neuro on vacation
 

Had to call the neuro today - legs are full of spasticity - Buzzing down my neck & back is back (L'Mittes?) - tongue & half of face is numb..... so tired and pain in my legs.

Neuro is on vacation till Tuesday but I did speak to her nurse and she had me call my PCP - she had me increased my Baclofen to 80 mg a day - make sure I take my Darvocet tonight and call her in the morning to let her know how I am. The nurse at Neuro told me that everything that is going on is all part of MS and since I have a probable this will help with the dx. I don't want a dx if this is how I am going to feel. I want to be me again.....

Just wanted to check in before going to bed. I don't feel good and I know the depression isn't helping me.... I need to get over the feeling sorry for myself. Riverwild told me I was going to have the "why me" stage - I am here. Cried coming home from class tonight...... I don't want to feel like this. Why me I asked myself and that I remembered RW and I talking about it. This really stinks (wanted to use a harsher word but know I can't)

ok, I am going to take the Darvocet and head to bed - I just hope this doesn't last long and I am better soon.

thanks for listening and letting me vent.

Oh, Char, it is hard, there is no doubt about that. But, you will get through this current hurdle because you are tough. There is a grain of wisdom from a wise woman I know, she says that, "Tough times don't last, tough people do."

Get yourself some rest and let us know how the upped dose did for you. :hug:

Sorry to hear this, I hope a good night's sleep finds you feeling better in the morning!

(((YB))) I am so sorry that you are not feeling well. With a definite diagnosis you will run a gamut of emotions. Always remember that we are here for you to help you through this. I am glad you took the time to post how you are feeling. I think that is great.

Take care, get some rest and "post us" in the morning.:hug:

:hug: Just sending hugs your way :hug:

Feel better soon

awww... bummer yb... it really does stink when you are reminded that ms has a mind of its own...

even after the dx, there is still the "i can't believe this is happening to me" dh replies, "i believe it"

:hug:

Pity party tonight!

New day tomorrow!

Hope things are better for you this morning, sweetie. Remember, whatever He doesn't take away, He gets us through.

Thanks Cindy - sometimes "I" forget I say that when it comes to myself. Thanks for the reminder

Thank tkrik - I knew I would feel better just getting it out and who better to
get it out to than the folks who understand how I feel..... that is what makes this place so great!

B2U - My Gram, the person who I looked up to and meant the most to me for so many years, used to say something close to that.... "He wouldn't put it on your plate if he didn't think you could handle it". I sometimes think he is over loading my plate and I am ready to break but when I look to him for guidance I always seem to make it through...... thanks B2U.

This morning the spasticity (not as severe as yesterday though), tongue & face numbness and the L'Mette's are all still there, but the pain has subsided with the Darvocet and that makes a world of difference! I have a really hard time dealing with pain. Stiffness, Spasms & numbness I can deal with...... pain is another story. I am just hoping it will last through the day until I can take another Darvocet when I get home tonight.....

Thank you everyone for your support - I knew this was the place to come..... and emotionally I am better this morning as well. Just had to get it off my chest. :o

Ahhh Char!

I posted here last night, or I tried to, but Vista decided to update itself and shut me down before it actually got posted. I am glad to hear you sounding better this morning.

We ALL go through this, sometimes repeatedly.:( I always go back to what Mary said to me once about better living through chemistry. I didn't want to take any pharmaceuticals and I finally got around to the fact that my life HAD changed now and if I was going to keep ON GOING, I had to ask for meds.

It ain't easy trying to tell a doc what is happening when YOU don't even know what or why. I still keep a log of symptoms and where it hurts and when I go to the doc, they get the list. Pain gets rated on the 1-10 scale.

It's a LOT OF WORK!!

You've just gone back to school and work after a trip. You were sick. I'm willing to bet you're run down a bit too, along with the depression. Stop being so darned hard on you, you're doing the very best you can!

This isn't a lecture, it's me standing beside you and letting ya lean on me!

Let us know how you feel when you get home and if you need it, take another pill BEFORE it gets bad enough to make you cry! :hug::hug:

Translation:

"...letting ya' lean on my knee.";)

:Thats-Funneh: too funny...

Char, I am sorry and just sending hugs. Jim takes 90mgs of Baclofen a day and it seems to help him. I pray it will for you too. The "why me' stage is normal and important for you to go through. We've all asked that question sometime or another. But what your going to find is that a new woman will emerge. A stronger woman with determination to not let this monster take over. It's really the grieving process of losing a part of us but gaining a new sense of strength. There is nothing you can't do. You are inspiring to many of us here. Look at what you have accomplished. You work, go to school and raise a family. That is something to be proud of. You are stronger than you know Char.

Just know we are here for you. :hug:

this is good news, yb :)

i'm thinking of you today!

i hope you get home soon to the darvs ~ i ran out of vicodin this week, so 'borrowed' my dh darvocet ~ wow, what a nice lil break! :cool:

bummer tho that they make me loopee... that's probably why you can't take them til you get home... ...huh.... ugh.... i so hope your day goes by fast!

Dear YB,

I feel so bad that you're in this current situation but I'm pleased that the neuro's nurse took you seriously enough to work with your PCP to ramp up the dosage of Baclofen. I'm sure she wrote all of this in your chart for your neuro to review on his return. Great team work in her office. Be thankful!

I'm glad to hear that you are feeling "somewhat" better today and got some sleep last night. Dealing with all of this and a lack of quality sleep really brings the house down. (No punn intended regarding the witch and the Wizard of Oz.)

You will be in my thoughts today and I hope you're able to get through it and cope. Positive thoughts your way............:hug:

YB - I am glad you are doing better today.

Char..........
You just need to come back to MO.......
You would NOT belive the weather here this week.........

Last 2 mornings I was sitting outside drinking coffee, eating blue berry bagels listening for turkey's..........

GOD is so good to give us SPRINGTIME...........

Good medicine for the soul and the body........I suddenl feel 10 years younger (until the humidity kics in at least)

Did the neuros nurse make you an appt for when the neuro gets back from vacation?
Did she say she would make notes in your charts of these events? You know documentation is so important for you at this time.

and I know what you said about not wanting a DX IF THIS IS HOW ITS IS GONNA BE....WELL HUN....I am afraid this is how its gonna be dx or not.....but let me tell ya...the peice of mind in Knowing for sure....and the help with the meds and the finally understanding what its all about....the dx "does" make a difference.

Sure you will go through all the why me's and several other issues......but when yu get it all down in your mind......the peace of mind in knowing "its not just all in your head" wow....it makes a total difference.

Dont know if that is true for everyone but it sure was for me......

I know we all keep saying "oh get some rest and blah blah....but I tell you what it is the defining factor in alot of the issues dealing with MS......
Hang in there my friend.....and come and let it out anytime ya need to.....whom better then those whom are in the same shoes.....
YA KNOW!!!!!!

Hugs SS!!!!!!!!!!!!!!!!!!!!!!!!!!!

Sorry I didn't see this last night Char~ I wasn't online much... I'm sorry for all that you are going through. You have had such a rough time of it. Let's hope that tomorrow is even a little better, OK??

I'm sure thinking of you!!!

http://dl2.glitter-graphics.net/pub/...wlqmk7c6no.gif

Glad to hear the neuro's nurse was on the ball. I hope that you had a better day today. :hug:

Cimmz I got some you can have - I can't take it - my body says NO WAY!!!!


Thank you everyone! Yes, my neuro's nurse documented everything in my chart and also sent him a page to let him know. She is so good!:)

My PCP called today and wants me to also add 800 mg of Ibuprofin in the morning and around 2:00 and then the Darvocet at night time until I see the neuro.... this afternoon around 3 or so the pain was getting to the point it was really getting to me. I took the Ibuprofin and that did help a little but I am ready for the Darvocet now and really an hour or so ago..... Still stiff / spasms in legs but dealing with it.

thanks again everyone! this is a good place!

Hope you are feeling better YB!

Huggy!:hug:

I would offer to help with your homework...but you would probably flunk it!:D

Glad you're feeling a little better today Char. I'm glad the doctor's are taking you seriously and giving you meds for your symptoms. I hope the extra rest will help a lot. I know I get run down very easily and a long, good night's sleep can help a lot.

Don't overdo it sweetie! School and work together can be very tiring! :hug:

Char,

Please take it easy! I know...easier said than done!

I have been thinking about you alot this week because I haven't been feeling well either and my sx sound very similar to yours. It sounds like your spirit is a little better which is very important.

If you need anything, I am not too far away from you! Just call or let me know! :hug:

are you doing? It has been a REALLY long week but I am trying hard to mentally make myself feel better. :hug:

I am actually doing much better today! I made it through a full day of work...if that is anything to be excited about. I am still tired and a little numb but the balloon-head is gone.

I hope you have a better week this week. Keep in touch!:hug: