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Limbo check in 3/5
Bring out yer dead! Oops, wrong movie... :o Hi everybody! * luring GJ in with donuts* Coffee is on, and the goodies are on the bar. I hafta pass on that stuff or Green Peace will keep throwing me back into the bay. My name is NOT Willie! How did you like that, 60 degrees Monday, ice and snow yesterday? What do we get today, a volcano and tsumani? :p so how are all of you? |
Well I woke up this morning to an awful headache, toke 2 vicoprofens (yes the stuff I'm allergic to, this is how bad the headache is) and some benadryl to keep the itching from being really bad about 2 hours ago. Headache is still bad, I'm itching and now have the hiccups, the vicoprofen gives me hiccups.
The weather here, OMG. the weekend was nice, Sunday high of 79 than Monday night it snowed, Today high of 66 and chance of snow tonight. It's crazy right now. |
Good Morning All. not to much new here except my legs are buzzing like mad.
1 more week until neuro appt. hope everyone has a good day Until next week CHEERS:) btw as you can see Brain the Guinness is on ME:D |
Does it have chocolate this week? Okay, Okay, I'm in :D
It's been in the 40s the past few days, high winds and melting snow. It's real ugly out there (dirty snow)! Ice is everywhere. I think I need my ice skates to get around town! My back has been just awful lately, and not been sleeping. Back on the drugs and I'm sick of being in pain. To think this is it for life just makes me want to end it all, ok not end it, but if I hadn't cried a zillion tears already, I'd be crying now. The PT told me yesterday that one of my disc's is not working right, or at all. He is writing a letter to my Spine Doc. We also have a new spine expert in the city they have been advertising at my preferred hospital, and considering going to see him. He does disc replacement type surgeries. I don't WANT to do this, but I'm thinking I may truely be a candidate. Most MS type sx are gone and who knows if and when they will return. I'm hoping never :D See my Therepist again today. I told him I can't afford to see him every week, as my Ins only pays half :mad: But I'm continuing until I believe I'm done with this. I hate doing this and am now forceing myself. I don't feel depressed, angry or anxious. My School (MT) is going well but it's very hard. I never knew how hard it was going to be. I worry that I'm too stupid to get it. I am not good at verbs, sentence structure ect....at least not reading about it. I can look at a sentence and "know" what needs to be done, but to call it what it is....I'm just not good at remembering these things. I figure there are people dumber than me that do this, so I keep plugging away :D I hope things are going well for each of you and hope this week brings better things for all of us. |
Hello and Oh Happy Daze~!!
I am going for my 2nd sleep study tonight, but this time will have the CPAP on in order to regulate how I will use it. Next I see this neuro to get my RX for it AND talk to him about what my Rheumy thinks it wrong. The Rheumy does think these "episodes" I get are autonomic dysfunction, EXACTLY what I told my MS neuro's nurse last November when she called. She told the MS neuro called back and said he didnt think so. Autonomic dysfuncton is a problem that can come from having lesions with MS. Hmmm... BUT the other neuro thinks its Narcolepsy with cataplexy. I just dont buy it. My "episodes" aren't sudden nor do I ever sleep. I do get very weak but then my heart/bp and oxygen levels are going wild. I LOOK unconscious but can HEAR it all!! THATS why the Neuro thinks its cataplexy. The diagnoistic train moves on... and on.... I am ok though. BUT I notice I stop breathing a lot during the day... so.. who knows? Hope you all are improving, gettin relief or finding answeris.. Brain... how's your pain level?? relief yet? luv you all ~! Warmly Jan |
ahh, McG, and Guiness, and I thought I'd have to come back later. ;) Maybe I should leave it all for you and GJ anyway, buzzy legs and back pain could stand a dose.
I'm a bit afraid. No, I'm scared....I've been on oral prednisone for over 3 months now, and yes it tamps down the pain & inflammation and attacks...fact I've had one bout of ON per ophth while on it and other long periods of garbage and none were as bad as prior ones. BUT, I don't have any of the things the prescribing Dr. thought I had, just CNS problems, and that Doc didn't plan on seeing me any more. Of course she didn't arrange for someone else to do anything about the Prednisone either, nor.....bahh.... Anyway, I insisted on one last appt to find out how to taper off this stuff. And I wish I didn't need to, I'm dreading it, but I need to get off. Anyway, I'm taking advantage of the additional energy, and decreased (in comparison) pain/sx/flares to try and get a few extras done around here before it's out of my system. Now for an early Guiness, fewer calories than that donut, hee hee. Hope that Cathy shook that bug and MX7, that you're feeling some measure of relief by now, you've just had too much garbage to put up with; Jan that diagnostic train you speak of? Sounds More like an ole paddle wheel down the Chatahootchee during this drought. Stuck on a sand bar...:rolleyes: Wish some gentle hugs could help. GJ it probably wouldn't be enough by itself, but how about asking that cute l'il PT person about a TENs unit...my dh and I each have one and they help some, but not all problems...nice to have around if for nothing other than to take the edge off. Btw, I can really relate to looking at the written word and correcting it, but not being able name or lable the needed change. :hug: to all of you |
Hey, where is everyone today? Is everyone off of Limbo Island??
Been suffering from a cold since Sunday...hacking cough, no energy, and I look as bad as I feel. Hope it goes away before DH and I take off for Hawaii next week... Not too many sxs lately...just the twitchy calves/feet/back. Also been experiencing spasming muscles in the same areas. Eye exam turned out well...no problems, as far as Dr. could see. Relief! I see the neuro next Wed. Until then, oil me up, cabana boy, I need to tan! Until next week, take care! |
hey where is the boat? I want off Limbo Island! I am in the process of being dx with SOMETHING don't have a clue (oh wait yes i do) it is something neurological in all likely hood b/c the symptoms are just too weird and too real to be all in my head. Can any body out there relate to this?
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BOBcatsrule... sorry for your struggle. What are your symptoms?
What does your doc think? Let us know how you are ok? Warmly, Jan |
ATTENTION PLEASE!!!!
Could you all please post in a larger font size than what is offered? Size 3 or more? I have blurry vision and its just too difficult to read. Thanks Jan[/SIZE] |
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Thanks Jan. It's funny, I use a size 3 here, but since none off the other threads seem to use other than default size, I feel awkward doing so in them. Kinda like as the new(ish) kid on the block, who is already great at thread stoppers, :o I shouldn't do anything else that is too different from the norm. But what happens then is, I rarely post on other threads because reading the tiny font is just too hard. |
I've tried to increase the size--I click on one of the larger numbers, but then the print goes back to normal.How do you get the size you choose to stick?
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You can do it two ways. If you click on size first then you have to start typing your words between the brackets (insert curser betweeen and then start typing), or, after writing everything, highlight your words and then click on the size. I have an easier time this way as I can see my initial spacing better. Hth. :) |
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-click on the window (anywhere that is empty space within the "window") that you use to look at the internet. -press the CtL key (that stands for control and it is located in the lower left hand side of your keyboard) and the + (plus) key (located in the upper right hand portion of the main keyboard). -hold the CtL key down and keep pressing the + key till the information becomes magnified to a setting you can see! *you will need to do this each time you open this program from scratch but it is how i set up my browser and is how i am typing to you now. as i too have doubble vision and blurry vision severely! warmly, bobcat! |
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I was just watching a Medical Mystery type show about narcolepsy/catoplexy. It affects everyone a little differently. They showed a girl going into these episodes, where she could hear and see what was going on around her. She did tend to go into it quickly, but not all of them did. The older woman just kind of stopped moving. Nobody noticed for a few seconds anything was up with her, and her breathing/heartrate stopped to a point she woke up in a morgue! She was pronounced dead! :eek: Thewre is some brain chemical they are studying that seems to get shut off in these people when they have certain good emotions. Happiness, being excited, laughing, etc seem to shut them down. Dogs who suffer from the same condition will lose control of their limbs when they eat or play vigorously. They quickly learn to lay down or they'll fall down. If I find a link to the show, I'll pm it to you. They are testing txs for these people with something that is simialr to what their brain is not making - seems to be working. Pretty bizarre, but interesting stuff. |
Bobcat, thank you so much for the CONTROl and + suggestion! It zooms in finer increments than does my zoom control, much, much better.
You made my day!! :) |
Someone had PMed me asked if I was doing any bet yet because it's been a long "flare". I don't remember things well and I didn't know that I had not post that I was doing better.
Well just to make sure everyone knows I am doing better, most of Jan. bad stuff was from the LP and all the sickness going around here and as my DH pointed out my SX were worst because of my fever. My feeling is the flare is over but I may just have numb legs from now on, that seams to be the real only lasting thing I have really going on right now other than the eye thing (it is still getting better tho). Oh and on the eye Dr, I don't think I'll be seeing him. It's back to the whole insurgents, he not on my plan so and money I pay will not go towards my deductible. Anyway DH said "No go" until we can work some out with them. The only other thing that's really going on is the odd face things. I still don't think it's TMJ because I don't really have jaw pain or clicking jaw. It's mostly my cheeks feel heavy. I don't like to use the "pain" word, it's not painful it's more of a not normal and a bit uncomfortable I guess, LOL. |
Thanks...You really cleared that up for me :D Welcome to the new normal :p
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Hey thanks for helping me and others out by raising this small font to a larger size.
And Brain I found some videos on My space or whatever those sites are that people take their own videos and post them. It showed that little girl who kept collapsing and a teen who kept falling down and all his friends were laughing at him. He finally asked that they put him on a couch since he could not remain upright. It was so sad. I dont have the sudden collapsing which is why I dont think its Cataplexy with Narcolepsy. I am open to what this Neuro thinks. He is rather excited that he may have been the one to dx me after nearly 15 plus years of these "episodes" I do think its autonomic dysfunction due to lesions. So does the Rheumy who wrote a letter saying what he "thinks" too. He also believes that is what caused my lesions due to uncontrolled BP as a result. I see this neuro on the 20th. Wish me luck...maybe soon, or this year I will get answers. ONe way they DX narcolepsy is by napping !!! If you fall into REM sleep quickly enough you are then DX with Narcolepsy. AND sometimes you "space out" means you are having "mini naps" cuz your brain is not getting enough rest during the night. There are all kinds of medical complications but its not progressive or terminal. Stay tuned... Jan |
Joy, oh Jan You changed font colors, and I can read it!
Now I need to back track and see what has been going on w/ the narcolepsy v or w/catalepsy :confused:. I think after your closing of "Stay tuned" there should be... for scenes from the next, As the REM TURNS ;) |
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