? about my LP report
 

I got a copy of my LP results and at the bottom of the page it says "Continued on Next Page". It's just like the blood work papers from the same lab but at the end of the blood work papers it says "Last Page of Report".

I asked the neuro's nurse if there was another page and she said NO, I told her that the bottom of the page said "Continued on Next Page" and she said there wasn't another page on the LP. The nurse did say before they got the report that it would take a while that the report was very detailed and lengthy. ONE page with 19 items is detailed and lengthy!


Is there a lot of things on the LP reports? I have the Cell Count (includes 10 items) and the MS Profile (inducing 9 items) and Glucose, protein & VDRL. Is this all an LP is? I know that some have asked me how something had looked on my LP from here or MSW and it wasn't on my report so I feel like maybe there was more of the report.

If I call the lab is there any way they tell me if there was more than one page or even send it to me?

I'm sure they would provide it if you ask. Make the call and let us know :)

I just went to there web site to find a phone number and under FAQ is was clear To call the Dr about any ?'s on the report and to get copies of the report that the Dr would have to help me they couldn't. :rolleyes:

Yes, but you could call and ask if there was a second page, the the doctor only got one and it clearly states there is another page....if there is another page, tell them to forward it to the doc.....:confused::confused:

Thanks, I just feel like the Dr HAS it and doesn't want to tell me because he told me the report Looked Good! and it clearly doesn't Look Good, he will not answer my ?'s about the MBP being high or the Lymphs being 100% or the Monocytes being 0% or the fact that the IgG rate indicates I may have just come out of a flair, which I did. All he says is "It's Fine"!

Also this office keeps ALL the files on the computer and the nurse has sent me a copy of everything in my file but at the last visit he was looking at my file and I saw about 25 pages, I got 16!

I guess I should have asked if anyone every got a real "report" also like with the MRI's. I thought this is what the nurse was telling me since she said the LP report was detailed and lengthly.

Ask for your medical records from your neuro to seek a second opinion. You'll have your whole file and know exactly what he thinks, and what the reports show in their entierty <sp?>


Good luck

OK, I just did. But I told them it was for my new PCP. What to make a bet I don't get anything new sent to me, just the stuff she has sent me already? :rolleyes:
You know I just have this gut feeling they aren't being honest with me, the nurse came in at 1st at the last visit and said make sure you really understand what the Dr is saying, if you still have ?'s he doesn't answer ask him again, make sure he goes over EVERYTHING. Than after the visit she asked if everything was OK and if I understood. :confused:

Ethically speaking, the doctors have a duty to supply all the reports and all the transcribed notes to you for every visit and every test. I hope he is as ethical as he should be. Let us know what the reports say...

Did you call the place where you had your LP and ask if there was a missing page? I wouldn't expect them to hand it over or discuss it with you, but if something is missing, surely they will make sure the doc gets it....

Well I just got the emailed file, nothing new. He's notes are still wrong also and there is NO copy of my SX list.

The lab will no tell me anything about the report.

Very disturbing.

Go to your PCP and ask them to retrieve your file then. Then go in and talk it all over with him/her and get a referral to a MS Specialist if there are any in your area. I have to fly to Seattle if I want that....so good luck finding one in your area!!!

Hay how would you know if the LP was positive or negative? Just because to Dr says so?

Sorry I can't get off this. :icon_frown: I just really feel there is more to my report and I can't find any answers.

When I get my results today, I'll see if I'm able to answer this question for you....at the moment, I'm clueless :p

:hug:

I would demand in writing that the lab provide you with a full report of findings. That is what worked for me (lab had kept telling me to ask my doc, but they responded pretty darn quick after they got that letter form me.

Could your insurance company help you wth this? Or perhaps the nice nurse you spoke of? Just a thought.

You currently have three threads going, with pieces of information about your history, test results, etc. in each thread. I'm having a hard time keeping track of all the bits to the puzzle, so I thought I'd bring this posting over here:


I'm perplexed as to the reason that any doctor would even want to hold this information back, if he is. :confused: What purpose would this serve him (and you) to try to deceive you? If the results did come back indicative of MS (or something else), why do you think he would say otherwise, and hold back this piece of information from you?

The results that you have gotten back, about your MBP levels, etc. would not be diagnostic criteria for MS. Only O-bands and MRI lesions (of a certain type), plus neurological/clinical testing . . . and he is saying they are all fine.

My neuro (and doc) do not spend much time testing me in their offices either (5 -10 min, max), when I go in for my annual visit. They KNOW what to look for in a split second.

You are in limbo, and as I said in a prior posting, they will NOT give you a dx without the tell-tale test results for MS. It is frustrating, no doubt . . . but NOTHING you do will change that. :cool:

I have a good friend who I've known for 4 yrs (who's an occasional member here too) who has virtually the same results and symptoms as you. I told her then what I've said to you too. . . you will cause yourself considerable grief if you continue to pursue this right now. There is no evidence of MS, and until there is, there is nothing any doctor can do. Unfortunately, even WHEN there is evidence, there is often very little that doctors (and medication) can do for us. :rolleyes:

I do think it is worthwhile to get a second opinion, if only to put your mind at ease. However, as I understand your history, this may be a second opinion (had one 4 yrs ago...?), so it seems you are just going to stay in limbo for somewhat longer.

I think you are stressing way too much about something that nothing can be done about. I understand why you would, TOTALLY, but worrying is not going to change anything. :hug:

Cherie

A thought:

send an email to the doctor and ask him to break down all the results. Ask him what the 'norm' is for each of the tests performed, and how it compares to yours....and if yours are not within the norm...then to explain what that means in laymans terms...so you understand.

I did, he didn't answer that email (I have to send it to the nurse and the nurse sends it to him and sends the answer back to her to send to me :confused: ) instead he called my DH and told him my LP was OK.
I came right out and asked him to tell me why the Lymphs were at 100% (should be 40-80), why the Monocytes was 0% (should be 15-45), why the RBC were at 12 (should be None Seen), why the MBP was high at 4.2 (should be 0.0-1.0) and if the -2.1 of the IgG rate really did indicate I could have just had a flair (it was in the normal rang of -9.9 - +3.3, but I had read that in a - range could indicate just having a flair).

Sounds like you've done all you can...and why did he call DH? Isn't that illegal to divulge a patients history/results to anyone but the patient? Unless you agreed to this.....

Guess it just goes right back to the PCP....or a new Neuro. I'd say you are still in limbo and have to get a second opinion. Maybe when you reach my age you'll have more showing up? Not that mine are giving me answers....but I have more showing now than I did then :rolleyes:

I'm about out of here for my (drumroll) results.....

EDIT: If you asked him directly about thos results....he must have had an answer?

Good Luck on your results, hope you get real answers. :Good-Luck:

He didn't answer me, just called DH and told him my LP was OK. :confused:

Dump him quick and find another!

LOL, This was my thinking. :winky:

Hey Julie - I've been following this thread, and I want you to know that I am so sorry that you have been "blessed" with such a neuro! I agree that you should find a new neuro (prob an MS specialist) pronto. And I do think that you should not take ANY notes at all from this guy you're seeing now...nothing to indicate anything from another doc. You might just want to take MRI films, LP results, bloodwork results, and a brief and detailed symptom list.

When I got dx'd it was quick, but since my dx'ing doc didn't prescribe DMD's (he felt they didn't work) I got some other opinions. Your doc sounds a heck of a lot like my second opinion (yes, I fired him).

I'm not any type of medical professional, but as I remember, if your LP shows RBC's it usually means that the doc nicked a blood vessel so there was some blood in the sample - not the best thing, but it does happen. Also, the myelin basic protein and IgG tests are two factors some docs use to dx MS...the specialist that I used to see relied mostly on MRI, IgG index and IgG synthesis rate.

OK, writing a book here, but I want to stress that an MS specialist is probably the way to go here...please hang in there, and keep us posted, OK?

Thank you, I was pretty sure the RBC was just blood in the sample, after all he stick me 6 times before he got fluid. :(

If you are in the US, you have a right to your medical records. You will have to sign a release and then they have to give them to you. They might fuss that you need to get them from your doc, but in the end they have to give them to you.

I would call the lab and say that you are assembling records to take to a new doc and you need the lab reports. Then ask them to fax or mail you a release form. Even better is if there is an office you can go to in person to get the form filled out and signed. Was this done at a hospital? If so, there is a central medical records office you can go to.

Thank you, yes I am in the US (Texas). The LP was done at the Dr's office, still doesn't the Dr's office send file to a central medical records office of some kind? I was just thinking this is how we got most of our kids shot records after we moved. Maybe the immunization records are different.