Greetings from Anatevka
 

What a delight to find this forum! My name is Rivkah and yes, I am really TevyesDaughter. I grew up on a farm, and yes, I am Jewish.
I was DX with RSD/CRPS six months after a work related injury. Workman's Comp is SLOWLY dealing with this, but I do have one question:

Has anyone experienced dental decay and loss of bone mass in the jaw? This has suddenly happened to me and according to my dental x-rays taken just prior to the accident, I had one cavity, now the Dentist is talking about root canals :eek:, bridges etc....

Well, that is it for now, thanks for allowing me to join in and I look forward to "meeting" all of you!

Be well,
TevyesDaughter

Hi - welcome to this forum,
My name is Alison, I am 12 years old and I suffer from RSD in my left leg. I used to have RSD in my right arm but it is now fully recovered - thankfully.
I developed RSD in my leg after an ankle sprain in March, I was diagnosed 4 months later. My foot is rotated out to the side and I am unable to move it, due to Dystonia. I also have muscle spasms, swelling, hypersenstivity, colour changes, temperature changes, chronic pain (which is a 9 and a half out of 10), balance problems and many more symptoms. When I was diagnosed my PM doctor performed a Guanethadine nerve block which caused me to lose my balance.
2 months after diagnosis my doctor put me on Amitriptyline to try and help me sleep but this didn't work, it caused me to have a nasty side effect of 'blurred vision' and resulted in a knock to my right arm, I was diagnosed with RSD 2 weeks later.
I do have trouble with my teeth, I find that they chip a lot and they are also quite sensetive.
Take care and if you need anything I'm here
Alison

Helllo Rivkah,


With RSD/CRPS there is often loss of bone density/osteoporosis so this could explain your jaw problems. Teeth do react very quickly to any illness in the body, with RSD and the medications we take this just makes matters worse. Smoking will also cause discoloured, unhealthy teeth.
I had a beautiful white, healthy smile 10 years ago. Now I have discoloured and chipped teeth as do just about most people I have met with RSD/CRPS.
I think taking calcium and fluoride supplements may help and of course good Dental Hygiene will go a long way in keeping our smile dazzling.:rolleyes:

Nice to meet you and lots of luck with your teeth, I hope you have a really good and understanding dentist. Mine is since I supplied him with 6 pages of information about RSD.
Love Tayla:hug:

Thank you so much, he put me on flouride supplements and a flouride wash. I am looking for a dentist in the NYC / Westchester, NY area that is familiar with RSD and dental issues.
I found an interesting article on the web: http://www.homestead.com/robertgschw...nalDental.html

I am on workman's comp and my Attorney is applying for them to cover the cost of the dental issues.
Thank you so much,
Rivkah

Dentistry
 

Hi there,
Many thanks for the link it is really interesting. Tell your PM doctor (if you have one) about the dentistry treatment you need and see what he says. Also inform your dentist about RSD.
It is good that you wont have to pay for the treatment.
Tayla is right - RSD does cause bone density so that could be why your teeth keep chipping - talk to your doctor about it, maybe he could arrange a bone scan just to put your mind at rest.
Take care and it is nice to have a different religion on Neurotalk
Thanks
Alison

Hi Rivkah!
I just want to welcome you here. I wish you the best of luck with your teeth!!

Dear Alison,
You are such a ray of sunshine. I relate to you in many ways, I had Juvenial RA from the age of 8 through my early adulthood, it really stinks when we are young and get hit with health issues that change our lives so early. I love your attitude, you appear to be quite the cheerleader and show your kindness, compassion to us all.
Thank you again for such a warm welcome!!
Rivkah

Tevyes daughter,
 

Many thanks for your kind words, I really appriciate it. I am so sorry that you have had health issues since the age of 8, yes it does stink.
RSD is horrible for anyone but especially for young children like myself, I am unable to go to school, I haven't seen my friends for ages (I have seen a few of them but not many), I can't go shopping etc. I can't do things that normal 12 year olds do, it gets me really mad. I am sure you know how it feels. I just feel like I am too young to be dealing with RSD.
If you need anything I am here, just PM me or reply, I am happy to help you
Pain free hugs
Love
Alison
-x-

Hey Rivkah - welcome!!! I have lost bone mass from my jaw as well which means that my teeth are moving around in my mouth which is really annoying - it means that even though I have worn braces and stuff my teeth are going crooked. Apparently I've lost the bone mass from RSD and my meds.

Ali - I thought you were back at school now? for 2 hours a day? hope your knee improves - try and keep it as mobile as possible and do desensitisation etc on it.

Love

Rosie xxxxxxxxx

Thanks!
 

Wow! Sorry to hear about this. I am just confused, the jaw bone on the left side is pretty well shot, so I am losing my molars. On a good note, makes my cheek bones look very high :rolleyes: What do you mean by your teeth are moving around in your mouth? Are they loose or ???
All of this has happened so fast, who knew a fall could do so much damage?
Thanks for all the warm welcomes!
Rivkah

Dental issues with RSD
 

Rivkah,
I am scared to go to the dentist due to the state of my teeth. 2 of my teeth are chipped, one of which is really bad and painful. I have 3 teeth that are wobbly. I only started having problems with my teeth after I was diagnosed with RSD, I do believe that the RSD/Medications cause teeth problems. I think I also suffer from gum disease but I am not sure.

I found this on 'google' it is an interesting article and maybe you could ask your dentist if he could do the following:
My dentist follows a procedure to prevent flare ups of CRPS. He uses cream to deaden the area before injecting. Then uses a non adrenaline local. He also injects local again at the end of the treatment which is kept short. On my last visit he didn't do this as it was just a check up. Unfortunately I had a facial flare up as a result of handling and cleaning. In future , even for check ups we'll be following the procedure we know works to prevent a problem.

This is also an interesting website about dental issues with RSD/CRPS:
http://www.rsds.org/3/treatment/rsd_dentistry_brown.htm

Take care
Love
Alison

Thanks Ali!
 

Dear Ali,
You are a GEM! :) I see so much of myself in you, when I was younger there was no internet, so I remember being in UCLA Medical Center for two years, going home 2 times during that period. I did not see my parents very often as they had a farm to run, my siblings and a 200 mile drive. Books became my best friends and I read everything I could get my hands on, yes, the Doctors finally allowed me access to the medical library...so interesting stuff there!
Enough about me....I just see a glow about you, a caring, concerned and gracious young woman, we should all be such. Your attitude will carry you far, trust me on this on.
As my father use to say: "Riv, we are all a little bit broken, some of it you see, and some of it you don't. With you little bit, it is obvious, but remember, no one is without something." So, not only was he a farmer of the land, he was a farmer of lessons.

Be well Ali and keep shining for us all,
Riv:hug:

Rivkah,
Many thanks for your kind words ((hugs))
I am very similar to you, I love reading and learning about new things. I am always reading my moms books - even though they are for adults lol. I want to be a vet when I grow up, but this seems impossible at the moment due to my RSD, I love animals and I own a few myself.
Thanks
Love
Alison

To Ali....Vet
 

Dear Ali,
I grew up on a farm, so being around animals was part of life. What sort of a vet would you like to be? I always thought working with livestock was where I would end up and now, here I am in New York.

What are you reading at the moment? Don't you love the smell of books? The initial crack of the spine when you open a new one? Currently I am reading "The Other Side of the Story" it is about giving people the benefit of the doubt.

What sort of things are you able to do? Do you get out much? How about friends and doing "girl things"? Perhaps I should have written to you in private, I am new, so forgive me.

Looking forward to your reply,
Riv

Oh my gosh, I just read your profile....I am giggling, I use to have a couple of chinchilla's, I thought they were both male....on the 4th of July, I awoke to a new arrival, he was the cutest thing! Guess I found out that Gus was female! They are such great pets, so playful and full of life.
Riv

Riv,
Many thanks for your replies.
I found the story funny about your chinchillas, I just have 1 so I wont wake up with babies, she is a Black velvet called Tabatha. I got her from a rescue centre, I also own a springer spaniel puppy called Jack (we had to have our 13 year old springer spaniel put to sleep a couple of months ago), a pair of hamsters that live together called Dolce and Gabana, 1 hamster that lives on its own called Mishka (called her that because she's a russian dwarf), and finally a parrot called Sparky, I have a lot of animals as you can probably guess.
I would like to be a Veterinary nurse working with all sorts of animals. I like cows, goats, sheeps, horses etc so maybe I would want to work with them. What sort of animals did you own on the farm? I am always watching animal programmes, my best is animal cops but I find it sad too

I am currently reading a teenagers book by Jacqueline Wilson called Kiss, it is really good. I also like books by Patricia Cornwell. I am reading a lot more books due to not being able to do much

I don't go out a lot due to my pain levels (wind, rain etc causes me to have really bad pain), I can't go to school due to the pain either. I have balance problems so I am in a wheelchair.
Some of my friends come up to my house, they are very understanding. Sometimes I go to McDonalds with my friends, they are very helpful and push me around in my wheelchair - I am very grateful for that.

Take care and thank you
All my love
Alison

Sorry I have not been around
 

Hi Ali,
Sorry I have not been around much, I have been stuck in bed...yuck. I think your house sounds like a small zoo! Keep up the reading, it is good for the soul and the brain! I am reading a book entitled "From the Otherside", it is about giving people the benefit of the doubt and how it affects our inner being. I have not done much "pleasure" reading and I guess a trip to the library would be welcome, thankfully our library has an online system so that helps some.
You take care of yourself!
Rivkah

Hi Rivkah,
I sure hope you are feeling better now. RSD IS tough.
I love reading but I find it hard to concentrate these days due to the pain I am in:mad:, but I am still trying my best to read. I am currently off school and feel that I am missing out on a lot of my education. I miss my friends a LOT, and I even miss my teachers and tutors!

Your not kidding my house is a small zoo, lol. I am having fun with my new puppy, Jack, but it is really annoying when he stands on my leg that is affected by RSD:(
Take care
All my love
Alison

dentistrt
 

Hi Rivkah
You may want to check out RSDHope.org They have an article or 2 about dentistry and RSD- You should be careful with the root canals because it can cause the RSD to spread into your mouth- Totally stinks! Hope this is helpful and make sure u use a dentist who knows RSD

Hello deb
 

Rivkah,

Deb you just remind me of something that happened to me... I had to have a root canal on the bottom let side and that is what did cause it to speard in my mouth... just recently moving to the right... You should be very very very careful...

Good luck to you!

Much love and hugs to all J!:hug::hug::grouphug:

Thank you
 

I am still trying to get names straight around here :wink: Thank you for the advise, the wisdom and experiences you have shared.
Regarding the dental issue, I am really concerned about the bone loss in my jaw..I have decided NO ROOT CANALS, they can pull them if that is what is needed, but I just cannot put myself in the position of causing more harm than good.

Ali: I am so excited to hear about the possiblity of home tutoring for you! YEAH!!! I missed two straight years of school when I was in UCLA Medical center as a child, all I can say is when I left there and returned home, my reading level was at a Sophomore/University level, not too bad for a 10 yr old. Now my math and other subjects, well, let's just say, it took me a long time to catch up.
So, I hope they are able to work this out for you, I know you miss your friends and it is difficult trying to maintain those friendships when you are sick and people do not always understand. Keep your chin up.:hug:

Fondly,
Rivkah

Hi,
 

I just wanted to welcome you to the forum.

I lost all of my bottom teeth right before I got my diagnoses of RSD, but I knew I had the RSD due to a friend on the TOS forum helping me figure it out. They all had to be pulled due to teeth problems. It took 3 sets of teeth to get a set that fits half the way right due to no gums. They went bad so fast it was unreal.

There are several on here that have delt with RSD and dental work so I know you have or will get some good info. I would make sure like others said that you find a Dentist that knows about RSD.

Hope you enjoy being here with us. And New York? I have always wanted to see New York. Hope you are enjoying it.

Ada

I have trouble with grooving at the gumline on the outside of all the teeth except the very front. It appears to be caused by "setting" my jaw too tightly probably as a reaction to pain.