Really down tonight.
 

I just got back from seeing my PCP. He gave me some shots to calm down some of my pelvic pain.

We talked about my Gyno I saw yesterday. He thinks it's a good ideal for them to do some exploratory surgery. He thinks they are going to do it with a scope. I didn't have the heart to tell him that he thinks they will have to open me up again.

My blood pressure was 134 over 100. I am dealing with chest pain so he is making me an appt. for a heart Dr. He says I am a great canidate for heart trouble. My cholestral is over 300. We can't get it down no matter what. I can't take the meds to get it down. The last angiogram I had showed CAD in one artery so he is thinking that something is going on. My fatigue has become worse.

My spelling is getting worse too. LOL. I swear I know I am spelling these words wrong but my brain won't let me figure out how to spell them right. I use to be good in spelling and I am too lazy to use the spell checker.

I just hate all of this starting with Drs. again. It's never ending.

Hope all of you are having a better day then I am having.

Ada

Oh Ada,

I can so relate!!! What you describe is almost identical to what I have going on at the moment.

Lets see right sided pelvic pain, they think is endometriosis which is probably on my appendix and bowels. Gonna have to do lap surgery too.

They put me on birth contrl pills to try to help it but to no avail, those pills just raised my blood presure into the 130's and 140's. I also had chest pains and the palpiations were unnerving. But it was all hormones

My cholesterol is 280 and I have found a couple of ways to bring it down that I can share with you.

Hormones are all out of whack and I show estrogen deficient which is causing my fatigue but I cant take the estrogen because it makes the endo worse.

Ada, are you up in No Cal?

Pm me if you want to talk more and compare notes.

Sorry Ada
 

I'm so sorry Ada!

You have my sincere sympathy with everything.

I felt that same way when I was told my CRPS was in question and I should get more tests. I hated being up in the air with my heath again, explaining to new doctors EVERYTHING, new side effects from raised prescriptions, the fear of what could be wrong etc.

It all just totally bites, and I really can relate because my experience was recent so the feelings are still quite fresh. (Especially since it may not be over yet!!!)

Please keep us posted, I hope you are alright! I'm worried about your chest pain and fatigue...

Could your symptoms be from the anxiety and exhaustion of the entire concept of going through it all again, being explored in a surgical manner?
It really wouldn't surprise me one bit...what a nightmare for you!

So sorry again Ada! Please let me know if there is anything I can do...from afar at least. :heartthrob:

Lots of love and prayers your way Hun!
:hug:

GHL

Sorry Shelley!
 

Sorry to you as well Shelley.

Your experiences are so much alike, I can't imagine going through all that.

I wish you well also and hope you keep us posted!

:hug:

GHL

My prayers are with you. I hope you can get some relief soon.

Ada,
That never-ending Drs. feeling can be overwhelming. I remember I flat out quit treatments at one point because I lost all emotional stamina to go back to a doctor one more time (after going to at least 11 different ones for the RSD). Hang in there. I wish you peace and will pray for you tonight.
Hopealot

Hi Girls,
 

Thanks for the replies.

Shelly, I did PM you about the Endo and the Cholesterol. I had the Endo and that's why my Gyno says I am going through what I am now.

Marla, my chest pain and heart problems started back when the RSD and TOS started. I went through a treadmill test then on to a test where they inject meds into you to make your heart speed up and then went back later to have a test done where it was slowed down. That turned out abnormal so I ended up in the hospital for an Angiogram. Now I am going back again. My Dr. thinks that I am dealing with more problems now due to the stress. I think the stress of losing Bill and then waiting for my kids to get moved so I can rent my house out and even dealing with renting it has all gotten to me. I woke up stressed today and can't seem to calm down. I am also sick at my stomach. That might be from the shots I got yesterday. I guess the RSD can bring on anything.

GHL, I have been watching what you have been going through also. I think they need to start treating your RSD instead of arguing over wheather you have it or not. Some Drs. think they know it all and then it is a fight to get them to agree on anything. I do hope they start helping you here soon with the RSD to get it calmed down.

Friends2u, Welcome to the group. I am glad you found us and I know you will get some help from everyone here and support.

I woke up tired this morning and sick to my stomach. I was laying in bed trying to decide if I want to go through all of this again over my heart. I hated the hospital I was in so I think they are sending me to the Springs this time to a new heart Dr. that they use now. My last one, I didn't like.

Thanks again for all of the support. I really am glad that all of you are here.

Ada

Hi Marla,
 

That is a good ideal about taking time to lay down and close my eyes. My Dr. stays after me to do relaxation and meditation. He has worked with me on all of that.

My problem is, I am hyper. I cannot sit still for long. If I lay down I start thinking about what I need to do next. My mind never stops working.

I always feel like I have a hundred things going on and don't know which to do first.

I am going to try and do the relaxation and meditation again. I wish my mind and brain had a shut off button on it. LOL

Thanks for your support. I hope that tomorrow your test turn out ok. I bet it was a downer wanting to have an SCS for pain and then find out you can't due to the possible heart problems.

Have a good day.

Ada

Hi Marla,
 

I do hope your test turns out ok. I still don't know if I want to go through those test again. I hated it. I think one thing that made me mad is the hospital and the way they treated me there and also the Dr. was a joke. I didn't like the ideal that they showed me a film of what they were going to do. I'd just as soon not known. I might go so far as the treatmill test and that is it. Do you know what kind of test they are going to do to you yet?

My husband was the same way as yours. He got to the point to where he couldn't keep up with everything wrong with me so he'd just take me to all of my appts. and listen to me tell him afterward and go on. Our Dr. pretty much kept him up on what he needed to do to help me. He councelled us both and that helped. He sure helped Bill through his last days.

My story is way too long but I got sick in 87 and have had 22 surgeries since 95.
I was blessed with a good husband, and daughter and my Dr. Bill took me to every appt. and no complaints, Susan is my caregiver now, and my Dr. has been there for me forever it seems too. He's one of my best friends. I would have killed myself had I not had the support I needed.

I am glad you have your family. That is the best thing to help a person through what people have to go through these days. I always feel bad for people who have no one in their lives.

Do let me know how it turns out. I hope good.

Ada

Hi Ada,

I know what you mean about your story being too long, yours however sounds so much more painful than mine with those 22 surgeries in such a short period of time. My heart goes out to you!!

Yesterday I got really good news from my Cardiologist. I took my Chemical Stress Test, wasn't too bad if you don't mind feeling as if your heart is going to burst and ooze out of your ears...hahaha, but all in all the results were good. I do have some mild leakage, which is nothing major, but I have no blockage and no reason why I can't proceed with the SCS, so on Monday I will call my pain management doctor and see about getting that all set up. But I was so happy yesterday as well as relieved. Felt as if a boulder was removed from my shoulders, and with my Osteoporosis my spine so thankful!! hahahaha. So I won that battle and am on to another....:mf_swordfight: But I am so ready!!

Thank you so much for your support and prayers, it helped!!

Love, Peace & Blessings,
Marla
RSD Coach TM

Marla then Ada
 

Marla, I am so so happy for you that your heart is doing better and you can proceed with yourSCS best wishes ans prayers for you for success.

Ada, Hi, so sorry for your suffering, I m not sure what year you are in with RSD - but I used to be hyper off the charts- i am at 4.5 years of- now, full body rsd. Eventually, I did lay down one of my swords, fighting this , finally really slowed down.

I had too- I was suffering from the level of pain. All the mediation stuff- deep breathing- streching advice I had been given orgianlly and blown off is now critical as we can "choose" in some degree , most days , how far we are going to let our pain go. I hope that makes sense. what I mean is that if I wake up in a level 6 pain instead of 4- to me that know means DANGER- slow down, take an epson salt bath, cancel outing plans for the day if any- do something very relaxing- drink water, chill... before i used to ignore this lean on my meds and go after the day. If I behave I can ususally keep it from going back to a 9. Not always but often. This is very empowering once you get into it. For me it was almost like a slow process of accepting parts of my body BACK, piece by piece. Wow i goT on a role here. thanks for listenting and God bless.!cz

Seeing as you can't take the cholesterol meds., have you given any thought to trying cinnamon. I have friends who have been able to control their high cholesterol with it. You get it at the health food store or an online vitamin type site. It comes in capsules. There has been research supporting this but can't remember where. Do some online research then speak with your doc. Hey, it can't hurt. Also, you need the capsules as you need to consume at least 2 tsp a day probably more in your case. Research then talk with your doc. Hang in there! Marilyn