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hurtsobad73 12-20-2007 02:18 PM

I need severe help
 
I have been dx with Fibro/CFS/ME and IBS. However within the last month I have been having a problem with vomiting for no reason. It isn't necessarily after I eat or anything, I could just be walking or cleaning house or even out doing errands and all of a sudden w/o warning (no stomach cramps or pain) I just vomit. (sorry so descriptive). It is like a baby when they have projectile vomiting.

Also I have been having severe diarrhea. I drink plenty of water so that I don't get dehydrated, but today I have developed a fever and just feel awful. I keep verburping (vomit and burp) the food that I have had two and a half days ago. Even though I have had diarrhea it just seems like my stomach is not digesting the recent food that I have eaten.

I am sooooo sorry for being so descriptive on this, I just didn't know what other words to use or how to explain it. I go see my gastroenterologist on December 26, but I just am worried about what is going on.

Does any one have any ideas/suggestions/comments. Please I am begging here. Anything will help.

Missy :Help:

Jomar 12-20-2007 02:57 PM

Can you put a call in to dr - sounds like 6 days might be too long to wait if this continues.
Often they will hold spots open for urgent appts or they can squeeze you in.
Or go to an urgent care center if they can't see you.
Or even ER?
Especially if you are sure it's not a flu or something like that- I wouldn't want to go 6 days in that condition - especially during the Holidays.
It could be something simple and treatable or something that needs to be dx'd and treated.

painfree 12-20-2007 06:00 PM

Quote:

Originally Posted by hurtsobad73 (Post 178633)
I have been dx with Fibro/CFS/ME and IBS. However within the last month I have been having a problem with vomiting for no reason. It isn't necessarily after I eat or anything, I could just be walking or cleaning house or even out doing errands and all of a sudden w/o warning (no stomach cramps or pain) I just vomit. (sorry so descriptive). It is like a baby when they have projectile vomiting.

Also I have been having severe diarrhea. I drink plenty of water so that I don't get dehydrated, but today I have developed a fever and just feel awful. I keep verburping (vomit and burp) the food that I have had two and a half days ago. Even though I have had diarrhea it just seems like my stomach is not digesting the recent food that I have eaten.

I am sooooo sorry for being so descriptive on this, I just didn't know what other words to use or how to explain it. I go see my gastroenterologist on December 26, but I just am worried about what is going on.

Does any one have any ideas/suggestions/comments. Please I am begging here. Anything will help.

Missy :Help:

Hi Missy,

"Surprising Connections
Doctors Travell and Simons discovered that other symptoms from abdominal trigger points can take the form of nausea, chronic diarrhea, loss of appetite, projectile vomiting, and simple indigestion..."



Good Luck

Abbie 12-20-2007 06:57 PM

Missy...

My sister was doing this same thing as you described and was diagnosed with severe gerd (acid reflux disease).


I don't know if that is what you may have or not.. I'm NO doctor... but it may be something to check into...


Definitely do get it checked and SOON!


:hug:
Abbie

hurtsobad73 12-20-2007 07:46 PM

Thank you so much. I looked at the site given and it sounds like that could be the problem, but this is so constant and today has been a really bad day. I can't hold anything down or in for that fact. I am really feeling like something may be wrong. I am waiting for my husband to come home and see if he thinks we should go to the ER.

Thank you all for your post. Anyone else that has anything to say, please feel free to post.

Missy

painfree 12-22-2007 10:55 AM

Cyclic Vomiting Syndrome
 
Quote:

Originally Posted by hurtsobad73 (Post 178747)
Thank you so much. I looked at the site given and it sounds like that could be the problem, but this is so constant and today has been a really bad day. I can't hold anything down or in for that fact. I am really feeling like something may be wrong. I am waiting for my husband to come home and see if he thinks we should go to the ER.

Thank you all for your post. Anyone else that has anything to say, please feel free to post.

Missy

Missy,
You should be checked out by Your Dr. or ER, if the examination and test results are idiopathic (without cause) then consider Myofascial Trigger Point Therapy.
You may also be interested in reading this case study at:

http://www.painbustersclinic.com.au/...s/vomiting.htm

by Gary A Clark, myotherapist

"Cyclic vomiting syndrome may sometimes be caused by the 'belch button' - a little-known or undertood trigger point:

It all started when Janet, the lady in question, had to undergo surgery to have fibroids removed.

As she’d had abdominal surgery some years before the surgeon decided to re open the old scar down the linear alba, that is right down the middle of the abdomen.

The operation went well, even though the fibroid was rather large, as the surgeon said afterwards almost as big as a football; still all went well until the third day into recovery.

That is when the vomiting started, every thirty minutes, regardless of whether there was food in her stomach or not. Of course the first suspicion was that a piece of intestine was caught up on the wound closure, still x-rays showed nothing, neither did ultra sound, MRI, or any of the other tests they did, and still the vomiting continued round the clock.

Her husband Frank was so concerned that he spent all his spare time with her, so much so that the ward sister set up a camp stretcher for him so he could sleep in her room.

The doctor in charge called in specialists to solve this problem, and still the vomiting continued. Every morning a collection of five or six doctors would gather at the foot of her bed and discuss the case, then leave, without so much as even speaking to either the patient or her husband.

After this had been going on for several weeks, Frank collared the doctor who seemed to be in charge and said to him.

“ Correct me if I am wrong, but I gather that you believe that there is an obstruction to the intestine that doesn’t show up on the x-rays.” The doctor agreed that this was so.

“ Then why don’t you operate to correct it?” Frank asked.

“Oh we couldn’t do that,” the doctor said, “she is too weak and probably wouldn’t survive the operation.”

As Frank said to me much later, “That came as something of a shock, I realized that my wife was starving, and dehydrating and no one could help.”

“So what are you going to do” he asked the doctor, expecting some profound answer to the problem.

“We are waiting,” said the doctor, “sometimes nature fixes these things itself.”

As Frank said to me afterwards. “I was stunned, here we had a modern hospital with all the latest equipment, and six of the states top specialists, and they were waiting for nature to fix it!” “I can tell you, on that day my faith in the medical profession reached an all time low.”

After eight weeks of vomiting it did actually stop one day, so they discharged her as quickly as they could. And just as well too because 48 hours later it started again, but this time Janet stayed home at her own request. As she said, “Why go back they cant do anything for me, and my bed at home is much more comfortable than a hospital bed.”

After two more weeks of repeated vomiting, Frank came to me as a friend, with the problem, wanting to know if I knew of any treatment that just might help.

I remembered seeing a mention of “projectile vomiting” mentioned in the Travell & Simons Trigger Point manual, so I looked it up. (Its in volume one, chapter 49: abdominal muscles.) Travell calls it a “Belch Button” she says

“The Belch Button is a trigger point (TP) that is uncommon but may be of critical importance to the patient who has one. It is found on the left or right at or just below the angle of the 12th rib. When sufficiently active, this TP. Causes spontaneous belching and in severe cases projectile vomiting, which can be deeply embarrassing and a serious postoperative complication."

Could this be the cause of the problem, after all it is an abdominal trigger point and it’s the abdominal muscles that contract to cause vomiting. I decided to check it out and see.

I went to their house, Frank seated me in the living room while he went to get Janet. She arrived a few minutes later carrying her vomit bowl in front of her, (projectile vomiting gives you no warning, so you have to be always ready). As she approached a vomiting episode struck, and she turned her back on me presumably to avoid splashing me. I thought "well, this is it!."

I rose to my feet stepping up to her wrapped my left arm around her waist and pressed the first two knuckles of my right hand into her back just either side of the spine at about the 12th rib.

The results were dramatic, she stopped vomiting instantly, mid heave!!!

So we stood there with my knuckles in here back and an arm around her waist and waited for it to start again, after about a half a minute she turned her head to look at me, with tears in here eyes, she said “ I think it’s stopped”

That was seven years ago and it still hasn’t returned, I think maybe it really has gone for good.

It’s at times like these that I feel truly privileged to be able to help.

I sincerely hope this information may help someone else with a similar problem.

Gary

PS. Thinking back on this episode it sometimes amazes me that I could do in 3 seconds what the doctors puzzled over for weeks. Still to me the real heroes are Drs Travell & Simon. They worked for forty years researching muscular trigger points and then wrote the books so that people like me could use their knowledge to help others.

They are my heroes.

about the author: Gary A Clark is a myotherapist ..."

Good Luck and Go Steelers

hurtsobad73 01-07-2008 06:39 PM

painfree...thanks
 
I wanted to thank you for the information about the "Belch Button". It truly is real. I see a massage therapist weekly and I asked her if she knew anything about it and if she understood it. She does. So she has been working on me for the last two weeks and I haven't vomited once. She is only concerned because she doesn't know if doing it w/o me having a episode with in the last 24 hours means that it worked or if it just quit on its own. So we are going to skip that part of the treatment this week and see if the symptoms return.

Thank you so much and WHAT A BUMMER ABOUT THE STEELERS! lol

m

SarahO 01-07-2008 07:37 PM

hmm-
 
I would go to the Seeking Doctors section here and ask for a doctor in oyur area.


I had all of those acronyms & more- IBS, CFS, MCS, TMJ, IC, RLS, FMS
and it was Lyme disease, HME Ehrlichiosis, Babesiosis & Bartonella. Today
I am 100% symptom free today and it is sooo nice. I was in chronic agony and never thought I would have a day wihtout pain.

I am the support group facilitator for SC County, CA and yours is a very, very common presentation. Gerden variety TBD. Seriously. I would try an LLMD, a Lyme Literate MD. If you don't want to do that I would make sure you are tested for

Human Monocytic Ehrlichiosis which can cause IBS symptoms
Human Granulytic Ehrlichiosis
Babesiosis- Microti & MO1
Western Blot Lyme disease- and get the bands (39 kda is species specific)

Seriously, it could easily be Lyme & TBDs,
Best wishes,
Sincerely,
Sarah

SarahO 01-07-2008 07:45 PM

p.s.
 
p.s. i had vomiting fits and fevers too- it was awful-


Quote:

Originally Posted by hurtsobad73 (Post 178633)
I have been dx with Fibro/CFS/ME and IBS. However within the last month I have been having a problem with vomiting for no reason. It isn't necessarily after I eat or anything, I could just be walking or cleaning house or even out doing errands and all of a sudden w/o warning (no stomach cramps or pain) I just vomit. (sorry so descriptive). It is like a baby when they have projectile vomiting.

Also I have been having severe diarrhea. I drink plenty of water so that I don't get dehydrated, but today I have developed a fever and just feel awful. I keep verburping (vomit and burp) the food that I have had two and a half days ago. Even though I have had diarrhea it just seems like my stomach is not digesting the recent food that I have eaten.

I am sooooo sorry for being so descriptive on this, I just didn't know what other words to use or how to explain it. I go see my gastroenterologist on December 26, but I just am worried about what is going on.

Does any one have any ideas/suggestions/comments. Please I am begging here. Anything will help.

Missy :Help:


Silverlady 01-08-2008 12:37 PM

Gastro?
 
have you seen the gastro before? ...or is this a first time trip for you?

Billye

Ellie 01-08-2008 01:15 PM

Missy,

Have you ever had any abdominal surgeries? (Anything between the breast and groin area)

JustMeg 01-08-2008 01:39 PM

For Hurts
 
I'm so sorry you're having this problem, vomiting isn't an enjoyable symptom.
I'm no Doctor, but I have to agree with the other poster who mentioned lyme disease.

The syndromes and symptoms you describe are CLASSIC lyme and co-infection mis-diagnosis'. This disease is treatable and your quality of life can greatly improve if you receive correct treatment. I've been there myself.

It requires seeing a lyme disease doctor, one well versed in treating the disease. There are many of them, ALL over the Country.

If you'd like a referral to a Dr in your area, I'd be glad to give you that info., just let me know here.



**** LYME DISEASE SIGNS & SYMPTOMS****

If infected, you may experience a few or many of these symptoms and they may come and go. This list is not intended to be used for self diagnosis, however if you suspect Lyme disease, contact your physician for a complete evaluation.


The Tick Bite

If you get a rash it may be:

Raised, hot to touch, itchy, crusty, or oozy
Circular, spreading out, oval, triangular, or long-thin line

Disappear and return

At the site of the bite or on other parts of your body

Note: You may never see a tick or get a rash and still be infected with Lyme disease
Head, Face, Neck

Headache, mild or severe

Facial paralysis (Bell's palsy)

Tingling of nose, cheek, or face

Twitching of facial or other muscles (motor tics)

Jaw pain or stiffness (TMJ like problems)

Neck is stiff, painful, creaks or cracks

Sore Throat, swollen glands

Hoarseness or vocal cord problems

Sinusitis or increase in allergy symptoms

Difficulty chewing, swallowing, speaking

Change in smell, taste

Unexplained hair loss
Eyes/Vision

Double or blurry vision

Wandering or lazy eye

Drooping eyelid

Vision changes incl. blindness, retinal damage, optic atrophy

Red eyes

Conjunctivitis or "pinkeye"

Floaters or spots appearing in the line of sight

Pain or inflammation of eyes, or swelling around eyes

Oversensitivity to light

Decreased perception of light or color

Flashing lights
Ears/Hearing

Decreased hearing in one or both ears

Pain in ears

Ringing or buzzing in one or both ears

Sound sensitivity
Digestive and Excretory Systems

Diarrhea or constipation

Upset stomach (nausea, vomiting, pain)

Irritable bladder (trouble starting, stopping)

Unexplained weight gain or loss

Loss of appetite, anorexia
Musculoskeletal System

Joint pain, swelling, or stiffness

Stiff neck

Shifting joint pains

Muscle pain or cramps

Burning in feet

Shin splints

Drooping shoulders

Loss of reflexes

Poor muscle coordination

Loss of muscle tone, muscle weakness
Respiratory and Circulatory Systems

Shortness of breath, cough

Difficulty breathing or pneumonia

Chest pain or rib soreness

Night sweats or unexplained chills

Heart palpitations, extra beats or pulse skips

Heart blockage, heart murmur, valve prolapse

Heart attack

Swelling or enlargement of heart

Diminished exercise tolerance
Neurologic System

Burning or stabbing sensations in the body

Weakness or paralysis of limbs

Tremors or unexplained shaking

Seizures

White matter lesions

Pressure in head

Numbness in body, tingling, pinpricks

Poor balance, dizziness, difficulty walking

Increased motion sickness, wooziness

Lightheadedness, fainting

Stroke

Meningitis

Encephalopathy (dysfunction of the brain)

Encephalomyelitis (inflammation of the brain & spinal cord)
Psychological Well-being

Mood swings, irritability, or extreme agitation

Depression and anxiety

Personality changes

Depersonalization

Malaise

Suicidal thoughts (rare cases of suicide)

Anxiety/panic attacks

Aggressive behavior or impulse violence

Obsessive-compulsive behavior

Bipolar disorder/manic episodes

Schizophrenic-like states

Dementia

Eating disorders

Increased suspiciousness, paranoia/hallucinations

Disorientation (getting or feeling lost)

Feeling as if you are losing your mind

Overemotional reactions, crying easily

Disturbed sleep: difficulty falling or staying asleep,

too much, too little or early awakening
Mental Capability

Forgetfulness, memory loss (short or long term)

Poor school or work performance

Attention deficit problems, distractibility

Confusion, difficulty in thinking

Difficulty with concentration, reading, or spelling

Disorientation: getting lost or going to the wrong place

Difficulty with speech (slowed, slurred or stammering)

Dyslexia-type reversals, Difficulty with writing

Word retrieval problems (can't remember words/stop mid-sentence)

Forgetting how to perform simple task

Problems with numbers
Reproduction and Sexuality

Loss of sex drive

Sexual dysfunction

Females only:

Unexplained menstrual pain, irregularity

Unexplained breast pain, discharge

Endometriosis

Reproduction problems: miscarriage, stillbirth,

premature birth, neonatal death (rare),

congenital Lyme disease (passes from mother to fetus)

Males only: Testicular or pelvic pain
General Well-being

Decreased interest in play (kids)

Unexplained weight gain, loss

Extreme fatigue, tiredness, exhaustion, poor stamina

Swollen glands

Unexplained fevers (high or low grade), sweats, chills, flushing

Continual infections (sinus, kidney, eye, ear, etc.)

Symptoms seem to change, come and go

Pain migrates (moves) to different body parts

Early on, experience a "flu-like" illness, possibly not feeling well since

Exaggerated symptoms or worse hangover from alcohol
Skin Problems

Acrodermatitis Chronica Atrophicans (ACA)-

degenerative and chronic skin condition that leads to atrophy of the skin

Benign tumor-like nodules
Other Organ Problems

Liver infections/abnormalities

Enlarged or tender spleen

Underactive thyroid glands

Bladder & kidney problems (including bed wetting)

CRITTER 01-08-2008 04:07 PM

Sounds like reflux caused by a hiatal hernia. I have one, I bloat and my gut's puffed out huge mosta the time and the hernia makes me choke, it kinda feels like ur stomach's in your throat. I have acid reflux really bad, sometimes vomit stomach acid & blood. Dietary changes are needed, gaviscon helps, and elevating your head of your bed 6", no food too close to bedtime, losing some weight, even 5 pounds can help, and since you already have IBS, I'm glad you're gonna check this out. You might have ulcers, C-Deficile, any number of things...or a tummy bug. Guts are miserable beaties aren't they!? Can't live with em, can't live without 'e,! I wish you the very best & hope you start feelng lots better!!!
Take care!
Hugs!
Critter
P.S. when your back's out, does your gut plague you with pain, bloat, cramps, etc? Mine does...I wondered if others deal with that. It makes me have a lot of trouble breathing too & feel panicky because of it.

BEGLET 01-08-2008 05:59 PM

Gastra
 
Hi - as Silverlady mentioned - a GI doc - a GOOD one - is a must! The fact you are vomiting old food suggests that your stomach is not processing it - and could be suffering from lack of normal contractions - which is called "gastroparesis".... Can have many causes - diabetes, nerve damage, post viral, or just idiopathic..... Its important that the doctor understand motility issues - I've had this for six years and live on liquids only with a combo of nausea and motility meds all day long... I had good docs in the beginning when I got it (I have neruopathy and that seems to be what caused it) - there are tests such as a gastric empty study, manometry, etc. that can look at if your stomach and intestines are pushing food thru correctly... Also, when was your last brain scan? Vomiting can also be caused by triggers there - and definately worth checking into asap.... (I lost 30 lbs in 2 months and sure could not afford more then 10) - after all these these years I've only been able to gain back 10 - so be agressive in trying to find treatment!!!! I hope you feel better.....

HEperson 01-09-2008 11:59 PM

Have you been worked up for celiac disease yet? It can produce a lot of CFS-like symptoms!

UC San Diego has a good site on which tests to get for it.

I am sorry you are having such unpleasant symptoms!

petunia13 01-12-2008 06:49 PM

I have Crohns and Celiac disease... I have this same problem from time to time. I would suggest a GI who specializes in Crohns or other digestive disorders. Good luck!

hurtsobad73 01-14-2008 06:29 AM

thank all of you for your responses. I saw my gastro (I really like him) the other day and here is the plan. He put me on AciFlux, tested me for celiac, and we are doing two procedures. One is the upper GI with X-Ray tract and the other is empty bowl series. I have one on Wednesday (the 16th) and the next one on Friday, perspectively.

Also, yes I have had surgery in the abdominal region. I have had a complete hysterectomy in '03. I do see my Gyn on the 16th as well. Not sure how I am going to work that out, but I don't want to cancel him. I would rather do the GI X-ray on Thursday the 17th. But I have to call the nurse to see if I can get it scheduled like that.

I have also noticed that after I have sex, I get severe abdominal cramps. That to me doesn't make any sense since I was vacuumed out. (Sorry to put it so bluntly) Does anyone think this is related to the hysterectomy or the GI problem? Any ideas/comments/suggestions would be greatly appreciated.

Thanks again for all your comments. You all are great.

M

Ellie 01-14-2008 01:37 PM

Quote:

Originally Posted by hurtsobad73 (Post 186999)
thank all of you for your responses. I saw my gastro (I really like him) the other day and here is the plan. He put me on AciFlux, tested me for celiac, and we are doing two procedures. One is the upper GI with X-Ray tract and the other is empty bowl series. I have one on Wednesday (the 16th) and the next one on Friday, perspectively.

Also, yes I have had surgery in the abdominal region. I have had a complete hysterectomy in '03. I do see my Gyn on the 16th as well. Not sure how I am going to work that out, but I don't want to cancel him. I would rather do the GI X-ray on Thursday the 17th. But I have to call the nurse to see if I can get it scheduled like that.

I have also noticed that after I have sex, I get severe abdominal cramps. That to me doesn't make any sense since I was vacuumed out. (Sorry to put it so bluntly) Does anyone think this is related to the hysterectomy or the GI problem? Any ideas/comments/suggestions would be greatly appreciated.

Thanks again for all your comments. You all are great.

M


I asked because I have had a few surgeries (GYN) which led to scar adhesions which led to a small bowel obstruction. My symptoms sound very similar to yours, during the painful period however, it is very severe pain that can radiate down to my thighs. After it's over, or dying down I will have diarrhea, loose bowels and/or gas. The only thing is, you didn't mention pain to the point I'd think that was it (because it HURTS bad).

I have had surgery 3 times now due to complications from scar tissue. It's kind of stupid since getting it removed causes more scar tissue. Heh. It had gotten so bad I was afraid to get surgery to fix it because I was certain it would end up coming back a year or three later.

My SBO and confirmation of scar tissue was diagnosed via Laparoscopy, they didn't remove it last time but they cut the two large bands of adhesions I had which were at risk for causing another obstruction.

Anyway, it's hard telling what it is but your GI doc seems to be going into the right direction. I personally wouldn't recommend exploratory (laparoscopy) surgery unless it's the last course of action available.

http://www.emedicine.com/emerg/topic66.htm

Click link above for more information! :)

painfree 01-24-2008 09:52 PM

Quote:

Originally Posted by hurtsobad73 (Post 186999)
thank all of you for your responses. I saw my gastro (I really like him) the other day and here is the plan. He put me on AciFlux, tested me for celiac, and we are doing two procedures. One is the upper GI with X-Ray tract and the other is empty bowl series. I have one on Wednesday (the 16th) and the next one on Friday, perspectively.

Also, yes I have had surgery in the abdominal region. I have had a complete hysterectomy in '03. I do see my Gyn on the 16th as well. Not sure how I am going to work that out, but I don't want to cancel him. I would rather do the GI X-ray on Thursday the 17th. But I have to call the nurse to see if I can get it scheduled like that.

I have also noticed that after I have sex, I get severe abdominal cramps. That to me doesn't make any sense since I was vacuumed out. (Sorry to put it so bluntly) Does anyone think this is related to the hysterectomy or the GI problem? Any ideas/comments/suggestions would be greatly appreciated.

Thanks again for all your comments. You all are great.

M

The abdominal cramps after sex can also be from myofascial trigger points in related abdominal muscles and adductor muscles in the upper leg.

Has the massage of the beltch button continued to abate the projectile vomiting?


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