|
hyperbaric or HBOT treatments?
HI everyone!
Hope you are experiencing the best possible days you can! I have a question, has anyone ever had or even heard of using a hyperbaric chamber to treat RSD? I have some info that it is being used in Europe with good success. Since I am so sensitive to pain meds, I have now been taken off of all of them and the pain is unbearable! I willing to try most anything. If you have any info...let me know. Thanks a lot! |
Hi there,
I am starting HBOT in February, I will let you know how it goes. These websites might help you in the mean time though: http://www.rsdalert.co.uk/treatments/HBOT.htm http://www.hbot.com/frontpage.htm http://en.wikipedia.org/wiki/Hyperbaric_oxygen_therapy |
Hi there,
Yes I have had many months of HBOT and would love to answer any questions you may have. Love Tayla:hug: |
Can you let us know how often you had the dives and the difference it has made to your pain levels and mobility
I'd be really interested to know how you went on before I start with HBO myself |
Yes, please give us HBOT info & advice
Quote:
Hope it is working wonders for you... Feel well! MrsHippie |
Yes, please give us HBOT info & advice
Quote:
Hope it is working wonders for you... Feel well! Breathe deeply! MrsHippie |
Thanks for the links!
Quote:
I will keep you in my prayers that positive results will come out of this! Breathe Deeply! MrsHippie |
Mrsshippie,
Hi there,
Of course I will let you know how the HBO goes. I live in the UK (England) so I am having the HBOT done there. I have to go every day for a month to get the best possible results and it is £10 per dive. If you need anything else please let me know Many thanks Alison |
Hi All,
I am new to this site. I had RSD resulted from IV trauma 8 months ago. I had 30 sessions of hyperbaric therapy. It reduced by pain level by about 40 to 50 %. However, it appears losing it effect a month gradually after i stop the treatment. It is very expensive. Take care and hope the hyperbaric will work for you! |
Hello,
I have had months of "dives" but initially they were to heal some wounds from my accident that caused my RSD/CRPS. I believe it is like many treatments and if it is commenced in a timely manner close to diagnosis, there is more chance of a good result. It did help the wounds somewhat and reduced pain over the time I had it but unfortunately it was years into my disease process before it was commenced so there was not a lasting affect for my pain. It is covered by our medicare system here so there is no cost involved at all if you meet the criteria. I would strongly recommend it as a treatment as it makes sense that high oxygen levels will improve the blood supplied to those areas which are affected and reduce the pain from poor blood supply caused by vasoconstriction caused by sympathetic dysfunction. The actual treatment is not difficult but often boring as you sit for the 2 hours each dive. It is important to be able to equalise your ears as when flying as you can have ear problems if you are unable to do so. Like most things there are some possible side effects but these are not likely to occur if you are being treated at a HYPERBARIC CENTRE staffed by registered and experienced staff. Any other questions please just ask. Tayla:hug: |
Hi,
I found an interesting site on HBOT. They sent me an email video with some good info on it. I'm trying to talk my son into doing it. He just had an RFA today (first time). I wish you the very best. Here's that site and phone numbers. www.rsdtherapy.com (727) 787-7077 (800) 5548060 Melody |
Hi Tayla,
I hope you are doing well today. Can you please tell me, did the HBOT help? What kind of side affects did you have? Where did you have it done? Sorry for so many questions. Thank you, Melody |
I haven't posted here because I assume that everyone has read my posts on Buckwheat's thread; Vascular Issues, and didn't find anything useful in them.
You may not think I could possibly know enough to make the recommendations I did, but I hope you will believe me when I say that I've met people who told me that HBOT actually made them worse. You've read my posts on OFRs (some people say they seem to make sense), and HBO increases the number of OFRs in your body. That's not good. I think it's why some people come out even worse after HBO. I've been urging people to take grape seed extract during HBO for years, and I haven't yet heard from anyone who took it and then got worse. I have read about others who got worse, but since I'm about the only one urging GSE, I don't think they could have ever heard about it. Humor me, and buy some GSE...Vic |
Here is the link to the "Vascular Issues" thread.
It has alot of very good HBOT information in it. http://neurotalk.psychcentral.com/thread12682.html |
Quote:
Hi Melody, I had a problem with Oxygen toxicity with my first dive and had a seizure but I am prone to seizures so it is no surprise. Yes it did help but as I said my treatment started a long way into my illness and I believe that the earlier the better for this treatment as with most. The only other effect was general tiredness and boredom caused by sitting still for 2 hours. Some people have sore ears if they don't learn how to equalise just as you do in an areoplane. The staff will help you with this. I have shared a chamber with many people who have RSD/CRPS and nobody reported any negative effects at all, infact most were very happy with the results. I had mine done at the Hyperbaric Chamber of the Trauma centre of a major public hospital. Wishing you luck Tayla:hug: |
Hi All,
I forgot to mention i had an ear infection from the hyperbaric oxygen. If your ear did not pop or have pain, please tell the tech to go slowly. I had continious pain after the first few treatment and then i found out i had an ear infection. Take care! Numb |
My daughter's pain responded to hyperbarics, achieving complete pain relief after 22 high pressure treatments. Through trial and error, we learned that her pain would resurface after about 6 - 8 weeks, so we have purchased a mild chamber for our home that has done a great job of keeping her pain under control.
jenno |
Jenno,
Did you say you had purchased a mild chamber for your daughter to use at home? Can you operate the chamber on your own w/o a license? How much does it cost to purchase the chamber? I heard some one mention you can rent a chamber. Does your daughter's pain completely gone after using the chamber regulary? Can you use it on a ongoing basis? Thanks! Numb |
Hi Numb,
My daughter first did high pressure treatments in a clinic. It took 22 of these treatments to stop her pain; but we found that it would come back every 6 to 8 weeks when they were discontinued. We would then return for boost treatments, with her pain resolving each time after only 3 (we would do 6 while there, since we had to travel 5 hours from home). This went on for many months (she did a total of 75 treatments) until we began to investigate our options. We were not sure if the mild chambers would be sufficient as they are at a lower pressure than she had been receiving and it is not 100% oxygen. At the time she tried one out, her pain had returned; but thankfully it did in fact stop it, again within 3 treatments. We purchased a chamber, and it has done a remarkable job of keeping her pain away. Our chamber cost $18,500, and no you do not need a license to operate it in your home. You do, however, need a prescription to purchase. It has an oxygen concentrator (no oxygen tanks), so it is not 100% oxygen ... thus diminishing the concern of oxygen toixicity. I sometimes wonder if a mild chamber would have stopped the pain initially or if it took the high pressure treatments to do that. Either way, we are just so thankful that we now have a way to help her. She too was very hypersensitive to medications so we were desperate to find other options. I did find a place that rents chambers, so if you would like further info on that I could try to find my notes. Yes, you can use the mild chamber on an ongoing basis. My daughter gets in for about an hour most days; and she loves it. From what I have read, hyperbarics do not address RSD pain for everyone; but we are so thankful for what they do for our daughter. I guess the only way to know if they help, is to try them out. Although it did take 22 treatments to stop the pain, it was quickly apparent that her pain was responding ... if I remember right, within 6 treatments. Hope this answers your questions, and don't hesitate to ask if you come up with others. Jeanne |
Hi Numb,
My daughter first did high pressure treatments in a clinic. It took 22 of these treatments to stop her pain; but we found that it would come back every 6 to 8 weeks when they were discontinued. We would then return for boost treatments, with her pain resolving each time after only 3 (we would do 6 while there, since we had to travel 5 hours from home). This went on for many months (she did a total of 75 treatments) until we began to investigate our options. We were not sure if the mild chambers would be sufficient as they are at a lower pressure than she had been receiving and it is not 100% oxygen. At the time she tried one out, her pain had returned; but thankfully it did in fact stop it, again within 3 treatments. We purchased a chamber, and it has done a remarkable job of keeping her pain away. Our chamber cost $18,500, and no you do not need a license to operate it in your home. You do, however, need a prescription to purchase. It has an oxygen concentrator (no oxygen tanks), so it is not 100% oxygen ... thus diminishing the concern of oxygen toixicity. I sometimes wonder if a mild chamber would have stopped the pain initially or if it took the high pressure treatments to do that. Either way, we are just so thankful that we now have a way to help her. She too was very hypersensitive to medications so we were desperate to find other options. I did find a place that rents chambers, so if you would like further info on that I could try to find my notes. Yes, you can use the mild chamber on an ongoing basis. My daughter gets in for about an hour most days; and she loves it. From what I have read, hyperbarics do not address RSD pain for everyone; but we are so thankful for what they do for our daughter. I guess the only way to know if they help, is to try them out. Although it did take 22 treatments to stop the pain, it was quickly apparent that her pain was responding ... if I remember right, within 6 treatments. Hope this answers your questions, and don't hesitate to ask if you come up with others. Jeanne |
Jenno,
Thanks for your reply! I am so glad that your daughter's pain is relieved by the ongoing use of the mild chamber. May i ask you how old is your daughter? How long did she had her RSD before using the HBO therapy? I am wonder is age a factor. I am 49 years old. I also noticed improvement a few sessions after the HBO. However, i did not obtain a complete pain relief after even 30 sessions. Instead i had about 40 to 50 % reduction of pain after the 30 sessions. Therefore, i have been wondering what if i went back and have more HBO or different prescription, etc. to see whether or not i will achieve more pain relief. For the moment, i am not looking into renting one. When the time come, i will post here again so that you can help me out. Vic, In regards to GSE, is it a supplement? Where can i get it? I am willing to try anything that may help the RSD pain. Numb |
Hi again,
My daughter will be 17 next month. She started hyperbarics 2-1/2 years after being diagnosed with RSD. If I remember correctly, her first treatments were at 2.4 ATA for 90 minutes. Later they were at 2.0, as the original treatments were very fatiguing for her. Her home chamber is about 1.5. There is a neurologist in Florida (Allan Spiegel, Palm Harbor, FL) who has had a lot of success treating RSD with hyperbarics. His office mailed me a DVD of testimonials by patients who had successfully been treated with hyperbarics. They were of varied ages, some having had RSD for over 20 years, all having found no relief through previous treatments. This is not where we went, but I appreciate that they are getting the word out about hyperbarics. I tried to attach a link but I have not made enough posts yet. One more thing I wanted to mention. A person would have to be fairly mobile to get in and out of the home chambers, so they would not work for all RSD sufferers. Wishing you the best in your search for answers & help!! Jeanne |
This is an article about a girl that lives in the UK, has RSD and has an HBOT chamber in her house.
Hope it helps: http://www.rsd-crps.co.uk/conf3.htm#zoe Thanks Alison |
Hi Ali,
Isn't Zoe's story amazing!! Have you started hyperbarics yet? Sure hope that you will have your own miracle story to share. Jeanne |
Hi Alision and Jeanne,
Thanks for the info! I did not realize that the HBO pressure should be no more than 2. My doc prescribed me with 2.5 ATA for 30 sessions. I also don't realize you will need HBO for the rest of your life to maintain the improvment. numb |
Hey Numb,
My daughter's first 40 treatments were at 2.4. They cut them down to 2.0 later as that was less fatiguing. Further research will hopefully better define the best pressure. As far as needing hyperbarcis the rest of your life ... that too is yet to be seen. If that proves to be the case, that is probably not much different than taking meds the rest of your life ... especially if you can access them in your own home. Hoping that more and more people have access to treatments so that some of these answers will be available. Take care. Jeanne |
Jeanne,
I have more questions. Have your daughter been using HOB every day at home? Is there an side effect for the continue use of HOB,i.e. organ demage, etc? Numb |
Numb,
My daughter does use her chamber most every day (usually for about an hour); however, it has been recommended that she take off a few days every now and then just to give her ears a rest. As far as your question about organ damage, I have never heard of that being a possible complication. From what I have read, hbot has very few side effects; but ideally more research will need to be done to further clarify the facts about hbot for RSD. Sadly, I think it will be a long while before all the answers you are looking for are available. Did you read the other post today about hbot? That person, too, has their own chamber and may be able to provide you with some help. I know from reading your other posts that you are seriously looking at all your options ... and I wish you the best in this search for the best possible treatment. Jeanne |
| All times are GMT -5. The time now is 05:25 PM. |
Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.
vBulletin Optimisation provided by
vB Optimise (Lite) -
vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.