigue and stomach issues are making life more difficult causing me a great deal of the time to be lethargic with no motivation to do much at all - which frustrates me no end!

Perhaps I'm a wimp and a wuss!

Ok, I'm recording a message to my feet: You have reached a number that is disconnected. :D:D:D

I guess this is another thing to mention to the folks at Mayo next month. Weird that I've never experienced it before in the 10 years I've had neuropathy. But the "spider webs on the skin" sensation that started a few months ago was new too.

Yeah, there are definitely worse things than having your feet vibrate without your permission. Like drop dead autoimmune fatigue, forget-how-to-spell-my-own-name brain fog, stomach muscles on strike, etc. But the exhaustion, cognitive dysfunction and gastroparesis I've had long enough to get used to, whereas the neuropathy is somewhat unexplored territory for me.

Thanks for the replies. Guess there are a lot of you in my area code. :D:D

fanfaire
:cool:

Hmmmmmmmmm the number has been disconnected:pworks for me, but then again--this body never listens to anything I tell it!!!!!:wink:

It's good to know that the vibrations mean those nerves are either getting better or worse, that does make it so much easier to understand!!!!:eek: Just kidding guys, I have heard this many, many times.

:grouphug:I think it's great we can share this info and still laugh with each other.

I have the vibrating cell phone sensation too. Usually in feet and ni my calves, sometimes i touch the part that is vibrating and it goes away. This type of sensation in completely normal. I agree with all, just ignore the call:)

I agree it is important to address chronic pain and to try to do what you can to either get rid of it or make it manageable. Unfortunately, I have exhausted my options because my gastroparesis (which I suspect is related to the PN) prevents me from taking most pain medication, and I am allergic to adhesives, so no patches. So I make do with topical remedies, alternating rest with activity, and mostly grinning and bearing it.

It can be quite difficult to find a doctor who knows their stuff and will take you seriously, but I agree it is worth the effort. And I am hoping the Mayo guys will have some treatment ideas that I can tolerate so I can do things that will help me even more, like walk further.

It would be nice to get rid of not only the vibration stuff but also the really sharp sudden pains that make me yelp.

fanfaire
:cool: