If it's not one thing it's another.........
 

Since my Port surgery last Friday my chest has been burning. So I saw my dr. this morning....he says I have inflammed lungs from the anesthesia! He gave me 2 prescriptions for steriod inhalers that I have to use for 2 weeks.
THEN I saw the Endocrinologist.....more bad news there.....He did an ultrasound on my Thyroid and found 4 nodules, those along with other issues, he's wondering if I'm pre diabetic! So he's scheduled me for some nasty tests in 2 weeks.
2008's not looking any better, healthwise, than 2007:(:(:(:(

Dad gum it!
 

Roxie,
I'm so sorry. It just seems like you can't catch a break! I understand the feeling only too well.

keep us posted on what is going on. We care about you.

Billye

Thyroid nodules are quite common, especially as we age up. I have them. They are seldom serious, but good to get checked out. Try not to lose too much sleep over them....are they looking at a needle biopsy?

With your history, and the fact that you have both neuropathy and myopathy, I am not surprised about the anesthesia problems.

Steroids do raise blood sugar, as do some other drugs. I know you are on IVIG, which is a non-factor in blood sugar. I don't know if you are on steroids other than what they just gave you.

I wish they would give you some time to heal from all this before they do any real testing regarding the blood sugar stuff. Seems like some down time to let your body heal is warranted....a couple of weeks to heal, normalize....then get tested....all you need is more meds to cause more problems...that may simply be the residual from other things.

Lord, how much can one person go thru in a short period of time?

I hope you feel better soon.

Ouch! and also BOOO!
 

That said, promise that you will not ever ask what else could happen? Then it could!
Just go, OK Adding one more to the club or something like that...
I myself, would probably take steroids for a short term, but will never, ever take them for the longer term!
Just think of this as a sort of 'hiccup' in the long term treatment of all things soo complicated? :Scratch-Head: and then, deal with it like a :Viking: or something!
Roxie? Is this one of those 'road bumps' of life I keep hearing about?
:hug: 's - j

Well
 

C is right they are very commom when we get older...I'm going through kidney
tests next week so we will hole each others hands,through Cyberspace..
Im going to be in for a week or two..Honest Roxie it's a good thing to have
checked...Did they explan anything to you,it's the old fear of the unknown,
again...Please take care,and ask questions now so you can.make those fears
gp away.. Hugs all Sue

Yes me too?
 

Going to get to explore the wonders of liver function...
As Bob B brought up...the wonders of medications...and then the consequences?
Does anyone have a nice warm cave, with running water [not too much mind you?] and no hassles that I can go hide in for about...oh...a few centuries? I have to admit, that kind of thing is looking really good rite now. - j

Roxie I am so sorry you have to face this. I hear you and your frustration and fear. I can understand but wish I had more to help you.
Dahlek I was just saying to my mom how I wish I could live in a bubble so nothing bad could happen. I swear it is in the air cause when it rains it poors for us all.
Sue I like that about holding hand in cyper space. I think of you all often through these days.
Many hugs to all and better luck.

Do ya ever?
 

Just get so tired of doctor's appts.that you are willing to just let whatever happens ...happen? I've had so many the last few weeks. I don't get the bone pain and soreness settled down until I'm having to get back in the car and go to the next one. At least I'm down to one a week...I think.

Roxie, dahlek, I'll be thinking of all of us while I'm sitting in the hard doctor's office chairs. you too Sue. But you know..I'm serious about the "willing to let whatever happens happen thing". Maybe it's a cold winter thing with me. I don't like the cold and I'm almost blind from the hot forced heat.

Roxie, I don't know anything about the surgery, but you listen to Cyclops, she knows. So does Mrs. D I believe.

Billye

What the heck are symptoms of thyroid nodules??

mel

Yes Billye
 

I am getting very tired of Drs. appointments,very much so. Then worry
about what the results will be,can you contiue to keep on keeping on.
when I grabbed ahold of my Dr. who has been there for me for many
years. My kidney has been a problem for many years..we will get through this again...We I wanted to yell,but I heard the caring so I shut up in time.
Oh it never seems like it's going to end,I know what tests they will do,it
does make it easier for me but it's not like that for every one..But
I also know what can go wrong..Just like Roxie,I knew what could happen,
but some Drs. take it for granted Roxie should know..I have rotten
veins,I have tests out of the oldest places,I have been at the point,
I almost did my own. lol..

My MRI,Cat scans,any blood tests are almost always done on the childens floor..I was lucky to be born with out the fear of needles,but i'm not
so good at sticking me. And yes there are some tests i'm afraid of
but when they tell me what this new one is,i'm ok.

J. ther's a little town in somewhereville,my buddy retired moved to this
500 or 600 hundred square ft. cave,I have the pics. on my old puter.
in CA. Very cool inside and easy to keep warm. She has grass or
moss over the top. She has some dogs,goats,they eat almost anything.
Outdoor cats that roam,and 1 of those big metal sheds,for stuff and
a place to do her art work. Which she sells to tourists in town, She
has a riding everything including a horse.And she's had MS for years.
been through it all..She has a man friend who keeps his horse there,
and helps her with her's. He lives in town and she loves ,it no stress
unless something rare breaks..But we always have something we have to
wait for..I loved it,to visit,but right now,to live sounds good.
I never thought of us being there for our commune,guess we could go
and look for vacant caves. Sorry Roxie can't sleep, Bob went to air
port going on a trip till Monday...I'll call my kids when tests start.
Cave:D can't get me or any of us there,well it would be nice..I wish
I had the pics ,might of sent them to my son hmmm.

I know your tired Roxie but j doesn't let us say that. Got to say
oh shoot...You will be fine ya got that sweet Mike and ,us:eek: That's
a little scary...It's so cold and I'm getting sleepy..Sorry for butting
in Roxie,I wish I could do needle point still. Hugs to all sue.

I tend to agree with cycleops, Roxie--
 

--you've just been through a number of procedures, and are on various medications, and I'm not sure that a lot of what you are reporting, although it should be checked out, is not temporary, and reactive.

Thyroid nodules are very common, and Mel, they may be completely asymptomatic, though ultrasounds to find them are often done on people with suspicion of low thyroid function. (My wife is one--she has a small nodule but documented evidence of low thyroid function via anti-thyroxin antibodies, and takes a small dosage of Synthroid.) I'm assuming, Roxie, that part of the reason for the thyroid ultrasound was all the other issues, especially autoimmune ones (the most common cause of low thyroid function is autoimmunity)--did they do the standard TSH, free T3, T4 levels?

The trouble is
 

There never seams enough time to let people finish 1 thing before they
start iN ON another. And once it is again normal to get those at our
age,I remember when my Mom had the same problrm..Do you remember
your family history? We all want to go home from the hospital,I don't
aways want to stay in,but i like staying in during tests and get it over with
in case of bad reactions..When I got my port I got a bad fever but there
was nurses watching me for short time. Although there's things you can
get in hospitals now..This traveling back and forth it can really wear you
out. At leaST WAIT A DAY OR 2 AND SEE IF AMY REACTIONS,BELIEVE
ME IT'S NOT FUN BEING IN THOSE AWFUL LITTLE ROOMS WITH SOMEONE
ELSE, BUT THEY DO SOME FAST SENT YOU BACK,IF YOUR FAMILY
LIVES OUT OF TOWN OR YOUR HUSBAND,LIKE YORKIEMOM, AND AND
ROXIES ,MIKE IT'S HARD TO RUN BACK AND FORTH..MY NEUROS LEG
IS SHATTERED AT LEAST YOU GET TO KNOW THE DR. TAKING OVER
IN PERSON,THEN A STRANGER OVER THE PHONE.. I'M SO SORRY YOU
HAVE TO GO THROUGH THIS..HUGS SUE AND I'M STILL AWAKE GUESS IT'S THE QUIET,WITH BOB IN LOS VEGAS.

Roxie
 

Sending good thoughts - yes - does seem like veryeverthing hits at once - but I think its the nature of the beast - one system in our body is weakened and the others want to jump on board.... at least the port is working for you - thats a good thing - and your lungs shoud be cleared up quickly - used those for respiratory infection several years ago and worked very well and I'm super sensitive to meds like you.....

On thyroid - keeping fingeres crossed all is well - I know constantly going to the doc is overhwemling and having a vacation from all of it would be wonderful as they are often so draining - I know I ignore a lot of symtoms I should take immediate action on beause I cannot stand the thought nor have the physical strength to deal wtih it all constantly, plus life! Be vigilent - I know your hubby is supportive - and the appointments will be over and behind you as soon as possible - :(

Hey all,
From what we've been reading, like what Glenn said, most Thyroid nodules aren't cancer but I have to have the tests to make sure. Yes, my dr. did do all the blood work....took 6 vials of blood! OUCH!!
The dr. said that I could be pre-diabetic is because of my Neuropathy, my weight gain, the nodules and that I had a child who was over 9 pounds at birth (he was 9-11...another OUCH! LOL) My grandmother was Diabetic after around 60 yrs of age....but she's the only Diabetic in the family.
So now I have to wait for the tests for all that, and trying to get the burned lungs to heal with the inhalers. Mike was reading online last night, we think I inhaled stomach acid after the surgery. When I woke up from surgery my chest was burning and felt on fire! Since I have Barrett's Esophagus we always take a bottle of honey with us to surgery, just in case my esophagus is hurting from being laid down so long during the surgery. So since it was hurting we figured it was because the dr. said I'd have to be laid down flat on my back during the port surgery......guess that's not quite what happened! Today I'm still having trouble breathing and my chest hurts but I think it's not quite as bad as yesterday.......but still miserable. :(
I hope everyone has a good day today.........love hearing from y'all!!

I am wondering if sometimes too all the different things done like meds/treatments are just too much on a body. I know when I was doing so many things of different meds/test/procedure I was going down hill. Each time I would come from the doc I would have another issue or be in more pain. If I did everything all the docs have suggested I would have a cuts in my lesg,implants,I could go on. I really have been thinking and have no idea what the answer is.Its like the current is horrible but then it can always get worse. You start trading one issue for another. Also that many docs will let you be a test bunny. What I also hate is that when something happens to another part of the body because of there treatment they can't deal with it cause it is not there area so then another specialty doc comes into play. I hate that its not my area by the docs. They may as well go to school for 2 years and just focus on that part. I also thought internists are for the whole body but the ones I see always say that is not there area too.Silverlady I agree about the docs just going can put one in pain. The drive,the wait,etc. Ok enough of my rant. I know we all want help and I wish it would come easier.

I think we should all sign up for a cruise to Alaska. See the whales. Breathe the fresh clean air. See the beauty of it all!! Just picture that view!!

Then after this cruise, we should all go the Bahamas, bask in the sun, lay on the beach and just chill. (that's the correct terminology for relaxing, right??)

One can wish, now can't one!!!

lol, Mel

Let's wait until I get my kidney tests done and off we go,we all desrerve
to go to Alaska and see the Whales..I'm agree with my 91 yr.
old Aunt ,get rid of the Drs. and travel,she's alot of fun like you.

Roxie did you tell us you met Mike on the internet??? My neighbor grew
up here,her husband passed away 25 yrs. ,she called me on the
phone just when I fell asleep ahhh finally. Guess what,huh what,I'm
getting married huh what,escuse me who is this??? She has a great laugh
so then I knew ,your doing what,did you say getting married. Yes
you will get the invitation,but I had to tell someone..Now her husband
was born here they knew each other all the way to college,both very nice.
After he passed away see never dated that I knew..But she got a
computer from her kids for Christmas..Meet a man on yahoo dating service,
they talked for 2 weeks,she wouldn't give out her full name etc. They
decided to meet at a nice rest. They have known each other since they were
kids,they didn't post there pictures, so cute both of them,I've
known him for 14 years..And her for many..She's so excited and her kids
are too..I was really and still am surprised..That's nice,I,m so happy
for them...I hope they don't ask me to be the flower girl.. lol Wow that
perked up my day..Hope your feeling better,my back hurts but I feel
better. Hugs. All Sue who lives in a small world kinda..:)

Going somewhere?
 

Good plan, but it better be either Hawaii, Puerto Rico or the Virgin Islands...That way we won't have to shell out for passports! Create our own 'tour trip' so to speak...
What better way to deal with the stresses we go thru than a totally catered trip to a gorgeous place...where we are catered to [rather than catering for] to our hearts' content!
Wanna go! Wanna Go! - j

I think we all need some very serious playtime here...someway that is 'board appropriate'?

Hey Sue,
Yep Mike and I met online, 5 yrs ago. We'll be married for 4 yrs on Valentine's Day :)
That's cool about your friend getting married. We're hearing more and more about people meeting online and getting married.

J, You are SOOOO right.......we need a nice long vacation in a gorgeous place......some where that doesn't have Neuopathy pain! LOL Let me know where I can buy a ticket...cause I wanna go too!!!!!!!

Hot Dog
 

Let's go to all the places j suggested not one but all,just get your lungs
to working and away we will go. I think we deserve it..

Roxie my friends so happy she makes me happy. I'll tell her about
you all,it will make her even more happy. :D Hugs all ,I just got
2 new chairs,I'm taking forever to get down the stairs..Those guys where
so funny,1 guy yells we got to get the lady upstairs first,that was
fun :eek::eek: Sue

That would be fun if we could all take a cruise together or vacation. Make sure it is climate happy though for everyone.We would be quiet a mix of people. I wish I could take like many of you a vacation from life. Roxie that is neat about the internet and your husband. My friend was dating a guy from the internet but he kicked in her door. You hear the good and bad. My uncle met his wife through the add in the paper. She is so sweet. He is a nut though my uncle.

Yes I've heard good and bad stories about internet romances......Mike and I are lucky it worked out so well for us.
Where ever we decide to go for vacation.....I want to drink from a coconut with one of those little umbrellas sticking out the top! LOL
Today I can move my shoulder much more easily......the side the port is in. I had to wear button front blouses because I couldn't get my sweatshirts pulled up over my head.....it was very painful!
Yesterday my dr. sent me out some different medication for my burned lungs because the stuff he'd sent out gave me a terrific headache. I'm starting to feel a little better this afternoon. I'm just SO exhausted.

Mel

Thyroid nodules, per se, have no symptoms....most are caught on incidental scans. A lot of folks have them an had or have no idea they are there....and that is fine....I only know I have them because they did a CT scan of my neck for enlarged lymph nodes, back when they were on the Sjogren's trail. Since then they ruled out Sjogren's for me...and I found out I have a few benign thyroid nodules.

Most nodules do nothing...however, they need to determine if they are active or benign.

If they are benign, they usually just leave them alone. Apparently they could tell mine were benign from the CT scan.

If there is an issue with them, they treat them accordingly.

Hi Roxie:
Welcome to the thyroid nodule club... Mine were picked up accidentally when I had a CT Scan of the chest, lungs, whatever...

I think most doctors like to take a wait and see and recheck you in a few months. From what I was told, the nodules grow very slowly.

I opted to have the left lobe removed, since they couldn't tell. Surgery was easy... Best of all, no malignancy... You can't even see the scar...

Don't get too excited here. Most are benign and never cause a problem.

Take care,
Cathie
P.S. I am ready for a cave if you all are...

HI Cathie,
My dr. wants to do all the testing incase I'm pre diabetic, as I understand it. I have all the "signs' he says. So in 2 weeks I go for the 3 hr fasting test and the TRH test. Neither sounds like a fun time! I'm ready for that cave!!

I know you're not thrilled with getting "stuck"--
 

--but if they are giving you a three-hour glucose tolerance test, it would be a good idea if they did so as to get a baseline glucose AND insulin level, given your situation, and then do draws every half-hour and test those for both glucose and insulin.

Often, interesting things like pre-diabetic imparied glucose tolerance are revealed in this way; it is the pattern of glucose/insulin increases/decreases that are often important (i.e, how much insulin is released to counter the glucose challenge, how far does the insulin spike drive down your blood sugar, when do they both normalize, etc.)

Hi Roxie, i hope better days are only around the corner for you and for that Glucose tolerance test i would take some good reading along with you, it helps the time go by.
good luck
Brian :)

Hey guys thanks for the info about the test and about the reading material! I'll do that! The only person in my family who was diabetic was my father's mother and she became diabetic after she was 60 or so years old. So it doesn't run in my family......that I know of. I hope the dr. is barking up the wrong tree......but with my luck ya never know!

I am sorry to barge in on your thread but am so loosing my mind. I am doing mentally better then yesterday but my back went out yesterday. Today I am in so much pain it is hard to even push around. My other leg is acting up as well. I have spent so much time working up to 20 min walking from the original leg issue to now not be able to. I am able to do more then last night when going to the bathroom hurt. I went to the store for my stuff. This on top of my eyes after months are still screwed up. Why does this happen and how much pain can one take?I can't handle the back being like the legs and am so scared of what is going on along with so much discomfort. Back to the meds too. I feel like such a failure as I had worked so hard to walk 20 minutes and no meds now cause of the back no walks and meds. I have no idea how it happened it was just all of sudden the back. The legs are my ongoing and the left has made progress but the right is screwed up now and I still have pain in both and are limited. The eyes are the same as when it happened. Ok thank you for letting me vent. Just needed to.