I almost want to cry, Ouch!
 

I keep getting chill bumps and it hurts when I get them. I'm not running a fever, I'm not cold, I'm not sitting in a draft. :confused: Ouch!

I'm getting them about 5-10 times a minute! Ouch! I'm getting them from my scalp to my ankles, OK there not really on my scalp but I "feel" them pain wise there and on my face. Ouch!

Maybe this is just waves of pain and I'm getting the chill bumps because.... because I don't know way. Ouch!

It really comes in waves from my scalp and than rolls down my whole body. Ouch!

:Sob: Somebody make it stop. Ouch!
I feel like I'm going crasy. Ouch!

Oh lord PLEASE don't tell my neuro I said that, he already thinks it's just anxiety causing all my SX. Ouch!

Well it slowed down (2-5 a minute) and sometimes I feel the pain roll down me and don't get the chill bumps. :confused:

chill bumps? or are these muscle spasm? i get the spasm a lot and muscle twitching where u can actually see the muscle moving under your skin, love showing those to deb freaks her out:rolleyes:

No it's not muscle spasms, you know when you get chilled and the "goose bumps or chill bumps" pop up all over you? It's that but painful and it rolls down my body. It's like every little bump is a needle pocking me.

OK, that's it I must be crazy. :Sob:

Gee Julie, if its not one thing, its another!! Poor you!! Have you started a sx diary? Hope it passes soon! :hug:

It sounds almost like an allergic reaction to something. Have you eaten anything new? Are you wearing something new? Using a different detergent or fabric softener? Taking a new medication (OTC or script)? Got a new pet?

Hope you're feeling better by now......:hug:

SX diary, what SX diary, oh wait I remember, I forgot, or I didn't have time, or the kids keep me busy, no really I must have forgotten. :p

No, bad girl I haven't even started a SX diary. http://i90.photobucket.com/albums/k2...paperbag-1.gif

Please mommy don't make me, I don't wanna. :Sob:

Ouch!

OK, I'll get right on than, no really I will, soon.
:OuttaHere:

Nope, Nope, Nope, Nope and Nope.:Dunno:

Ouch!

LOL! If you go to your old posts, you could do a cut and paste job with the dates and everything! Then you have the past few months too :)

I feel the ouch up here! :D

Do pain killers help with this, or do you have any?

:hug:

I don't know yet, I just toke one about 10 minutes ago because I have an awful headache now.
I "feel" like I'm running a temp so I keep checking and it's only 98.0, I run low tho (97.5 most of the time), so now I'm setting here waiting on the pain pill to kick in or the temp to go up or even both.

The whole pain rolling down me thing has slowed a little move but happens almost every time I move now.

I've never heard of this description of pain, so i googled "chill bumps pain" and found a posting by someone saying something similar. Coincidentally, it's written by a "julie" too, several years ago, and the answer was that is it is likely a symptom of some kind of "peripheral nerve disease".

http://www.medhelp.org/forums/neuro/archive/8826.html

Cherie

:eek: OMG, My last name starts with an F also, freaky! :eek:

OK, now I really want to cry. I have a spot that I get recurring shingles and the pain I get with it is the same kind of pain I have now.

Thank you for the link, I'm going to Google and see what else I can find.
I know I don't have diabetes tho, I have had hypoglycemic from childhood and 3 years ago were IR after being DX with PCOS so I have a meter and check my self andy time I feel I need to.


I don't want to jump to any conclusions but this would explain a lot of my pain and a few odd things. I didn't see numbness listed tho or con fog/memory loss, LOL.


Oh wait, my neuro did that EMG test on me because my last Dr. said neuropathy pain (that's way I was on the Lyrica) and after the test my neuro said I did NOT have neuropathy.

Well I found out you can get chill bumps (or goose bumps, what ever you want to call them) from pain.

So I had pain rolling down my body over and over again and most of the times was getting the chill bumps at the same time. I still don't understand why the "rolling pain" was coming over and over agin.
I have had pain roll down me before but never over and over for so long. Most of the time the pain would roll down me 3-4 times tops.

I have looked and looked and I can't find this associated with fibro. :confused:

Oh and I toke the pain pill yesterday and it did nothing for the pain, oddly tho the chill bumps stopped coming a little over an hour after I toke the pill. But I still had the rolling pain about 2 a minute for a few more hours.



Forgot to say the pain hasn't stop completely, I'm still having this pain roll down me but it's not coming very often now (only happened 3 times so far today).

Although I've never heard it described exactly as you have, there's lots out there on similar symptoms with Fb, i.e. some of the most common symptoms with Fb include: tingling, numbness, skin sensitivities, etc:

http://www.fmnetnews.com/basics-criteria.php

"Sensations of numbness, tingling, burning, or a crawling sensation are often described in association with Fibromyalgia. Thus, it is difficult to seperate if the symptoms are coming from fibromyalgia or peripheral neuropathy"

http://www.medhelp.org/forums/arthri...ssages/32.html

Peripheral Neuropathy And Fibromyalgia - Connection, Symptoms and Treatments:

http://www.healthfitnesswellbeing.co...bromyalgia.htm

Fibromyalgia seen as a neuropathic pain syndrome

http://www.medscape.com/viewarticle/538562

Funny, I thought of this thread when I was watching a creepy program last night. I am currently numb in various parts of my body, and when I got totally spooked :eek: by something on the show, my goose bumps jumped to attention. I felt them in a different way then usual in my numb areas . . . so maybe it is a combination of neuropathy with anxiety/fear that is making this so difficult for you right now . . .?

Cherie

LOL, Oh yah Cherie pull the anxiety card on me again, LOL. :p
No, I know what you mean.
I was sure I did have neuropathy (after all my last Dr for 2 years was treating me for it and said I had it) but than when my neuro did the EMG he said "NO, I didn't have neuropathy", so now I'm wondering if you can have a "nerve pain issue" that would be negative on a EMG test. :confused:

All I know is I have pain (feels like nerve pain to me) a lot that pain meds don't help with (even Lyrica) and now all this numbness is making things harder for me.

I'm having more burning pain now than I have ever had.

The tinnitus is really getting to me.

My memory is SO bad now.

For the 1st time yesterday I was having a hard time driving because my right foot was partly numb and tingling and I couldn't tell how much I was even pushing the peddle. :(

I still don't have all the feeling back in my lower body and it's been about 9 weeks now. :(

LOL, I feel like checking my shelf in the hospital and telling them I'm not leaving and they "fix" me, LOL. They might not be able to DX with with anything but I know I'm broken some how.

If you find a hospital that can fix these types of problems, I'll be on the very next flight. ;)

Cherie

I think there's a good hospital in Hawaii. :OuttaHere:

One more vent, with this numbness I don't know I need to "go" until my bladder is in pain and it's time to go NOW. :Bang-Head:

Sounds like a UTI or yeast infection. Get tested!

Cherie

I don't have pain when going, and the "pain" my bladder is gone as soon as I go, it's just the really full bladder "discomfort".
I'm also leaking some right after I'm done.

Whoa, Julie. ;) :)

Ok, now let's see if I can get this out coherently

YES, you can have "nerve pain issues" (neuropathy) that don't (doesn't) show on EMGs and probably lots of folks here on this board are in that position.

EMGs are done to check for electrical impulses produced in your muscles and you probably had a Nerve Conduction Test (nasty little needles and shocks)
along with it which measures how quickly messages are carried by your nerves, i.e. to check for Carpal Tunnel Syndrome.

Both of these can be perfectly normal and the person can still have a multitude of neuropathies stemming FROM WITHIN the brain and/orspinal cord rather than from nerves going TO or FROM the brain or spinal cord.

Is it possible the Doc said you didn't have Peripheral Neuropathy? That would fit better.

:hug:

:Ponder: If you are numb, it makes sense there's no pain when going. :Ponder:

Get checked . . . I ignored the full bladder feeling until I went into a full blown paralysis attack from a UTI !!

Cherie

Agreed! Get it checked, please.

I NEVER have pain with urination when I have UTIs, they used to be caught only incidentally to other hospitalizations for my 5-8 week long whatever those episodes were.

:hug:

ITA, get checked. Better safe than sorry.

BTW, I found that I was spending a lot of time on the message boards when I didn't really think that I had "time" to keep a sx journal. Turns out that when I was on the message boards all I had to do was open Word and type out my sx for the day. Bam! Easy. Done. And MULTITASKING--a mom's best friend (especially with as many little rug rats as you have). ;)

Here's what he wrote at the bottom of the test:

Diagnosis:
729.1-fibromyalgia
782.00-paresthesia

Comments:
Her SX are very nonspecific. There are no real objective deficit suggesting a significant central or peripheral nerve system disease. Apparently she has been told that she had neuropathy in the past though the EMG and nerve conduction study today does not reveal any sign of the nerve, root, or plexus lesion. It is possible her SX are related to fibro. Ruling out organic cause would be appropriate.



He did 2 test, that needle shock thing and the metal thing they put on you and shock you over and over again in the same place.

Well, the nice thing about that is that he says you have fibro and acknowledges that. He also does not say that you have a strong non-organic component, which means that while he can't put a finger on it, he doesn't think you're totally nuts and creating the sx. Ruling out organic causes is nice. He wants to make sure that other things aren' causing whatever it is that ails ya.

It's my same beef with two neurologists looking at MRIs and seeing different things. He's not seeing what the other neuro did and/or he's discounting that based on what he found himself.

All's not horrible with this. Unfortunately, it doesn't say exactly WHAT it is that is causing everything for you.

Yet another non-specific answer to a problem. Life's full of 'em. Too bad we can't write up non-specific reports on the docs. :)

OK, what does organic mean in this case?

I still have this going on, I have been thinking about how else to describe the feeling of the pain. It's a little like pins and needles and tingling pain. Not like when you sit on your leg funny and your foot falls asleep and tingles, more like a needle poking you tingle. The tingling last about 4-5 seconds in each spot, from head to toe the whole thing last 15-20 seconds total. It's hard to describe an odd pain that rolls down your whole body like a wave. :confused:

I have been getting this for some time but it never happened over and over again and most of the time it would only happen in one spot (like just part of one arm or just one hip).