Limbo Checkin 1/30/2008
 

Morning all,

I'll start. The coffee is brewed and still have cinnamon rolls left over reheating in the micro :)

We got about 2 feet of snow in the past week or so, been hanging around zero and I'm glad to say goodbye to January once again!

My Neuro called yesterday to confirm my appointment...TODAY....I thought it was tomorrow. So I'll just say for now that I'm going in to get my LP result today and I'll update you all when I get home. I'm bracing for another clear test and if this is the case, I'll be choosing to move on with life and put this nasty mess behind me until or if I get a new sx that I can't ignore.

I've completed all my goals. I did the mammogram, the pelvic ultra sound, the pap, the spine doctor, the Neuro-Optho, The 3 MRI's, the VEP's, and the LP.

I've started school and its quite a big elephant, but I'm managing to move on with life despite this hiatus in my life. DH and I are very seriouse about a big move out of AK for a few years to jump start our lives again and, and....

I just want peace and comfort in my life. That's it.

I did think of something last night my spine doc said....he said something about not having sx', so I reminded him of my buzzing arms and legs and he said, "Yeah, that could be the MS"....I did sign a form when I got there the other day releasing my LP results to him...but I didn't think to ask him.....it just occured to me that HE saw my LP results, and he made that statement....but WHO KNOWS?????

I will in about 2 hours

:grouphug:

Greenjeans- as silly as this sounds, I hope they find something! It seems as if having a "Name" will at least give a direction (not to mention a form of validation) and soething to attack. Limbo land bites and I personally am tired of it. Let us know what they say!

As for me I am doing nothing but wasting time this morning. I have loads of stuff to do and plenty of backed up work staring at me but I am just tired and blah feeling.

Husband is still away and I miss him. I am also a bit jealous he iis working so hard helping his mother (more so than around here). Dont get me wrong, I love him and appreciate all he does, I guess I am tired of playing single parent 24/7. Yup, that must be it... time fo rhim to come home and help out.

Getting worried about my dog. He has a pancreas disorder and is so painfully thin. Everything we have done isnt working and I wonder how much longer he can survive like this. I dont know what I would do without his companionship. All you fur parents know what I mean.

Enough bummer comments from me. Time to go get my fanny ingear and snap out of it! Hope all are doing well or at least better. Here is a cheer to getting off the Island!!
jane

Poor doggie!!! When I lost my oldest dog last spring, I couldn't imagine replacing her...but we finally did last month and she is a bundle of joy. Have you considered a puppy...I know it sounds morbid to replace her now...but in preparation? We humans know our animals and can feel when the time is near. How sad for you and the kids! Our young dog who survived her 'sister' was such an important factor in helping to get over our loss at that time...and the new puppy is more for her than us...she was very lonely and we just couldn't stand it....

Your DH sounds like he is running away from life....I'm with you, time to man up, come home and be a supportive husband and father. I pray this happens soon. You have a right to be upset and feeling dismissed. Maybe we should 'box his ears" ;)

Hope you feel better soon today....a new day has dawned and despite everything, it is a gift we must not take for granted (easier said than done!)

Greenjeans let us know who todays visit goes.

Nothing new to report on me, I have be posting ALL my going ons on the board this week and haven't left anything out, LOL :p I have been sick the WHOLE month of Jan. with something so hoping Feb. is a better month for me. Going to see a new PCP and if she feels I need to see a neuro than going to see the new one that I had the appointment set for last Monday that I had to cancel on because of my sick kids.

Lifting you up in prayer for solid answers!!

DITTO!!!:wink:

Hello everyone,
Not too many people here...GJ, hope that you get some solid info one way or another. You've had a rough time of it lately, and you deserve to get on with life.

I've been all right this week. Trying to fight off the depression that hit me like a brick late Dec. I still am convinced that it was from getting off of oral prednisone...I've never in my life had a depressive episode hit me that quickly or that hard.
I finally confided in my DH how miserable I've been feeling lately, and telling him helps so much. Why I don't confide in him more often I'll never know:o.

My sxs have still been mild since being on prednisone, but they're still sneaking in a bit at a time. Neuropathic pain is becoming stronger and lasting longer once again:mad:. Fasciculations increasing over more of my body than just the legs. And tremors in new appendages.
And my brain...oh gosh. This morning, I fed my dog. While he was eating, I got his antihistamines ready, and took a Prilosec out of my pill pile. I swallowed my pill, looked down at the counter, and realized I'd taken his pills...2 antihistamines, which I'm hypersensitive to. Needless to say, I slept almost all morning!
Hope all of you have a wonderful week...stay dry/warm, whatever the weather. And try to enjoy the small special moments of each day!

I totally forgot today was Wednesday.

:o

I was submitting 2 stories today and entered that in my wirting journal, had to check the date to put that under and thought OMG! But please wish me luck getting one of those stories published. One's for a contest, one's a regular submission. ( I was informed the last one I sent last year for a contest was good, but not good enough. Oh well.)

:p

So then I looked all over to see if somebody had started the check in - thanks, GJ! - and finally found you here.

I'm seeing my PCP in another week. But I need to call the pain clinic soon. My hip has been in a lot of pain for a week and a half, need the cane when I go out. Having some pain under the left shoulder blade too. Walking gimpy like that is throwing my whole body off though, making my good leg and back ache too. Time to do something about that.

GJ - fingers crossed for you. Hope you get some answers.

Jane - prayers for your fur baby. I do get it. I usually like my critters better than my people, lol. Even when they're naughty. Not a bad idea getting another puppy - Sophie's last few months were enriched a lot when we got little Ozzy, and it was a great relief to me to have him to hold when she was gone.

I don't know what I'd have done with no dog at all, you know?

MomX7 - I got every bug my kids had, and they had them all when they were little. I'm so glad they're grown now. Hope you're feeling better and stay well.



Debbie - OMG! Those things knock me out too!

Best wishes to all of you!! I posted a farewell on the 'ms chat' board...hope you get a chance to stop in and see me close the book on this period of my life.....

Good luck in your search....

Had expected to be out of limbo but as you can see ... still waiting :(

Last Thursday was supposed to be my much (and long) awaited, "tie up the loose ends with my neuro," appt.

It was, however, once again re-scheduled, so I still do not know whether my 5 O bands, positive VEP and BAER, repeat and documented ON, and eons of other documented time and space will be attributed to MS or to CIDP ....

All I do know, and only second hand from another Dr. who spoke to my neuro., is that he plans on giving me some type of IV treatment. Somedaaaay....over the rainbooooow.......:winky: No, I do love my neuro and his staff, they are just seriously overworked.

They did fit me in next week, rather than in the month and a half they originally were going for.

Threw me for a loop....cancer, no cancer, wierd syndromes no wierd syndromes, appt. no appt., I was down in the dumps to the umpteenth degree!! :girl(sad):

Anyway, I've bounced back, wish I could send some positive "vibes" to you folks, but sick fur buddies, absent spouses, and Dr.'s who speak to you of anxiety need so much more. Thoughts are with you all though, for some improvements...
...and with BRAIN for the winninig entry and an accepted piece. :winner_first_h4h:

Missed you folks,

tante

Hi all, sorry i'm late.nothing new to report,still in limbo:(
But hey it could be worse.
next week i'll bring bagels.
Cheers:)

Just checking in.
Saw my Neuro today for the 3 month check (actually saw the NP). Not happy with the visit but won't go into details now.

Hope all is reasonably well with everybody

Ok OK, NOW I feel at home here. Thanks Greenjeans for starting this post.
Sarah, you did a great job of starting your own kind of check-in-chat on MSWorld.

So I never felt so disconnected as I did until I saw this post/forum.
To think this is where I started so many years ago on the Epilepsy forum.

Forget how winter, esp the cold plays its part in sapping my energy.

Will see the seizure/sleep study neuro in a few weeks. Nothing major there I hope. He thinks i have form of narcolepsy.

Cancelled my f/u with the MS neuro. Why? IT just costs me money in co-pays. I also am seeing my new Rheumy... too many dang doctors.

So.. my goal is to eliminate docs as much as I possibly can.

Good luck in publishing your writings Brain/Cathy!

Healing love and warmth..

Jan