NeuroTalk Support Groups - Please Say a Prayer for Desi's Husband...

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Please Say a Prayer for Desi's Husband... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/36118-please-prayer-desis-husband.html)

Please Say a Prayer for Desi's Husband...

Hi Everyone,
Desi e-mailed me this morning and asked me to pray for her husband Bill and for her. Apparently Bill has a blood clot on his lung, and had another heart attack. She is very distraught and knows that God will indeed keep Bill safe from all harm.
She asked me to let all of her friends know and asks if you would say a prayer for Bill that he would heal and do well. She is very worried since he doesn’t take his medications as he should.
Please say a prayer for Bill and Desi and I will let you know how they are doing as I hear from her…
Many Hugs to all :grouphug:
Dawn

:grouphug: Bless you both,Sue PN

Desi - you and Bill are in my thoughts and prayers.

Terry

Dear Desi,

My thoughts are with you and Bill.

Love Tayla:hug:

Desi and Bill,
I am so sorry about what you are both going through ((hugs))
You are in out thoughts and prayers
Love
Alison and Andrea

All of my prayers and positive thoughts are with you both. I wish I was closer to be able to help you. I'm there in spirit.

Hugs
Mary

:hug: Desi
you and your man are both in my thoughts and wishin for a speedy recovery.

big soft painless hugs hon,
Sandra

And thank you to Dawn for posting for Desi in this so stressful time, please ask her to be sure and look after herself as well.

Hugz,
Sandra

Desi,

I'm going to pray as hard as I can that you and Bill will overcome this.

My heart goes out to both of you...

Lots of love and prayers to you both.

GHL

sending healing prayers for bill.

ty dawn for letting us know. :hug:

lots of hugs desi :hug::hug::hug:

Desi,

You are both in my thoughts and prayers. God Bless :hug:

Dawn

Please give home girl Desi all my love ........

Much peace

GnP

Prayers for Desi

Dear Desi, I will keep you and Bill in my prayers everyday. I am so sorry to hear of this set back for you both - God bless you both . Sincerely, CZ

Desi,
My thoughts and prayers are with you always.

Love Sue K

I am praying for you and Bill. I hope he starts getting better really soon.

I hope that you are doing ok too. It's hard to go through being sick yourself and having your loved one so ill.

Take care and God Bless.

Ada

[COLOR="Blue"]Oh.. you guys!! I'm about to cry!! LQQk at all of you sweet friend's lovely replies to Dawn's posting for me! Thank you so very much Dawn for posting. I can't begin to thank you for all the e. mails, cards, etc. I thank you Dawn from the bottom of my heart! thank you also for your prayers , which mean so very, very much to Bill, Billy, Jeff and my daughter, Desiray!! Thanks again, sweet Dawn.
Sue, terry, Tayla, Ali,Andrea, Mary, Sandra, Curious(You yappy monkey, you!!.. LOL) thank you!! Thank you also to Shelly, Grey Hound lover, your all the best. I still am going to write more to the next few friends who wrote me with your wonderful uplifting replies to me also, in just a few.. You all do NOT know how very much these replies were appreciated!!Gosh! I am also going to write in a few min. about an up date on Bill. Mary, gosh.. lady, I wish you were closer too.. ummm.. like my next door neighbor! We would get no house work done , yapping all day long! LOL Your sweet to say that!! Sandra, I forgot to eat for 2 days and when I seen what ya wrote about my taking care of me too.. well, that's another story!! LOL thanks sweet one! ~love and many, many ((Hugs to all of you)) ~Love Desi>>>>> to be continued.... "Just as the sand turns, so does the days of our lives".. LOL>>> COLOR]

Good n Plenty(GNP) thanks sweetie for EVERYTHING!! I love ya, you know that already though huh?? LOL CZ .. Thank you a ton, your sweet! Sue k. Your prayers are so much appreciated, thank you! also,Ada, dear.. thank you so vey much!! Ada, your "so right on" about saying, it is so hard taking care of Bill and myself. Well, Bill is still in the hospital, I have been driving my daughter back and forth to school, making all my Dr. appointments. he put me on a stronger dose of the Sandoz(Maker of it?? or generic??) of Fentanyl. I was taking the 50 mcg/h of it... he now put me on the 75 MCG/HR of it. Man my insurance went up and it is not suppossed to. These patches for 10 of them(You wear 1 patch for 72 hrs. Tey cost me $84.93 with out insurance.. get this... $272.62 wow1 and this is for 10 patches(1 month supply) crazy!
Ok, now about Bill, yes he is still in the hospital. This Saturday will be 1 week in there for him. when he wasin iCU I was with him constantly(I was only allowed to see him 5 min. at a time, tough) He is only 58 yrs. old. He had a silent heartt attack for the 2nd. time. The first oe was in "06" All of this could have been prevented if only he had taken his insuline! I don't understand him?? He was in Viet nam for 3 yrs. was in contct with that damn Agent orange casing chemical. It is all through his blood. The government had everything all hush, hush.. anyone remember that? I don't! Anyway, it's true. They have to tell all now! anyway, his heart enzymes are still way to high, he has 60% of his heart muscle dead. They put the stents in him in "06" and they didn't take, they will still be there the rest of his life. There is no blood flowing n those arteries tat have been shut of.. dead. NOW, HIS HEART HAS TO PMP EVEN HARDER.

wHAT THE HECK, SORRY ALL.. i WAS TYPING IN ALL CAPS AND BEFORE YOU KNOW IT, i ACCIDENTLY HIT "POST NEW REPLY" i WASN'T EVEN FINISHED?? Oh my now look at my letters<< Ok, I am back on track! Anyway, as I was saying is heart has to pump even harder and the dr.'s are doing more tests. he had a echo, a stress test, was off balance so he had a dye inserted into his veins. there were 4 doc's there with the paddles.. just in case. Anyway, please keep on praying. I have been doing everyting. I lost 10 lbs. I weigh 135 now, so in a way I am glad I lost the 10 Lbs. but I did it the hard way, no food. I couldn't eat.(Please don't ever do this.. starve yourselves to loose the weight!) Of course I didn't tell Bill. I don't know when he will be released. they are talking about sending him up to cleveland?? I will have to only drive 1 hr. or so.(which is not too far a drivea) I have a lot of help from my mom, dad, 4 sisters, 3 best friends, two grown sons with my daughter, as well as they are here for me. Well, I typed enough. Mywrist looks bad. swelled, hurting(not as much, as I only had this patch upped yesterday. i didn't put it on until I picked up my daughter from school, as I did not want to drive with her in the car, nor myself, as I need to know how I react to it. I get wayyyyyyyyyy too tired from it. I am hoping I get used to it by tues(The kids are off from school dueto Martin Luther King. Bill doesn't want me driving, so.. I will have to have mom, dad, one of my sisters, friends drive me up there. I hope i get used to it soon, as I need to be in control and hate when I have to ask family or friends. Just the way I am.. LOL Well, thanks again all.. keep those prayers going for Bill. I so appreciate it, as I appreciate and love you all! ~much love, Desi

Desi first you are in my prayers. second i know how you are feeling. my father was brought to MassGeneral by ambulance for chest pain and and shortness of breath. He had a quad-bypass, He was unconscous for 2 plus days. when he did wake up he was apparently a really nice guy. when they discontinued the sedation meds the following day, by dinner he wasnt making any sense when he talked and he was shaking violently. he is going through withdralls because he drinks ro much every day.
i will light a candle for Bill next to my father's.
i am so sorry you are dealing with this,the worst part is not knowing what is going on or how much time each of new curveballs the people responsible for his recovery
good luck and i will keep youu in my thoughts and prayers

Hi Desi,
Me and my mom will keep on praying for you, Bill and the rest of your family.
Take care of yourself
Love
Alison

Thanks for the update Desi, I am sending all my best wishes to Bill and to you.
Please look after yourself though. I know eating is the last thing on your mind but don't stress your body too much more than it is.
Love Tayla:hug:

I am so so so sorry to hear about Bill... I am keeping you both in my prayers and thoughts... Desi... don't forget to care for yourself... I know that sounds hard because i imagine you are on full alert just make sure you dont send your self into a flare...

Hugs and pain free days ahead Desi! :hug::hug:

Praying you and your husband are better soon,my heart goes out to
you both. Hugs Sue

Thank you so very much wake Girl! I am so sorry to hear about your father also! wow! I want to thank you also for lighting a candle. I need all I can right now with Bill. Prayers, candles, etc. I am crying non stop, I am not getting enough rest, I know that. After I tucked my daughter in, I was going to take down my Christmas tree(Yes, it is still up, now I'm sick of it and all the decoration's)!! LOL Anyway, I fell asleep under the tree.. woke up to our "new cat, ".. Sammy eating my hair! LOL

Hi ya Ali, your so sweet and ALWAYS there for all! I so appreciate you. your a wonderful asset on these boards sweet one! prayers mean so much.. so thank you and your mom, Allison! I am staying home this evening, as I have been running back and forth now stop!

Tayla, sweetie, thank you for the well wishes, they mean so much. I wish i could just sleep, but my little one wants to bake cup cakes and I must spend some more time with her to get her little mind off things. She is seven and is a real trooper. I would be lost without her love. Love to you Tayla. Thanks again! ~Love, Desi

Hi there Sue! Thank you so much for the prayers. Your such a seet friend and I love ya bunches hun!! Love ya!!~Desi

Quote:

Originally Posted by Desi (Post 189502)

Hi there Sue! Thank you so much for the prayers. Your such a seet friend and I love ya bunches hun!! Love ya!!~Desi

:holysheep::thud:I can't believe my typing as of late, Sue!! seet Sue.. LOL I meant SWEET Sue!!:sorry:I think my mind is lost.. on E bay probably! LOL:Bang-Head: ok< back to banging head on keyboards!:Help: LOL Love ya!~Desi

Jacquelina??!! OMG so good to hear from you sweetie!! Thank you for your nice and sweet reply. I can't promise to take care of Bill, as he has already done the damage himself.. sorry, But I need to get this out! I am so angry with him for doing this to himself again!! I love him, but hate the fact that he does not care enough about himself to take his meds.when he gets back home, I'll make sure to shove them down his throat now. LOL ;0) I do not want him to die. Seems like he wants to?/ I can't understand that man of mine. Please pray hard!! Thanks Jacquelina! I will take care. I do not need another flair, those are the worst!! Love and thanks again hun!~Love, Desi

Desi... I can relate to you with the not taking your meds thing... My bf of 2 years dad refuse to go to the doctor... He has had diabetes for 10 years and just went to the doctor he has a 50/50 chance of losing them know..... I cry and cry and cry but it makes me really angry... doesnt he want to see his grand kids... even though he doesnt have any now.. He will in the future and he has 3 kids himself.... It makes me angry... Because i know he couold of taking care of it... its selfish...

I love you hunny you are always so sweet... I miss you very much... You will stay in my thoughts and prayers... with Bill and Tayla...

Love J

Sorry to hear of your Troubles....

Desi,
I haven't been in here for several days so am sorry to hear about your husband. I so agree with the book, Women are from Venus, Men are from Mars, I mean really...why are they so stubborn about taking their meds anyway???? Mine use to be like that, but he got himself in a bind & now he takes them correctly & is on top of his side effects even. Hopefully this scare will wake Bill up so he takes his meds in the future. Sounds like he may have more damage to his heart than he use, but I am confused. Did the Agent Orange cause the damage to his heart, or was it there due to family heredity or caused by his Diabetes?? And yes I remember the Agent Orange from the days of Viet Nam. I know others that their children were born with horrible birth defects due to it. And others who have gotten Cancer.

Sending good thoughts & prayers to & for your family. It is good that he is out of ICU. I have had the drug induced treadmill test done. Oooooohhhh I hated the way it made my heart feel. Not fun at all.

DebbyV

Desi,
I hope that you are taking care of yourself. You don't need to get sick your self. I don't mean to insult and of the men ot there, but I've been dealing with a husband for 26 yrs that never listens to his doc, He is disbled also and besides the ruined back from a 45 ft fall 26 Yrs ago he has many other health problems. Heart, panic attacks, I could go on and on. He never takes his meds and when told to rest, he never does. Last week he had a disc-ogram and for 4 days now has been in extremly bad pain, do you think he would take the pain meds? Of course not. He even left the hospital before he was supposed to. I think he is trying to drive me crazy. But when I was in the hospital on new years eve, I was bleeding out from 5 ulcers they found and almost died. 5 pints of blood later and I started feeling better. Now I have to take a new med for the rest of my life. He is on my back everyday,"did you take your meds?" but yet he won't taked is own. I think he likes to make me worry, I think they all like to do that. He makes me mad, so stubborn.
Desi, I hope that your husband gets better soon and everyday I pray for both of you. Have his Doc give a good talk to him. Maybe he can scare him into taking the meds. Always thinking about you.

Love SUE K

Quote:

Originally Posted by Debby (Post 189544)

Hi Debbie!
Great to hear from you lady! how have ya been!! Ok.. Bill has done this over and over(he almost lost is foot 3 yrs. back and pulled through.) All The Cleveland, butcher veterans hospital, wanted to do is cut it off! I took him outta that place and we came back here in town.. went to the best specialist there is, good looking surgeon too.. LOL He used to be a Marine. Anyway, he said "I will not give up, I will work with this man aggressively!!!! Bill has had 2 heart attacks. (silent one in "06".. one last Sunday). He keeps saying this is a wake up call for me, ya.. ummmmmmmm.. ok Bill. I then was making all diabetic receipiesfor him, found candy wrappers in his car, pants pockets, McDonalds junk food wrappers as well. so, I said.. I am busting my rear, your cheating and eating this crap??!! Oh, Deb, I was so mad!! :mad:
ok as far as the AO (Our government used those huge orange barrels(that's why it's called Agent Orange) To find the enemy , first, they needed to find the enemy in the thick folliage, so they sprayed over there and it killed the foliage alright! "Our men, woman, kids, even the enemy! This is one of the most potent of potent chemicals anyone can ever, ever use! What was the Government thinking??:eek::mad: Anyway, no one on Bills side has diabetis. no one. There is a sheet a mile long what this AO causes. It would blow your mind. I too have seen first hand(Myhusband is commander at the American Legion post) and the children we see?? My gosh! I do have my oldest son who was a slow learner at school. he is not retarded or anythig like this, but was in slow classes all his life. My youngest was high strung.. still is. honor roll student all through school. They could have been both retarded, diabetic, cancer, high blood pressure, sores that come and go, like Bill. Bill's health is so bad. he is only 58 and every single joint of his is in constant pain. he got on 10% disability right away.
Now, you asked what caused the heart damage? it was not taking his insuline!! Also, he can't feel on his foot(well, feet, both of them) also he just gets pressure. his heart doc. told me that 9% of "silent heart attacks are caused by diabetics! wow!! He keeps sayng he as a death wish, seeing his best friends over there that should havce been alive, as one split move and wham they got hit! My husband was point man, was afraid to let any man walk point because of the mines and a lot of them"our guys.. sadly got high, drank" and my husband was on alert at all times. he was a tunnal rat, going into those small underground tunnals, with flsah light in hand to find the enemy.I read all his "Top secret papers from the government", what he did over there and wanted to puke after reading those. he was highly decorated. had two tours, went back for another tour, so 3 yrs. in all over there. what gets me, yes, all wars are horrid, but when these men(They were babies when Uncle Sam took them right out of high school) but, when our men came home, no welcome, spat upon, bhah.. blah.. blah. Predident Nixon signed all his release honorable discharge papers and he deserved every single bronze, purple heart and so many more metals he has. As, I was saying, he deserved every metal Nixon slapped on him. He is highly depressed, used to shine flashlights in me and my children's faces to make sure we were alright.(like he was on "watch duty" or something. He was also a sargent. My marriage almost ended .. I told him to either get help the rest of his life or I am taking the babies(my sons were so small at this time)He took the help and is still getting help. ya see, Debbie, he would NOT talk about Nam for the first 10 yrs. I didn't know he was this way until it gradually all came out. I met him when he had just gotton out. i just thought he was "One of those bad boys'.. you know, "cool" I dated him, maried him too fast.. within a year and the rest is still hard to say, write down, with all I have and.... still go through at times.
I should write a book and have been thiking of it a lot! i would like it titled;"Living with a vietnam vet" It would make your skin crawl! ALL WAR is sad. well, look at me going on and You asked one simple question!! LOL :D..Anyway, he was not allowed to take the stress test on the treadmill bicycle,as he is unbalanced, so they shot this dye all through him, had four doctors, nuses with "the paddles with them".. just in case... Anyway, I went shopping this morning, it's 11 degrees here! It was - 6 this morning. I cleared out all food.. gave to the church pantries, as all churchs everywhere can take any kind of non perishable foods. They need to fill the shelves, as most have been wiped out with Christmas and all. well, sorry to talk your head off. I want to thank you, Deb.. so much for sending us your good thoughts and prayers. this means so much and I want to thank you from the bottom of my heart, Love and God bless you and yours, Debbie! ~Love, Desi/COLOR]

Oh, wow Sue!! damn!! girl.. your hubby and mine should go bowling or something?? LOL sounds like they would get along real good! my husbabd says and does the same thing.. did you take your meds. And yet, like yours, does not give a damn about his own ****! LOL I know it's not funny. But Debbie, your gonna make yourself sick too! I had to LEARN and still am to stop and let them be! yes, we can remind them to take their meds, beat them to an inch of their lives, they refuse to change. why? I don't have an answer. All I know is either the war screwed Bill up, or he is just plain controlling of what he wants, what he'll do, mecication, included!! makes ya sick, huh?? Well, we got to stop and take care of us. This may sound mean, Sue.. but it's not. I made myself so sick one time, that I forgot to eat for days!! lost weight, circles under my eyes from not sleeping.. the whole 9 yards. Well, I will remind Bill, then after that, he is on is own!! No wonder we go into a "Flare"!!!!! These men make us nutzzzzzzzz! yikes!! I am so sorry to hear that you almost died!! OMG (Sue, was this .. "this New year's eve when you had those 5 bleeding ulcers and almost died? and loosing all that blood!!! I am soooooooooooooooooooo sorry, sue! you mentioned to have the doc's scare him? they all did. it go's in one ear and out the other. The one doc and my attorney told me to get my "affairs in order' as he is just a very stubborn, man and does this , I really belive for control! do I love him, yes, do I care if he doesn't take is meds.? yes, I do, but I also have to think of me.. yes, in a good selfish way, because my little girl needs me, I have this darn RSD.. You know how painful this is.. damn, Sue.. hun take care of you, remind him.. if he still yells, tells you to leave him alone, wants you to feel sorry for him.. don't. because I found I was as sick as he was by letting him put me through these games. i have been married to Bill going on 33 yrs. feb. 15th. and I hope and pray to have many more with him. diabetis is preventable.. he chooses to be this way, not us. Well, I am so sorry we both have men that are like this, so I quit making excuses for him. Yes, it can be from the "hell war"(I call it) but, I wasn't there, don't know what it was like, so with that, I'll shut my fingers off and give them a rest.. LOL Love ya Sue and thanks! ((Hugs Sue)) I hope your feeling better now!~Love, Diane

Bill is home, I give him his meds, he complains, is making me a dog-gone nervous wreck. I am giving him his shots, He is on a strict diet and hates it. Well, I told him.. You are now home.. no fooling around, or else. so we shall see what's what. I also have a 7 yr. old daughter I have to take care of, drive, grocery shop, pta, dr. appointments, dentist appointments, etc. I just need to chill! LOL Love to all. I'll keep ya all posted to how he's doing! Me, I am hurting, but still kickin this RSD's butt LOL ~Love, Desi[/COLOR]

I also said that Bill is 10% disabled, he is 100% disabled from that war!! I need a break!! LOL tea time!!

I am SO thankful Bill is home homegirl :)
Now please try to take it easy on yourself somewhere in that crazy schedule :eek:

Peace

GnP :p

Hi ya Homie!! LOL Thanks as usual for your sound advice.. going to take care of me! Still crazy over here, but Bill is behaving! Love ya!!~Desi

Hi Hun,

I am so sorry that you are going through such a rough time. My thoughts and prayers are with you. I know all your angels are around you and they are going to do their very best to get you through this sweetie.

Stay Strong!

Love and big gentle:hug:
Heather

Desi,

So glad Bill is home. I'm so sorry he's so stubborn when it comes to taking his pills. My Father is exactly the same when it comes to his Diabetes, now he's on Insulin. He says he's not worried about dying but my family and I continuously remind him WE ARE!!! How can people so loved have such low opinions on how much them being around means to the rest of us????

Also tell Bill, in light of your condition and taking care of your 7 year old. (I have a 7 year old as well...it's not easy!) You need time to heal as well and by him cooperating your healing process won't be so affected. Ugh, MEN!:mad:

That's okay, I went to a Dr. appointment today and LoveMuffin hasn't even asked me about it! Everyone else in the world has called and asked but my own husband hasn't! Go figure...we'll see how long it takes the S.O.B! (LOL):rolleyes:

My prayers are with you both Desi, please try to get some rest, call someone for help or something...you need healing time too! Maybe your 7 year old can have a sleep over at a relatives house for a night or two so you can catch up on yourself a little bit? I know, it's never easy...it's probably more stress worrying about her behaving, right? I KNOW!!!!!!!!!!

Lots of love!

GHL:hug:

Hi ya Heather! what a beautiful baby!! Is she/he yours? Is that you and your man at the bottom of the page(nosey, huh?.. LOL) Anyway, thank you so very much for those good and so much needed words of advice. I think your awesome!! P.S. All the pictures in your letter here(Or shall, I say post.. are real Beautiful! Thanks again heather! You take cate too! Love, Desi ((Hugs Heather)))

Wow! GHL what a very nice and "Oh sooooooooooo true post".. Thank you for every single word you wrote..'tis so true" your an awesome friend, thank you so much again!! Love ya! Desi

Desi you are so sweet...

Yes...that's my little 2 month old, Skyler Alexis, and my Hubby Bryan! Thanks for saying that my pics are beautiful...wait till you see my RSD photos in the THREAD...LOL:eek: That's what I thought you were refering to, until you said beautiful...:p

I am always here for you hun...Keep talking to Bill's Angels!!!!:) I truely believe this works...

:hug:and lots of LOVE,
Heather